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by rtcasper
Tue Oct 06, 2020 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 42
Views: 24204

Re: Newly diagnosed rectum cancer

Hey everyone! It's been a minute since ive been on here. Just popping in to say ive cleared 2 years, still NED. My surgeon, Dr. Matthew Kalady is leaving Cleveland clinic and going to OSU to become head of Colo- rectal surgery there, so I'm going to follow. Hope everyone is well and still going stro...
by rtcasper
Tue Oct 29, 2019 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 42
Views: 24204

Re: Newly diagnosed rectum cancer

Hi folks. Just checking in. Turns out I had a bad case of Cdiff after my reversal. Fought with it for 2 months, then finally had a FMT, fecal matter transplant. That was.....fun, to say the least, lol. Anyway, that was back in May and things have gotten better and better ever since. My weight is bac...
by rtcasper
Mon Jan 14, 2019 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 42
Views: 24204

Re: Newly diagnosed rectum cancer

OK, my update. Had my reversal surgery last Tuesday, the 8th? I think it was. One night in the hospital and sent home on Wednesday. I experienced some loose stool,clustering at about 2 am,was up and walking around immediately, so they felt comfortable sending me home. It's been a tough go this first...
by rtcasper
Sun Jan 13, 2019 9:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 98997

Re: Reversal Log: Experience,Problems, Q & A's

Bump, great thread for those looking into the future
by rtcasper
Sun Jan 13, 2019 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery update
Replies: 21
Views: 6090

Re: What surgery should I have?

I'm not 100% sure either, as I only received 5 days of radiation prior to surgery. ..that seemed to be a compromise treatment between the rectum vs.colon typical plans. My rectum was removed down to the "..." line, I forget what it's called, plus approx 18 inches of colon. As far as the po...
by rtcasper
Sun Jan 13, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 497050

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I just wanted to add to the idea of stress being a huge contributing factor, if not the root cause, to cancer. When i was first DX,they told me that they estimated my tumor had been forming basically for about 8-10 years. Of course, I thought back to around that time and was in fact going through a ...
by rtcasper
Fri Jan 11, 2019 8:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery update
Replies: 21
Views: 6090

Re: What surgery should I have?

Hi, as you can see by my signature, mine was 12-13.5 cm from anal verge, difference between imaging and surgeon's sigmoidoscopy. I'm about 99% certain you're going to have a LAR. I did, had illeostomy,and had reversal surgery this past Tuesday actually. There's nothing about this journey that is ple...
by rtcasper
Mon Nov 19, 2018 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No chemoradiation before surgery
Replies: 12
Views: 2270

Re: No chemoradiation before surgery

Hi, I was given a short course, 5-days of radiation only, followed by surgery. This will be followed by a reversal and I will not be receiving any adjuvant therapy either-for the exact reasons your Dr.identified-they felt it would be over treatment in my case. I receive my care through Cleveland cli...
by rtcasper
Wed Nov 14, 2018 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe pain while walking after LAR
Replies: 7
Views: 1453

Re: Severe pain while walking after LAR

Im sorry to hear you are in such pain. To be honest, I had absolutely no pain associated with my surgery, a little bit of discomfort in the abdominal area was all. I did request a nerve block of my stomach before operating though,and I think that made all the difference. My belly was kind of numb fo...
by rtcasper
Wed Nov 07, 2018 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Extra stoma supplies
Replies: 4
Views: 1139

Re: Extra stoma supplies

Thanks for the replies,and thank you Phuong, I'll ship them out ASAP
by rtcasper
Wed Nov 07, 2018 4:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 4600

Re: Almost 6 years

Awesome Kiwi, best of future luck to you as well!
by rtcasper
Sun Nov 04, 2018 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Extra stoma supplies
Replies: 4
Views: 1139

Extra stoma supplies

Hi everyone, I've got a few extra stoma supplies that I'm not going to use and was wondering if anybody here might need them or have any ideas on what I should do with them? Some barrier rings, flat coloplast 1 piece pouches (4), belts and mefix self adhesive fabric-all unopened. If you need anythin...
by rtcasper
Sun Oct 28, 2018 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 42
Views: 24204

Re: Newly diagnosed rectum cancer

Hi Mike, Yeah, luckily, no accidents. I did build a little kit for traveling, work, etc. Just in case. I've been sleeping in my recliner since I got back home from surgery, it keeps me ever so slightly upright and I can't really roll from side to side. It's been great, tho my wife likely wouldn't ag...
by rtcasper
Fri Oct 26, 2018 5:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi, I'm new to the club
Replies: 14
Views: 2842

Re: Hi, I'm new to the club

Hi, sorry for the reason you are here,but you couldn't be with a better group of people. I second the major cancer center opinion, they just have so much more experience with this terrible disease, and especially considering you are a stage 4. And believe me, you can't go wrong with Cleveland clinic...
by rtcasper
Thu Oct 18, 2018 4:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 42
Views: 24204

Re: Newly diagnosed rectum cancer

Hi guys, just an update. A little over 3 weeks out from surgery, went back to work earlier in the week. I work moat of the day til I'm tired, then head home. The bag is getting easier to deal with, I won't go so far as to say I hardly notice it, but it's bearable. Had a bad day about a week ago afte...

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