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by Cmac1275
Mon Dec 03, 2018 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 871

Re: Mixed bag kinda day: progression, genomic results, and trial

DarknessEmbraced wrote:I'm sorry about the new liver lesions!*hugs* I hope your chemo and clinical trial go well!*hugs*


Thank you!
by Cmac1275
Mon Dec 03, 2018 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX failed
Replies: 14
Views: 683

Re: FOLFOX failed

Has anyone else experienced FOLFOX as a failed frontline treatment & can share stories of successful second line treatments? I can only answer half of your question as I am in the same boat. But feeling optimistic nonetheless. I had done 6 rounds of FOLFOX back in March through May 2018. I work...
by Cmac1275
Fri Nov 30, 2018 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stomach aches
Replies: 3
Views: 321

Re: Stomach aches

Hi all, I am new to the forum. I was diagnosed with stage III colon cancer in January 2017 at 37 years old. I had emergency surgery, 6 months of chemo and am NED. I have have on and off slight pains where my original pain started about 6 months after surgery, had ct all was well, pains started agai...
by Cmac1275
Fri Nov 30, 2018 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 871

Re: Mixed bag kinda day: progression, genomic results, and trial

I hope that you are able to track some of the extra blood markers and panels that I've talked about, at least before and after any treatments, particularly CA199 (especially at least once), AFP, LDH, with hsCRP(and ESR) for an inflammation level(s). Also the trial is likely to be tracking more bloo...
by Cmac1275
Thu Nov 29, 2018 9:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 871

Re: Mixed bag kinda day: progression, genomic results, and trial

cartech78 wrote:
Cmac1275 wrote:
cartech78 wrote:Good luck my friend.


Same to you. I’ll be following your journey as long as you keep sharing it with us.
by Cmac1275
Wed Nov 28, 2018 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 871

Re: Mixed bag kinda day: progression, genomic results, and trial

Thank you Stu. This is helpful. Particularly as I sit here with a very sour stomach. Achy and bloated. Good thing CT scans did not show any spread. But of course, now I wonder if I have a bowel blockage due to a post-surgery adhesion. Or, is it something I ate yesterday. Sigh. This cancer mental war...
by Cmac1275
Wed Nov 28, 2018 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Time Here - Anxiety is High
Replies: 23
Views: 1081

Re: First Time Here - Anxiety is High

You are doing the right thing. And feeling anxious is normal. But this is the right course of action. Like a typical guy, I wrote my symptoms off as hemorrhoids, which my dad has always dealt with. And of course, any stomach ache, I always attributed to eating something that didn't sit well. After a...
by Cmac1275
Wed Nov 28, 2018 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 871

Re: Mixed bag kinda day: progression, genomic results, and trial

Punky44 wrote:Praying for you that your new plan brings you as much success as the first time!


Thank you!
by Cmac1275
Wed Nov 28, 2018 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 871

Re: Mixed bag kinda day: progression, genomic results, and trial

Hi , Sorry you have a rough day but you are a great responder to chemo and certainly in my mum’s case it took two years for most of disease to make itself know and be controlled . Great that you tolerate chemo so well . Hope the next cycle sorts it out for you . Take care, Stu Thank you, Stu. I kno...
by Cmac1275
Wed Nov 28, 2018 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 871

Re: Mixed bag kinda day: progression, genomic results, and trial

Sorry to hear about these results. I posted to you awhile back about that Abbvie trial, My wife works there. I was at MSK when the Duke people were shadowing Dr.Kemeny earlier in the Month. What a small world. Im currently doing 3 rounds of FolFox here in Chicago and going back to MSK on Dec18th to...
by Cmac1275
Mon Nov 26, 2018 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 871

Mixed bag kinda day: progression, genomic results, and trial

Hello everyone, Wanted to post about my day at Duke Cancer Center today. I guess for a bit of encouragement and support. But also, in case any of this information is helpful to others. Last Wednesday, 11/21/18, I had a CT scan after 4 rounds of FOLFOX + Avastin. Note that I had 6 rounds of the same ...
by Cmac1275
Tue Nov 20, 2018 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news
Replies: 17
Views: 1453

Re: Sad news

Very sorry for your loss.
by Cmac1275
Tue Nov 20, 2018 9:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA as a marker during chemo?
Replies: 11
Views: 568

Re: CEA as a marker during chemo?

I was at 2.1 post liver resection. Right after surgery, they found some new spots on my liver. Probably 2 months out. Started chemo immediately. CEA then rose to 3.6 and then 4.0 as 3 weeks ago. Will be getting a CT scan tomorrow. Then followup on Monday where they'll test CEA again. My oncologist w...
by Cmac1275
Sun Nov 18, 2018 12:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 24
Views: 1750

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

I was diagnosed this past January at age 42 as well. I’d tell you not to focus on survival statistics. But it’s practically impossible. I resisted for a long time and eventually caved. So, what I’ll say is that everyone is an individual. And yes, you should look at long-term survival stories for ins...
by Cmac1275
Fri Nov 16, 2018 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removed - 1.5 years later.
Replies: 11
Views: 485

Re: Port Removed - 1.5 years later.

Sweet and congrats! Time to move on out

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