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by nicola smith
Thu Aug 18, 2016 10:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 665
Views: 138478

Re: For Stage III's: NED for how long now?

Still NED - sigmoidoscopy coming up in September. Still experiencing significant but manageable 'stocking' neuropathy in feet and lower limbs.
by nicola smith
Tue Jun 07, 2016 9:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy
Replies: 12
Views: 1111

Re: Neuropathy

I also recommend the pain doc or clinic. The pain clinic attached to our area hospital reserves one day a week for cancer patients...otherwise, the wait would be very long. The doc I saw said there is a program of treatment they use, trying one thing after another, until they find one that works. Ev...
by nicola smith
Mon Nov 16, 2015 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Picc line long term?
Replies: 12
Views: 801

Re: Picc line long term?

Lydia666 wrote: I was wondering if anyone had 4 months of chemo through a picc line. Is that possible? OG wrote: Yes. I had it. No problems at all. I don't know about Québec, but Ontario simply won't do ports for "short-term" chemo (less than, say, 6 months). What Ontario did pay for was ...
by nicola smith
Sun Nov 15, 2015 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just a vent and a warning for anyone looking to buy a bidet.
Replies: 15
Views: 1393

Re: Just a vent and a warning for anyone looking to buy a bidet.

Hi Green Lake Girl - ir's so good to hear from you. We just bought a second BioBidet - the new model number is BB2000, and it's working really well (we put the one we bought 4 years ago in the guest bathroom). This new one has an improved remote function that should work for your mother. I don't kno...
by nicola smith
Sat Oct 17, 2015 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Malaria as a cure for cancer
Replies: 14
Views: 1384

Re: A General Cure for Cancer?

woops - I see radnyc alread covered this...CRGuy perhaps you could just combine the two or delete this one. :roll:
by nicola smith
Sat Oct 17, 2015 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Malaria as a cure for cancer
Replies: 14
Views: 1384

A General Cure for Cancer?

As usual, this promising approach still needs to be tested in humans and will require at least another 4 years in development. CRGuy, some of this work is being done at UBC...do you have any inside info? "The hunt for a vaccine against malaria in pregnant women has provided an unexpected side b...
by nicola smith
Fri Aug 07, 2015 10:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PICC line
Replies: 31
Views: 1792

Re: PICC line

my PICC line itched horribly, sometimes got caught, made bathing difficult, and swimming impossible. I switched to a port...much bettah
by nicola smith
Thu Jul 16, 2015 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to stop hating chemo day???
Replies: 12
Views: 699

Re: How to stop hating chemo day???

About the only time I slept soundly was during chemo - those drugs just knocked me out. So a small plus.
by nicola smith
Fri Jul 10, 2015 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Virus - Clinical Trial
Replies: 7
Views: 1180

Colon Cancer Virus - Clinical Trial

http://www.cheori.org/en/newsreleases?newsid=394 "...the world’s first clinical trial of a therapy that uses a combination of two viruses to attack and kill cancer cells, and stimulate an anti-cancer immune response. The Miraba virus, one component of the therapy, was discovered by CHEO’s Dr. ...
by nicola smith
Fri Jun 19, 2015 11:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still dealing with asthma flare up
Replies: 2
Views: 281

Re: Still dealing with asthma flare up

I experienced those symptoms dealing with a blood clot (confirmation by CT scan). Another friend had similar symptoms - plus serious fatigue -from severe anaemia, and required a couple of transfusions.. I'm not mentioning this to scare you - just to make sure that your doc ruled out these possibilit...
by nicola smith
Fri Jun 12, 2015 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on me
Replies: 12
Views: 1184

Re: Update on me

I'm taking the maximum dose of symbicort. It does help me a lot when I'm not in a bad flare. I'm allowed to take up to 8 puffs a day. They call it the SMART protocol. They only do it in Canada and the UK as far as I know. I also take reactine, singulair, avamys nasal spray, ventolin and saline in m...

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