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by ecowell
Thu Apr 01, 2010 3:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 yr survivor, experiencing ongoing leg pain
Replies: 10
Views: 1903

Re: 3 yr survivor, experiencing ongoing leg pain

One of my cancer pals was recently told that she had arthritis. By the way, was your CEA level a good marker for you? If so you could ask for it to be checked.

Good luck.
by ecowell
Wed Feb 24, 2010 11:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good and bad news anout bone scan
Replies: 4
Views: 1113

Re: Good and bad news anout bone scan

jmaire, My R hip mets showed up on the MRI (of my lower spine, pelvis, and R hip) and not the bone scan. The MRI apparently can show growth in a more specific way. The whole body bone scan did not light up in the R hip area. The onc thought this was due to the mets in the R hip not being very advanc...
by ecowell
Tue Feb 23, 2010 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: first bone mets found in hip and tibia
Replies: 8
Views: 2459

Re: first bone mets found in hip and tibia

My whole body scan was a Bone Scan---different from an MRI. An MRI is done to look at a specific location. I hope I haven't made anyone more nervous.
by ecowell
Mon Feb 22, 2010 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: first bone mets found in hip and tibia
Replies: 8
Views: 2459

first bone mets found in hip and tibia

I want to share my bone mets experience with others. I developed severe pain in my R hip over a winter break vacation. I could not walk without extreme pain. Began use of a wheel chair. I began a prescription pain management plan. My legs had generally been aching all fall such that I was taking ext...
by ecowell
Tue Jan 19, 2010 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radio frequency ablation
Replies: 5
Views: 1406

Re: Radio frequency ablation

Jessica, I too have 20 small nodules in my lungs, two as big as two cm, the rest less than 1 cm. I do not want to take a break from chemo for a radiation intervention. I understand that some require that such as the one with the cath inserted through your groin. I have a 1 cm tumor in my liver, and ...
by ecowell
Tue Jan 19, 2010 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update and thanks
Replies: 24
Views: 2517

Re: Update and thanks

Kimby, I have been following your progress for a long while. I am glad to see you are getting out. I too recently asked for a wheel chair for outings. It lets me attend events and trips to musuems with the hubbie and kiddos. It makes me too very happy to prepare them meals. I quit working in early D...
by ecowell
Sat Jan 16, 2010 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Progression...On to Mitomycin C?!?
Replies: 8
Views: 1826

Re: Progression...On to Mitomycin C?!?

Ellen, We share the same name and are about the same age. Our kiddos are slightly older (9 and 11). I too am not geting much help from chemo since about September. I was able to take erbitux. I have had all the possible combinations, yet my lung mets continue to slightly grow, new met to liver, and ...
by ecowell
Sat Dec 12, 2009 8:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hip pain-does it go away?
Replies: 7
Views: 1421

Re: Hip pain-does it go away?

Carrieann, I also have serious hip pain and my counts are not cooperating much. The nurses told me that our largest bones are in the pelvis and legs. Bone marrow is where our blood cells are apparently re-made. I am taking tylenol for the pain. I am also stiff and sill quite numb. I try swimming and...
by ecowell
Wed Nov 18, 2009 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Next surgery - happy, but scared
Replies: 4
Views: 1108

Re: Next surgery - happy, but scared

Ashlee, Glad that you are able to have the liver resected. I had my liver tumor (9cc on the R side and a small on the L) resected with clean margins. I have felt that really bought me some great time. The recovery was not horrible. 6 days of pain meds tops after discharge. I had a spinal pain manage...
by ecowell
Mon Nov 16, 2009 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone gotten the swine flu vaccine yet?
Replies: 42
Views: 3587

Re: Has anyone gotten the swine flu vaccine yet?

Yes. I got it two week ago thru my County Health Department. I am very relieved as the flu is widespread in my children's school. I have had to not participate due to concerns of germs.
by ecowell
Thu Nov 12, 2009 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I just want a "normal" chemo day
Replies: 16
Views: 2099

Re: I just want a "normal" chemo day

Katherine, I too have had problems with dizziness. I was encouraged to replace electrolytes with lots of gaterade every day. SInce doing that, my dizziness problems have gone away. I also am sure to eat a banana and if I want a V8 drink. I get the gaterade single serve powder packets that can be car...
by ecowell
Thu Nov 12, 2009 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is too low for platelets?
Replies: 10
Views: 1750

Re: What is too low for platelets?

My oncologist will treat me at 70 or above. I have been sent away for 53 and 64. My doses of 5FU and oxciliplatin were lowered to hopefully keep the plateletes at least at 70 or above. I received the Cetuximab (Erbitux) on the weeks I was not able to get the chemo drugs.
by ecowell
Thu Nov 12, 2009 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: help with donations
Replies: 2
Views: 858

Re: help with donations

If you live in a major city, the American Cancer Society should have an office. When I lost my hair, I went there for scarves and hats. They had lots. They offered a wig for free. I would suggest donating to them. Your local cancer center also likely accepts donations of such items. My treatment cen...
by ecowell
Mon Oct 19, 2009 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help me!! 34 years old with rectal cancer???
Replies: 11
Views: 1859

Re: Please help me!! 34 years old with rectal cancer???

Please understand that you NEED a colonoscopy. A CT scan can not see inside your colon. A digital rectal exam can also only feel for tumors. Your doctor can also draw blood work to look at any possibility that you may have tumor growth. It is called a CEA level. That level is not helpful for all peo...
by ecowell
Fri Oct 09, 2009 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many chemo is possible
Replies: 11
Views: 1929

Re: How many chemo is possible

I don't keep track of how many. I focus on pleasant activities, fun things to do with family and friends. I will say I have had chemo treatments since August of 2007 only with a break for surgery in February of 2008 and a 5 week break in early '09. I seem to be holding up OK. My blood counts only st...

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