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by Rock_Robster
Sun Jun 23, 2019 10:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 7
Views: 136

Re: Here we go. Xeloda dosage question

Yes that all makes sense. I just did them all at once - up about 6:30, breakfast, Xeloda, bathroom and water - then left about 7:15 for a 7:45 treatment. I also had to adjust the water quantity and timing a bit, as my bladder kept being too full, then not full enough... The only downside with this p...
by Rock_Robster
Sun Jun 23, 2019 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT shows my liver met is SMALLER!!
Replies: 16
Views: 268

Re: CT shows my liver met is SMALLER!!

That’s awesome news, AmyG! Based just on the longest measurement alone, that’s a 20% reduction which is very nice. However based on area visible on a 2D scan it’s more like a 50% reduction! And because of geometry fun, what you’ve quoted could correspond to up to ~60% reduction in tumour volume! (I’...
by Rock_Robster
Sun Jun 23, 2019 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here we go. Xeloda dosage question
Replies: 7
Views: 136

Re: Here we go. Xeloda dosage question

Hi SilverWedding, I’ve just finished 5 weeks of this so happy to help where I can! Firstly, you’re correct - what you are doing is called neoadjuvant chemoradiation therapy (CRT). Dosage: As others have said, please double-check with your onc or pharmacist on this. I was on 1500 mg, twice a day (175...
by Rock_Robster
Sun Jun 23, 2019 7:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 13
Views: 486

Re: Questions, questions, too many questions.

My liver surgeon told me "you'd be surprised how many people never get surgery when it is possible". Unfortunately I find this both unsurprising and borderline criminal. If the one thing I can achieve throughout this process is that every newly-diagnosed patient with liver mets gets an ea...
by Rock_Robster
Fri Jun 21, 2019 5:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 13
Views: 486

Re: Questions, questions, too many questions.

Hi Mohrfamily, I’m not an expert on this part, but here’s my two cents. Have you had a consultation directly with an aggressive liver surgeon? It might be time for a frank discussion with them (and your oncologist) about goals. It sounds like your goal is to get your husband to liver surgery (which ...
by Rock_Robster
Mon Jun 17, 2019 1:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 4
Views: 256

Re: A thought on chemo side effects

Can you post relevant studies? Of course: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5379656/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2361647/ [not CRC] https://bmccancer.biomedcentral.com/articles/10.1186/1471-2407-4-48 I believe I had one more CRC-relevant; let me see if I can dig it up an...
by Rock_Robster
Sun Jun 16, 2019 10:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 4
Views: 256

A thought on chemo side effects

I find it interesting that many patients (including myself) are told there is no relationship between chemo side effects and response - i.e. having more side effects does not predict a better response. This is even published by the peak cancer body in my country. However after some reading, it does ...
by Rock_Robster
Sun Jun 16, 2019 10:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Knicked ureter
Replies: 8
Views: 386

Re: Knicked ureter

Has anyone else had their ureter knicked during colon surgery? I had surgery May 7 to remove tumor from sigmoid and surgeon knicked my ureter (tube from kidney to bladder). I’ve since needed a Foley catheter and a naphrostomy bag. Which was surgically placed. I need another surgery to repair yester...
by Rock_Robster
Sun Jun 16, 2019 10:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 18
Views: 833

Re: Mop up chemo - Port vs non-port for Oxi?

In addition you get a cool bracelet to wear and card that shows you are in the club. LOL I forgot about the wrist band! (Not calling it a bracelet due to my fragile masculinity). I should dig that up and wear it. I do carry the card in my wallet but mainly due to paranoia about airport security - n...
by Rock_Robster
Thu Jun 13, 2019 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on attending a funeral?
Replies: 10
Views: 540

Re: Thoughts on attending a funeral?

Sadly I think I may also be in a similar situation relatively soon. Unfortunately it will also involve a flight across the country, which is one of the last things I feel like doing right now. My wife thinks I’m mad (seeing as I have the ultimate leave pass), but I think I’d like to go. For me, part...
by Rock_Robster
Wed Jun 12, 2019 5:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU as second line?
Replies: 12
Views: 758

Re: 5FU as second line?

Thanks mbpser, I now understand. My understanding is that when 5-FU monotherapy is used in an adjuvant setting (ie post curative surgery) it is typically for one of a few reasons, including: - tumours with relatively low risk of recurrence (eg stage II without high-risk features) - diminished patien...
by Rock_Robster
Tue Jun 11, 2019 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU as second line?
Replies: 12
Views: 758

Re: 5FU as second line?

mpbser wrote:Has anyone done, or heard of, only 5FU as a second-line treatment?

Just to clarify, do you mean true ‘second line’ - as in after failure (progression) on first line (FOLFOX or FOLFIRI)?

Or is this more about adjuvant or maintenance chemo?

Thanks, Rob
by Rock_Robster
Tue Jun 11, 2019 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 18
Views: 833

Re: Mop up chemo - Port vs non-port for Oxi?

Seems like everyone has different experiences with this - I did two rounds of FOLFOX without a port, and it was pretty rough. My veins did NOT like it at all, and my arm looked like a roadmap for a couple of months after. I actually think the long 5-FU infusion was tougher than the oxi - it’s just s...
by Rock_Robster
Mon Jun 10, 2019 5:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need thoughts
Replies: 20
Views: 1195

Re: Need thoughts

Quack Miranda Warning Anthony William has no medical expertise, but he communicates with spirits and gives medical advice. Since age four, he shocked his family by announcing that his symptom-free grandmother had lung cancer (which medical testing soon confirmed). Yeah I consider myself to be prett...
by Rock_Robster
Mon Jun 10, 2019 4:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How safe is Coffee?
Replies: 12
Views: 492

Re: How safe is Coffee?

mpbser wrote:I don’t believe acrylamide is naturally occurring. If it was found in coffee, there may have been some contamination from an external source.

It would seem to be a by-product of the roasting process:

https://www.ncbi.nlm.nih.gov/m/pubmed/24325083/

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