Thanks Punky44, and thanks sailinjohn for sharing that--it's wonderful to hear!

Hi all, I wanted to report back in with an update as I just had another CT yesterday. It was good news: the suspicious lung nodule shrunk!! So it’s very likely not a metastasis, a big relief! Of course, I can’t seem to get a completely unambiguous scan, as they found a new lesion in the liver which ...

Upstate NY, but we gladly make the drive down to go to MSK. Thanks so much—I agree!

SGNYC, that sounds very similar to my situation and what I heard from the docs. In any case my only known liver met is already out with clear margins, so if anything recurs there I'll cross that bridge when I come to it. Plus there’s still a chance the lung lesion could be benign! (Not counting on i...

Chadwick, I'm confused why your liver was resected but they didn't implant the pump at the same time. I had a met in each of my lungs and still got the pump. Hopefully your liver will stay clear in your next scans, but if you have a recurrence, get a consultation with Dr. Kemeny about the pump. Hi ...

I saw the name mentioned and just wanted to say I had a liver resection with Dr. Kingham last month and it went really well. Both he and my onc agreed I wasn’t a good candidate for the pump due to a probable lung met, so I don’t have anything to add about that unfortunately. But surgically in genera...

Thanks for the link, it's really interesting stuff! I'll cross-link to your other thread in case anyone finds this and wants to read more of that discussion.

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=60593

Thanks all for the replies and thank you Cynthia for bringing this to our attention! Sounds like if we need more evidence I could get in touch with Foundation One and possibly take their test too, but I’ll talk to my onc and see what she thinks and if there’s a good case already. I need to wait till...

I just got the results of my genomic testing back and I’m really interested in this thread because it seems like I might fall into the same boat. I’m confirmed MSS, but it states the estimated tumor mutation burden to be 13.2 mutations per megabase. Incidentally, this was also an MSK-IMPACT report—c...

Thanks for that link and context, GrouseMan, that’s good information. Great point about the IV solutions being in dextrose, I wasn’t aware of that. It sure seems like there's a relatively easy trial in here for a major center to do, using their clout/budget to get some reformulated in mannose to try...

Anyone else see this new Nature paper on the sugar mannose? It looks like there's some evidence that "mannose impairs tumour growth and enhances chemotherapy." Also that "colorectal tumors tend to have especially low levels [of the relevant enzyme] so might be good candidates for init...

Hi lakeswim, I hear you, picking a surgeon can be tough because there’s not a lot of information to base your decision on! Really all I ended up have to go on was reputation (online is not very useful, other people is better), experience (mostly as they themselves reported, but some public info), an...

Hi lakeswim, I was just reading that thread too, very interesting. For my LARS, as it is, well I don’t have a good basis of comparison except what I’ve read here and heard from docs, but I think I got off pretty easy. Really the main nuisance side effect I have is some strong “urges”, that is, that ...

teacher2017, thanks for that! Sounds like we have a similar story, mine appeared just 6 months after stopping folfox. Yes, very devastating! So I had my liver resection on 11/6 and it went really well! Margins were clear, and he said everything else in the area looked fine. And yeah those laparoscop...

Thanks for sharing your story Number1994, that’s incredible! It gives me so much hope hearing stories like yours and others here. Congratulations!