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by ASTEPHENS33
Sat Aug 25, 2018 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diet, Exercie, and Recurrence/Prevention
Replies: 7
Views: 611

Diet, Exercie, and Recurrence/Prevention

https://academic.oup.com/jnci/advance-article-abstract/doi/10.1093/jnci/djy098/5038128?redirectedFrom=fulltext - I saw this article and thought it was really good. You probably have seen it. I know there is a correlation with good diet and exercise, but haven't seen such a thorough study before. Loo...
by ASTEPHENS33
Sat May 05, 2018 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 14
Views: 1389

Re: CEA increasing trend

My oncologist tested my cea each time they did blood work during chemo. I think it often goes up during chemo as the cells are giving off antigens. It’s measured as an indicator not as an absolute diagnostic. My cea got up to about 7 and it stayed up longer than is normal. It’s now under 1 and I’ve ...
by ASTEPHENS33
Sat May 05, 2018 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 14
Views: 1389

Re: CEA increasing trend

I am not sure why the Cologaurd test is not used in these situations. Cologuard is used for general colon screening. You send in your poop and it measures the DNA to say if there is cancer in your system. For high risk people, its not a good way to screen, as once cancer is detected its not good. Bu...
by ASTEPHENS33
Sat May 05, 2018 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy Sensitivity and Resistance Assays
Replies: 7
Views: 595

Chemotherapy Sensitivity and Resistance Assays

Has anyone had any experience or thoughts on tumor testing to see if its worthwhile doing chemotherapy? From https://csn.cancer.org/node/145884: Chemosensitivity assay is a laboratory test that determines how effective specific chemotherapy agents are against an individual patient's cancer cells. Of...
by ASTEPHENS33
Fri May 04, 2018 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 732
Views: 184297

Re: For Stage III's: NED for how long now?

I was diagnosed in 2005 and am still NED. I do have colonoscopies every year and endoscopies every 3-5 years. I had genetic testing done, and I do have the mutation for AFAP. Glad to see ALL the survivors!
by ASTEPHENS33
Mon Jul 17, 2017 8:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prepopik - colonoscopy prep
Replies: 4
Views: 1146

Re: Prepopik - colonoscopy prep

The pills are called osmoprep. I have yearly colonoscopies and is what I use. They are reasonably easy to swallow and then you drink lots of water. Insurance doesn't cover most of the cost, though. I'm out of pocket about $200, but its worth it to me. Might try the prepopik next time. More expensive...
by ASTEPHENS33
Sun Jul 16, 2017 1:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prepopik - colonoscopy prep
Replies: 4
Views: 1146

Prepopik - colonoscopy prep

http://www.prepopik.com/?utm_source=goo ... =DTC_Brand - I just heard about this from someone else that gave it high marks. I need to have colonoscopies yearly, so am always interested in easier preps. Anyone else have experience?
by ASTEPHENS33
Sat Jul 15, 2017 7:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Swimming Pools and Hot Tubs/Spas
Replies: 7
Views: 1609

Re: Swimming Pools and Hot Tubs/Spas

https://www.sciencedaily.com/releases/2010/09/100913163502.htm - here is an article I found from 2010 - Swimming in indoor chlorinated pools may induce genotoxicity (DNA damage that may lead to cancer) as well as respiratory effects, but the positive health effects of swimming can be maintained by r...
by ASTEPHENS33
Wed Mar 01, 2017 12:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon and Rectal Cancers Rising in Young People
Replies: 0
Views: 3189

Colon and Rectal Cancers Rising in Young People

From a 2/28/2017 New York Times article: https://www.nytimes.com/2017/02/28/well/live/colon-and-rectal-cancers-rising-in-young-people.html?smprod=nytcore-iphone&smid=nytcore-iphone-share "...adults ages 20 to 39, colon cancer rates have increased by 1 percent to 2.4 percent a year since the...
by ASTEPHENS33
Sun Jun 12, 2016 8:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colo-rectal cancer
Replies: 3
Views: 1069

Re: Colo-rectal cancer

Glad you found ColonClub. Its nice to have a group. I am older female, but I search online and found the following: http://www.ehealthme.com/ds/xeloda/erec ... sfunction/ There are so many side-effects from chemo.
by ASTEPHENS33
Mon May 30, 2016 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA
Replies: 5
Views: 1220

Re: CEA

I have a similar situation. I personally think that trend can be an important factor and did go back to see my oncologist. I was diagnosed stage IIIc in 2005, have been NED since surgery. CEA prior to diagnosis was under 1. During chemo it went as high as 6, but by a year after chemo it was down und...
by ASTEPHENS33
Sun Apr 17, 2016 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stool DNA Testing for Colon Cancer
Replies: 3
Views: 756

Stool DNA Testing for Colon Cancer

Has anyone used this/had experience with it, that they can share? Its called Colonguard - http://www.cancer.org/cancer/news/featu ... lon-cancer. A friend has it recommended to her. thanks
by ASTEPHENS33
Fri Jul 17, 2015 8:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High fiber before a colonoscopy?
Replies: 4
Views: 837

High fiber before a colonoscopy?

I am three days out from my colonoscopy and in the 'eat low fiber' prep stage. I ate some high fiber food (canned peas, which I thought were ok, but saw on the list from my GI I should avoid them.) Do you think I'm ok? Does anyone know why high fiber is counter-recommended for a colonoscopy prep? Th...
by ASTEPHENS33
Wed Jun 10, 2015 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PillCam
Replies: 1
Views: 438

PillCam

Has anybody had experience with this? A friend has blood in his stool, but also the complication of extremely low platelets due to a spleen problem. The doctors are concerned about him having a colonoscopy because of the platelets, so that's why thinking of the pillcam. Your thoughts appreciated.
by ASTEPHENS33
Tue Apr 07, 2015 10:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Grade 3 Hand Foot - MSK today
Replies: 15
Views: 1077

Re: Grade 3 Hand Foot - MSK today

While I was on Xeloda my CEA went up and took almost a year to get to almost zero. Chemo impacts the CEA.

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