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by Phillypatient
Fri Feb 15, 2019 3:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 261
Views: 92579

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I think the PROSPECT trail shows that chemo itself can shrink a tumor, so it’s possible for chemo to be used to treat any potential micromestastases in addition to addressing the primary tumor. See the below link from MSK from 2015 https://www.mskcc.org/clinical-updates/toward-curing-rectal-without-...
by Phillypatient
Thu Feb 14, 2019 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 261
Views: 92579

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene You should check this out. He is head of MSK Colorectal surgery and running the watch and wait study. I'm surprised you have not been advised to do full chemotherapy. It's called "consolidation" chemo and increases the chance of a full response. My opinion is that I would do ever...
by Phillypatient
Wed Dec 19, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Percentage That Have A Complete Clinical Response To Chemo/Radiation
Replies: 12
Views: 2840

Re: Percentage That Have A Complete Clinical Response To Chemo/Radiation

https://clinicaltrials.gov/ct2/show/NCT03565029 That sounds about right and what the doctors said to me. https://www.mskcc.org/clinical-updates/toward-curing-rectal-without-surgery The above link is one of the doctors leading the study. Really do what you can to get there, because the surgery is awf...
by Phillypatient
Mon Nov 26, 2018 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 29
Views: 4203

Re: Is LARS a foregone conclusion? Anyone doing W&W?

Neither of the surgeons I consulted with mentioned anything about it. As one surgeon put it, when I asked what life would be life after surgery - he said, "You just may not want to eat before you go to a cocktail party." This is borderline insulting and quite infuriating. I also had a sim...
by Phillypatient
Mon Nov 19, 2018 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemoradiation before surgery
Replies: 12
Views: 870

Re: No chemoradiation before surgery

I’m confused. Are they saying to do a LAR? I thought MSK would try to treat it and see if they can get you to a watch and wait status so you don’t have to have the surgery. My experience is that the surgery is brutal and should be avoided at all costs. https://www.mskcc.org/clinical-updates/toward-c...
by Phillypatient
Wed Nov 07, 2018 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1394

Re: Did Daily Enema Users consult Doctors?

The only thing I take anymore are a couple lomotil just to make sure I'm okay all day. I use for peace of mind, don't really think I need.


Did your doc ever mention any long term effects of immodium? My surgeon said it can mess with the natural process of peristalsis and warned against using it.
by Phillypatient
Thu Nov 01, 2018 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1394

Re: Did Daily Enema Users consult Doctors?

Thank you so much for the reply Susan. After 10 months out, I think I'm at my wit's end so I'm ready to try things LARS sufferers' employ as opposed to my surgeon who said "oh, you'll just make a couple extra trips to the bathroom...no biggie" Another surgeon also did not recommend enemas,...
by Phillypatient
Wed Oct 31, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 1394

Did Daily Enema Users consult Doctors?

Hi All I’ve been doing some research on how to deal with my LARS. I had my reversal Dec 2017 and it’s been brutal. I’ve also read some good advice on daily enema usage and wanted to know if users consulted with their doctors first. Also, how long post-reversal did you start using enemas? Thanks for ...
by Phillypatient
Wed Oct 24, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 5134

Re: Update from Rikimaroo

My suggestion is to get a bidet attachment to your toilet. The wiping will take it’s toll on you fast!
by Phillypatient
Wed Oct 10, 2018 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 4953

Re: I am so worried.

Very interesting about the Watch & Wait approach. I told my mom we for sure should seek a second opinion at Mayo if we are lucky enough to have a complete response. I cannot emphasize how much you want this to happen. When surgeons are trying to find ways to not cut you up, you know the surgery...
by Phillypatient
Wed Oct 10, 2018 7:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 4953

Re: I am so worried.

1. If it is rectal cancer, it seems surgery is 4 months out—is that pretty standard? I’m so nervous about it spreading during that time, but the doctor said the chemo/radiation would be fighting to do the opposite. That’s pretty standard. I would also note that some people have a complete response t...
by Phillypatient
Thu Sep 13, 2018 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1417
Views: 268377

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Doctor said no enemas.


What was the reason the doctor said no enemas?
by Phillypatient
Tue Sep 04, 2018 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 5609

Re: STAGE 3 rectal cancer treatment without surgery

Lowrectalcancer.com explains the entire process and premise behind enemas for patients that had rectal cancer Thanks so much for the website Susie. I will certainly do some research. It's ironic that a cure for something that would eventually kill you leaves one wishing one would rather not be alive.
by Phillypatient
Tue Sep 04, 2018 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 5609

Re: STAGE 3 rectal cancer treatment without surgery

I didn’t know about the study. I would love to read it if you could point the way. I couldn’t agree with you more about the QOL issue post LAR. I told my oncologist I would have easily taken what time I had left presurgery than multiple years in my current state. I’ve realized modern medicine is abo...
by Phillypatient
Wed Aug 29, 2018 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1417
Views: 268377

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I can second the Calmoseptine. I had a “cooling” effect on the area which is much needed when you spend a lot of time on the toilet.

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