Search found 23 matches

Go to advanced search

by Nordy1
Sat Feb 23, 2019 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 9
Views: 322

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

Hi All Just thought I would update. The scans have shown no growth for the last 3 months so they called it stable. The kidney node is still indeterminate and the liver they think is NAFLD. I see the doctor in a couple weeks but I think they want to take a watch and see approach. Im not sure Im comfo...
by Nordy1
Wed Feb 20, 2019 5:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Crazy cancer anxiety vs. legitimate concerns -- how do you differentiate?
Replies: 20
Views: 2031

Re: Crazy cancer anxiety vs. legitimate concerns -- how do you differentiate?

Wow just realized how old this original post is! Just goes to show how some things remain the same...

Nordy1
by Nordy1
Wed Feb 20, 2019 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Crazy cancer anxiety vs. legitimate concerns -- how do you differentiate?
Replies: 20
Views: 2031

Re: Crazy cancer anxiety vs. legitimate concerns -- how do you differentiate?

Leon, I think you're right about the surveillance period being tougher in some ways than active treatment. Chemo was about taking charge and doing something to actively fight my disease, whereas the aftermath is more along the lines of passively waiting for it to reappear (or--hopefully--stay away)...
by Nordy1
Wed Feb 20, 2019 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years Today!
Replies: 18
Views: 458

Re: 10 Years Today!

Congratulations!!

Thank you so much for sharing this!

Nordy1
by Nordy1
Fri Feb 15, 2019 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: "Dr" Google can be good
Replies: 13
Views: 661

Re: "Dr" Google can be good

A well-informed patient is an empowered patient, and moreover when doctors realize that you have educated yourself about your condition they are more likely to give you accurate information, rather than generalizations intended to reassure those who just want to be told what to do. . I agree 100% w...
by Nordy1
Thu Feb 14, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible Third Diagnoses
Replies: 12
Views: 734

Re: Possible Third Diagnoses

Hi Beckbeckbobeck and KimT We could talk about how much it sucked. I felt that it was a blessing of sorts to have gone through all I had, because I knew what she needed. .[/quote] This all resonates with me so much. The positive statements, while made with loving intentions, can be so hard to smile ...
by Nordy1
Mon Feb 11, 2019 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 9
Views: 322

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

Thank you all for the replies!

This gives me confidence to look at another facility if ours wont continue to test with other modes of scanning. CT tomorrow morning so I might possibly have an answer by Friday

thanks again,
Nordy1
by Nordy1
Mon Feb 11, 2019 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 9
Views: 322

Re: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

Hi martd Another Onc at the clinic mentioned biopsy in passing but I forgot to ask my own onc about it. I hesitate a bit there because of the chance of needle track seeding should it actually be cancerous, but of course if there is no imaging techniques that can answer then that is probably the next...
by Nordy1
Mon Feb 11, 2019 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: smallest tumors that turned up on your PET, PET/CT or PET/MRI ??
Replies: 9
Views: 322

smallest tumors that turned up on your PET, PET/CT or PET/MRI ??

Hi everyone I posted on another place here but I dont think my question was clear. Im hoping for people in similar situations to tell me there stories of what was next in terms of testing. If CT scans and ultrasound are inconclusive what did/does your dx do for small indeterminate lesions? I have an...
by Nordy1
Mon Feb 11, 2019 7:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Circulating Tumor Cells (CTC) TESTS
Replies: 9
Views: 571

Re: Circulating Tumor Cells (CTC) TESTS

""asked my Onc about this test this week. He said it isn’t ready yet and likely would be a DNA CTC test when it is. This is interesting if they can with precision see what is going on inside of us. In my case we are baffled how the Rectal cancer could appear metastatic 10 years later."...
by Nordy1
Sun Feb 10, 2019 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3C Recently Diagnosed - need support
Replies: 18
Views: 2511

Re: 3C Recently Diagnosed - need support

Congratulations on four down, MJ! Way to go! I would equate FOLFOX doses 4 - 8 like a series of blind dates: each one a little different, some good qualities, some bad. Don’t be surprised if some side effects show up for one cycle and disappear for another. There is a cumulative effect for tirednes...
by Nordy1
Sun Feb 10, 2019 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Circulating Tumor Cells (CTC) TESTS
Replies: 9
Views: 571

Re: Circulating Tumor Cells (CTC) TESTS

Just an update My onc said the CTC tests weren't approved here (Canada) and didn't think they were where they needed to be yet for reliability. I'm looking further into it and checking privately now. Also an update on my ultrasound, which showed clearly all nodes are still there but could not help d...
by Nordy1
Sat Feb 09, 2019 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox protocols
Replies: 9
Views: 549

Re: Folfox protocols

Hi Im fairly new as well but have done oxaliplatin with leucovorin and fluorouracil but not not folfiri. I had 11 out of 12 rounds and had all the listed side effects and by the end had what was deemed severe neuropathy of my hands and feet. I've been off the chemo since October and I'm gradually ge...
by Nordy1
Sat Feb 09, 2019 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: disappearing nodes, lesions or tumors - mets or scars?
Replies: 0
Views: 216

disappearing nodes, lesions or tumors - mets or scars?

Hi All When I was first diagnosed with cancer on my colon last year it was noted that I had indeterminate nodes on my liver, lungs and kidney, all smaller - largest being 1.2 cm. I was under the impression that they would be watched for 3 things - growth (potential cancer) shrinkage (potential cance...
by Nordy1
Sat Feb 09, 2019 8:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help! Husband relapsed with ascites and will start Erbitux and irenotican
Replies: 3
Views: 519

Re: Please help! Husband relapsed with ascites and will start Erbitux and irenotican

Hi Naniconi I'm so sorry to hear of this turn of events, I cant give you any information on your situation but I wanted to let you know I'm thinking about you and your family. The time span during new diagnosis or new discoveries along the way when you don't have all the answers is incredibly hard. ...

Go to advanced search