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by ginabeewell
Mon Mar 22, 2021 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified of rising trend (another CEA post)
Replies: 6
Views: 1648

Re: Terrified of rising trend (another CEA post)

You'll get different results with different tests. I've been 1.1 at Northwestern and 1.7-2.3 at MSK. So it sounds to me that the higher result is just a factor of being on the different test with the higher scale - meaning nothing to worry about!
by ginabeewell
Fri Mar 19, 2021 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 13
Views: 2331

Re: It's back

Thanks so much to everyone for your words of wisdom and comfort! I definitely want to do some time to check out some options - and now it appears I will have the time to do that, because I just got a call from Dr Kemeny. It sounds like the MRI was inconclusive as well. She presented my case at tumor...
by ginabeewell
Fri Mar 19, 2021 12:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: F Cancer
Replies: 8
Views: 1630

Re: F Cancer

I just put round trip tickets to Hawaii on hold for the day my vaccine is at full strength: $600 round trip!

Getting the honeymoon we never had.
by ginabeewell
Thu Mar 18, 2021 11:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 13
Views: 2331

It's back

Looks like that 3 month chemo break I was hoping would last forever did not. My PET showed a very tiny area of activity near an old lesion that had disappeared on the last scan but is apparently back. They did an MRI to confirm this morning; don't have results back but seems unlikely to be anything ...
by ginabeewell
Mon Mar 08, 2021 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving to every 6 months, port removal
Replies: 17
Views: 2358

Re: Moving to every 6 months, port removal

Wow, that’s amazing. It feels like you just got the diagnosis; to be talking port removal at this point must feel fantastic! Congrats!!

I’m putting you into my “proof list” as I anticipate scans in the next few weeks!!
by ginabeewell
Thu Mar 04, 2021 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer research study - $100
Replies: 4
Views: 893

Re: Colon cancer research study - $100

I_will_fight wrote:Thank you for the information.
You need to be a US resident, apparently.


Thanks for letting folks know - I was not aware of that!
by ginabeewell
Wed Mar 03, 2021 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer research study - $100
Replies: 4
Views: 893

Re: Colon cancer research study - $100

I did an interview today - took about 40 minutes and probably only took that long because I was long winded.

Lots of talk about pain points during the cancer journey and thoughts regarding how to better address. Hopefully will lead to better patient experiences - and I got some pocket money besides!
by ginabeewell
Thu Feb 25, 2021 5:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer research study - $100
Replies: 4
Views: 893

Colon cancer research study - $100

For anyone who is interested in participating in an hour-long survey, they are recruiting colon cancer patients (and maybe caretakers too). I'm going to sign up to speak with them next week, so I will let you know how it goes. Here is a sign-up link if you are interested! https://gigs.savvy.coop/col...
by ginabeewell
Thu Feb 25, 2021 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Declining WBC/ANC - post-chemo?
Replies: 3
Views: 711

Re: Declining WBC/ANC - post-chemo?

This must be frustrating. Unfortunately I don’t have any bright ideas, but I will offer one observation. The decreases in ANC certainly *appear* to suggest a trend, but they are relatively small changes overall, and there are few data points (I think you mention two downward moves). You’re also rel...
by ginabeewell
Mon Feb 22, 2021 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Declining WBC/ANC - post-chemo?
Replies: 3
Views: 711

Declining WBC/ANC - post-chemo?

Hi there! My last chemo was in early December. (Officially I'm on a chemo break - unofficially I'm ready for it to last forever.) : ) BUT today when I went in for my pump fill, they flagged me for low ANC - normal range starts at 1.5, and I was at 1.0 today. Three weeks ago it was 1.3; three weeks b...
by ginabeewell
Fri Feb 05, 2021 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 28
Views: 6720

Re: Cured it is then !

Always so happy to see proof of what’s possible! And your mom is one of the people I like to cheer on the most. : )

Congrats to both of you!!
by ginabeewell
Wed Dec 30, 2020 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 3399

Re: Oxaliplatin Dosage - Call Off

I hope someone more knowledgeable than me weighs in, but I recall asking a similar question when they cut my Oxi off after 8 rounds. At the time, one person told me that the new FOLFOX protocol only calls for 6 doses of Oxalilplatin; the returns are significantly diminished for later doses - and don...
by ginabeewell
Tue Dec 22, 2020 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 “no cure without surgery”
Replies: 23
Views: 4379

Re: Stage 4 “no cure without surgery”

Stu’s right - find a bell and ring it!! I find it very interesting how different oncs have different perspectives. I guess they’re humans and their own personalities probably influence how they communicate with their patients (along with their experience, of course). My husband’s onc appears to be ...
by ginabeewell
Tue Dec 22, 2020 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 “no cure without surgery”
Replies: 23
Views: 4379

Re: Stage 4 “no cure without surgery”

That said, are you being naive? If I understand your situation right (and you have DLMs), and from my study of the literature, my answer would be “no.” Thank you - I posted my question just before i went to meditate and do a distance reiki healing session. The meditation i did encouraged me to put ...

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