Search found 389 matches

Go to advanced search

by ginabeewell
Fri Jan 17, 2020 7:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When is it my turn
Replies: 11
Views: 419

Re: When is it my turn

I think the way you are feeling isn’t unusual - at least, I can relate. I have a “cancer buddy” who got diagnosed months and months after I did. We went through chemo and surgeries together - and then suddenly she was done! And I was still waiting to start another 4-6 months of chemo. I was happy fo...
by ginabeewell
Thu Jan 16, 2020 12:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 48287

Re: My CRC with liver mets journey

Gina I worry about the mop up time frame with my hubby he hasn't been back on systemic since before surgery just the hai I can totally appreciate that. As the calendar slipped away while we were waiting on chemo for my drains to be out, I started to get more and more stressed about not starting my ...
by ginabeewell
Thu Jan 16, 2020 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 48287

Re: My CRC with liver mets journey

Good scan, no adjuvant chemo, and maybe - just maybe - the freaking drain will be coming out too! That's a triple hitter! The drain is out! And, like yours, my body just sort of pushed it right out when they went to remove it. I wore a tight dress to the office today for the first time in three mon...
by ginabeewell
Wed Jan 15, 2020 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 48287

Re: My CRC with liver mets journey

Good scan, no adjuvant chemo, and maybe - just maybe - the freaking drain will be coming out too! That's a triple hitter! Even if they don't pull it tomorrow, he said it'll be out soon so hang it there. Things are looking up - way up!!! :D :D :D Juliej Thank you - you kept me sane through this jour...
by ginabeewell
Tue Jan 14, 2020 11:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 48287

Re: My CRC with liver mets journey

I do think there is a large mental component to this - it’s a terrifying disease and we feel like we should be doing “something”. Sometimes acceptance and doing ‘nothing’ is the hardest part (actually though are you doing something - active surveillance, plus healing and living your life!). That's ...
by ginabeewell
Mon Jan 13, 2020 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 48287

Re: My CRC with liver mets journey

Just wrapped up my day at MSK, and suffice to say it was not the day I expected! Scanxiety hit in a big way after yesterday's scan - I got so worried I think I freaked my husband out, because I don't usually get that worked up. Going into the day's appointment, we were hoping for 1) a clean scan, 2)...
by ginabeewell
Mon Jan 13, 2020 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The last thing I expected at my MSK appt today
Replies: 13
Views: 632

The last thing I expected at my MSK appt today

I had major scanxiety going into yesterday's scan - to the point where I was in tears waiting for my consults with Drs Kingham and Kemeny today. Instead, Dr Kingham told me my scan was clear - yay! And my CEA is holding constant at 1.2. And, even more exciting - Dr Kemeny said that since it has been...
by ginabeewell
Sat Jan 11, 2020 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 48287

Re: My CRC with liver mets journey

Checking back in with an update: Istanbul was very cool! We only had three nights and two days there, but the historical sites are concentrated in one area. We hired a guide for half a day and that was the highlight of the trip. The guides in Turkey are required to go to college to get their certifi...
by ginabeewell
Thu Jan 09, 2020 8:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Muscle joint soreness - but not as a result of chemo?
Replies: 8
Views: 488

Re: Muscle joint soreness - but not as a result of chemo?

I would ask for D test too. CRC patients are notoriously low in Vitamin D. I started out so low it was below the detectable range! Now Dr. K has me on a supplement and I get tested with my labs every 3 months. Let me know what your labs today looked like. I'm curious... Juliej No labs today! Northw...
by ginabeewell
Wed Jan 08, 2020 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Muscle joint soreness - but not as a result of chemo?
Replies: 8
Views: 488

Re: Muscle joint soreness - but not as a result of chemo?

No chemo right now, no. Tomorrow I’m going in for labs and an iron infusion. I’ll ask them to pull B12 - that’s one I haven’t been checking. And I know someone mentioned one other thing, was it D3 maybe? I know last labs, my magnesium and iron were below normal range. Potassium was super low side of...
by ginabeewell
Tue Jan 07, 2020 8:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Input Regarding Continuing Oxi with Neuropathy Present
Replies: 12
Views: 651

Re: Input Regarding Continuing Oxi with Neuropathy Present

Dr Kemeny cut me off Oxi after 8 rounds, and that was when I was just starting to feel like the neuropathy took almost the whole cycle to resolve - in other words, I didn’t think it was that bad and nothing seemed like it was permanent. She could not be convinced to restart it again, even when my sc...
by ginabeewell
Tue Jan 07, 2020 6:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Muscle joint soreness - but not as a result of chemo?
Replies: 8
Views: 488

Muscle joint soreness - but not as a result of chemo?

My medical team seems to be stumped on this one, so figured I would check with other patients to see if anyone is experiencing this! I had surgery - my second liver resection - in mid-October. My recovery really kicked me in the behind, and I had a particularly rough go of it because my red blood co...
by ginabeewell
Tue Dec 24, 2019 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I rang the bell today.
Replies: 16
Views: 1363

Re: I rang the bell today.

Last chemo and NED - could not think of a better Christmas gift (or holiday, depending on what you’re celebrating)! Congratulations and I hope to be following in your footsteps in another 8-12 rounds...
by ginabeewell
Sun Dec 22, 2019 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bile duct leak
Replies: 7
Views: 740

Re: Bile duct leak

Gina, I completely empathize with you!!! I had a bile duct leak that just wouldn't stop. Weirdly (loooong story) it was after one of my lung surgeries. They placed a drain and waited for it to "resolve." It was putting out a significant amount of yellow bile (really sticky stuff!) and I m...
by ginabeewell
Thu Dec 19, 2019 12:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bile duct leak
Replies: 7
Views: 740

Re: Bile duct leak

Thank you so much for weighing in with so much expertise! Totally appreciate it! some talking points for the docs, maybe … the discharge would seem low volume to me, have they checked it for composition ( exudate versus transudate kind of thing ?) They did initially but have not for a while. Instead...

Go to advanced search