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by Punky44
Sun Jul 26, 2020 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Longer term lodgings in Rochester, MN
Replies: 1
Views: 376

Re: Longer term lodgings in Rochester, MN

You could check out the Residence Inn Marriott—it’s attached to the hospital through the underground walkways and my mom stayed their during her radiation (though hers was short course so only 5 days vs 5 weeks). I’m not sure if they have different “extended stay” pricing but they have a fully furni...
by Punky44
Fri Jul 03, 2020 2:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 month scans clear
Replies: 21
Views: 2848

Re: 6 month scans clear

Great news!!
by Punky44
Fri Jul 03, 2020 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still here still clear
Replies: 15
Views: 2342

Re: Still here still clear

That’s awesome Dave!!!

Guess what—my mom got great news on her most recent scans as well—everything looked clear and CEA dropped.

I am so thankful.

But even crazier, due to COVID, her surveillance was pushed back and rescheduled to June 17th so you guys were at Mayo on the same day!!!
by Punky44
Thu Apr 09, 2020 1:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year anniversary and now delayed surveillance
Replies: 15
Views: 3039

Re: One year anniversary and now delayed surveillance

Thank you for sharing Julie! I did not realize there were official guidelines on the subject. I guess in a weird way it makes me feel a little better that it’s coming from the top and they believe the benefit of delaying outweighs the risk.

Hope everyone is staying safe <3
by Punky44
Mon Mar 30, 2020 11:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break due to covid-19 outbreak
Replies: 14
Views: 2335

Re: Chemo break due to covid-19 outbreak

Just want to share a similar situation in that my mom’s surveillance CT, CEA and colonoscopy are all being pushed back from April to June. It’s tough not knowing what June will bring (will it be pushed back again?) but right now the hospitals don’t think it is safe to risk it and feel like a slight ...
by Punky44
Tue Mar 24, 2020 1:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year anniversary and now delayed surveillance
Replies: 15
Views: 3039

Re: One year anniversary and now delayed surveillance

Thank you Stu, I hope they will come up with a safe plan. NHMike, we are going to call and ask—that bloodwork was supposed to be up at Mayo as well same day as scan so now we are wondering if we should get it local “on time” (or if that’s even safe...) Unrelated NHMike but I was reading your signatu...
by Punky44
Sat Mar 21, 2020 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 2480

Re: Clear scans!

Just seeing this...congratulations!!!
by Punky44
Sat Mar 21, 2020 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: One year anniversary and now delayed surveillance
Replies: 15
Views: 3039

One year anniversary and now delayed surveillance

A year ago today my mom was wheeled away from me in a hospital stairway at Mayo where she underwent a 6 hour surgery to get NED. A celebratory day indeed that we’ve made it this far, but of course now with this pandemic, she got calls that her CEA / CT scan and colonoscopy have been postponed. (CT s...
by Punky44
Tue Mar 10, 2020 2:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 2338

Re: Me again, my fave topic: CEA

Fellow CEA obsesser here. I think it’s super positive that it was that high once and then dropped. So while it climbed, it has done this before with no rising trend and you could reasonably anticipate it will drop again and that’s just your “range.” I am obsessively losing it over my mom’s, which wa...
by Punky44
Fri Mar 06, 2020 2:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another clear CT!
Replies: 15
Views: 1483

Re: Another clear CT!

What a great birthday present!! I cannot believe he is already 1!
by Punky44
Wed Feb 19, 2020 1:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy Reversal -- What do I pack/prep/plan?
Replies: 5
Views: 967

Re: Ileostomy Reversal -- What do I pack/prep/plan?

It does seem like recovery varies depending on several factors, and recovery can continue for up to a year after the procedure before they deem whatever the state of things is as “your new normal.” Maybe to be on the safe side, wait until after your procedure to see how your first days/weeks go and ...
by Punky44
Mon Feb 10, 2020 1:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advise.. I need to be more aggressive
Replies: 14
Views: 1441

Re: Advise.. I need to be more aggressive

Make that call Nicole! When we are at Mayo, we always hear how lucky we are to be in driving distance because so many people we run into have flown from all over the world.
by Punky44
Mon Feb 10, 2020 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ULAR recovery process
Replies: 5
Views: 771

Re: ULAR recovery process

Sounds like you are having a good recovery, which is great! I can only speak for my mom’s experience but things only got better weeks/months after reversal. She had and continues to have her “bad days” but they become less frequent as the months go by. I think they say it can take up to a year to fi...
by Punky44
Fri Feb 07, 2020 2:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP its grown. Please I'm sick I can't breath
Replies: 18
Views: 2920

Re: HELP its grown. Please I'm sick I can't breath

I cursed out loud when I read the title of your thread—I am sorry you didn’t get the news you wanted today. I really hope the new cocktail is the answer and I also hope your mom was able to help provide some comfort tonight. You are one strong mama! You’ve got this.

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