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by ginabeewell
Thu Jan 26, 2023 11:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years post stage 4 diagnosis and all clear!
Replies: 17
Views: 4509

Re: 5 years post stage 4 diagnosis and all clear!

Five years YES!! Congratulations - this is exciting and I hope you are celebrating appropriately!!
by ginabeewell
Tue Jan 17, 2023 7:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Working with Cancer campaign launching today
Replies: 2
Views: 1028

Re: Big Cancer initiative launching next Tuesday!

Today is the launch of Working with Cancer, and we are trying to get patients and caretakers who are comfortable posting about the initiative on social media (does not have to include anything personal). Here is a link to the spot that is launching the campaign if you'd like to check it out and/or s...
by ginabeewell
Thu Jan 12, 2023 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Working with Cancer campaign launching today
Replies: 2
Views: 1028

Working with Cancer campaign launching today

Hi all, So many of you have weighed in on a cancer-related project that I've been focused on at work, and I'm so excited to share that it is finally going to be launching next week. If things go well (and every appendage I have is crossed like twice at this point) you should be reading about it in t...
by ginabeewell
Fri Nov 11, 2022 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux/Vectibix/EGFR rash trajectory
Replies: 5
Views: 2558

Re: Erbitux/Vectibix/EGFR rash trajectory

This is less how to and more about the emotional impact of Vectibix, but I’ve talked about it in my Substack too - a project where I’m looking back on my four year journey and reflecting on it from today: https://open.substack.com/pub/ginajacobson/p/a-rash-of-good?r=1db5v7&utm_medium=ios&utm...
by ginabeewell
Fri Nov 11, 2022 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux/Vectibix/EGFR rash trajectory
Replies: 5
Views: 2558

Re: Erbitux/Vectibix/EGFR rash trajectory

I have posted a ton about Vectibix here and on my blog. You can search here, or feel free to check this page on my blog where I summarized my experience. Can confirm it is the worst. Having said that, I 100% believe it was what saved my life. Pm me if you have questions after checking this out: http...
by ginabeewell
Fri Oct 28, 2022 1:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you didn't share your diagnosis at work...
Replies: 2
Views: 1712

If you didn't share your diagnosis at work...

... and you'd be willing to share your experience, would you mind commenting here? I am working on a pro bono initiative that sheds light on the fear that people sometimes experience when it comes to sharing their diagnosis at work. Specifically, I am trying to identify a few people who might be wil...
by ginabeewell
Fri Oct 14, 2022 9:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Now live: Strive for Five on Substack
Replies: 5
Views: 2400

Re: Now live: Strive for Five on Substack

It has been one month since you announced the launch of your "Strive for Five" initiative. How is it going now? Are you happy with the response do far? It's been a fascinating experience, if I am honest. It scaled pretty quickly - there are about 750 readers right now - but it has not att...
by ginabeewell
Fri Sep 09, 2022 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Now live: Strive for Five on Substack
Replies: 5
Views: 2400

Re: Now live: Strive for Five on Substack

... Especially across the first few months, I hope it [my substack] will be something that might be of value for newly diagnosed patients - especially since at the beginning, we didn't share much between the diagnosis and my first chemo; and what I did share wasn't quite as honest as I became as tr...
by ginabeewell
Sun Sep 04, 2022 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Were you worried about losing your job at diagnosis?
Replies: 11
Views: 4553

Were you worried about losing your job at diagnosis?

Starting a new project at work and would love an informal poll from folks. Our CEO recently went through his own treatment and says he was shocked how many people thanked him for being public about his journey - citing their own fear to tell a manager about their diagnosis lest they get fired. That ...
by ginabeewell
Sun Sep 04, 2022 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for First Appt at Memorial Sloan/Dr. Kemeny
Replies: 2
Views: 1703

Re: Tips for First Appt at Memorial Sloan/Dr. Kemeny

If you are traveling for the meeting and the HAI pump is something you are seriously considering, you might want to ask her office to schedule time to meet with one of the liver surgeons - Dr Kingham or Dr Angelico. Our first appointment was just with Kemeny, but I think we had to return for a secon...
by ginabeewell
Wed Aug 31, 2022 11:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Now live: Strive for Five on Substack
Replies: 5
Views: 2400

Now live: Strive for Five on Substack

I'm live with Strive for Five on Substack - and we are ready for subscribers! https://ginajacobson.substack.com For those who don't know Substack - it was new to me - it is a platform for writers intended to put them directly in touch with readers via emailed newsletters - basically it is a blog you...
by ginabeewell
Sun Aug 28, 2022 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A new idea: feedback requested
Replies: 16
Views: 5845

Re: A new idea: feedback requested

Gina - Your draft looks fine. Good luck on the launch of your project! https://www.picgifs.com/glitter-gifs/s/stars/picgifs-stars-0418850.gif Strive for 5 . Thank you so much, it is now on the blog - and in other news, we are finally "live" for anyone who wants to check it out and subscri...
by ginabeewell
Sat Aug 27, 2022 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A new idea: feedback requested
Replies: 16
Views: 5845

Re: A new idea: feedback requested

Gina - If you would like comments on any of your edited drafts, please feel free to send the drafts to me by PM and I will see if I can help. Keep in mind that I will be traveling on the high seas most of the time between now and your September 11 launch date, and satellite communication at high la...
by ginabeewell
Sun Aug 14, 2022 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A new idea: feedback requested
Replies: 16
Views: 5845

Re: A new idea: feedback requested

Thanks for weighing in; think this all makes sense and should work well. Right now I’m editing your post mostly to change your references to “you” to references to “me.” And maintaining the why things are important for patients while taking out reference to why things would be important for the blog...
by ginabeewell
Sat Aug 13, 2022 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A new idea: feedback requested
Replies: 16
Views: 5845

Re: A new idea: feedback requested

Substack podcasts - where I open up conversations with me and my therapist, whose specialty is people with life-changing medical diagnoses, and use my personal experience to explore and normalize the things patients face emotionally (magical thinking, the guilt of what this does to my family, feeli...

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