I had issues when I sat. It was uncomfortable and when I sat on hard surfaces seemed to trigger me having to go to the bathroom. I had short course radiation and surgery so we are probably a little different. I was a competitive swimmer in the late 70’s early 80’s. I thought all the 2 a day practice...
Hi Lakeswim, I got back into triathlons last summer after a multi-decade absence. If you haven't ridden since last fall, you might want to try again with some touring shorts (extra padding) and a gel seat cover. I don't know how long it has been since radiation/surgery for you, but I could not ride ...
So sorry to hear of this latest setback. Vectibix can be pretty powerful if you are KRAS wild type so hopefully that might help your fight. To answer your question I tend to agree with Rob, no one knows how long they have so we should all be making the most of it. I would add that I am a follower of...
That is my plan too except the want to do every 6 months for years 3-6 and then every year until year 10. I am perfectly ok with the expectation of being around to year 10!
Glad you could figure out what caused the issues, Mike. It is so strange how our bodies adapt so differently to all of this. Probiotics seem to really help me. I was having issues with frequency and loose stools about a month ago. It was really getting me down. I stopped taking my magnesium suppleme...
Great discussion Everyone, Captain Obvious but that is one of the sucky parts of this disease. We don't know enough to have all the answers on what causes what. I still have my youngest at home and had pre and post surgery chemo. Mayo was pretty strong on the adjuvant chemo. I am NED so far and it w...
You can certainly wait if you choose but just to let you know, at the start of my journey I had a liver biopsy and other than taking it easy for a few days, it was not a very difficult procedure. Just an FYI!
Saw the Oncologist this morning. Scans were clean and I assume that bloodwork was too as he didn't mention it. He asked how I was doing and I showed him the VO2Max stuff and he asked some questions about the tracker. He said next visit is 6 months. So 1.5 years of 3-month and I guess 6-months for a...
Update 1/24/20: 18 week follow-up at Bethesda Trial NCT01174121, Some good news ! It appears the Tumor Inflitrating Lymphocyctes (TILs) are still Marching. My Wife showed SIGNIFICANT Shrinkage in her lung lesions. However several large "older" ones remained unchanged (which they said is s...
Hi Nightwolf, Sorry your mom has to go through all this. When I had my temporary ileostomy, I had several episodes of mucus poops. Even though the colon is not connected it is still producing mucus. When enough builds up it tends to come out. This didn't happen very often and was all within the firs...
Hi Rob, Glad you are doing pretty well. You will more than likely have some rough patches as you try new foods and become more active. A sense of humor will go a long way to getting through it. Glad you have control. If you can manage now you will definitely feel even better the farther out you go. ...