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by Gloriamazz
Sun Jun 09, 2019 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news from Stage 4 dad after a year and half
Replies: 9
Views: 716

Re: Good news from Stage 4 dad after a year and half

Hi everyone, Just wanted to give some updates about my dad since it would give some hope to those undergoing this disease. My father was diagnosed in Nov 2017 with Stage 4 colon cancer with liver mets. He has undergone surgery, chemo, had new lesions, had IMRT, chemo again + Altuzan and thankfully ...
by Gloriamazz
Fri May 31, 2019 10:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

FOLFOX is tough but doable. I worked full time the whole 7 months or so that I was on it. Taking the pump home was annoying but it’s only for 2 days. I would guess that the majority of the folks on here have done FOLFOX at one time or another. There are tons of posts about dealing with the side eff...
by Gloriamazz
Thu May 30, 2019 7:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1478
Views: 300782

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Late to the party but I too had a lot of pain initially whenever I sat down. I can’t remember when it passed but it took some time. I still drive with my cushion and I avoid hard seats at all cost. They seem to activate my bowels quite frequently. :roll: Dave Hi Dave, I wishI had Chemo after my LAR...
by Gloriamazz
Thu May 30, 2019 7:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

Hang in there girl! Maybe search for some positive stories on all the Stage 4 people who are surviving and thriving. You’d be amazed at how many there are. I don’t blame you for being scared, I’m scared sometimes too. We are all in this mess together! There are so many smart, compassionate people o...
by Gloriamazz
Wed May 29, 2019 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

Gloria, I definitely had less pain when the chemo was working. Once it stopped, the pain came back it seems like in just a few weeks. I start the infusion portion of my new treatment tomorrow. I’m doing Tafinlar+Mekinist+Vectibix. I hope you can get some answers from the tumor board. Please keep us...
by Gloriamazz
Wed May 29, 2019 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

Gloria, last May I had my yearly CT and it was all clear. In July I started having abdominal pain that I thought was a hernia. It ended up being new cancer on lungs, liver and peritoneum in only a couple of months. Went from Stage 3b to 4c. Back on chemo and was stable until two weeks ago when thin...
by Gloriamazz
Wed May 29, 2019 2:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

I'm so very sorry you'll dealing with this and I hope your chemo goes well!*hugs* Hi Fluff Bottom all of the symptoms sound very familiar. It sounds like you are getting response from Chemo, I have a lot of pain.. Did the chem lessen any pain you feel. I have non stop pain must be the tumor sitting...
by Gloriamazz
Tue May 28, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

Hi mandosquiddy, I am so sorry about your experience. It sounds like mine although I never felt well before or after the operation. It was shocking I have regular colonoscopies the last one looked good then 7 months later was having stomach issues and doc would do test for cdiff, hpylori and could n...
by Gloriamazz
Mon May 27, 2019 10:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

Thank you for replying everyone, I felt so alone and hopeless till I-read your posts. Before it was another day I wanted to thank you for giving me some hope, I am on pain pills for the Recurrent abdominal tumor and keep falling asleep so I apologize if it took longer to respond. :? 8) :lol: :| :win...
by Gloriamazz
Mon May 27, 2019 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Re: Totally in Shock Stage 2 to Stage 4 in 9 Months

Hi Stu, Thank you so much for getting back to me. The holiday is pushing the board out a week to June 3, 2019 until then I don't know about treatment options. Every time I turn around it gets worse. Aug 8 started with stage 2 with 0 nodes and 0 radiation treatment and 0 Chemo not needed. Went to Feb...
by Gloriamazz
Fri May 24, 2019 8:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally in Shock Stage 2 to Stage 4 in 9 Months
Replies: 17
Views: 1499

Totally in Shock Stage 2 to Stage 4 in 9 Months

August 2018 I had a LAR was told by my board certified surgeon since I had colorectal cancer stage 2 with no nodes involved and did not invade any other organs to get the Barbie Butt and permanent colostomy. The tumor was four inches away from the Anal Verge plus I would not need Chemo and Radiation...
by Gloriamazz
Fri May 10, 2019 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence - The Longest Month
Replies: 10
Views: 887

Re: Recurrence - The Longest Month

Hi Fumaros, Read your post today so sorry to read what you are going through. I may have something similar as I went for my biopsy today and tech took tissue. He called the tumor a pelvic mass. He said it is by the sciatica nerve and asked about leg pain. He said been doing biopsies for years and. 9...
by Gloriamazz
Wed May 08, 2019 1:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metastasis to Pelvis
Replies: 6
Views: 1036

Re: Metastasis to Pelvis

Pain first time is end of butt area is constant feels like golf balls. Have a strong pressure and burn also.
Same area can’t
bear it without pain pills and motrin.

Pain this time same thing same place. Thank God go for Biopsy this Friday also have stomach cramps at times.
by Gloriamazz
Sat May 04, 2019 10:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 54
Views: 8823

Re: Stage 4 to NED- Please tell us

I understand. I have same news as you do. In August had a LAR and Barbie butt. Encouraged to go this route with no hope of reconnect didn’t need Chemo or radiation. Feb 6 had a post surgery at scan every organ was fine no mention of any new lesions or recurrences. Never got rid of the pain it was un...
by Gloriamazz
Fri May 03, 2019 8:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metastasis to Pelvis
Replies: 6
Views: 1036

Re: Metastasis to Pelvis

Hi Hospital called Biopsy schedule for
Wed, May 15,2019.

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