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by SGNYC
Fri Mar 29, 2019 10:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking of you AmyG
Replies: 26
Views: 2635

Re: Thinking of you AmyG

Congratulations Amy! Welcome to the world little one!
by SGNYC
Fri Feb 15, 2019 11:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 31
Views: 11157

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

5FU is “appropriately named” made me spit out my water from laughing :D . Thanks to everyone posting on this thread - it gives us tremendous encouragement.
by SGNYC
Wed Feb 13, 2019 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileo Reversal - LAR recovery
Replies: 6
Views: 1141

Ileo Reversal - LAR recovery

DH has reversal surgery this coming weekend. He had the vast majority (80%) of rectum removed and we know it’s going to be a journey to get to a new normal. We will get a full plan from colorectal (increasing fiber slowly etc) but I would be interested in any insights or suggestions for how to handl...
by SGNYC
Tue Feb 12, 2019 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: From Stage IV to NED!!!!!!
Replies: 7
Views: 1206

Re: From Stage IV to NED!!!!!!

Think I’ve got the signature down - hope this helps. Second round of clean scans today - NED! Ileo reversal this week
by SGNYC
Tue Feb 12, 2019 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T but I completed my half marathon!
Replies: 20
Views: 1436

Re: O/T but I completed my half marathon!

Congrats Amy!!! You’re amazing and your tenacity is an incredible asset as you continue on this path of healing!!!!
by SGNYC
Fri Feb 01, 2019 1:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: From Stage IV to NED!!!!!!
Replies: 7
Views: 1206

From Stage IV to NED!!!!!!

Hi Everyone, I haven’t posted in several weeks because it’s been a lot of scans and bloodwork and prep for ileostomy reversal. But I wanted to let this board know that as of this morning my DH is now NED per his oncologist!!!! It’s been quite the journey here from his July 4th Dx and we now enter a ...
by SGNYC
Mon Jan 14, 2019 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please positivity about peri met
Replies: 7
Views: 1604

Re: Please positivity about peri met

Trying, I can’t fully understand what you’re going through as I’m a caregiver to my DH not the patient, but I can relate to certain aspects of it. I remember when our doctors told us that they were treating my DH with neoadjuvant chemo before surgery and it was very difficult to not shout “roll him ...
by SGNYC
Mon Jan 14, 2019 11:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41164

Re: My CRC with liver mets journey

Also Hi Heiders. Too many of us on here but MSK seems to be doing wonders for us all. Keeping you in thoughts too.

GinaBee - thank you for documenting journey - helpful for all of us here.
by SGNYC
Mon Jan 14, 2019 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 282
Views: 41164

Re: My CRC with liver mets journey

Hi Rebecca, We’re also young, NYC-based, at MSK...and husband also Stage IV diagnosed in July 18 - he had single met in liver and lung so didn’t get HAI pump but had a complete neoadjuvant liver response and near complete lung response (they did VATS and small liver resection to quadruple check). Co...
by SGNYC
Sun Jan 06, 2019 11:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checking in to say Hello. Stage IV still NED
Replies: 8
Views: 2470

Re: Checking in to say Hello. Stage IV still NED

Thank you for sharing this - it gives up so much optimism and we can share in your joy! Best!
by SGNYC
Fri Jan 04, 2019 11:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 13828

Re: Hospitals that install HAI pump?

Hi Chadwick,

Very similar to my DH, who is also early onset. Are you NY based?

I’ll be keeping you in my thoughts. I’m very hopeful it’s not a lung Met but I have full faith in the excellent care at MSK to get both our families through hurdles.
by SGNYC
Thu Jan 03, 2019 5:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospitals that install HAI pump?
Replies: 73
Views: 13828

Re: Hospitals that install HAI pump?

Hi, Just to offer some further info re the MSK approach when there is a lung Met. They don’t generally put in the pump if any lung Mets exist. DH had a single small liver met and a single small lung Met and we of course asked about HAI pump. The oncology team discussed it and didn’t feel my husband ...
by SGNYC
Thu Dec 20, 2018 1:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mets disappeared
Replies: 10
Views: 1531

Re: Mets disappeared

This is great news!
by SGNYC
Sat Dec 15, 2018 12:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 37
Views: 5791

Re: No longer NED - DEVASTATED

Great news - we love our team at MSK - they all consult with one another so you’re in great hands with the benefit of additional expert reviews.
by SGNYC
Tue Dec 11, 2018 11:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tinnitus
Replies: 3
Views: 734

Re: Tinnitus

Thanks. Yes I hope they can reduce not cut out but with the tinnitus (ototoxicity is a side effect, though not common) and the low platelets, I don’t know how they will handle it. This far, he’s had a pretty clear recovery/treatment and I keep remonding myself it’s impossible to get thru this withou...

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