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by Cmac1275
Wed Oct 03, 2018 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA correlation with metastasis and survival??
Replies: 12
Views: 763

Re: Baseline CEA correlation with metastasis and survival??

Agreed with above. My onc and I agreed we'll keep testing for it. But we're not going to use it as an entirely reliable marker. In my case, I had my CEA go all the way down from 60 to 2.1 after chemo and liver resection this year. But, about a month ago, they found some new spots in my liver. CEA ha...
by Cmac1275
Wed Oct 03, 2018 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy news
Replies: 9
Views: 736

Re: Happy news

Post like these keep me coming back. So happy to hear this news. May you continue to live happily in NEDville for many more years.
by Cmac1275
Wed Oct 03, 2018 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy came back positive. Now what?
Replies: 10
Views: 1090

Re: Biopsy came back positive. Now what?

@hiker, I wanted to follow up on this thread. I was pleasantly surprised to hear that Duke may begin offering HAI treatment soon. I had a follow-up with my oncologist and she mentioned to surgeons from MSK were coming down to meet with the board. If I understood correctly, they would be relocating a...
by Cmac1275
Mon Sep 24, 2018 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 23
Views: 1334

Re: Update from Rikimaroo

Checking in and sending positive vibes, prayers your way. Hope the news is good. For what it’s worth, I had CT guided biopsy last week. I don’t know how different yours will be since it’s a different part of the body. But, I can tell you the procedure was virtually painless and quick. Didn’t really ...
by Cmac1275
Mon Sep 24, 2018 6:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increase on FOLFIRI
Replies: 5
Views: 397

Re: CEA increase on FOLFIRI

Hang in there. CEA can be a fickle thing. For me, CEA seemed to be a reliable marker. Once I started FOLFOX / Avasting, I saw it go down from 60 to 4.7 right before my 6th and last session. Post liver resection, I was at 2.1. But now despite finding new mets in my liver, my CEA has remained at norma...
by Cmac1275
Mon Sep 24, 2018 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy came back positive. Now what?
Replies: 10
Views: 1090

Re: Biopsy came back positive. Now what?

I had 3-4 mets spread over both lobes and they were all removed during the resection and HAI pump implant surgery. However, if you have mets that can't be resected they can install the pump, hit the mets with super powerful chemo to eliminate them or shrink them enough that surgery may be a possibi...
by Cmac1275
Fri Sep 21, 2018 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy came back positive. Now what?
Replies: 10
Views: 1090

Re: Biopsy came back positive. Now what?

You indicated that is a possibility for you. If you have the means, why wait? Outside major cancer centers can work w/your local docs & it all takes time in sending records, initial consultation, paperwork, etc. You don't owe your doctors anything. Best Wishes BS We have now reached out to MSK....
by Cmac1275
Fri Sep 21, 2018 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy came back positive. Now what?
Replies: 10
Views: 1090

Re: Biopsy came back positive. Now what?

If you only have liver mets, I would encourage you to contact MSK in NYC and see if Dr. Nancy Kemeny will accept you as a patient. She is an expert, probably the leading expert, on treating liver mets from colon cancer. A year and half ago I was told by several doctors that I had two years left to ...
by Cmac1275
Thu Sep 20, 2018 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy came back positive. Now what?
Replies: 10
Views: 1090

Biopsy came back positive. Now what?

Hi folks, recently I had posted on another thread about several new liver mets that showed up only 2 months after liver resection. I had a biopsy on Monday, and it came back positive. I confirmed today that I am KRAS/MSS. I was tested for HER2 and that came back negative. Full Foundation One test is...
by Cmac1275
Wed Sep 19, 2018 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why do I torture myself? Signet Ring Cell Sigmoid Colon
Replies: 5
Views: 859

Re: Why do I torture myself? Signet Ring Cell Sigmoid Colon

Try to stay off the internet. If you are like I was, this seems impossible, but try anyway. +1 to this. I went from doing very little research...just following doctors orders, so to speak...to now spending entirely too much time each day online researching all things cancer. Of course, you have to ...
by Cmac1275
Wed Sep 19, 2018 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.
Replies: 18
Views: 5584

Re: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.

Been following this. Hoping the results turn out to be favorable. By the way, have you been tested for MSI status? Thanks, Plastikos. Meeting with my new oncologist tomorrow. Will be asking to get more detail on exactly what they’ve tested for. If I’m being honest, when I was Dx’ed in January, I ju...
by Cmac1275
Tue Sep 18, 2018 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 79
Views: 27477

Re: Dang 1cm Liver Met!

Thank you for mentioning Dr. Nasha Winters' book. I looked her up and found a very informative video of her explaining "the metabolic approach to cancer." https://www.youtube.com/watch?v=KvnzkoCfLno My husband is diabetic again and this is all very worrying for me. But he knows what is he...
by Cmac1275
Tue Sep 18, 2018 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.
Replies: 18
Views: 5584

Re: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.

Thank you. Biopsy was a breeze. Hoping for good news when results come back.
by Cmac1275
Mon Sep 17, 2018 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hai pumps?
Replies: 8
Views: 690

Re: Hai pumps?

Thanks, @DBF. I just had a liver biopsy done today to confirm suspicious new spots. It’s only been two and a half months since my first of two liver resections. Not happy about this considering I’ve had a very positive journey since my original Dx back in January. The good news is that nothing shows...
by Cmac1275
Mon Sep 17, 2018 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rejected at mskcc because of 3mm possible ling met
Replies: 5
Views: 443

Re: Rejected at mskcc because of 3mm possible ling met

I echo what others have said. Seek out other cancer centers / doctors. Can’t speak to the lung met variable, but when my oncologist saw my liver CT scans during my original diagnosis, he wasn’t sure I’d be resectable. My liver was covered with several large patches of metastatic disease. Even after ...

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