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by Phillypatient
Sat Oct 31, 2020 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 2609

Re: Is W&W an option for a partial response

prayingforccr wrote:My biopsy results came in today from Cleveland Clinic.

Benign.

Going to msk for confirmation.

I started crying when I read the report.


That’s awesome!!
Congrats. You have no idea of the bullet you’ve just dodged!
by Phillypatient
Fri Oct 23, 2020 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 2609

Re: Is W&W an option for a partial response

I have been/am being treated by msk. We did 5 weeks crt (radiation/capecetabine/m3814) and I just completed my 8th round of folfox. I took 5 weeks In between CRT and chemotherapy. All actions were done with giving me the best chance to achieve a pcr or ccr and avoid a colostomy. I believe this is t...
by Phillypatient
Thu Oct 22, 2020 9:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 2609

Re: Is W&W an option for a partial response

Is anyone aware of any data on the risks where pathology is inconclusive or shows very limited remaining malignancy (e.g. a few cells, but not true remaining tumor)? I know some patients don’t get surgery due to infirmities and/or choice, but I can find nothing on this. I suspect it’s because the d...
by Phillypatient
Thu Oct 22, 2020 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 2609

Re: Is W&W an option for a partial response

At MSK, the doctor there suggested to do the chemotherapy before surgery because they have observed complete clinical response in patients that have residual tumors post radiation. You are going to have to do the chemo anyway. I’d much happier I did it pre surgery when I functioned normally. Doctor...
by Phillypatient
Mon Oct 19, 2020 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 2609

Re: Is W&W an option for a partial response

My mistake. I just read your profile. You did it the way they would have done it ideally. My feeling is to get a second from Dr Aguilar-Garcia. He’s a great guy to speak to about your situation and he is an excellent second opinion option. If you can avoid surgery, he’s the guy who is most in favor ...
by Phillypatient
Sun Oct 18, 2020 8:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is W&W an option for a partial response
Replies: 24
Views: 2609

Re: Is W&W an option for a partial response

At MSK, the doctor there suggested to do the chemotherapy before surgery because they have observed complete clinical response in patients that have residual tumors post radiation. You are going to have to do the chemo anyway. I’d much happier I did it pre surgery when I functioned normally. Doctor ...
by Phillypatient
Tue Aug 25, 2020 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation During Radiation/Chemo
Replies: 4
Views: 944

Re: Constipation During Radiation/Chemo

Sorry to hear about your situation. Sometimes the drugs they give during chemo cause constipation. I suspect you I know the answer, but have you tried any of the natural means to alleviate constipation....chia seeds, cruciferous vegetable (cabbage, cauliflower, broccoli,etc), oatmeal, berries, prune...
by Phillypatient
Thu Nov 28, 2019 6:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clustering & marshmallows
Replies: 4
Views: 1120

Re: Clustering & marshmallows

Good to know. I recently went to my GI doc after a couple of years of clustering and he mentioned that I might be somewhat constipated. After doing an X-ray he confirmed it. I started to drink Smooth Move tea every evening and it moved things along much faster. He mentioned that the force to evacuat...
by Phillypatient
Wed Aug 28, 2019 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Deciding between treatments?
Replies: 15
Views: 1560

Re: Deciding between treatments?

Have the docs mentioned watch and wait? Sometimes chemoradiation followed by chemo or vice versus results in a complete response at which point surgery is delayed.

MSK leads the study

https://www.mskcc.org/clinical-updates/ ... ut-surgery

Good luck and ask questions!
by Phillypatient
Sun Jul 28, 2019 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed
Replies: 15
Views: 2628

Re: Just diagnosed

Sorry to hear of your diagnosis.
You get one shot to destroy this thing. Go to the best. Go to MSK. They do the cutting edge research and they are worth the drive. They are leading the research on watch and wait so you may be able to avoid the surgery.
by Phillypatient
Sun May 26, 2019 7:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Whole rectum removed
Replies: 12
Views: 3122

Re: Whole rectum removed

Also, I don’t know your treatment teams philosophy, but are they, and more importantly you, open to “watch and wait?” Of course, this depends on whether you have had a complete response to treatment or not. Many of the top centers are incorporating this treatment plan based on the severity of the su...
by Phillypatient
Sat May 25, 2019 10:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Whole rectum removed
Replies: 12
Views: 3122

Re: Whole rectum removed

That happened to me. It’s a way to address low rectal tumor. In my case the connect directly to colon so it’s called a coloanal anastomosis. It sounds like that is your case. It’s a way to “preserve” the natural bowel movements as opposed to a colostomy bag. It’s also generally associated with high ...
by Phillypatient
Tue Apr 02, 2019 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 520
Views: 207919

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Congrats Jolene!! You really did just win the lottery!! That said, you should absolutely do the chemo part to address any potential micrometastases. The xeloda dose is slightly higher than the one you took during radiation, so if you tolerated that okay, then that should not be such an issue. It's t...
by Phillypatient
Tue Mar 26, 2019 2:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 520
Views: 207919

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Jolene Have you considered consolidation chemotherapy which is done CRT first then chemotherapy and finally surgery if there is no CCR? Below are two links worth reading https://www.mskcc.org/clinical-updates/sidestepping-rectal-cancer-surgery-total-neoadjuvant-therapy https://www.spandidos-publicat...
by Phillypatient
Fri Feb 15, 2019 3:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 520
Views: 207919

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I think the PROSPECT trail shows that chemo itself can shrink a tumor, so it’s possible for chemo to be used to treat any potential micromestastases in addition to addressing the primary tumor. See the below link from MSK from 2015 https://www.mskcc.org/clinical-updates/toward-curing-rectal-without-...

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