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by ginabeewell
Sat Sep 21, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions regarding Folfox treatments
Replies: 13
Views: 231

Re: Questions regarding Folfox treatments

Rob’s answers are comprehensive and I don’t have too much to add. I will say re: Oxi, just keep your oncologist informed of what you are experiencing and let him or her make the call. Dr K pulled me off of it before I felt like it was a real issue for me, and refused to put me back on when I inquire...
by ginabeewell
Thu Sep 19, 2019 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump Placement
Replies: 5
Views: 234

Re: Pump Placement

Gina - Did you go right in for the surgery? in my case, we're doing laparotomy first to check for extra hepatic disease. I can't imagine they place the pump laproscopically, right? I did not do a check prior, just went in for surgery. We relied on the CT scan to rule that out. The pump cannot be pl...
by ginabeewell
Thu Sep 19, 2019 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pump Placement
Replies: 5
Views: 234

Re: Pump Placement

I think after my pump placement and colon resection I stayed 5 days - it would have been 4 but I struggled to have a BM. I stayed 4 nights for my liver resection. I think I got out early, maybe too early. So I would think 4-5 nights, with a chance of 3 if you push for it and if the pump is all they ...
by ginabeewell
Wed Sep 18, 2019 1:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 1570

Re: Treatment at MSK

Thanks for the data, both of you! We don't have any experience with oxaliplatin, but it sounds pretty rough whereas FUDR seems to have few side effects with the HAI pump. I think we'll start at MSK and see what they say. We are by no means rich, but we are young and we have the rest of our lives to...
by ginabeewell
Mon Sep 16, 2019 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 19
Views: 1036

Re: Screw Cancer, Hospice is Here

I sighed deeply reading this, but am glad it seems your head is in a good place and you have solid plans to enjoy this next phase of life. You should sit on as many beaches as possible, in my opinion. You’ve been a source of much wisdom for me since I first came here a year ago - and continue to be....
by ginabeewell
Sun Sep 15, 2019 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What Helped You Make It Through Folfox Cycles 6-8
Replies: 11
Views: 417

Re: What Helped You Make It Through Folfox Cycles 6-8

My neuropathy started to not “snap back” at about eight doses too. Dr K took me off of it and wouldn’t put me back even when I asked! I did wind up with a chemo break after 5. Not intentionally, but I had an infection and needed 7 weeks to heal. I was in bad shape between the chemo and the infection...
by ginabeewell
Fri Sep 13, 2019 11:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3142

Re: ...progression...

I'm sure I know but can't quite remember but what kind of side effects does one have after HAI placement? What are the chances that they will resect (the colon) during that surgery? They did resect my colon when they placed the pump. I think they often try to do this. Obviously my liver wasn't read...
by ginabeewell
Thu Sep 12, 2019 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer households should not have to deal with lice
Replies: 13
Views: 517

Re: Cancer households should not have to deal with lice

I'd be tempted to burn everything to the ground. :lol: I'm pretty pissy for some unknown reason and I'm about to go angry clean under my couch. I can at least be thankful I'm not dealing with bugs. I'm so sorry that you are! You’re pissy - maybe because you just had surgery?! Taking a card from my ...
by ginabeewell
Thu Sep 12, 2019 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer households should not have to deal with lice
Replies: 13
Views: 517

Re: Cancer households should not have to deal with lice

I'd guess that lice wouldn't touch someone on Chemo. You would think that, wouldn't you? Unfortunately Google revealed otherwise. So far, I seem to not have contracted anything, but I have four kids in the house and everyone uses our hairbrushes / lounges in our bed / etc. And honestly treating the...
by ginabeewell
Wed Sep 11, 2019 10:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer households should not have to deal with lice
Replies: 13
Views: 517

Cancer households should not have to deal with lice

I feel very, very strongly about this.

I cannot understand why the lice bugs are not aligned.

It really, really, really does not seem fair. DON'T WE HAVE ENOUGH HAIR PROBLEMS???

This is all.
by ginabeewell
Tue Sep 10, 2019 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 14
Views: 824

Re: Rogaine! seems to be working for me

Okay, my situation was different, stage III, FOLFOX only. My hair turned a complete FRIZZY. thinner yes, but frizzy "big time". My pre teen daughter was a bit embarrassed tp be seem with me. Mine has thinned AND is getting frizzy. When I wake up in the morning I look just like Albert Eins...
by ginabeewell
Sun Sep 08, 2019 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment at MSK
Replies: 25
Views: 1570

Re: Treatment at MSK

The other question I’ve been trying to work out is around logistics. Hopefully someone can correct me here, but I understand the initial course of HAI treatment runs for 6 months, and then the pump is left in for 2 years? So this would mean living in the vicinity of NYC for somewhere between 6-24 m...
by ginabeewell
Fri Sep 06, 2019 3:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 218
Views: 32897

Re: My CRC with liver mets journey

Great! I'm so happy to hear that. Your success as well as Juliej's makes me really want to go to MSK and Dr Kemeny with my boyfriend. They seem to have great success with young and otherwise healthy patients. I hope you start a blog! I'd be happy to follow you. You totally should! And sooner vs lat...
by ginabeewell
Fri Sep 06, 2019 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 14
Views: 824

Re: Rogaine! seems to be working for me

I know!!! I was going to suggest it to my husband but now I think we're just going to wait and see. I've gotten quite used to seeing him with thin (but so soft!) hair and beard anyway... I am not sure whether this is true or not. I think the "rest of your life" applies to people who are l...
by ginabeewell
Fri Sep 06, 2019 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 14
Views: 824

Re: Rogaine! seems to be working for me

I found this article, which seems to indicate that once you start Rogaine, you have to take it for the rest of your life. Something to be aware of! http://herwaroncancer.com/taxotere/side-effects/can-chemo-hair-loss-cured/ Rest of your life, what?? Um, that’s a pretty significant drawback, WTF? Cle...

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