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by chadwick1
Fri Jan 25, 2019 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 28
Views: 4919

Re: Stage 3 to 4

Thanks Punky44, and thanks sailinjohn for sharing that--it's wonderful to hear!
by chadwick1
Wed Jan 23, 2019 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 28
Views: 4919

Re: Stage 3 to 4

Hi all, I wanted to report back in with an update as I just had another CT yesterday. It was good news: the suspicious lung nodule shrunk!! So it’s very likely not a metastasis, a big relief! Of course, I can’t seem to get a completely unambiguous scan, as they found a new lesion in the liver which ...
by chadwick1
Sat Jan 05, 2019 10:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 12672

Re: Hospitals that install HAI pump?

Upstate NY, but we gladly make the drive down to go to MSK. Thanks so much—I agree!
by chadwick1
Fri Jan 04, 2019 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 12672

Re: Hospitals that install HAI pump?

SGNYC, that sounds very similar to my situation and what I heard from the docs. In any case my only known liver met is already out with clear margins, so if anything recurs there I'll cross that bridge when I come to it. Plus there’s still a chance the lung lesion could be benign! (Not counting on i...
by chadwick1
Tue Jan 01, 2019 8:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 12672

Re: Hospitals that install HAI pump?

Chadwick, I'm confused why your liver was resected but they didn't implant the pump at the same time. I had a met in each of my lungs and still got the pump. Hopefully your liver will stay clear in your next scans, but if you have a recurrence, get a consultation with Dr. Kemeny about the pump. Hi ...
by chadwick1
Sun Dec 30, 2018 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 12672

Re: Hospitals that install HAI pump?

I saw the name mentioned and just wanted to say I had a liver resection with Dr. Kingham last month and it went really well. Both he and my onc agreed I wasn’t a good candidate for the pump due to a probable lung met, so I don’t have anything to add about that unfortunately. But surgically in genera...
by chadwick1
Thu Dec 20, 2018 8:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Article On CRC MSS and Tumor Mutation Burden and response to Immunotherapy
Replies: 5
Views: 1365

Re: Article On CRC MSS and Tumor Mutation Burden and response to Immunotherapy

Thanks for the link, it's really interesting stuff! I'll cross-link to your other thread in case anyone finds this and wants to read more of that discussion.

http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=60593
by chadwick1
Thu Dec 20, 2018 8:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 32744

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Thanks all for the replies and thank you Cynthia for bringing this to our attention! Sounds like if we need more evidence I could get in touch with Foundation One and possibly take their test too, but I’ll talk to my onc and see what she thinks and if there’s a good case already. I need to wait till...
by chadwick1
Wed Dec 19, 2018 10:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 32744

Re: Keytruda....Working for MSS....Mutation Burden is the Key

I just got the results of my genomic testing back and I’m really interested in this thread because it seems like I might fall into the same boat. I’m confirmed MSS, but it states the estimated tumor mutation burden to be 13.2 mutations per megabase. Incidentally, this was also an MSK-IMPACT report—c...
by chadwick1
Thu Dec 06, 2018 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mannose possibly enhancing chemo
Replies: 3
Views: 643

Re: Mannose possibly enhancing chemo

Thanks for that link and context, GrouseMan, that’s good information. Great point about the IV solutions being in dextrose, I wasn’t aware of that. It sure seems like there's a relatively easy trial in here for a major center to do, using their clout/budget to get some reformulated in mannose to try...
by chadwick1
Tue Dec 04, 2018 12:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mannose possibly enhancing chemo
Replies: 3
Views: 643

Mannose possibly enhancing chemo

Anyone else see this new Nature paper on the sugar mannose? It looks like there's some evidence that "mannose impairs tumour growth and enhances chemotherapy." Also that "colorectal tumors tend to have especially low levels [of the relevant enzyme] so might be good candidates for init...
by chadwick1
Tue Dec 04, 2018 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to Find The (Best!) Surgeon? The challenge of getting answers from surgeons....
Replies: 3
Views: 728

Re: How to Find The (Best!) Surgeon? The challenge of getting answers from surgeons....

Hi lakeswim, I hear you, picking a surgeon can be tough because there’s not a lot of information to base your decision on! Really all I ended up have to go on was reputation (online is not very useful, other people is better), experience (mostly as they themselves reported, but some public info), an...
by chadwick1
Tue Nov 27, 2018 8:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stay local or travel for Surgeon?
Replies: 19
Views: 2418

Re: Stay local or travel for Surgeon?

Hi lakeswim, I was just reading that thread too, very interesting. For my LARS, as it is, well I don’t have a good basis of comparison except what I’ve read here and heard from docs, but I think I got off pretty easy. Really the main nuisance side effect I have is some strong “urges”, that is, that ...
by chadwick1
Mon Nov 26, 2018 8:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 to 4
Replies: 28
Views: 4919

Re: Stage 3 to 4

teacher2017, thanks for that! Sounds like we have a similar story, mine appeared just 6 months after stopping folfox. Yes, very devastating! So I had my liver resection on 11/6 and it went really well! Margins were clear, and he said everything else in the area looked fine. And yeah those laparoscop...
by chadwick1
Wed Nov 14, 2018 9:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV to NED in 9.5 months!
Replies: 12
Views: 1327

Re: Stage IV to NED in 9.5 months!

Thanks for sharing your story Number1994, that’s incredible! It gives me so much hope hearing stories like yours and others here. Congratulations!

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