Search found 43 matches

Go to advanced search

by Phillypatient
Thu Aug 04, 2022 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fasting and LARS
Replies: 2
Views: 1534

Fasting and LARS

Hi All Just wanted to post an update. Have ULAR about 5 years ago. Was terribly disappointed with the surgery so opted not to follow up with docs so haven’t seen once since. I’ve tried experimenting with different foods and different schedules but to no avail. Two weeks ago I had some friends come i...
by Phillypatient
Sat Jun 26, 2021 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pT1/pT2 What option to take?
Replies: 8
Views: 2205

Re: pT1/pT2 What option to take?

MSK is leading a large study on this. Others on this board may chime in. I had the surgery and have found it quite life altering to be honest. Thanks for your input, can you elaborate with the surgery ? Do you mean the LAR has impacted you quite negatively or you are coping ok? Good luck I also had...
by Phillypatient
Fri Jun 18, 2021 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pT1/pT2 What option to take?
Replies: 8
Views: 2205

Re: pT1/pT2 What option to take?

Have you considered the watch and wait option https://www.mskcc.org/clinical-updates/watch-and-wait-strategy-results-rectal-preservation-select-rectal-cancer-patients MSK is leading a large study on this. Others on this board may chime in. I had the surgery and have found it quite life altering to b...
by Phillypatient
Sun Feb 14, 2021 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constant bowel movement and burning bottom!!!
Replies: 9
Views: 2993

Re: Constant bowel movement and burning bottom!!!

One thing to consider is a bidet. It cleans using water and even that temp can be controlled. I found it helpful because the constant wiping was a literal pain in the ass

Good luck
by Phillypatient
Sat Oct 31, 2020 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 19
Views: 4422

Re: Is W&W an option for a partial response

prayingforccr wrote:My biopsy results came in today from Cleveland Clinic.

Benign.

Going to msk for confirmation.

I started crying when I read the report.


That’s awesome!!
Congrats. You have no idea of the bullet you’ve just dodged!
by Phillypatient
Fri Oct 23, 2020 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 19
Views: 4422

Re: Is W&W an option for a partial response

I have been/am being treated by msk. We did 5 weeks crt (radiation/capecetabine/m3814) and I just completed my 8th round of folfox. I took 5 weeks In between CRT and chemotherapy. All actions were done with giving me the best chance to achieve a pcr or ccr and avoid a colostomy. I believe this is t...
by Phillypatient
Thu Oct 22, 2020 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 19
Views: 4422

Re: Is W&W an option for a partial response

Is anyone aware of any data on the risks where pathology is inconclusive or shows very limited remaining malignancy (e.g. a few cells, but not true remaining tumor)? I know some patients don’t get surgery due to infirmities and/or choice, but I can find nothing on this. I suspect it’s because the d...
by Phillypatient
Thu Oct 22, 2020 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 19
Views: 4422

Re: Is W&W an option for a partial response

At MSK, the doctor there suggested to do the chemotherapy before surgery because they have observed complete clinical response in patients that have residual tumors post radiation. You are going to have to do the chemo anyway. I’d much happier I did it pre surgery when I functioned normally. Doctor...
by Phillypatient
Mon Oct 19, 2020 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 19
Views: 4422

Re: Is W&W an option for a partial response

My mistake. I just read your profile. You did it the way they would have done it ideally. My feeling is to get a second from Dr Aguilar-Garcia. He’s a great guy to speak to about your situation and he is an excellent second opinion option. If you can avoid surgery, he’s the guy who is most in favor ...
by Phillypatient
Sun Oct 18, 2020 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 19
Views: 4422

Re: Is W&W an option for a partial response

At MSK, the doctor there suggested to do the chemotherapy before surgery because they have observed complete clinical response in patients that have residual tumors post radiation. You are going to have to do the chemo anyway. I’d much happier I did it pre surgery when I functioned normally. Doctor ...
by Phillypatient
Tue Aug 25, 2020 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation During Radiation/Chemo
Replies: 3
Views: 1364

Re: Constipation During Radiation/Chemo

Sorry to hear about your situation. Sometimes the drugs they give during chemo cause constipation. I suspect you I know the answer, but have you tried any of the natural means to alleviate constipation....chia seeds, cruciferous vegetable (cabbage, cauliflower, broccoli,etc), oatmeal, berries, prune...
by Phillypatient
Thu Nov 28, 2019 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clustering & marshmallows
Replies: 4
Views: 1487

Re: Clustering & marshmallows

Good to know. I recently went to my GI doc after a couple of years of clustering and he mentioned that I might be somewhat constipated. After doing an X-ray he confirmed it. I started to drink Smooth Move tea every evening and it moved things along much faster. He mentioned that the force to evacuat...
by Phillypatient
Wed Aug 28, 2019 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1787

Re: Deciding between treatments?

Have the docs mentioned watch and wait? Sometimes chemoradiation followed by chemo or vice versus results in a complete response at which point surgery is delayed.

MSK leads the study

https://www.mskcc.org/clinical-updates/ ... ut-surgery

Good luck and ask questions!
by Phillypatient
Sun Jul 28, 2019 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed
Replies: 15
Views: 3080

Re: Just diagnosed

Sorry to hear of your diagnosis.
You get one shot to destroy this thing. Go to the best. Go to MSK. They do the cutting edge research and they are worth the drive. They are leading the research on watch and wait so you may be able to avoid the surgery.
by Phillypatient
Sun May 26, 2019 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Whole rectum removed
Replies: 12
Views: 4192

Re: Whole rectum removed

Also, I don’t know your treatment teams philosophy, but are they, and more importantly you, open to “watch and wait?” Of course, this depends on whether you have had a complete response to treatment or not. Many of the top centers are incorporating this treatment plan based on the severity of the su...

Go to advanced search