Congratulations Amy! Welcome to the world little one!

5FU is “appropriately named” made me spit out my water from laughing . Thanks to everyone posting on this thread - it gives us tremendous encouragement.

DH has reversal surgery this coming weekend. He had the vast majority (80%) of rectum removed and we know it’s going to be a journey to get to a new normal. We will get a full plan from colorectal (increasing fiber slowly etc) but I would be interested in any insights or suggestions for how to handl...

Think I’ve got the signature down - hope this helps. Second round of clean scans today - NED! Ileo reversal this week

Congrats Amy!!! You’re amazing and your tenacity is an incredible asset as you continue on this path of healing!!!!

Hi Everyone, I haven’t posted in several weeks because it’s been a lot of scans and bloodwork and prep for ileostomy reversal. But I wanted to let this board know that as of this morning my DH is now NED per his oncologist!!!! It’s been quite the journey here from his July 4th Dx and we now enter a ...

Trying, I can’t fully understand what you’re going through as I’m a caregiver to my DH not the patient, but I can relate to certain aspects of it. I remember when our doctors told us that they were treating my DH with neoadjuvant chemo before surgery and it was very difficult to not shout “roll him ...

Also Hi Heiders. Too many of us on here but MSK seems to be doing wonders for us all. Keeping you in thoughts too.

GinaBee - thank you for documenting journey - helpful for all of us here.

Hi Rebecca, We’re also young, NYC-based, at MSK...and husband also Stage IV diagnosed in July 18 - he had single met in liver and lung so didn’t get HAI pump but had a complete neoadjuvant liver response and near complete lung response (they did VATS and small liver resection to quadruple check). Co...

Thank you for sharing this - it gives up so much optimism and we can share in your joy! Best!

Hi Chadwick,

Very similar to my DH, who is also early onset. Are you NY based?

I’ll be keeping you in my thoughts. I’m very hopeful it’s not a lung Met but I have full faith in the excellent care at MSK to get both our families through hurdles.

Hi, Just to offer some further info re the MSK approach when there is a lung Met. They don’t generally put in the pump if any lung Mets exist. DH had a single small liver met and a single small lung Met and we of course asked about HAI pump. The oncology team discussed it and didn’t feel my husband ...

This is great news!

Great news - we love our team at MSK - they all consult with one another so you’re in great hands with the benefit of additional expert reviews.

Thanks. Yes I hope they can reduce not cut out but with the tinnitus (ototoxicity is a side effect, though not common) and the low platelets, I don’t know how they will handle it. This far, he’s had a pretty clear recovery/treatment and I keep remonding myself it’s impossible to get thru this withou...