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by mandosquiddy
Mon Dec 09, 2019 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Iliostomy or colostomy?
Replies: 8
Views: 1373

Re: Iliostomy or colostomy?

I've had both a temp colostomy and illeostomy. If I had to choose one to have permanently colostomy would win be a long distance. Water is absorbed in the large intestine and without a large intestine your output will be much more watery and you'll have a higher chance of dehydration along with (in ...
by mandosquiddy
Tue Oct 29, 2019 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Positive peri met stories please
Replies: 9
Views: 1157

Re: Positive peri met stories please

A peri met was discovered on the outside of my small intestine in September of 2018. In October I had CRS/HIPEC. They actually ended up skipping the HIPEC portion b/c I was open up for so long just on the CR part. It's been over a year now and nothing else has shown up. As of last month bloodwork an...
by mandosquiddy
Wed Jun 12, 2019 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another post-reversal output issue thread
Replies: 9
Views: 1549

Re: Another post-reversal output issue thread

Well I had an MRI which showed nothing unusual. CEA was 1.6 so nice a low! The oncologist things I could have radiation proctitis causing issues with my bowels. I am having a scope on Monday to see what shows up but otherwise have had a couple "quiet" weeks since my bad week. Have had a co...
by mandosquiddy
Fri May 31, 2019 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another post-reversal output issue thread
Replies: 9
Views: 1549

Re: Another post-reversal output issue thread

Hi Rik - I agree that blowouts are nice b/c you will have a period of relative peacefulness after. However, the episode I had last week was 5 days of painful seemingly constant movements. I'm also pretty sure it was just a bad period and I'll deal with more in the future and hopefully they will get ...
by mandosquiddy
Tue May 28, 2019 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 25
Views: 5182

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

I am sorry you are dealing with this. In April 2017 I had to have a portion of my sigmoid colon removed and it turned out to be cancer. I was Stage 2 but had a positive margin so did FOLFOX for 12 rounds. A month after that I started to have severe pain in my back and testicles. Turned out the posit...
by mandosquiddy
Mon May 27, 2019 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another post-reversal output issue thread
Replies: 9
Views: 1549

Re: Another post-reversal output issue thread

I did make a trip to the ER on Saturday. I had a CT scan and nothing seemed to stand out to them regarding my digestion issues. They did note increased hydronephrosis which isn't surprising given the involvement of my ureter and bladder in past surgeries. My oncologist has ordered an MRI of the pelv...
by mandosquiddy
Sat May 25, 2019 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another post-reversal output issue thread
Replies: 9
Views: 1549

Re: Another post-reversal output issue thread

Almost 24 hours since posting and I am having the same issues. Strongly considering a fun trip to the ER b/c something is definitely off.
by mandosquiddy
Fri May 24, 2019 4:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another post-reversal output issue thread
Replies: 9
Views: 1549

Another post-reversal output issue thread

I had my temporary illeostomy reversed back on January 3. The first few weeks were rough but not unexpected. I had very loose stool and bouts of clustering. Things seemed to settle down after about a month and a few Immodium a day seemed to keeps things relatively calm. I would still have bad days b...
by mandosquiddy
Thu Apr 18, 2019 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 31
Views: 3286

Re: Reversals Any positives?

I had my reversal on January 3rd of this year so I'm only a few months out. It has not all been positive but the negatives I have had have improved (or I've learned from and not repeated some mistakes). The first few weeks were rough and I had a lot of bathroom time and sore butt. A good cream is 10...
by mandosquiddy
Fri Feb 08, 2019 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any younger men post rectal surgery?
Replies: 13
Views: 2060

Re: Any younger men post rectal surgery?

I will say that all my treatments and surgeries has impacted my sex life but not my ability to have one. Once I started chemo and had surgeries the desire just dropped off for me. The main issue is just being way more tired than I use to. It has recovered somewhat but I'm still dealing with some imp...
by mandosquiddy
Mon Feb 04, 2019 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 44 y/o mom with new colon cancer diagnosis
Replies: 8
Views: 1400

Re: 44 y/o mom with new colon cancer diagnosis

My story is very similar to yours in terms of diagnosis. I also was initially told diverticulitis, was given a bunch of antibiotics during a 3 day hospital stay and sent home feeling mostly better but it didn't last and about a week later was back and a scope was done to determine cancer. I was 37 a...
by mandosquiddy
Mon Feb 04, 2019 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan results in
Replies: 5
Views: 1261

Re: CT scan results in

Greats news!
by mandosquiddy
Mon Feb 04, 2019 3:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic link
Replies: 5
Views: 959

Re: Genetic link

I also had genetic testing that showed nothing and there are no others in my family that have had it (at least in recent history).
by mandosquiddy
Fri Jan 25, 2019 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 92434

Re: Reversal Log: Experience,Problems, Q & A's

I am jumping back on this thread to say that I've returned to work 3 weeks after surgery. I've had a very few good days and am finding immodium to be key for me. I take it at breakfast and at lunch. My BMs have been much more solid, less painful and less irritating. We'll see if I can keep going dow...
by mandosquiddy
Mon Jan 14, 2019 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 92434

Re: Reversal Log: Experience,Problems, Q & A's

Perfect time for bumping this thread. I had my reversal on January 3rd. Started having very loose stool about 36 hours after surgery. On the night of the 5th/6th I had severe cramps and it felt like the blockage I had prior to discovering I had cancer in March of 17. However, the next day the cramps...

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