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by cartech78
Sun Jan 26, 2020 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OLD HAI PUMP RETURNING - SLOAN
Replies: 3
Views: 982

Re: OLD HAI PUMP RETURNING - SLOAN

Congratulations! I cant wait to be where your husband is!!!!
by cartech78
Sun Jan 26, 2020 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I stand up to use the word cure(d)....
Replies: 49
Views: 9886

Re: I stand up to use the word cure(d)....

I love the word cured! I just hit NED recently so im still scared as shit that every spasm or muscle twitch is a tumor growing but if I can go a couple years im saying cured as well. Screw cancer!
by cartech78
Mon Jan 13, 2020 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The last thing I expected at my MSK appt today
Replies: 15
Views: 2715

Re: The last thing I expected at my MSK appt today

First of all, that is amazing news! Im so happy for you and to not have to do any clean up chemo is really awesome. It was really great to meet you and your husband today! I had my fingers and toes crossed that you would get good news. I know when the scan confirmed i was NED I literally cried and I...
by cartech78
Mon Dec 30, 2019 12:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI PUMP REMOVED
Replies: 5
Views: 1096

Re: HAI PUMP REMOVED

Congratulations!!! I gotta be honest, I never wanna have mine removed. Its the Medtronic too so it has to be serviced more then the Codman and thats a huge inconvenience but this thing literally saved my life and it will be hard for me to part with it when its time.
by cartech78
Thu Dec 12, 2019 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1678

Re: Memorial Sloan Kettering Hotel Option Question

The Bentley, cheapest to book online. The residence in on East 48th and Lexington is sometimes cheap. As others have mentioned the pod hotels. I would recommend a queen bedroom here though then you have your own bathroom and a little bigger room. I book hotels through my united airlines app and it s...
by cartech78
Mon Dec 09, 2019 12:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After HAI
Replies: 18
Views: 4295

Re: After HAI

So questions abound. I try not to stress over too much, after all Christmas is around the corner and my wonderful husband had the greatest surgery to get him on track for a long life with his nagging wife :) He has been losing a lot of weight, his appetite after surgery hasn't been at 100% but 4 we...
by cartech78
Tue Oct 22, 2019 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 344
Views: 74033

Re: My CRC with liver mets journey

Congratulations Gina! I heard on Facebook it went well and im so happy to hear your NED! Im close but not quite there yet! I see Dr.kingham Monday about surgery. Good luck on your recovery!
by cartech78
Mon Aug 19, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 344
Views: 74033

Re: My CRC with liver mets journey

Its pretty rare to see Dr.Kemeny keep people on maintenance chemo for life when you are declared NED. Her general road map with most people seems to be systemic for 6 months after being declared NED and HAI pump treatments unless the luver enzymes start to climb. If you are NED by way of liver rese...
by cartech78
Mon Aug 19, 2019 1:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump vs. SIRT
Replies: 6
Views: 860

Re: Pump vs. SIRT

Id go “and did” with the pump first as I believe SIRT can rule you out of being a candidate for the pump but you can do it after the pump from what I have been told. Also the latest data on SIRT isn’t exactly great either. Just my 2 cents.
by cartech78
Mon Aug 19, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 344
Views: 74033

Re: My CRC with liver mets journey

Lol, I meant after chemo is finished. Are you declared NED? Wait and watch? Frequent scans? Do you still have to go see your oncologist still? Got it! I am hoping after my next surgery in November - second liver resection - they will declare me NED. Then I would have 3-6 months of mop-up chemo. I k...
by cartech78
Tue Aug 13, 2019 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: cat vs mri vs pet scan
Replies: 6
Views: 1238

Re: cat vs mri vs pet scan

Different scans work better for different organs! MRI is better on liver vs ct scan but on lungs the CT scan is better. The pet scan to my knowledge i thought was the best because any tumors actually light up. This is my understanding but im not a doctor so it’s possible im wrong a little here as we...
by cartech78
Wed Aug 07, 2019 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 3675

Re: How crucial is the HAI pump?

Go right away for the pump like the others have said! I got mine put in on 3/6/19 . I was originally supposed to have a partial liver resection at the same time but they found an additional 20 tumors the scans didn’t show when they went in fora total of 27 tumors. My surgeon (Dr.Kingham) at MSK clo...
by cartech78
Wed Aug 07, 2019 12:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 3675

Re: How crucial is the HAI pump?

Go right away for the pump like the others have said! I got mine put in on 3/6/19 . I was originally supposed to have a partial liver resection at the same time but they found an additional 20 tumors the scans didn’t show when they went in fora total of 27 tumors. My surgeon (Dr.Kingham) at MSK clos...
by cartech78
Tue Apr 23, 2019 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI Pump Flow Problem
Replies: 2
Views: 766

Re: HAI Pump Flow Problem

My situation is different but the catheter for my pump is not in the main hepatic artery they usually use as mine is so narrow they couldn’t make it work. Dr.Kingham installed in a different artery which I don’t remember the name of and luckily it still profused to the entire liver.
by cartech78
Mon Apr 08, 2019 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 344
Views: 74033

Re: My CRC with liver mets journey

Thats good you had very minor affected lymph nodes. I have read studies that say its a positive prognostic indicator. I never had any blood thinners short of those heaprin shots. The pump chemo is easy cause you don’t get side effects from it. They started me on Folfiri this week and let me tell yo...

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