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by ginabeewell
Wed Nov 20, 2019 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 7
Views: 197

Re: Airline experiences?

I don't know about the International part but Southwest is incredibly flexible. They don't care if you cancel up to ten minutes before the flight. You could use them for the Chicago to New York part. I love flying with points but this always is in the back of my head. I don't know what happens if y...
by ginabeewell
Tue Nov 19, 2019 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump or liver resection? Next steps?
Replies: 3
Views: 149

Re: HAI pump or liver resection? Next steps?

Have you asked if you are operable? Or if not, what’s preventing you from being operable? If you haven’t had a surgical consult, I would think now is the time to request it. The HAI pump is primarily used when mets are contained to the liver, so I’m not sure how the deposit you referenced would or w...
by ginabeewell
Tue Nov 19, 2019 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 7
Views: 197

Re: Airline experiences?

Good point about the difference between international and domestic. There are several daily ORD-LHR flights but fewer LHR-IST - and those are operated by British Air which might be less flexible.

I will give a call. Maybe also check out travel insurance.
by ginabeewell
Tue Nov 19, 2019 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Airline experiences?
Replies: 7
Views: 197

Airline experiences?

My husband and I are both Executive Platinum travelers on American Airlines, and we regularly fly AA from Chicago to New York for treatment. We have been shocked at how great AA has been when we needed to cancel or rebook flights. MSK just writes a letter that says due to treatment we needed to come...
by ginabeewell
Tue Nov 19, 2019 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 40
Views: 969

Re: 1st bad scanning... advice please!!

Yeah, they said the HAI pump most likely would not be offered to him. :( But maybe once he is stable again and his mets have shrunk more, they'll reconsider. Good idea to already pencil in an appointment! I'll push for that now so that everything is all set up. The representative said that with a s...
by ginabeewell
Tue Nov 19, 2019 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 40
Views: 969

Re: 1st bad scanning... advice please!!

Did they say anything about the HAI pump? In my case they similarly wanted me to continue FOLFOX at Northwestern. But scheduled me for pump installation at MSK once that was done. Personally I think I would do four rounds FOLFOX at home and see if you can schedule your scan and a follow up at MSK ri...
by ginabeewell
Tue Nov 19, 2019 12:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver Progression Only
Replies: 5
Views: 126

Re: Liver Progression Only

When I was diagnosed, I remember hearing that colon cancer was slow moving in the colon but would explode when it got to the liver thanks to the rich blood supply. I also remember reading that liver was the most likely recurrence site, which I assumed at the time was driven by the same reason, thoug...
by ginabeewell
Mon Nov 18, 2019 8:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My hair is falling out.
Replies: 19
Views: 1249

Re: My hair is falling out.

I also worry how it will make my kids feel. I did go and get it chopped into a bob style and it’s thin but I can still pull it off but my fingers are crossed that this dramatic thinning slowssss down..... My twins (aged 7-8 through my hair thinning) sort of half paid attention for a while. They LOV...
by ginabeewell
Mon Nov 18, 2019 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 40
Views: 969

Re: 1st bad scanning... advice please!!

My point is that one shouldn’t hang all hope on having her as your oncologist and no one else. I’m certain that all their oncologists are ready and able and probably have a much better bedside manner. I think this is a very good point. Maybe especially concerning bedside manner! I believe they all ...
by ginabeewell
Mon Nov 18, 2019 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 40
Views: 969

Re: 1st bad scanning... advice please!!

Dr Kemeny is actually in Europe until Wednesday; so if they need her seal of approval, you may end up waiting a few more days for it. And I guess if they say no, you can always appeal to her once she’s back!
by ginabeewell
Sat Nov 16, 2019 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery here, and done.
Replies: 24
Views: 696

Re: Surgery here, and done.

He IS home now. He is really beat up, the nurses that tried to do the pump study pushed on him so much he isn't just black and blue hes purple and daaaark red. Not sure if they knew what they were doing because the needle they stuck him with popped out and he sprayed blood, wound up needing a trans...
by ginabeewell
Sat Nov 16, 2019 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery here, and done.
Replies: 24
Views: 696

Re: Surgery here, and done.

How’s he doing? Any chance of discharge today or does he have to hang in there another day or so? Has he been able to go to the bathroom yet? Prune juice - warm - is what finally got me out after that first surgery!
by ginabeewell
Thu Nov 14, 2019 12:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 40
Views: 969

Re: 1st bad scanning... advice please!!

You might want to post a new thread about the pump plus Avastin. I hadn’t heard that was a no-no, but it could be that I just wasn’t tuned in because I wasn’t on Avastin!! I started FOLFOX + Vectibix in October, had a seven week chemo break Dec / Jan due to infection and my consult at MSK early Feb....
by ginabeewell
Thu Nov 14, 2019 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 40
Views: 969

Re: 1st bad scanning... advice please!!

Thanks for your answers, Rachel. I still haven't heard back from them but I'll try calling again today. We had a consultation here today and they want to start him on FOLFOX and Avastin. I don't want him to start until we've seen MSK, partly because I want to make sure that is their recommendation,...
by ginabeewell
Tue Nov 12, 2019 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery here, and done.
Replies: 24
Views: 696

Re: Surgery here, and done.

Make sure he’s getting adequate pain killers and he should be great - up and moving around in no time!! He had an epidural catheter before surgery so that should keep him comfy for a bit Oh that’s perfect. My first surgery, they were worried about the fact that I had only one kidney and basically t...

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