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by Punky44
Thu Nov 21, 2019 9:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scans clear!
Replies: 7
Views: 110

Re: 5 year scans clear!

Great news! Congratulations!
by Punky44
Tue Nov 19, 2019 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET CT Small Nodules
Replies: 5
Views: 261

Re: PET CT Small Nodules

That’s a good question—I would call the care team and ask why the verbiage in the original CT mentions nothing but the verbiage in the recent CT seems to suggest that when another radiologist compared images he saw something to compare.
by Punky44
Mon Nov 18, 2019 1:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET CT Small Nodules
Replies: 5
Views: 261

Re: PET CT Small Nodules

No expert here but I don’t think super small modules can light up on a PET...I think it’s gotta be like 1cm at least? On the report, does it say there was minimal growth and actually compare a previous scan to the current? What is the “impression” of that finding? Usually on the report if they are c...
by Punky44
Mon Nov 18, 2019 1:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: End of treatment and anxiety!
Replies: 10
Views: 428

Re: End of treatment and anxiety!

It’s awful waiting for scan results and I still haven’t figured out a way to not totally drive myself crazy, so I’m no help there, but just wanted to send you good vibes for your upcoming scan.
by Punky44
Mon Nov 18, 2019 1:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just need to vent because I’m angry
Replies: 16
Views: 607

Re: Just need to vent because I’m angry

Totally can relate to feeling mad/scared/worried/love all at the same time. You can always vent here and find support.

It is so very hard to have no control sometimes in this shitty journey, both for the patient and the caregiver.
by Punky44
Tue Nov 12, 2019 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery here, and done.
Replies: 24
Views: 721

Re: Surgery here, and done.

Great news, I know you were worried about surgery—happy you got a great report and all went well.
by Punky44
Fri Nov 08, 2019 10:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 year scans
Replies: 16
Views: 605

Re: 5 year scans

Sending you good vibes!! Will this be your last scan then?
by Punky44
Mon Nov 04, 2019 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday to me!!
Replies: 14
Views: 375

Re: Happy Birthday to me!!

Happy Birthday!
by Punky44
Sun Nov 03, 2019 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 23
Views: 1295

Re: Freaking out of my mind...CEA climb and specks on lungs

Do you have access to the raw imaging data? And past raw images? I have noticed that lung spots that turned out to be believed to be infections start out large (~1 cm or more ) and cloudy looking. They don't shrink, but sometimes fade away. Lung mets, on the other hand, start out small (a few mm) a...
by Punky44
Fri Nov 01, 2019 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 23
Views: 1295

Re: Freaking out of my mind...CEA climb and specks on lungs

Punky, You know how I feel about inserting oneself as the patient vs your mother & then sharing those stresses w/the patient that a caregiver should carry on their own back (for the most part). Remember our little talk here: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=61055...
by Punky44
Fri Nov 01, 2019 6:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 23
Views: 1295

Re: Freaking out of my mind...CEA climb and specks on lungs

Everyone's tolerance for this journey is different. When they first started seeing nodules on my lungs and I was told that we were going to "wait and watch" I hated that idea. I wanted to know right away and treat it right away. I found out over the years that lung mets are slow growing a...
by Punky44
Fri Nov 01, 2019 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 month scan ? What to expect. (Rectal)
Replies: 18
Views: 563

Re: 3 month scan ? What to expect. (Rectal)

My mom’s showed shrinkage and her CEA dropped bit by bit after each infusion.
by Punky44
Thu Oct 24, 2019 9:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking out of my mind...CEA climb and specks on lungs
Replies: 23
Views: 1295

Re: Freaking out of my mind...CEA climb and specks on lungs

I do this all the time. In fact, I just came home from a three month lung scan. The spots he saw three months ago were not there today. Yay! I was diagnosed with rectal cancer almost thirteen years ago and have had recurrences in my lungs three times. Twice I had VATS and once I had SBRT. My lungs ...
by Punky44
Thu Oct 24, 2019 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Joe Rogers (1974-2019)
Replies: 10
Views: 584

Re: Joe Rogers (1974-2019)

So sorry for your loss. You’ll be in my prayers.
by Punky44
Thu Oct 24, 2019 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need to vent
Replies: 9
Views: 880

Re: I need to vent

Positive thoughts for you—been through a c diff nightmare with my daughter before and it is no fun.

Probiotics and more probiotics.

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