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by Rock_Robster
Sun Aug 18, 2019 8:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vitamins and supplements
Replies: 7
Views: 254

Re: Vitamins and supplements

Hi Amy, In addition to my onc I see a naturopath who specialises in cancer support; she has me on a lot of vitamins and supplements (in fairly high doses) when I’m not on chemo, mainly to help with recovering from surgeries and radiation, and also prep for more surgery... The basic list looks like v...
by Rock_Robster
Sun Aug 18, 2019 1:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 78
Views: 1914

Re: Diarrhea and bloating and gas, oh my!

It sounds like you’re on board with Jacques’ advice anyway TinaFish, but just a short anecdote to support... Whenever I’ve had extreme reactions to things the first suggestion is always to cut things back and add back in slowly. When I first started chemo I had a pretty horrific reaction - almost li...
by Rock_Robster
Fri Aug 16, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How crucial is the HAI pump?
Replies: 42
Views: 1546

Re: How crucial is the HAI pump?

Hi TinaFish, well done - sounds like a very good session.

I’m very pleased you have a referral to a hepatobiliary surgeon at a high-volume hospital. I hope you have a fruitful discussion with them.

Best wishes,
Rob
by Rock_Robster
Fri Aug 16, 2019 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid + Distant Lymph Nodes
Replies: 11
Views: 391

Re: Sigmoid + Distant Lymph Nodes

Hi Siti, Sorry to hear about your reason for being here; it sounds like you’re well-informed though and great that he recovered from surgery well. I don’t have a strong view on the distant LNs as this isn’t really my area sorry, but others will. That said, I’ve never heard of ‘watch and wait’ for LN...
by Rock_Robster
Fri Aug 16, 2019 6:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 78
Views: 1914

Re: Diarrhea and bloating and gas, oh my!

I don't know if I can stop the cramping, but it would be nice to not be on the toilet so often. By some miracle Hi TinaFish, is Buscopan (hyoscine butylbromide) available where you are? I find one dose of this very effective for stomach cramps. Thank you so much, Rock_Robster!! It's been a long tim...
by Rock_Robster
Mon Aug 12, 2019 6:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about wound under ostomy adhesive
Replies: 8
Views: 290

Re: Question about wound under ostomy adhesive

Thanks again everyone. I spent ages searching online for the Marathon liquid skin in this developing country we call Australia, finally found some for $80 and 2 weeks delivery. Then I realised the only ingredient is cyanoacrylate - aka super glue! But don’t worry, I didn’t use super glue. But I did ...
by Rock_Robster
Sun Aug 11, 2019 11:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 78
Views: 1914

Re: Diarrhea and bloating and gas, oh my!

Hi TinaFish, no worries - yes I don’t know a lot about the drug your onc mentioned but it does appear different. Buscopan should be a lot more mild, but as a rule I’d always suggesting telling your onc anything you’re taking as well for safety’s sake.

Good luck,
Rob
by Rock_Robster
Sun Aug 11, 2019 10:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 78
Views: 1914

Re: Diarrhea and bloating and gas, oh my!

I don't know if I can stop the cramping, but it would be nice to not be on the toilet so often. By some miracle Hi TinaFish, is Buscopan (hyoscine butylbromide) available where you are? I find one dose of this very effective for stomach cramps. I'd never heard of it, but thank you for the wonderful...
by Rock_Robster
Sun Aug 11, 2019 8:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diarrhea and bloating and gas, oh my!
Replies: 78
Views: 1914

Re: Diarrhea and bloating and gas, oh my!

TinaFish wrote:I don't know if I can stop the cramping, but it would be nice to not be on the toilet so often. By some miracle

Hi TinaFish, is Buscopan (hyoscine butylbromide) available where you are? I find one dose of this very effective for stomach cramps.
by Rock_Robster
Sun Aug 11, 2019 8:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 29
Views: 1292

Re: Newly diagnosed rectal cancer

I completely hear you MeAndMine. For the mornings, I found the best thing I could do was just force myself to get out of the house and do ANYTHING. Even just go and buy a coffee. I never found a good solution though for the nights, I’m afraid. I know this is of little help now, but I promise it does...
by Rock_Robster
Sun Aug 11, 2019 8:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about wound under ostomy adhesive
Replies: 8
Views: 290

Re: Question about wound under ostomy adhesive

peanut_8 wrote:Marathon liquid skin protectant

https://www.woundsource.com/blog/produc ... protectant

This looks perfect! Thank you very much peanut_8 (and by proxy, Karen/Miss Molly) :)
by Rock_Robster
Sun Aug 11, 2019 7:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about wound under ostomy adhesive
Replies: 8
Views: 290

Re: Question about wound under ostomy adhesive

Probably Captain Obvious, but I had to trim one side of my adhesive ring to avoid my navel. Is your incision close to the edge where you could do something like that? Thanks Dave, good thought. I’ll have a look when I change in the morning but I think it’s further out - outside the adhesive ring I ...
by Rock_Robster
Sun Aug 11, 2019 4:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about wound under ostomy adhesive
Replies: 8
Views: 290

Question about wound under ostomy adhesive

Hi all, I’ve asked this question on an ostomy forum too, but given there’s no doubt a number of ostomates here I thought I might cast a wider net for ideas! I have a temporary ileostomy. My ULAR was done robotically and most of the small wounds have healed well. However there is one wound quite clos...
by Rock_Robster
Sun Aug 11, 2019 4:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 17
Views: 1720

Re: Please allow me to introduce myself

Hi boxhill, I just want to clarify that the drug under discussion, which goes by various brand names, stimulates WHITE blood cell production (hence neutrophils), not platelets. Yes, good clarification. Actually, it looks like a possible side effect of Filgrastim is reduced platelets: https://www.ne...
by Rock_Robster
Fri Aug 09, 2019 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Introducing myself, to a club I didn’t think I’d ever be a member of.
Replies: 9
Views: 650

Re: Introducing myself, to a club I didn’t think I’d ever be a member of.

horizon wrote:What he said x 1000. I freaked myself out with Google searches.

To repeat what someone told me early on, “Dr Google is a great mortician but a terrible doctor...”

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