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by Gravelyguy
Fri Apr 03, 2020 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cycling seats post radiation treatment
Replies: 7
Views: 196

Re: Cycling seats post radiation treatment

I had issues when I sat. It was uncomfortable and when I sat on hard surfaces seemed to trigger me having to go to the bathroom. I had short course radiation and surgery so we are probably a little different. I was a competitive swimmer in the late 70’s early 80’s. I thought all the 2 a day practice...
by Gravelyguy
Thu Apr 02, 2020 9:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cycling seats post radiation treatment
Replies: 7
Views: 196

Re: Cycling seats post radiation treatment

Hi Lakeswim, I got back into triathlons last summer after a multi-decade absence. If you haven't ridden since last fall, you might want to try again with some touring shorts (extra padding) and a gel seat cover. I don't know how long it has been since radiation/surgery for you, but I could not ride ...
by Gravelyguy
Tue Mar 17, 2020 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear scans!
Replies: 20
Views: 1158

Re: Clear scans!

That is great news Rob!


Dave
by Gravelyguy
Thu Mar 12, 2020 1:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hope vs reality
Replies: 9
Views: 1285

Re: Hope vs reality

So sorry to hear of this latest setback. Vectibix can be pretty powerful if you are KRAS wild type so hopefully that might help your fight. To answer your question I tend to agree with Rob, no one knows how long they have so we should all be making the most of it. I would add that I am a follower of...
by Gravelyguy
Wed Mar 11, 2020 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I really like my new oncologist!
Replies: 2
Views: 257

Re: I really like my new oncologist!

Good news Amy!

That is my plan too except the want to do every 6 months for years 3-6 and then every year until year 10. I am perfectly ok with the expectation of being around to year 10!

Dave
by Gravelyguy
Fri Mar 06, 2020 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another clear CT!
Replies: 15
Views: 625

Re: Another clear CT!

Excellent. Enjoy the day!

Dave
by Gravelyguy
Tue Mar 03, 2020 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1668
Views: 389208

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Glad you could figure out what caused the issues, Mike. It is so strange how our bodies adapt so differently to all of this. Probiotics seem to really help me. I was having issues with frequency and loose stools about a month ago. It was really getting me down. I stopped taking my magnesium suppleme...
by Gravelyguy
Wed Feb 26, 2020 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 for 4 years, looking for advice
Replies: 17
Views: 1975

Re: Stage 4 for 4 years, looking for advice

Great discussion Everyone, Captain Obvious but that is one of the sucky parts of this disease. We don't know enough to have all the answers on what causes what. I still have my youngest at home and had pre and post surgery chemo. Mayo was pretty strong on the adjuvant chemo. I am NED so far and it w...
by Gravelyguy
Tue Feb 25, 2020 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Biopsy Question
Replies: 8
Views: 588

Re: Biopsy Question

Hi,

You can certainly wait if you choose but just to let you know, at the start of my journey I had a liver biopsy and other than taking it easy for a few days, it was not a very difficult procedure. Just an FYI!

Dave
by Gravelyguy
Mon Feb 24, 2020 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 644
Views: 103573

Re: If you want prayer stop in here!

Praying for you Nordy, Mohrfamily, and Trying.

Dave
by Gravelyguy
Fri Feb 14, 2020 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1668
Views: 389208

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Saw the Oncologist this morning. Scans were clean and I assume that bloodwork was too as he didn't mention it. He asked how I was doing and I showed him the VO2Max stuff and he asked some questions about the tracker. He said next visit is 6 months. So 1.5 years of 3-month and I guess 6-months for a...
by Gravelyguy
Thu Feb 13, 2020 9:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204394

Re: TIL Immunotherapy at NCI

Update 1/24/20: 18 week follow-up at Bethesda Trial NCT01174121, Some good news ! It appears the Tumor Inflitrating Lymphocyctes (TILs) are still Marching. My Wife showed SIGNIFICANT Shrinkage in her lung lesions. However several large "older" ones remained unchanged (which they said is s...
by Gravelyguy
Thu Feb 13, 2020 9:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Follow-Up CT / Fatty Liver
Replies: 2
Views: 411

Re: Follow-Up CT / Fatty Liver

Hi Lee,

Have you been on adjuvant chemo? If so, that would probably be the reason for the liver change. Chemo can mess with your liver. It did mine.

Dave
by Gravelyguy
Tue Feb 11, 2020 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 questions and guidance needed
Replies: 4
Views: 560

Re: Stage 4 questions and guidance needed

Hi Nightwolf, Sorry your mom has to go through all this. When I had my temporary ileostomy, I had several episodes of mucus poops. Even though the colon is not connected it is still producing mucus. When enough builds up it tends to come out. This didn't happen very often and was all within the firs...
by Gravelyguy
Mon Feb 10, 2020 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ULAR recovery process
Replies: 5
Views: 479

Re: ULAR recovery process

Hi Rob, Glad you are doing pretty well. You will more than likely have some rough patches as you try new foods and become more active. A sense of humor will go a long way to getting through it. Glad you have control. If you can manage now you will definitely feel even better the farther out you go. ...

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