Search found 243 matches

Go to advanced search

by ginabeewell
Mon Jul 22, 2019 1:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

I did end up getting discharged yesterday (Sun) so it was a day less in the hospital than I had for the colon resection / pump placement. We are in our friend’s apartment at 94th and CPW. Really she’s just a former colleague of my husband’s, but she saw his post seeking accommodations and said she k...
by ginabeewell
Mon Jul 22, 2019 6:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had a Paraneoplastic response post colon cancer?
Replies: 2
Views: 321

Re: Has anyone had a Paraneoplastic response post colon cancer?

Someone on ColonTown on Facebook just posted about this. Might be worth connecting with someone else who has experienced this? Her post got no response there so seems to be a rare experience.
by ginabeewell
Sun Jul 21, 2019 4:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

Omg, you had an open resection and you're up and at it already? Can I get a HOT DAMN up in here?? Tell me all about it, as mine is up and coming. No date yet, but should have one soon. I ran into someone here who had a resection the same day I did. They took 40% of his liver vs 15% of mine, and I’m...
by ginabeewell
Thu Jul 18, 2019 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

Surgery went well yesterday and I was already doing laps today - which I didn’t do after my last surgery for sure! Too bad it’s going to be so insanely hot while I’m supposed to be walking outside! I’m going to make a few notes just in case we get some reasonable days... and start researching museum...
by ginabeewell
Mon Jul 15, 2019 5:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 26
Views: 1369

Re: Chemo has caught up to me yall

So I am feeling much better today. I remember telling my therapist that I started to recognize a pattern - a side effect (or two, or three) would get me down for a while, and I'd feel like crap both physically and emotionally. But always at some point I would start to feel a little bit better. She ...
by ginabeewell
Sat Jul 13, 2019 9:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 26
Views: 1369

Re: Chemo has caught up to me yall

I wound up with a break after 5 rounds of chemo. I felt much like you do now - I recall we went to Hong Kong for a long weekend around then and my therapist thought I was nuts. By 3 pm each day I would come back to the hotel to sleep. But chemo was never as tough once I resumed (about 7 weeks later)...
by ginabeewell
Fri Jul 12, 2019 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

I agree - walking in NYC was critical to my post-surgery recovery! For my first surgery I had a very long abdominal incision (54 staples!) from breast bone to pubic bone. Having to walk up and down the stairs to the subway almost did me in. I had to stop and pant at every landing. But I got stronge...
by ginabeewell
Thu Jul 11, 2019 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

Maybe pyro will drive up to Chicago in his flash car and take them for a spin around the lake. Everything is possible. I don't think Pyro would have to go that far. They will be in LA the week after next, perhaps THEY can come to HIM! I am gearing up for my first of two liver resections at MSK, whi...
by ginabeewell
Tue Jul 09, 2019 9:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ice Pop During Chemo
Replies: 6
Views: 370

Re: Ice Pop During Chemo

It’s not permanent. I used to have this when I went outside in the winter for any period of time. I would arrive in a coffee shop and could barely order my coffee. Once you warm up you should be fine.

But how did you tolerate eating it in the first place??
by ginabeewell
Fri Jul 05, 2019 8:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: "Second line" treatment for EGFR rash?
Replies: 5
Views: 431

Re: "Second line" treatment for EGFR rash?

If done all the above, the doxycycline works the best but found I had to start taking it the day before my first infusion. I had a steroid cream for my face, the name escapes me, and that seemed to help. The problem with the topical creams is eventually, your skin is so raw, it hurts too much to pu...
by ginabeewell
Thu Jul 04, 2019 10:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: "Second line" treatment for EGFR rash?
Replies: 5
Views: 431

Re: "Second line" treatment for EGFR rash?

Went to the dermatologist at the start of this week and wanted to update this in case anyone searches in the future. She prescribed a stronger steroid cream - Clobetasol - and asked me to use it twice daily for two weeks. Then hopefully it will get knocked back enough to be maintained with Desoximet...
by ginabeewell
Mon Jul 01, 2019 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

Well, my husband had a conversation with one of the other partners today, and it seems this is de-escalating dramatically (good in the short term if not something that we still need to consider in the long term). The net is that it's only boss/partner who has an issue, but the issue is impacting the...
by ginabeewell
Mon Jul 01, 2019 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

Yes and yes! Much insight from both of you. And yes we will get through it together.

My husband had a stunner line this morning in the shower:

“You guys have it easy. If you don’t want to deal with cancer, all you have to do is fire me.”
by ginabeewell
Sun Jun 30, 2019 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

I am not sure what you mean about playing my “c card.” Unless you mean that my husband has taken them up on their offer to do “whatever he needs to do” to take care of me? Is saying he would like to accompany me to NY for my surgery “playing a c card?” This is a small company, less than 20 people. I...
by ginabeewell
Sun Jun 30, 2019 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 186
Views: 24156

Re: My CRC with liver mets journey

FYI the wife is just a wife, she has no connection to the company at all. ....in a nutshell, just your average garden-variety bunny boiler, eh? :wink: She vowed to my husband in the wake of the initial incident that she would and could take the company down. I don’t think partner realizes now that’...

Go to advanced search