Ginabeewell, I’ve been checking this post every so often to see if there is an update. Hope you are doing well, enjoying lots of healthy foods, and the Hawaiian sun. We are indeed in Hawaii! On the Big Island at the Mauna Kea, and having a lovely and relaxing time. We swam with dolphins this mornin...

I think hair loss is so weirdly unpredictable. Mine thinned a bit on FOLFOX and again on FOLFIRI. But it was after I discontinued the irinotecan that it really started falling out or rather receding. So I ended up getting a wig after I ended my chemo. Now it’s growing back super wiry / curly and ful...

You'll get different results with different tests. I've been 1.1 at Northwestern and 1.7-2.3 at MSK. So it sounds to me that the higher result is just a factor of being on the different test with the higher scale - meaning nothing to worry about!

Thanks so much to everyone for your words of wisdom and comfort! I definitely want to do some time to check out some options - and now it appears I will have the time to do that, because I just got a call from Dr Kemeny. It sounds like the MRI was inconclusive as well. She presented my case at tumor...

I just put round trip tickets to Hawaii on hold for the day my vaccine is at full strength: $600 round trip!

Getting the honeymoon we never had.

Looks like that 3 month chemo break I was hoping would last forever did not. My PET showed a very tiny area of activity near an old lesion that had disappeared on the last scan but is apparently back. They did an MRI to confirm this morning; don't have results back but seems unlikely to be anything ...

Wow, that’s amazing. It feels like you just got the diagnosis; to be talking port removal at this point must feel fantastic! Congrats!!

I’m putting you into my “proof list” as I anticipate scans in the next few weeks!!

I_will_fight wrote:Thank you for the information.
You need to be a US resident, apparently.

Thanks for letting folks know - I was not aware of that!

I did an interview today - took about 40 minutes and probably only took that long because I was long winded.

Lots of talk about pain points during the cancer journey and thoughts regarding how to better address. Hopefully will lead to better patient experiences - and I got some pocket money besides!

For anyone who is interested in participating in an hour-long survey, they are recruiting colon cancer patients (and maybe caretakers too). I'm going to sign up to speak with them next week, so I will let you know how it goes. Here is a sign-up link if you are interested! https://gigs.savvy.coop/col...

This must be frustrating. Unfortunately I don’t have any bright ideas, but I will offer one observation. The decreases in ANC certainly *appear* to suggest a trend, but they are relatively small changes overall, and there are few data points (I think you mention two downward moves). You’re also rel...

Hi there! My last chemo was in early December. (Officially I'm on a chemo break - unofficially I'm ready for it to last forever.) : ) BUT today when I went in for my pump fill, they flagged me for low ANC - normal range starts at 1.5, and I was at 1.0 today. Three weeks ago it was 1.3; three weeks b...

Always so happy to see proof of what’s possible! And your mom is one of the people I like to cheer on the most. : )

Congrats to both of you!!

Today, I rang the bell!!!

I hope someone more knowledgeable than me weighs in, but I recall asking a similar question when they cut my Oxi off after 8 rounds. At the time, one person told me that the new FOLFOX protocol only calls for 6 doses of Oxalilplatin; the returns are significantly diminished for later doses - and don...