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by Rock_Robster
Sat Aug 01, 2020 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When to do the HAI Pump?
Replies: 2
Views: 269

Re: When to do the HAI Pump?

I’m also not HAI myself as I’m not in the US, but from everything I’ve observed I think the best answer is “as soon as a reputable hospital would be prepared to offer you one”.
by Rock_Robster
Sun Jul 19, 2020 9:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pathology report - some good news, also unexpressed MSH6
Replies: 11
Views: 899

Re: Pathology report - some good news, also unexpressed MSH6

Hi. I second what CRguy said: colon cancer can bypass the liver and go straight to the lungs. Yes, it's less likely to act this way and yes, rectal cancers tend to do this more often than cancers in the colon. But don't forget this wise observation: "Cancer does whatever it wants." As for...
by Rock_Robster
Wed Jul 01, 2020 8:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible Liver Met
Replies: 3
Views: 412

Re: Possible Liver Met

Hey mate, I agree it could definitely be something else (I had several benign cysts), but also agree 3 months is too long to wait to find out. If it is a met, one small one with prompt treatment can still have a good prognosis. I’d be pushing for a PET now - it’s an absolutely appropriate modality f...
by Rock_Robster
Tue Jun 30, 2020 9:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not DX yet - Which questions should I ask my doctor?
Replies: 15
Views: 1097

Re: Not DX yet - Which questions should I ask my doctor?

Hi JC, welcome; sorry you have to be here, but glad you found us. Firstly although it may not feel like it, your post above is definitely trending toward ‘good’ news. With colorectal cancer, even a locally advanced adenocarcinoma (with or without lymph node involvement) is a very different animal co...
by Rock_Robster
Mon Jun 29, 2020 12:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413
Replies: 8
Views: 605

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Rock did you get the vertical stealth or the one that you have to move your bag horizontal? How are you doing Rock since Ileo reversal? Glad to see your 6 months scans are good as well. I am debating getting the stealth belt. I just want to conceal it a bit more, just this particular bag brand stic...
by Rock_Robster
Sat Jun 27, 2020 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413
Replies: 8
Views: 605

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

I assuming on the ostomy wraps you wear it only when your going out? Doesn't it feel constricting when your stoma is going to be active obviously this is unpredictable, so how do you work around that? I think I wrap is a good idea as well. I just don't want the thing to show lol. I wore the stealth...
by Rock_Robster
Fri Jun 26, 2020 2:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413
Replies: 8
Views: 605

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Stealth Belt!

www.stealthbelt.com

I used to use the one-piece system of this pouch. Great product but yes it does need a wrap or belt or similar.

Good luck,
Rob
by Rock_Robster
Sat Jun 20, 2020 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Today was the day!
Replies: 11
Views: 2231

Re: Today was the day!

2nd look of cap ct scan by hosp where I had surgery at is in. No evidence of metastatic disease. Everything was "normal" except the finding with ab/pelvic vessels it is worded "No significant abnormality." On after surgery report back end of Jan it was noted that I was high risk...
by Rock_Robster
Fri Jun 19, 2020 8:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 month scans clear
Replies: 21
Views: 2607

Re: 6 month scans clear

Thanks everyone! Looking forward to many more :D

Ben that’s amazing news about your 5 years - huge congratulations! If ever there was a milestone worth celebrating, this is a pretty good one. I look forward to joining you there in 4.5 years :wink:

Cheers
Rob
by Rock_Robster
Mon Jun 15, 2020 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 month scans clear
Replies: 21
Views: 2607

6 month scans clear

Hi all, of course it’s still early days but very pleased to say my 6 month scans (CT and liver MRI) were all clear. CEA 2.1. Hugely relieved!

Thanks
Rob
by Rock_Robster
Sat Jun 13, 2020 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dog Deworm Has cured some cancer in humans
Replies: 5
Views: 730

Re: Dog Deworm Has cured some cancer in humans

Hi Riki, I’m not going to give an opinion either way as I’m not informed enough but I will say there’s several quite large Facebook groups for using mebendazole in CRC and other cancers (as part of the COC protocol). The usual caveat of course is that it’s not without its own risks and side effects....
by Rock_Robster
Fri Jun 12, 2020 10:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Discouraging scans after liver resection, advice needed
Replies: 10
Views: 1465

Re: Discouraging scans after liver resection, advice needed

I had a small (14mm) spot pop up a few months after my first liver resection; surgeon reckons it was probably there to begin with but too small for scans and hiding in an awkward spot. Unfortunately it was too close to the hepatic vein for ablation to be reliable so they went back in and did another...
by Rock_Robster
Fri Jun 05, 2020 4:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal cancer metastasis to liver and lung
Replies: 14
Views: 1653

Re: Colorectal cancer metastasis to liver and lung

Hello, Today i got the result of (MSI) no loss of nuclear expression of mmr proteins: Low probability of MSI-H, so that means the patient not a good candidate of immunotherapy? Correct, it means the currently approved immunotherapies (being anti-PD-1 checkpoint inhibitors) are very unlikely to work...
by Rock_Robster
Thu Jun 04, 2020 3:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal cancer metastasis to liver and lung
Replies: 14
Views: 1653

Re: Colorectal cancer metastasis to liver and lung

Hello, Today we went to lab to inspect the MSI. does anyone has an idea about this test? I read a lot of article about it, I came to know that there are 3 resuls: MSI-H (high) and MSI-L (low) and MSS (stable). so which result is the best and how it helps the treatment? Thank you Just to add to the ...
by Rock_Robster
Fri May 22, 2020 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the club we never wanted to join...
Replies: 7
Views: 1222

Re: New to the club we never wanted to join...

I can share a bit of my experience on the fertility side. I was diagnosed with stage 4 rectal cancer at 36 years old. Before I started treatment I froze some sperm, and then had chemotherapy, pelvic radiation, and several surgeries. After I finished treatment earlier this year, I did a semen analysi...

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