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by Nohogirl
Tue Nov 13, 2018 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adenocarcinoma PT3,PN2
Replies: 2
Views: 75

Re: Adenocarcinoma PT3,PN2

Hello and Welcome to the board. Sorry about your wife's diagnosis. I imigaine the shock and devastation you are in right now as I was in the same spot not too long ago. I am not a doctor, therefore I can't give you any medical advice. I can only tell from our own experience. It sounds that your wife...
by Nohogirl
Thu Nov 08, 2018 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Pain concern / previous rectal cancer
Replies: 4
Views: 233

Re: Rectal Pain concern / previous rectal cancer

I heard sometimes neoadjuvent radiation can cause pain and discomfort in that area even after the removal.
by Nohogirl
Thu Nov 08, 2018 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 1242

Re: Worried -genetic results are in. KRAS MSS

There is evidence accumulating I believe that the KRAS G13D mutant is actually sensitive to treatment with EGFr Inhibitors like Erbitux. See the following two links, they are both pretty new: https://www.omicsonline.org/open-access/the-effect-of-egfr-inhibitor-treatment-in-kras-g13d-mutatedmetastat...
by Nohogirl
Thu Nov 08, 2018 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 1242

Re: Worried -genetic results are in. KRAS MSS

I didn't find out my genetic mutation until I switched to MSK. Why my previous oncologist never told me I was KRAS I'll never know. I just looked up my surgical pathology report again and I'm KRAS G12A. Yes, I did end up with a pesky liver met that escaped the initial treatment. But I've had it rem...
by Nohogirl
Thu Nov 08, 2018 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 1242

Re: Worried -genetic results are in. KRAS MSS

Take a deep breath. I would look very hard now at CEA, LDH and CA199 (you probably need to order these your self for speed and convenience, at least a first time). It may be that a choice could be made between normal Xeloda treatment, Xeloda+mild, generic adjuncts, and Folfox. The results from some...
by Nohogirl
Thu Nov 08, 2018 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried -genetic results are in. KRAS MSS
Replies: 18
Views: 1242

Re: Worried -genetic results are in. KRAS MSS

My husband is KRAS, MSS with condone 12/13 mutation. He is still alive and kicking but going through a rough spot right now. He has been on almost every chemo with the greatest success on Folfiri+Avastin. He stayed on maintenance 5fu and Avastin for over 2 years before a pesky spot showed up in his...
by Nohogirl
Thu Nov 08, 2018 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018
Replies: 192
Views: 75906

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

What?? No CRguy!!. Please no. That can't be happening to you. I hope and i mean i pray, and i am sure thats just a scarring, volume or something non relevant and not an actual nodule. You are one of the few long term survivors i got to know when I first entered this forum. You are a survivor model f...
by Nohogirl
Thu Nov 08, 2018 9:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need prayers
Replies: 18
Views: 692

Re: Need prayers

Praying for you.
by Nohogirl
Wed Nov 07, 2018 11:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe pain while walking after LAR
Replies: 6
Views: 229

Re: Severe pain while walking after LAR

BTW my husband was able to walk on day 2, although he was still in a lot of pain and discomfort. The doctors told him the longer he postpones the walking the longer he is going to stay in the hospital. Thats all it took :). next thing i knew he was up and walking with nurses.
by Nohogirl
Wed Nov 07, 2018 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe pain while walking after LAR
Replies: 6
Views: 229

Re: Severe pain while walking after LAR

Hello and welcome, I am sorry you are in so much pain. My husband had his LAR back in August of this year. He was in really bad pain for 3 days. While he was in the hospital, they had him connected intravenouslyto a pain medication pump where we could push the button anytime he needed it for his pai...
by Nohogirl
Tue Nov 06, 2018 10:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally....some really great news!!!
Replies: 73
Views: 20226

Re: Finally....some really great news!!!

Yaay!! So happy for you. I was following this thread and was waiting for the news. :)
by Nohogirl
Tue Nov 06, 2018 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Swollen ascending colon
Replies: 6
Views: 265

Re: Swollen ascending colon

Try not to worry. Colonoscopy will rule out what's going on. Hopefully nothing is wrong. Can they at least order CT scan for now?
by Nohogirl
Tue Nov 06, 2018 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 25
Views: 760

Re: Almost 6 years

Wow. That's really good. Congratulations on your NED and your new house!

"What's meant to be will always find a way"
by Nohogirl
Tue Nov 06, 2018 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Upstaged after surgery
Replies: 11
Views: 1041

Re: Upstaged after surgery

Hi Jlschueler,

How are you feeling? Just checking on you. Did your fever go away? Hoping you are doing and feeling better.
by Nohogirl
Tue Nov 06, 2018 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 13
Views: 786

Re: Foods to avoid during chemotherapy

Keep an eye out for thrush in the mouth. Boy, I got that alot and had to have a special mouth rinse. I liked those pudding cups and little snack packs of peaches...because you do not have to refrigerate them. Room temperature Gatoraide. Cold protein drinks I would add powdered milk to and boiling w...

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