Search found 14 matches

Go to advanced search

by Kbelo
Mon Jun 03, 2019 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Prep suggestions?
Replies: 12
Views: 798

Re: Prep suggestions?

I just had a colonoscopy last week (blessedly normal!) and used Pico Salax. I found it to be as effective (perhaps better) as the BiPeg Lyte I used last year. I will be using Pico Salax going forward. You only drink 2 sachets of the solution in 150 mls of water (with Bi-peg Lyte I had to drink 2 lit...
by Kbelo
Mon Jun 03, 2019 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Persistent fatigue and brain fog, 5 months post chemo
Replies: 2
Views: 416

Persistent fatigue and brain fog, 5 months post chemo

I finished 6 months of chemo (FOLFIRINOX - FOLFOX plus Irinotecan) in January. My neuropathy is improving to the point where I don't mind it as much, but I really struggle still with fatigue and brain fog. I'm working out many days a week to boost energy levels and stamina, and doing brain games to ...
by Kbelo
Mon May 06, 2019 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 25
Views: 2440

Re: Neuropathy improvement: individual experience

I had my last FOLFIRINOX infusion Jan 2nd and definitely noticed and increase in the severity of neuropathy for the following few weeks, including the electric pulses down my legs when I moved my head forward (called l'hermittes sign, I think?). I've noticed the pulses stopped about a month ago (3 m...
by Kbelo
Mon Feb 18, 2019 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfirinox - Bad tolerance
Replies: 10
Views: 1156

Re: Folfirinox - Bad tolerance

I just finished 12 rounds of FOLFIRINOX last month - it's definitely a tough regime. For nausea and diarrhea I found the first 4 rounds to be the worst, with it evening out by round 8. For nausea I was taking Emend, Ondansetron, and Prochlorazine which helped a lot. Neulasta sucks, I had such bad mu...
by Kbelo
Tue Jan 29, 2019 4:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you first discover or got diagnosed with colorectal cancer ?
Replies: 16
Views: 2274

Re: How did you first discover or got diagnosed with colorectal cancer ?

I had very infrequent bleeding over the course of 12-18 months, maybe for a couple days at a time, then nothing for months. I did suffer from bloating about a year before diagnosis, but it has cleared up completely when I switched to a ketogenic diet. My GP felt it was nothing, especially with no fa...
by Kbelo
Wed Jan 23, 2019 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox v. Folfiri?
Replies: 19
Views: 2047

Re: Folfox v. Folfiri?

Folfiri contains 5FU too, it just swaps Oxaliplatin for Irinotecan. Hope this treatment does its job for you!
by Kbelo
Tue Dec 11, 2018 7:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Heartbroken
Replies: 12
Views: 1732

Re: Heartbroken

So sorry for your loss. You're in my thoughts tonight
by Kbelo
Tue Nov 20, 2018 9:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Strange new side effects with FOLFIRINOX
Replies: 6
Views: 736

Re: Strange new side effects with FOLFIRINOX

My oncologist decided to scale back the Oxaliplatin to see if we could get rid of the strange zaps I'm getting in my feet. Thanks for the Vaseline tip - think I'll give it a try for my nose to see if it helps
by Kbelo
Mon Nov 19, 2018 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Strange new side effects with FOLFIRINOX
Replies: 6
Views: 736

Strange new side effects with FOLFIRINOX

I'm wondering if anyone else has experienced these side effects - I'm 8 rounds (of 12) through FOLFIRINOX and these are new to me. 1. I'm getting strange "pulses" through my ankles and feet, almost like little electrical zaps or currents. It started once a day, about a week ago, now I get ...
by Kbelo
Thu Oct 25, 2018 3:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 20
Views: 4920

Re: Quality of life on Folfox and others

I've done 7 of 12 rounds of FOLFIRINOX, which is FOLFOX plus Irenotecan. First 2 rounds were the worst, with terrible vomitting that had me back in the hospital for fluids. Since then I've been given 3 different types of anti-nausea drugs which has stopped the vomitting for these last few rounds. Ou...
by Kbelo
Thu Oct 25, 2018 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on here from Nova Scotia Canada?
Replies: 9
Views: 1107

Re: Anyone on here from Nova Scotia Canada?

I'm from Nova Scotia (Annapolis Valley), but have lived on Ottawa for the last 18 years
by Kbelo
Wed Aug 22, 2018 6:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low WBC after 2 treatments of FOLFIRINOX
Replies: 9
Views: 1576

Re: Low WBC after 2 treatments of FOLFIRINOX

Thanks everyone for the replies and details of your experiences! I am delayed again for another week as my WBC count only went from 0.7 to 0.9 after a week off. I will be getting the booster after my next chemo session, but my oncologist won't do anything until then, so I need to wait for the WBC to...
by Kbelo
Tue Aug 14, 2018 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low WBC after 2 treatments of FOLFIRINOX
Replies: 9
Views: 1576

Low WBC after 2 treatments of FOLFIRINOX

I'm just 2 of 12 treatments in on a clinical trial using FOLFIRINOX and found out that my WBC count is 0.7, and they've cancelled round 3 tomorrow and pushed it out a week to give me more time to recover. To proceed my WBC needs to be 1.5! Anyone have success with the booster? I heard there can be s...
by Kbelo
Tue Aug 07, 2018 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eating and chemo
Replies: 8
Views: 1054

Re: Eating and chemo

For nausea, have you tried Emend? I had my first round of chemo (FOLFIRINOX) in July 18 and was sick 13 times overnight, which meant a trip back to the chemo unit the next day for IV fluids. I had been given ondansetron and prochlorazine and they did very little. This round (Aug 1st) I was given Eme...

Go to advanced search