Are you sure you’ll have that decision to make? Most medical centers are not allowing anyone but the patient (unless the patient is near death). I think if I were in your shoes I would just discuss what you want her role to be and not be. I rely on my husband to be the note taker and the hard questi...

I too did Vectibix - once with FOLFOX and about to restart with FOLFIRI. The rash is no joke. My onc referred to it as “treatable” but a very Christian fellow patient told me that being on it was as close as she ever came to losing faith in God. She had a very extreme reaction, but even so, it pays ...

Kemeny finally saw my scans and I had my first Telehealth appointment. One spot was smaller; the other stable. Between size and position, she says they aren’t operable or an option for ablation. She wants me to add Vectibix back into the mix in the hopes that the more aggressive treatment will help....

He won't return to Cleveland clinic. For anything I feel like he's looking for and excuse to quit now I forgot you guys had an experience there already. It's University of St Louis who is doing this new test, but sounds like he may not be in the right frame of mind to explore? I'm sorry. It's so, s...

Good for you! And what a relief. Enjoy breathing a little easier the next few months!!

I know a few patients who were on FOLFIRINOX so it’s not without precedent - not sure about that AND Vectibix however, that sounds like a lot. A friend of mine is working with the U of St Louis which is apparently doing tests for live liver transplants. Early on this was something I explored at the ...

Last week they called to ask me to book my scans locally and then have a telemedicine conference with Dr K. I’m in active chemo treatment right now, and I wish I felt better about the coordination between MSK and my local center, Northwestern. I think things will be ok, but I will feel a lot better ...

Hi there I was reading your journey and had a few questions. My husband was diagnosed in 2016( age 45) with CRC Stage 2B and had surgery and then did Xeloda for 6 months after. All scans and bloodwork have been normal until 1 month ago. On his last scans the noticed a 7cm spot on his Liver but noth...

Teenagehood is a difficult period to start with - even without the added struggles of cancer. Your stepdaughter is probably very scared, and because of the situation (mother available as an alternative place to stay), she has the opportunity of going away - by not seeing you, she can block somethin...

Gina, you have been managing your cancer stress very well to have done it for 18 mths. Its ok to let whatever emotions out for your own well being without apologies. The fact that family is stressed out is a whole other issue. Some selfishly take advantage of a loved ones dx and others have those t...

Cancer is never a dull moment. I had a bad night about a week ago. I got sad / mad and sort of lost my shit - not at anyone, just at the cancer itself. This recurrence has really been difficult to process and between it and work stress (20% pay cut anyone?) and Covid, I just hit a wall. Anyway, my h...

Oh, and there is also the Hope Lodge. That is free but can be hard to get into. If your friend is having trouble affording accommodation, please encourage them to reach out to an MSKCC social worker. I have heard from people in the waiting room how wonderful they are at helping with lodging, someti...

There is a Courtyard by Marriott that is literally in the same building practically. We liked to stay at the Maxwell, which is a few blocks walk. Sunday nights usually cost $125 or so. And I bet prices are even lower these days!

I think the shift to Folfiri is just to shake things up a bit. Folfiri is a strange beast - some people find it much easier to handle than Folfox, others are miserable. I needed Atropine during each Folfiri infusion for abdominal cramping and diarrhea. But I didn't have HFS like with Folfox and Xel...

Dr Kemeny reviewed the scans and agreed the lesions represent new activity. She wants to keep me on Vectibix and start me on FOLFIRI (previously had done FOLFOX) as well as pump chemo. Not sure I expected anything different, but worried about the shift to FOLFIRI - what that means in terms of them f...