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by Rock_Robster
Sun Apr 11, 2021 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does "We" Drive Anyone Else Crazy?
Replies: 2
Views: 215

Re: Does "We" Drive Anyone Else Crazy?

I don’t mind “we” in the context of decision making with wives, husbands, etc. as very often these are in fact joint decisions that affect everyone (although the patient is always at the centre of the ‘decision circle’). But if anyone says “we have cancer” I tend to throw up in my mouth a little. PS...
by Rock_Robster
Sun Apr 04, 2021 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy for Stage 2A
Replies: 7
Views: 563

Re: Chemotherapy for Stage 2A

I’m sorry about your news, but glad you found this group. This is such a tough call. I must say that my first impression based on what you describe was that CAPOX feels like overkill. This is a clear 2A with no additional high risk factors (except perhaps a slightly bulkier T3 tumour). The post-surg...
by Rock_Robster
Sat Apr 03, 2021 8:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post Surgery Issues
Replies: 5
Views: 483

Re: Post Surgery Issues

Hey Bwat, sorry about your experiences. I too have LARS, although not as bad as some. NHMike is clearly the foremast authority, however there’s also an awesome Facebook group called Living With Low Anterior Resection Syndrome (LARS), which is hugely helpful and I’ve learned a LOT from. Best of luck,...
by Rock_Robster
Sat Apr 03, 2021 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scan & deporting (stage IV)
Replies: 15
Views: 2113

Re: Clear scan & deporting (stage IV)

Thanks for all the encouragement all, overall I’m doing really well! I have some LARS from the rectal surgery, but I think I’m ‘lucky’ in that it’s relatively minor compared to what many people go through. I can mainly control it with Imodium, fasting, diet, and enemas if I have to. I still have bad...
by Rock_Robster
Sat Apr 03, 2021 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Applying for New Jobs Advice
Replies: 5
Views: 510

Re: Applying for New Jobs Advice

Congrats on the eMBA! I can’t comment on the sociolegal issues as I’m not in the US, but one suggestion would be to ask your onc if he’d be happy with you doing XELOX (CAPOX). This is the same “active” drugs, but you take the 5FU orally. It means you only have an infusion every 3 weeks rather than e...
by Rock_Robster
Sat Mar 27, 2021 5:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cyberknife or SBRT for lung mets
Replies: 3
Views: 535

Re: Cyberknife or SBRT for lung mets

Hi Annajane,

SBRT or similar could be a possibility but it really depends on the number, size and location of the mets. Can you give us a rough idea what you’re dealing with here in this regard?

Thanks, Rob
by Rock_Robster
Thu Mar 18, 2021 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: deported
Replies: 8
Views: 1714

Re: deported

Congrats! Me too - must be the week for it. How’s it feeling? Mine is actually more sore than I was expecting (not that I’m complaining).
by Rock_Robster
Mon Mar 15, 2021 4:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How easy is it to differentiate between benign liver spots and small mets on a CT scan?
Replies: 12
Views: 3728

Re: How easy is it to differentiate between benign liver spots and small mets on a CT scan?

My CT recent scan during final CAPOX cycle in Feb showed NED with the v small liver spots unchanged (this radiologist - rather than classifying them as cysts or fatty deposition - stated that differential diagnosis of these spots included cysts and hemangiomas). However, my most recent CEA has clim...
by Rock_Robster
Wed Mar 10, 2021 2:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scan & deporting (stage IV)
Replies: 15
Views: 2113

Re: Clear scan & deporting (stage IV)

AmyG wrote:OMG, YOU TOO?????

That's great news, I'm excited for you!

Thanks Amy! Actually it was your post that reminded me I should post something :) . Congrats!
by Rock_Robster
Tue Mar 09, 2021 3:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: KRAS Mutation G12V
Replies: 4
Views: 625

Re: KRAS Mutation G12V

A very good summary above. The other clinical point worth noting is that the presence of a KRAS mutation all but guarantees that a particular tumour won’t respond to treatment with EGFR inhibitors (such as Erbitux and Vectibix), so these should not be used. Because of this, KRAS (and NRAS) mutated t...
by Rock_Robster
Tue Mar 09, 2021 2:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scan & deporting (stage IV)
Replies: 15
Views: 2113

Clear scan & deporting (stage IV)

Well my 15-month PET was clear, and the onc wants to deport me next week. I’m a bit surprised but not complaining! He checked if I was superstitious about it; I’m not, so away it goes. We also had a negotiation about scan frequency - he was happy to go to 6 months but I’m still a little anxious so w...
by Rock_Robster
Sat Mar 06, 2021 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo/radiation - tablets or iv infusion?
Replies: 8
Views: 889

Re: Chemo/radiation - tablets or iv infusion?

All very good points above. The only other comment I’d make is that we need to be careful to not conflate information about capecitabine/5FU monotherapy, with the much lower dosages used when capecitabine is a radiosensitiser for chemoradiation. I took a total 2,000 mg/d of Xeloda during radiation w...
by Rock_Robster
Sat Mar 06, 2021 5:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo/radiation - tablets or iv infusion?
Replies: 8
Views: 889

Re: Chemo/radiation - tablets or iv infusion?

I did Xeloda (capecitabine) tablets for radiation rather than the 5-FU pump as if was much more convenient given the duration (5 weeks for me). Some people have slightly more side effects from tablets, though it’s a much lower dose with radiation than normal. One concern is sometimes regarding compl...
by Rock_Robster
Fri Mar 05, 2021 8:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have experience with Englewood Hospital in NJ?
Replies: 9
Views: 922

Re: Does anyone have experience with Englewood Hospital in NJ?

There’s more than enough red flags there for me to be pursuing a second opinion now, but I also wouldn’t delay starting treatment to get it. Honestly capecitabine monotherapy is relatively low risk (particularly in the early period) so it’s probably a low regret option to continue treatment whilst a...

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