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by Punky44
Thu May 27, 2021 11:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The end of the road
Replies: 34
Views: 3227

Re: The end of the road

I’m so sorry to read this and I can’t find the words but I will keep you in my prayers and thank you for sharing your journey with us. <3
by Punky44
Tue May 25, 2021 12:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Great News!!!
Replies: 11
Views: 1379

Re: Great News!!!

So happy to hear! Congratulations!
by Punky44
Wed May 19, 2021 4:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA is a yo-yo
Replies: 11
Views: 1116

Re: CEA is a yo-yo

Another hater of CEA!

My mom’s last one was her highest yet...until I learned that because we went to a different lab they used a different scale and so it was an apples/oranges kind of thing. Anxious for her next one next month at her normal lab.

Could that be the case with you?
by Punky44
Wed Apr 21, 2021 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 22
Views: 5363

Re: It's back

I’m glad you had a great time in Hawaii! Sending you strength to get through this setback <3
by Punky44
Mon Apr 19, 2021 9:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice about resection and reconnection
Replies: 17
Views: 3379

Re: Advice about resection and reconnection

I will just add another anecdote for your consideration—my mom’s tumor was fairly low and she had a temporary bag and dealing with the bag was the worst part of it all for her. She couldn’t count the days fast enough until reversal. Similar to others’ comments, the first weeks after reversal were “u...
by Punky44
Tue Mar 30, 2021 10:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 22
Views: 5420

Re: Rising CEA After 2 1/2 Years on Keytruda

Keeping you in my prayers and hoping for a good scan on Thursday!

10 years is awesome, but now let’s go for another 10!
by Punky44
Mon Mar 22, 2021 6:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified of rising trend (another CEA post)
Replies: 6
Views: 2071

Re: Terrified of rising trend (another CEA post)

Thank you Gina <3 I did a search on here for Roche and found a bunch of posts about people seeing a rise/above normal number when switching to Roche. I am praying that’s all this is. My mom doesn’t seem concerned in the slightest now that she knows the methodology/scale were different. I’m still kin...
by Punky44
Mon Mar 22, 2021 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified of rising trend (another CEA post)
Replies: 6
Views: 2071

Terrified of rising trend (another CEA post)

Hi guys. My mom just got her results from her 3 month CEA and it’s 3.4. We’ve gone from 2.4 to 3.0 to 3.4 in the last three tests—I am really nervous about this. It seems to be a rising trend and it’s now over the upper limit of normal. The nurse told my mom on the phone that the doctor labeled it “...
by Punky44
Thu Mar 11, 2021 9:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scan & deporting (stage IV)
Replies: 15
Views: 3006

Re: Clear scan & deporting (stage IV)

Exciting news Rob! Congrats!
by Punky44
Thu Mar 11, 2021 9:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Moving to every 6 months, port removal
Replies: 19
Views: 4877

Re: Moving to every 6 months, port removal

I cannot believe you almost have a 2 year old!!

Congratulations on moving to more spaced out appointments and saying goodbye to the port!!
by Punky44
Thu Mar 11, 2021 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday to Me!
Replies: 5
Views: 986

Re: Happy Birthday to Me!

Happy belated birthday!
by Punky44
Thu Mar 11, 2021 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 27
Views: 5036

Re: My mum needs prayers

Prayers for your mom!
by Punky44
Sat Feb 13, 2021 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: kick'n ass cancer's ass
Replies: 7
Views: 2271

Re: kick'n ass cancer's ass

Congratulations!!
by Punky44
Thu Feb 04, 2021 2:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approaching 3 years NED Soon but CEA at 5.9 recently..
Replies: 9
Views: 2762

Re: Approaching 3 years NED Soon but CEA at 5.9 recently..

C-E-A—Causing Extreme Anxiety

I know the feeling—any rise always makes me nervous but you’d be surprised how many times people’s CEAs rise only to fall the next time, for a totally benign reason.

Hang in there.
by Punky44
Thu Feb 04, 2021 2:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 28
Views: 7087

Re: Cured it is then !

Yay!!! Congrats mom and Stu!

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