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by cartech78
Mon Aug 19, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32680

Re: My CRC with liver mets journey

Its pretty rare to see Dr.Kemeny keep people on maintenance chemo for life when you are declared NED. Her general road map with most people seems to be systemic for 6 months after being declared NED and HAI pump treatments unless the luver enzymes start to climb. If you are NED by way of liver rese...
by cartech78
Mon Aug 19, 2019 1:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump vs. SIRT
Replies: 6
Views: 410

Re: Pump vs. SIRT

Id go “and did” with the pump first as I believe SIRT can rule you out of being a candidate for the pump but you can do it after the pump from what I have been told. Also the latest data on SIRT isn’t exactly great either. Just my 2 cents.
by cartech78
Mon Aug 19, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32680

Re: My CRC with liver mets journey

Lol, I meant after chemo is finished. Are you declared NED? Wait and watch? Frequent scans? Do you still have to go see your oncologist still? Got it! I am hoping after my next surgery in November - second liver resection - they will declare me NED. Then I would have 3-6 months of mop-up chemo. I k...
by cartech78
Tue Aug 13, 2019 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: cat vs mri vs pet scan
Replies: 3
Views: 401

Re: cat vs mri vs pet scan

Different scans work better for different organs! MRI is better on liver vs ct scan but on lungs the CT scan is better. The pet scan to my knowledge i thought was the best because any tumors actually light up. This is my understanding but im not a doctor so it’s possible im wrong a little here as we...
by cartech78
Wed Aug 07, 2019 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2176

Re: How crucial is the HAI pump?

Go right away for the pump like the others have said! I got mine put in on 3/6/19 . I was originally supposed to have a partial liver resection at the same time but they found an additional 20 tumors the scans didn’t show when they went in fora total of 27 tumors. My surgeon (Dr.Kingham) at MSK clo...
by cartech78
Wed Aug 07, 2019 12:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 2176

Re: How crucial is the HAI pump?

Go right away for the pump like the others have said! I got mine put in on 3/6/19 . I was originally supposed to have a partial liver resection at the same time but they found an additional 20 tumors the scans didn’t show when they went in fora total of 27 tumors. My surgeon (Dr.Kingham) at MSK clos...
by cartech78
Tue Apr 23, 2019 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI Pump Flow Problem
Replies: 2
Views: 534

Re: HAI Pump Flow Problem

My situation is different but the catheter for my pump is not in the main hepatic artery they usually use as mine is so narrow they couldn’t make it work. Dr.Kingham installed in a different artery which I don’t remember the name of and luckily it still profused to the entire liver.
by cartech78
Mon Apr 08, 2019 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32680

Re: My CRC with liver mets journey

Thats good you had very minor affected lymph nodes. I have read studies that say its a positive prognostic indicator. I never had any blood thinners short of those heaprin shots. The pump chemo is easy cause you don’t get side effects from it. They started me on Folfiri this week and let me tell yo...
by cartech78
Mon Apr 08, 2019 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32680

Re: My CRC with liver mets journey

Well I must be doing well because they want to start the pump chemo TODAY. We were just expecting saline. Glad I had sushi yesterday! Sounds like they only found one affected lymph node, near the colon, which was removed during surgery. Pathology on all the other nodes was negative. I was a bit sur...
by cartech78
Thu Mar 28, 2019 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 2130

Re: HAI pump criteria

There is a doctor named Paul Wright that does HAI pumps at spectrum health in Grand Rapids Michigan. You can try him.
by cartech78
Thu Mar 28, 2019 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32680

Re: My CRC with liver mets journey

Surgery went well yesterday, both surgeons are happy. The pump placement went first and sounds like it went flawlessly, with the blue dye flowing to the liver and nowhere else. The colon resection turned out to be a little trickier, they ended up having to remove one ovary. They started me on a ver...
by cartech78
Wed Jan 16, 2019 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK patients with HAI pump - prep for Dr K meeting
Replies: 37
Views: 5283

Re: MSK patients with HAI pump - prep for Dr K meeting

My pre surgery test is on the 23 of February and if everything is good it looks like surgery will be the following week. Interesting enough, Dr Kemeny told me the surgeons didn’t feel like i was resectable currently but i was a good candidate for the pump. When i met with Dr.Kingham, my surgeon he ...
by cartech78
Wed Jan 16, 2019 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK patients with HAI pump - prep for Dr K meeting
Replies: 37
Views: 5283

Re: MSK patients with HAI pump - prep for Dr K meeting

Done with my consult. It was good if efficient. Dr K knew what we were after and got straight to the point of discussing treatment. I just had chemo Monday; she wants me to do two more rounds (which would bring me to 8 total) and then come back for a scan to determine if I am ready for a resection ...
by cartech78
Sat Jan 12, 2019 7:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK patients with HAI pump - prep for Dr K meeting
Replies: 37
Views: 5283

Re: MSK patients with HAI pump - prep for Dr K meeting

I see your in the HAI pump people group now! I thought it might be you. Good luck with your appointment. I stay at the residence inn by Marriot on east 48th st. Its a couple blicks walk from MSK and they offer discounts to MSK patients. Its a nice place. I'm not in the group but my husband Per is! ...
by cartech78
Fri Jan 11, 2019 11:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK patients with HAI pump - prep for Dr K meeting
Replies: 37
Views: 5283

Re: MSK patients with HAI pump - prep for Dr K meeting

My local (west coast) oncologist had no problem working with Dr. Kemeny. You'll get chemo in the pump every month in NYC, and the other times you'll get saline, which can be injected locally. It was understood in my cancer center that Dr. K would be directing the treatment so they followed her orde...

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