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by jmn
Thu Aug 08, 2019 9:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie trying to get up to speed...
Replies: 19
Views: 1782

Re: Newbie trying to get up to speed...

See quick responses below … Remaining questions and actions: 1. although the pathology report has been "2nd-opinioned" (from the lab and "verified" by the hospital's pathology dept), my intention is to have the major cancer center runs another histopathology analysis Great! I had...
by jmn
Wed Aug 07, 2019 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 1829

Re: Staging and treatment options.

Like Beckster, I was on Xeloda for six months. I took 6,000 mg daily—two weeks on, one week off. Side effects included skin darkening, rashes, occasional fatigue, some dehydration, and elevated creatinine levels; I didn’t have any problems with diarrhea, nausea, or vomiting. All in all, it was very ...
by jmn
Wed Aug 07, 2019 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIIb, T4 tissue invasion. 12 yrs ago.
Replies: 3
Views: 411

Re: Stage IIIb, T4 tissue invasion. 12 yrs ago.

I have been NED for 12 years now. I am thankful for each day since that NED diagnosis. And I hope you can be lucky or blessed to achieve a similar good outcome as I received. My prayers are that you will. Congrats on being NED for 12 years! Many thanks for your encouragement to those of us who are ...
by jmn
Wed Aug 07, 2019 2:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 43
Views: 1765

Re: Newly diagnosed rectal cancer

jmn wrote:My GI doctor schedules my CT scans—quicker and much easier than working directly as an outpatient with my local hospital or with a free-standing imaging center.

CORRECTION: Sorry, I misread the question. My GI doctor schedules my colonoscopies; my MSK oncologist schedules my CT scans.
by jmn
Wed Aug 07, 2019 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectal cancer
Replies: 43
Views: 1765

Re: Newly diagnosed rectal cancer

My GI doctor schedules my CT scans—quicker and much easier than working directly as an outpatient with my local hospital or with a free-standing imaging center.
by jmn
Wed Aug 07, 2019 2:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I've graduated!
Replies: 8
Views: 597

Re: I've graduated!

How sweet it is! Congratulations! You are an inspiration to all of us who hope and pray that one day we’ll be able to look back over a 13-year journey from diagnosis and say, “I’m fine.”

Enjoy the rest of the summer. Hope yesterday is just the beginning of your best year yet.
by jmn
Sun Aug 04, 2019 8:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newbie trying to get up to speed...
Replies: 19
Views: 1782

Re: Newbie trying to get up to speed...

The only thing that I can suggest is getting a second pathology on your tumor. Was your pathology done at a Designated Cancer Center https://www.cancer.gov/research/nci-role/cancer-centers? These centers are usually at major cancer centers. I would seriously consider getting a second opinion. You c...
by jmn
Sat Aug 03, 2019 9:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 1829

Re: Staging and treatment options.

Husband was stage IIB in 2009. Choose not to do chemo. NED from 2009 until April 2019 - recurrence spread to peritoneum and liver (none in colon) now Stage4c. In Hindsight Husband said if he had to do it over again he would have chosen in 2009 to do the chemo just in case that would have helped in ...
by jmn
Thu Aug 01, 2019 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 58
Views: 4013

Re: Quick intro -- diagnosed Friday

Zackattack wrote:If the TME surgery removes the lymph nodes and finds there is no lymph-vascular invasion or cancer in any lymph nodes - Stage 1 -- no mop up Chemo typically, right?

Right.
by jmn
Wed Jul 31, 2019 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 611
Views: 85579

Re: If you want prayer stop in here!

Pyro wrote:I have an impossible decision to make today and I need prayer to help!

Pyro, I prayed for you today and I’ll continue to keep you in my thoughts and prayers. Mohrfamily’s husband is also on my prayer list.
by jmn
Wed Jul 31, 2019 12:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed
Replies: 13
Views: 1194

Re: Just diagnosed

Thanks! I did call MSK yesteday morning.They took my information and called back a couple of hours later, offering me an appointment with Dr. Julio Garcia-Aguilar on 7/31. Thinking of you today as you head into the city for your appointment with Dr. Julio Garcia-Aguilar. I read his bio and some pat...
by jmn
Tue Jul 30, 2019 11:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reminder: Don't forget your Vitamin D!
Replies: 7
Views: 537

Re: Reminder: Don't forget your Vitamin D!

While 42 percent of the US population is vitamin D deficient, this rate rises to 82 percent for Blacks and 70 percent for Hispanics because high amounts of melanin in the skin reduce the body’s ability to produce vitamin D from sunlight. As a dark-skinned African American, taking one 5,000 IU softge...
by jmn
Tue Jul 30, 2019 1:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reminder: Don't forget your Vitamin D!
Replies: 7
Views: 537

Re: Reminder: Don't forget your Vitamin D!

Thanks, Al! My doctor has me taking 5,000 IU daily.
by jmn
Tue Jul 30, 2019 3:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Staging and treatment options.
Replies: 32
Views: 1829

Re: Staging and treatment options.

Dave, My signature will give you a sense of my journey to date, but I want to emphasize the need for a pathology second opinion. After my right hemicolectomy with Stage IIA, pathologists at my community hospital identified no high-risk factors (pT3N0) , which is why my local oncologist recommended s...
by jmn
Tue Jul 30, 2019 1:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 58
Views: 4013

Re: Quick intro -- diagnosed Friday

Stay positive and stay strong, but also stay vigilant. Zack, I think Andre is spot-on about staying positive and strong AND staying vigilant. After my resection surgery last July, pathologists at a local community hospital identified no high-risk factors. My local oncologist therefore recommended s...

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