Search found 452 matches

Go to advanced search

by ginabeewell
Wed Sep 23, 2020 12:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 362
Views: 81602

Re: My CRC with liver mets journey

Btw thank you for the tips on icing the face during vectibix to keep the breakouts down. That's so smart of you. I remember putting ice on my forehead for fever during Erbitux a while ago and my forehead had visibly less breakouts, but I didn't think about the correlation between ice and breakouts ...
by ginabeewell
Sun Sep 20, 2020 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 41
Views: 3244

Re: Blood clots and low oxygen and hospice OH MY

I’m so sorry, what a true loss. Will be thinking of you and the kids. And yes we will be here for you for anything we can do to support you, whenever you need us.
by ginabeewell
Tue Sep 15, 2020 10:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: To my CC family
Replies: 18
Views: 1158

Re: To my CC family

I am so sorry to read this. It is so unfair.

Sending all my best to you and your family - that you may have the strength and grace to keep moving forward. We will be here for you, please come back as you find you need us.
by ginabeewell
Tue Sep 15, 2020 10:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 362
Views: 81602

Re: My CRC with liver mets journey

Thanks, all for all the support for my husband! We both appreciate it. They are still negotiating, we are hoping for the best there. In other news, i had opportunity to meet my new NW oncologist on Monday: Dr Mary Mulcahy who runs the GI Cancer department for them. I was a little hesitant meeting he...
by ginabeewell
Thu Sep 10, 2020 10:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What next if desensitized chemo(oxi) get allergy?
Replies: 6
Views: 493

Re: What next if desensitized chemo(oxi) get allergy?

My first time with chemo I did 19 rounds - the first 8 I did FOLFOX and Vectibix (like Erbitux) and then I started to get sensitivity to the Oxy. So they just took away the Oxy and kept me on the remaining drugs for 11 more rounds. It got me to resectable (although in truth most of that came early o...
by ginabeewell
Sun Sep 06, 2020 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Curious on attitude towards future
Replies: 4
Views: 675

Re: Curious on attitude towards future

Do you have people in your life to protect? If so the first thing I would do is max out I’m available life insurance. We were in pretty good shape with that before my diagnosis, and I’m so glad. I’ve started to think about life in five year increments. No real reason why, other than shorter than tha...
by ginabeewell
Sun Sep 06, 2020 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 41
Views: 3244

Re: Blood clots and low oxygen and hospice OH MY

My sister gave me a book about a woman who battled cancer with joy and one chapter talked about "getting to" ... have chemo... clean up your kids vomit... grocery shop on the busiest day of the week... be the chauffeur to everyone etc. If it's not immediately clear why that resonates just...
by ginabeewell
Sun Sep 06, 2020 5:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncologist transition?
Replies: 3
Views: 550

Re: Oncologist transition?

Hi Gina! I spoke with Dr.M on the phone once when I considered switching to Northwestern for my pump flushes. While she was very nice on the phone with me I have heard she is not the kindest Dr out there from some of her other patients on other groups. Equally, I have seen other patients who loved ...
by ginabeewell
Fri Sep 04, 2020 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncologist transition?
Replies: 3
Views: 550

Oncologist transition?

I got a call today from one of the nurses at Northwestern. She let me know that my oncologist was sick - and going onto indefinite medical leave - and given that she is going to specialize in breast cancer treatment moving forward anyway, they want to transition me to a new oncologist. Their recomme...
by ginabeewell
Sat Aug 29, 2020 3:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Opinions welcome: how old to test?
Replies: 4
Views: 489

Re: Opinions welcome: how old to test?

My doctor told me my kids should be screened at 35 - 10 years before my diagnosis at 45. And earlier if they show any symptoms at all.
by ginabeewell
Fri Aug 28, 2020 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood clots and low oxygen and hospice OH MY
Replies: 41
Views: 3244

Re: Blood clots and low oxygen and hospice OH MY

Oh no, I am just seeing this, and my heart breaks to read it. I know you have been dreading this moment for a long time, and it must be so hard that he reached this point before you did. As someone who is going through treatment, I can very much appreciate how hard it is and why he may have gotten t...
by ginabeewell
Fri Aug 28, 2020 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 362
Views: 81602

Re: My CRC with liver mets journey

Gina, How awful all of this is happening for you guys. I've had my hands full so I am late getting to this party and wow what a craptastic time. My thoughts and prayers are with you and yours! Thank you! It’s awful but trying to stay focused on the fact that he will eventually be free to find somet...
by ginabeewell
Fri Aug 28, 2020 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 362
Views: 81602

Re: My CRC with liver mets journey

That is sooo wrong what happened to your husband, I am so sorry. Is there any legal recourse you can take? Yes you really do find out who your friends are. I sure did. I had many friends step up to the plate for me. One friend I dropped, she was clueless and was only concerned about herself. Not wh...
by ginabeewell
Tue Aug 25, 2020 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 362
Views: 81602

Re: My CRC with liver mets journey

Thanks to all of you for the words of encouragement and support. We are continuing to try to get a better picture of what our future looks like and it’s clear that the partner is really trying to punish my husband. It’s pretty awful. In better news, my PET scan results came back today. No activity ...
by ginabeewell
Mon Aug 24, 2020 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vectibix trick (maybe)
Replies: 4
Views: 1192

Re: Vectibix trick (maybe)

My neck has erupted into a painful red rash.

My face is feeling dry and delicate with a spot or two, but no real rash yet. This makes me more convinced the ice is working, as I didn’t ice my neck. But I will next time! Ouch.

Go to advanced search