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by cartech78
Sun Oct 18, 2020 1:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So the news was not good....
Replies: 7
Views: 990

Re: So the news was not good....

I agree with what FightCRC said above. Dr. Kemeny is my doctor as well. When you want to be aggressive she’s the right doctor for that if/when possible. Hopefully you get out to see her soon and she formulates a plan to get you back to shrinking tumors as opposed to only keeping the stable. Good Luc...
by cartech78
Sun Sep 06, 2020 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncologist transition?
Replies: 3
Views: 727

Re: Oncologist transition?

Hey Gina. My last chemo was the first week of March so I was done right as things locked down. That’s also the last time I’ve been to NewYork. Can’t say I miss it much :P . I had scans done locally at Condell hospital on June 28th and mailed them myself to Dr.K. I’m supposed To head back for more on...
by cartech78
Fri Sep 04, 2020 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncologist transition?
Replies: 3
Views: 727

Re: Oncologist transition?

Hi Gina! I spoke with Dr.M on the phone once when I considered switching to Northwestern for my pump flushes. While she was very nice on the phone with me I have heard she is not the kindest Dr out there from some of her other patients on other groups. Equally, I have seen other patients who loved h...
by cartech78
Sat Aug 29, 2020 12:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 2578

Re: another HAI pump question and a short rant...

I had 23 tumors in my liver and the HAI pump got me operable. Thank God for Dr.Kemeny and MSK. The pump is a huge commitment but one that is worth it. When I first started this fight the first thing I did was researched other stage 4 patients did to hit NED. The pump was the common denominator in th...
by cartech78
Sun Jan 26, 2020 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OLD HAI PUMP RETURNING - SLOAN
Replies: 3
Views: 1007

Re: OLD HAI PUMP RETURNING - SLOAN

Congratulations! I cant wait to be where your husband is!!!!
by cartech78
Sun Jan 26, 2020 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I stand up to use the word cure(d)....
Replies: 51
Views: 11898

Re: I stand up to use the word cure(d)....

I love the word cured! I just hit NED recently so im still scared as shit that every spasm or muscle twitch is a tumor growing but if I can go a couple years im saying cured as well. Screw cancer!
by cartech78
Mon Jan 13, 2020 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The last thing I expected at my MSK appt today
Replies: 15
Views: 3531

Re: The last thing I expected at my MSK appt today

First of all, that is amazing news! Im so happy for you and to not have to do any clean up chemo is really awesome. It was really great to meet you and your husband today! I had my fingers and toes crossed that you would get good news. I know when the scan confirmed i was NED I literally cried and I...
by cartech78
Mon Dec 30, 2019 12:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI PUMP REMOVED
Replies: 5
Views: 1118

Re: HAI PUMP REMOVED

Congratulations!!! I gotta be honest, I never wanna have mine removed. Its the Medtronic too so it has to be serviced more then the Codman and thats a huge inconvenience but this thing literally saved my life and it will be hard for me to part with it when its time.
by cartech78
Thu Dec 12, 2019 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Memorial Sloan Kettering Hotel Option Question
Replies: 10
Views: 1706

Re: Memorial Sloan Kettering Hotel Option Question

The Bentley, cheapest to book online. The residence in on East 48th and Lexington is sometimes cheap. As others have mentioned the pod hotels. I would recommend a queen bedroom here though then you have your own bathroom and a little bigger room. I book hotels through my united airlines app and it s...
by cartech78
Mon Dec 09, 2019 12:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After HAI
Replies: 18
Views: 4368

Re: After HAI

So questions abound. I try not to stress over too much, after all Christmas is around the corner and my wonderful husband had the greatest surgery to get him on track for a long life with his nagging wife :) He has been losing a lot of weight, his appetite after surgery hasn't been at 100% but 4 we...
by cartech78
Tue Oct 22, 2019 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 374
Views: 89823

Re: My CRC with liver mets journey

Congratulations Gina! I heard on Facebook it went well and im so happy to hear your NED! Im close but not quite there yet! I see Dr.kingham Monday about surgery. Good luck on your recovery!
by cartech78
Mon Aug 19, 2019 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 374
Views: 89823

Re: My CRC with liver mets journey

Its pretty rare to see Dr.Kemeny keep people on maintenance chemo for life when you are declared NED. Her general road map with most people seems to be systemic for 6 months after being declared NED and HAI pump treatments unless the luver enzymes start to climb. If you are NED by way of liver rese...
by cartech78
Mon Aug 19, 2019 1:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump vs. SIRT
Replies: 6
Views: 865

Re: Pump vs. SIRT

Id go “and did” with the pump first as I believe SIRT can rule you out of being a candidate for the pump but you can do it after the pump from what I have been told. Also the latest data on SIRT isn’t exactly great either. Just my 2 cents.
by cartech78
Mon Aug 19, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 374
Views: 89823

Re: My CRC with liver mets journey

Lol, I meant after chemo is finished. Are you declared NED? Wait and watch? Frequent scans? Do you still have to go see your oncologist still? Got it! I am hoping after my next surgery in November - second liver resection - they will declare me NED. Then I would have 3-6 months of mop-up chemo. I k...
by cartech78
Tue Aug 13, 2019 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: cat vs mri vs pet scan
Replies: 6
Views: 1257

Re: cat vs mri vs pet scan

Different scans work better for different organs! MRI is better on liver vs ct scan but on lungs the CT scan is better. The pet scan to my knowledge i thought was the best because any tumors actually light up. This is my understanding but im not a doctor so it’s possible im wrong a little here as we...

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