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by Punky44
Fri Apr 19, 2019 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things look good at the moment
Replies: 3
Views: 188

Re: Things look good at the moment

Glad things are going great!
by Punky44
Wed Apr 17, 2019 11:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dexamethasone
Replies: 15
Views: 500

Re: Dexamethasone

Everyone is so different in terms to how they react to chemo so there is really no “average”. Since he isn’t doing Ox, he won’t have to worry about those side effects. My mom started feeling tired around round 6 and her hair started thinning after completing 8 rounds.
by Punky44
Wed Apr 17, 2019 2:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dexamethasone
Replies: 15
Views: 500

Re: Dexamethasone

When my mom had chemo, she took this right before the infusion and then was instructed to take a dose for two days following. They also wrote two additional prescriptions for nausea if she needed them (zofran was one and the other one started with a c) but she never needed either.
by Punky44
Mon Apr 15, 2019 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Levels
Replies: 80
Views: 7105

Re: CEA Levels

Hang in there! My mom’s hair seemed to start thinning after FOLFOX and kept doing it two months out so we finally just got a wig and it was the best decision ever.
by Punky44
Sun Apr 14, 2019 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Meds working
Replies: 5
Views: 359

Re: Meds working

Just wanted to say yay for the shrinkage/no growth!
by Punky44
Sat Apr 13, 2019 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 12
Views: 576

Re: Finally reached the 'forgot I had cancer' spot!

Awesome! The day I don’t think about this will be the best day ever.
by Punky44
Sat Apr 13, 2019 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What To Expect With Surgery
Replies: 4
Views: 282

Re: What To Expect With Surgery

My mom is three weeks out from surgery and our biggest hurdle is the ileostomy itself and just dealing with eating with it and changing it. The surgery itself was not that big of a deal. My mom’s was robotically assisted laparoscopic so she’s got a few mini incisions here and there and then one mayb...
by Punky44
Thu Apr 11, 2019 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1382

Re: Mom’s bag won’t stop leaking

Thank you all for the continuing tips! Coloplast got back to me and is sending me a ton of samples in the next 5 business days. The funny thing is their application directions were exactly the opposite of what our ostomy nurse at Mayo told us. Coloplast recommended putting it all on standing up vs l...
by Punky44
Tue Apr 09, 2019 11:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom’s bag won’t stop leaking
Replies: 37
Views: 1382

Re: Mom’s bag won’t stop leaking

Thank you so much for checking in on us! So after a few days of leaking everyday, we made it to a stretch of three days and this most recent change we made it to four days with no leaks (just changed it because it was due)!! So that was huge. We’ve been really being careful with bulking up the barri...
by Punky44
Fri Apr 05, 2019 11:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supporting my husband with a new DX *UPDATE*
Replies: 25
Views: 3026

Re: Supporting my husband with a new DX *UPDATE*

Hooray! Great news and good luck with surgery!
by Punky44
Thu Apr 04, 2019 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years
Replies: 7
Views: 481

Re: 5 years

Congratulations!!
by Punky44
Thu Apr 04, 2019 6:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 fu
Replies: 9
Views: 495

Re: 5 fu

There might be some on this board who can chime in? That does make sense though given his age.
by Punky44
Thu Apr 04, 2019 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My husband has passed
Replies: 20
Views: 1164

Re: My husband has passed

So very sorry for your loss.
by Punky44
Thu Apr 04, 2019 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of you AmyG
Replies: 26
Views: 1614

Re: Thinking of you AmyG

Baby is doing great, just like mom! Will be thinking of you!

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