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by ginabeewell
Mon Feb 22, 2021 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Declining WBC/ANC - post-chemo?
Replies: 2
Views: 199

Declining WBC/ANC - post-chemo?

Hi there! My last chemo was in early December. (Officially I'm on a chemo break - unofficially I'm ready for it to last forever.) : ) BUT today when I went in for my pump fill, they flagged me for low ANC - normal range starts at 1.5, and I was at 1.0 today. Three weeks ago it was 1.3; three weeks b...
by ginabeewell
Fri Feb 05, 2021 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 23
Views: 2734

Re: Cured it is then !

Always so happy to see proof of what’s possible! And your mom is one of the people I like to cheer on the most. : )

Congrats to both of you!!
by ginabeewell
Wed Dec 30, 2020 12:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 3129

Re: Oxaliplatin Dosage - Call Off

I hope someone more knowledgeable than me weighs in, but I recall asking a similar question when they cut my Oxi off after 8 rounds. At the time, one person told me that the new FOLFOX protocol only calls for 6 doses of Oxalilplatin; the returns are significantly diminished for later doses - and don...
by ginabeewell
Tue Dec 22, 2020 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 “no cure without surgery”
Replies: 23
Views: 4090

Re: Stage 4 “no cure without surgery”

Stu’s right - find a bell and ring it!! I find it very interesting how different oncs have different perspectives. I guess they’re humans and their own personalities probably influence how they communicate with their patients (along with their experience, of course). My husband’s onc appears to be ...
by ginabeewell
Tue Dec 22, 2020 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 “no cure without surgery”
Replies: 23
Views: 4090

Re: Stage 4 “no cure without surgery”

That said, are you being naive? If I understand your situation right (and you have DLMs), and from my study of the literature, my answer would be “no.” Thank you - I posted my question just before i went to meditate and do a distance reiki healing session. The meditation i did encouraged me to put ...
by ginabeewell
Tue Dec 22, 2020 3:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 79
Views: 12663

Re: Covid 19 vaccine

My oncologist told me she got her first shot this week. Even though I’m finished with chemo and my white blood count has recovered, she said that she would like me to get it as soon as possible. She said that she doesn’t know how it will be rolled out. If she gets a shipment to distribute, she said...
by ginabeewell
Mon Dec 21, 2020 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 “no cure without surgery”
Replies: 23
Views: 4090

Stage 4 “no cure without surgery”

Have you heard what my oncologist calls this “dogma?” She used the word dogma, but seems to believe it. I’ve had three stable scans after a resection that left me NED and a recurrence about 6 months after. I went in today all celebratory about my third clean scan earning me a chemo break - “maybe fo...
by ginabeewell
Sat Dec 19, 2020 12:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A chemo break for Christmas!
Replies: 3
Views: 754

A chemo break for Christmas!

I’ll update in my journal too - but I’m excited enough to warrant a new post. I had stable scans in August and October and my latest this week at MSK (we drove from Chicago!). My CT was stable again. When I met with Dr Kemeny, she was pleased, especially because the last 4 cycles I’ve just done 5FU ...
by ginabeewell
Tue Dec 15, 2020 11:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 going to yearly surveillance!
Replies: 17
Views: 1764

Re: Stage 4 going to yearly surveillance!

Congrats, what great news! Thrilled for you!!
by ginabeewell
Tue Dec 15, 2020 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 79
Views: 12663

Re: Covid 19 vaccine

I was at MSK today and the nurse told me they haven’t gotten them yet - they will first go to healthcare workers treating Covid patients.

Last week, my Northwestern nurses had heard nothing about timing etc.
by ginabeewell
Fri Oct 23, 2020 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 93983

Re: My CRC with liver mets journey

Hooray! I have my next appt on Monday, will see how that goes and what they think is next for me. In other news, my hair is on its last legs. I went to a salon for a wig consult today. I tried a normal human hair Follea (sp?) wig and also a Cesare Ragazzi prosthetic hair piece. The latter was fascin...
by ginabeewell
Wed Oct 21, 2020 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 375
Views: 93983

Re: My CRC with liver mets journey

Maybe the Peloton is working - my scan came back and it seems (?) to look good! I didn't speak with a doctor yet, but here is what it said: "No suspicious focal hepatic lesion is identified to suggest new residual metastatic disease. All the major hepatic vessels remain patent. The previously d...
by ginabeewell
Thu Oct 15, 2020 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does chemo regimen have impact on CEA?
Replies: 2
Views: 872

Does chemo regimen have impact on CEA?

My CEA has been a very sensitive marker for me. The last time I went from 0.8 to 1.3, it was the start of my recurrence. I did 10 or so rounds of FOLFIRI + VECTIBIX and got my CEA down to 0.7 for 2 or 3 monthly tests in a row. My PET scan showed no active cancer. When I discontinued Irinotecan, the ...
by ginabeewell
Thu Oct 15, 2020 12:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 months left of life
Replies: 32
Views: 9697

Re: 3 months left of life

Ugh, I am so sorry. Not sure what to say or how best to be helpful. I know I’ve been reading about fenben protocol, and it’s something I might choose to try if I get to the point where traditional chemo isn’t helping. What about trials? Are you eligible for anything? I hope you have someone who is s...

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