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by Nordy1
Fri Sep 18, 2020 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My story
Replies: 2
Views: 708

Re: My story

Hello Henny I’m so sorry you are going through this - it sucks and you are far to young. There are some wonderful people on this forum that are very good at sharing information and support and you do need support. When going through chemo I would try to sit by a new person each infusion and ask thei...
by Nordy1
Fri Aug 21, 2020 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 1900

Re: Scanxiety and 2020

Hi Crikklekay Itake tough to watch someone you love go through something and feel so helpless. I’ve often thought the whole cancer thing is harder on my family then it is on me. I try to make myself really busy with something for a few days before and it does help but I still get unexpected weird li...
by Nordy1
Tue Aug 11, 2020 9:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor deposits in adipose tissue
Replies: 1
Views: 612

Re: Tumor deposits in adipose tissue

Hi, welcome I’m no expert but in my case the tumor deposits were a factor in my Onc.suggesting full chemo Of 12 rounds as tumor deposits are local disease progression. The fact that you have no lymph nodes positive as well as the TDs is positive news for you as I understand it. I would suggest makin...
by Nordy1
Tue Jun 09, 2020 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reducing Oxaliplatin
Replies: 8
Views: 1761

Re: Reducing Oxaliplatin

Please be cautious, I wanted to tough it out and while I told my Onc about the neuropathy, I did tell him it wasn’t bad. I finally started to be a little more open on how it was affecting me about round 9 and he cut it down significantly but we had to drop it on 10. I have permanent neuropathy in my...
by Nordy1
Tue Jun 09, 2020 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Well, its been a minute
Replies: 15
Views: 2431

Re: Well, its been a minute

I’m so sorry to hear this, my thoughts and prayers are with you

nordy1
by Nordy1
Sun Mar 15, 2020 1:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: We've lost Ben (Pyro70)
Replies: 12
Views: 2593

Re: We've lost Ben (Pyro70)

I’m so sorry to hear this, he was very selfless in giving of his time -very active on the boards for all the newcomers.

He will be missed
Nordy1
by Nordy1
Mon Feb 24, 2020 2:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 649
Views: 110637

Re: If you want prayer stop in here!

Hello all you wonderful prayer warriors! I have my 2 year scan tomorrow and I’m feeling hopeful but nervous - my usual solution is to come on this forum and read the words of wisdom that all over this forum. Hooray for me because tonight I found your thread. I would really appreciate a prayer Thank ...
by Nordy1
Wed Jan 08, 2020 10:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Input Regarding Continuing Oxi with Neuropathy Present
Replies: 12
Views: 1649

Re: Input Regarding Continuing Oxi with Neuropathy Present

Hi I’m sorry your going through this, there is such a steep learning curve and so many decisions to be made. I made 8 treatments at full strength , 2 at reduced then switched drugs on the 11th and did not do the 12th and final treatment as my numbness had spread up my feet and legs to my knees. My h...
by Nordy1
Thu Aug 29, 2019 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I don't have much longer.
Replies: 11
Views: 2153

Re: I don't have much longer.

Hi Joe I’m so sorry to hear you and your family is going through this. I think this is a safe place to vent your fears/worries and speak plainly about what your dealing with. You are facing the exact thing we are all scared of and fighting so hard to beat. I think most of us here have probably thoug...
by Nordy1
Mon Aug 05, 2019 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 649
Views: 110637

Re: If you want prayer stop in here!

Folks I have an impossible decision to make today and I need prayer to help! I’ve been off chemo due to surgery, missed 2 infusions so far but I don’t want to go back. I’m meeting with the Onc. Today to discuss my future treatments or lack there of. I need quality time, not laid up on the couch in ...
by Nordy1
Wed Jul 31, 2019 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ct scans
Replies: 9
Views: 1329

Re: Ct scans

Hi there AVH112 I’m sorry your going through this, Your anxiety is understandable and we have all been in that position with you.Your best bet of course is to talk to your dr. get a colonoscopy done and go from there. I know that doesn’t sound very helpful but it’s true. As you know, once you’ve gon...
by Nordy1
Fri Jul 19, 2019 11:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon Cancer Stage 3 May2019 new member
Replies: 6
Views: 1402

Re: Colon Cancer Stage 3 May2019 new member

Hi Nate. 33 I experienced the frozen hand trick, I believe it was called ataxia. It’s from the oxali and is another symptom of neuropathy that you should mention to your doctor. I was able to complete 10 of my 12 sessions before the neuropathy became to severe nut I probably should have stopped one ...
by Nordy1
Wed Apr 17, 2019 11:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Floating Stool - bowel question
Replies: 10
Views: 1931

Re: Floating Stool - bowel question

] Maybe it's the water...maybe it's the cleaning product you use (or a mixture) that has an alchemical effect on the water in your toilet water, making it like a little 'Dead Sea' where everything floats..... "If you eliminate the impossible, whatever remains, however improbable, must be the tr...
by Nordy1
Mon Apr 15, 2019 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Floating Stool - bowel question
Replies: 10
Views: 1931

Re: Floating Stool - bowel question

I appreciate the replies everyone- I’m making an appointment with my general doc to discuss this and will update in case this is something that other people might search on this forum. I should have done this long ago but am dithering for some reason this happens regardless of location, and has been...

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