Search found 31 matches

Go to advanced search

by Phillypatient
Wed Aug 28, 2019 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1157

Re: Deciding between treatments?

Have the docs mentioned watch and wait? Sometimes chemoradiation followed by chemo or vice versus results in a complete response at which point surgery is delayed.

MSK leads the study

https://www.mskcc.org/clinical-updates/ ... ut-surgery

Good luck and ask questions!
by Phillypatient
Sun Jul 28, 2019 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed
Replies: 15
Views: 2012

Re: Just diagnosed

Sorry to hear of your diagnosis.
You get one shot to destroy this thing. Go to the best. Go to MSK. They do the cutting edge research and they are worth the drive. They are leading the research on watch and wait so you may be able to avoid the surgery.
by Phillypatient
Sun May 26, 2019 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Whole rectum removed
Replies: 12
Views: 2231

Re: Whole rectum removed

Also, I don’t know your treatment teams philosophy, but are they, and more importantly you, open to “watch and wait?” Of course, this depends on whether you have had a complete response to treatment or not. Many of the top centers are incorporating this treatment plan based on the severity of the su...
by Phillypatient
Sat May 25, 2019 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Whole rectum removed
Replies: 12
Views: 2231

Re: Whole rectum removed

That happened to me. It’s a way to address low rectal tumor. In my case the connect directly to colon so it’s called a coloanal anastomosis. It sounds like that is your case. It’s a way to “preserve” the natural bowel movements as opposed to a colostomy bag. It’s also generally associated with high ...
by Phillypatient
Tue Apr 02, 2019 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129440

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Congrats Jolene!! You really did just win the lottery!! That said, you should absolutely do the chemo part to address any potential micrometastases. The xeloda dose is slightly higher than the one you took during radiation, so if you tolerated that okay, then that should not be such an issue. It's t...
by Phillypatient
Tue Mar 26, 2019 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129440

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene Have you considered consolidation chemotherapy which is done CRT first then chemotherapy and finally surgery if there is no CCR? Below are two links worth reading https://www.mskcc.org/clinical-updates/sidestepping-rectal-cancer-surgery-total-neoadjuvant-therapy https://www.spandidos-publicat...
by Phillypatient
Fri Feb 15, 2019 3:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129440

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I think the PROSPECT trail shows that chemo itself can shrink a tumor, so it’s possible for chemo to be used to treat any potential micromestastases in addition to addressing the primary tumor. See the below link from MSK from 2015 https://www.mskcc.org/clinical-updates/toward-curing-rectal-without-...
by Phillypatient
Thu Feb 14, 2019 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 413
Views: 129440

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene You should check this out. He is head of MSK Colorectal surgery and running the watch and wait study. I'm surprised you have not been advised to do full chemotherapy. It's called "consolidation" chemo and increases the chance of a full response. My opinion is that I would do ever...
by Phillypatient
Wed Dec 19, 2018 10:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Percentage That Have A Complete Clinical Response To Chemo/Radiation
Replies: 12
Views: 3433

Re: Percentage That Have A Complete Clinical Response To Chemo/Radiation

https://clinicaltrials.gov/ct2/show/NCT03565029 That sounds about right and what the doctors said to me. https://www.mskcc.org/clinical-updates/toward-curing-rectal-without-surgery The above link is one of the doctors leading the study. Really do what you can to get there, because the surgery is awf...
by Phillypatient
Mon Nov 26, 2018 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 29
Views: 5438

Re: Is LARS a foregone conclusion? Anyone doing W&W?

Neither of the surgeons I consulted with mentioned anything about it. As one surgeon put it, when I asked what life would be life after surgery - he said, "You just may not want to eat before you go to a cocktail party." This is borderline insulting and quite infuriating. I also had a sim...
by Phillypatient
Mon Nov 19, 2018 6:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemoradiation before surgery
Replies: 12
Views: 1353

Re: No chemoradiation before surgery

I’m confused. Are they saying to do a LAR? I thought MSK would try to treat it and see if they can get you to a watch and wait status so you don’t have to have the surgery. My experience is that the surgery is brutal and should be avoided at all costs. https://www.mskcc.org/clinical-updates/toward-c...
by Phillypatient
Wed Nov 07, 2018 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 2016

Re: Did Daily Enema Users consult Doctors?

The only thing I take anymore are a couple lomotil just to make sure I'm okay all day. I use for peace of mind, don't really think I need.


Did your doc ever mention any long term effects of immodium? My surgeon said it can mess with the natural process of peristalsis and warned against using it.
by Phillypatient
Thu Nov 01, 2018 3:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 2016

Re: Did Daily Enema Users consult Doctors?

Thank you so much for the reply Susan. After 10 months out, I think I'm at my wit's end so I'm ready to try things LARS sufferers' employ as opposed to my surgeon who said "oh, you'll just make a couple extra trips to the bathroom...no biggie" Another surgeon also did not recommend enemas,...
by Phillypatient
Wed Oct 31, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did Daily Enema Users consult Doctors?
Replies: 14
Views: 2016

Did Daily Enema Users consult Doctors?

Hi All I’ve been doing some research on how to deal with my LARS. I had my reversal Dec 2017 and it’s been brutal. I’ve also read some good advice on daily enema usage and wanted to know if users consulted with their doctors first. Also, how long post-reversal did you start using enemas? Thanks for ...
by Phillypatient
Wed Oct 24, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update from Rikimaroo
Replies: 44
Views: 6657

Re: Update from Rikimaroo

My suggestion is to get a bidet attachment to your toilet. The wiping will take it’s toll on you fast!

Go to advanced search