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by ginabeewell
Sun May 19, 2019 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treating the Erbitux Rash
Replies: 10
Views: 180

Re: Treating the Erbitux Rash

Wondering about things like retinols and AHA/ABA acids. I spend a lot of time on my skin, and, as a 54 year-old with some sun damage, these are very helpful. But not sure how think of this in terms of drug interactions. Also, I'm gathering from your (very helpful) comments that things like excessiv...
by ginabeewell
Sat May 18, 2019 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Erbitux and cracked skin - found a fix for this!
Replies: 3
Views: 99

Re: Erbitux and cracked skin - found a fix for this!

Wow it sounds great. Thanks for sharing! Amazon, here I come!
by ginabeewell
Sat May 18, 2019 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port return...
Replies: 2
Views: 181

Re: Port return...

That happens every few times for me. They will try Heparin once or twice and then move onto something they call Draino which sits for an hour.

So yes I think normal. If he just had one extra syringe of Heparin, that doesn’t sound like too big an issue.
by ginabeewell
Fri May 17, 2019 3:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treating the Erbitux Rash
Replies: 10
Views: 180

Re: Treating the Erbitux Rash

hopefulandstrong wrote:Oh dear! superglue. When does that start to happen?


Not right away. I think I was 4 or so cycles in before I started to experience that. The rash is the first thing to hit.
by ginabeewell
Thu May 16, 2019 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 20
Views: 1212

Re: Anyone pass out after abdominal cramping??? ER time

This sounds like such a terrible ordeal. In reading this, I recall that from the get-go you have been concerned about complications, particularly with the new pump / old catheter not being proven. And now here you are having experienced exactly what you were worried about. I hope you get to better c...
by ginabeewell
Thu May 16, 2019 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treating the Erbitux Rash
Replies: 10
Views: 180

Re: Treating the Erbitux Rash

Pyro wrote:I second everything Gina said, I’d add skin glue for the fingers and toes. They may split open and bleed everywhere.


Yes, this. My dermatologist suggested SuperGlue and I carry it with me at all times in my purse so that I can address splits as they happen!
by ginabeewell
Thu May 16, 2019 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treating the Erbitux Rash
Replies: 10
Views: 180

Re: Treating the Erbitux Rash

I did some reading about the rash once it came on, and everything I read suggested you start treating it BEFORE it comes. Best practice is to start Doxycycline two weeks prior as well as steroid cream. I’m now on Doxycycline twice a day and I have two different steroid creams I alternate using morni...
by ginabeewell
Tue May 14, 2019 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 5
Views: 251

Re: CEA dropped!

My doctor warned me that it could actually rise before it dropped, but mine dropped at my first read too. I'm so happy to read yours did - for me it was a big sigh of relief to know that things were moving in the right direction!

How have you been feeling now that you've started treatment?
by ginabeewell
Tue May 14, 2019 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone pass out after abdominal cramping??? ER time
Replies: 20
Views: 1212

Re: Anyone pass out after abdominal cramping??? ER time

I mentioned your situation to my husband when I got home and turns out he had been connecting with you on Facebook. We are both praying for you.
by ginabeewell
Sat May 11, 2019 8:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 894

Re: Chemo break

I had an infection that required me to take a 7 week break to heal after 5 cycles. I think it may have been a blessing in disguise as my weight was down to 90 lbs and I managed to gain back almost 30 during that period. The scans showed that I had just a tiny bit of growth in some areas while others...
by ginabeewell
Fri May 10, 2019 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 124
Views: 13387

Re: Possibly still NED...our story to date

Would it be an option to work on his pump days? I typically feel worse AFTER disconnecting so I guess it depends how he feels. (I know he hasn’t wanted to disconnect himself, but it is really easy to learn how to do it safely.) Personally I wouldn’t want to take a pay cut or lose a position while I’...
by ginabeewell
Fri May 10, 2019 4:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possibly still NED...our story to date
Replies: 124
Views: 13387

Re: Possibly still NED...our story to date

Really trying very hard to take things in stride. My husband's boss is acting up. Says that he wants my husband to be at work every day he isn't doing chemo. Well, he HAS been! Seriously. WTF?!?! I don't even have the words to describe how much I despise that man. What line of work is your husband ...
by ginabeewell
Wed May 08, 2019 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy in Switzerland
Replies: 40
Views: 1963

Re: Immunotherapy in Switzerland

As an observer to this exchange, I have to say that I find it very valuable. So frankly I'm disheartened by the fact that two obviously knowledgeable people aren't able to have the debate without accusations / attacks, etc. Honestly, I've seen many posts from rp1954 that have made me worry that I wa...
by ginabeewell
Wed May 08, 2019 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Random question: tearing eyes?
Replies: 3
Views: 364

Re: Random question: tearing eyes?

I'm a huge fan of TCM and the concepts of the five elements. Have you consulted with a qualified practitioner of Traditional Chinese Medicine at all since you received your diagnosis, perhaps one who is experienced with supporting oncology patients? Yes, I actually have. I saw Dr Guo in Chicago, wh...
by ginabeewell
Mon May 06, 2019 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Random question: tearing eyes?
Replies: 3
Views: 364

Random question: tearing eyes?

Years before my diagnosis, my right eye would tear up without reason. It was especially bad in the cold or wind; and it’s what eventually got me to go to the doctor for the appointment that led to my diagnosis. Since then, I have read that TCM believes the eyes and liver are closely connected. When ...

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