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by Phillypatient
Wed Oct 10, 2018 5:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 2670

Re: I am so worried.

Very interesting about the Watch & Wait approach. I told my mom we for sure should seek a second opinion at Mayo if we are lucky enough to have a complete response. I cannot emphasize how much you want this to happen. When surgeons are trying to find ways to not cut you up, you know the surgery...
by Phillypatient
Wed Oct 10, 2018 7:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 2670

Re: I am so worried.

1. If it is rectal cancer, it seems surgery is 4 months out—is that pretty standard? I’m so nervous about it spreading during that time, but the doctor said the chemo/radiation would be fighting to do the opposite. That’s pretty standard. I would also note that some people have a complete response t...
by Phillypatient
Thu Sep 13, 2018 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 224895

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Doctor said no enemas.


What was the reason the doctor said no enemas?
by Phillypatient
Tue Sep 04, 2018 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 4365

Re: STAGE 3 rectal cancer treatment without surgery

Lowrectalcancer.com explains the entire process and premise behind enemas for patients that had rectal cancer Thanks so much for the website Susie. I will certainly do some research. It's ironic that a cure for something that would eventually kill you leaves one wishing one would rather not be alive.
by Phillypatient
Tue Sep 04, 2018 9:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 4365

Re: STAGE 3 rectal cancer treatment without surgery

I didn’t know about the study. I would love to read it if you could point the way. I couldn’t agree with you more about the QOL issue post LAR. I told my oncologist I would have easily taken what time I had left presurgery than multiple years in my current state. I’ve realized modern medicine is abo...
by Phillypatient
Wed Aug 29, 2018 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1306
Views: 224895

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I can second the Calmoseptine. I had a “cooling” effect on the area which is much needed when you spend a lot of time on the toilet.
by Phillypatient
Fri Aug 24, 2018 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 79
Views: 32379

Re: Low Anterior Resection Syndrome: Do you have it?

PhillyPatient. Thanks for your note and good wishes . Sure, ask questions nonstop. It's your body. You are going to have to live with the consequences of any decision you make. The proverbial buck stops with you. So no question is too dumb and no concern is too small. LARS is serious and it annoys ...
by Phillypatient
Wed Aug 15, 2018 11:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal fissure post reversal
Replies: 10
Views: 1014

Re: Rectal fissure post reversal

I’m so sorry to hear about your mom. Honestly, post reversal is brutal. I would encourage her to use the sitz bath which can provide immediate relief sometimes. Also, Calmoseptine is pretty awesome. I also use witch hazel. And most important, I got a bidet attached to my toilet. It’s important to st...
by Phillypatient
Mon Aug 13, 2018 9:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 79
Views: 32379

Re: Low Anterior Resection Syndrome: Do you have it?

O Stoma Mia and ozziej, you have most likely summed up the feelings I suspect most people who have had a Lower Anterior resection feel. Why didn’t anyone tell me exactly how bad it could be? Why didn’t anyone tell me how life altering and debilitating the surgery could be. These were my exact sentim...
by Phillypatient
Sun Aug 12, 2018 11:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 79
Views: 32379

Re: Low Anterior Resection Syndrome: Do you have it?

Sounds like you are doing the induction treatment approach. Full chemo first, then chemo rad, then surgery. Lower anterior resection can involve the removal of the rectum, sigmoid colon and a small part of the colon. In your case, it sounds like the rectum primarily. The “neo rectum”/jpouch is up fo...
by Phillypatient
Sat Aug 11, 2018 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low Anterior Resection Syndrome: Do you have it?
Replies: 79
Views: 32379

Re: Low Anterior Resection Syndrome: Do you have it?

Having been 8 months out from a reversal surgery, I am starting to understand this as a mechanical issue. Even my oncologist agreed...it doesnt get better, you just adapt better. If you don’t have the organ that stores the waste until it reaches a critical mass, what do you think will happen...many ...
by Phillypatient
Thu Aug 09, 2018 9:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Short Term (5 Days) Radiation - Side Effects?
Replies: 21
Views: 4750

Re: Short Term (5 Days) Radiation - Side Effects?

I did the entire 25 days of radiation with proton beam. Honestly did not feel a thing until the last week or so, but only when having a bowel movement because, quite honestly, it burns the area slightly like all radiation. Otherwise I did not notice anything at all. And even then, the burning stoppe...
by Phillypatient
Wed Aug 08, 2018 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Short Term (5 Days) Radiation - Side Effects?
Replies: 21
Views: 4750

Re: Question for those who have had Pelvic Radiation - Proton Therapy?

I'm not sure of the question, but I did have Proton Radiation instead of the standard for my low rectal cancer. It is considered more precise and less damaging to surrounding tissues. Most of the other patients in the waiting room were there for brain/ocular/prostate tumors. I hope that helps answer...
by Phillypatient
Tue Aug 07, 2018 10:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 rectal cancer....
Replies: 9
Views: 994

Re: Stage 3 rectal cancer....

Ah, got it. Also, to clarify, they are not doing a resection of the rectum, just putting a temp ileostomy to avoid blockage during treatment, correct? If so, I will say an ileostomy is not so bad because it may just be temporary. Also, stage 4 is when the cancer has metastasized to other organs, gen...
by Phillypatient
Mon Aug 06, 2018 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 rectal cancer....
Replies: 9
Views: 994

Re: Stage 3 rectal cancer....

That’s strange. The standard is to begin with radiation along with small dose chemotherapy to shrink the tumor. What exactly is his disagnosis?

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