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by Gravelyguy
Sun Jan 05, 2020 9:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on recovery from ULAR ileo reversal
Replies: 14
Views: 541

Re: Question on recovery from ULAR ileo reversal

Rock, This is what i used for in case of accidents: https://www.amazon.com/gp/product/B008RJV0L4/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 Everyone is different, I know Gravelguy has had issue and posted as such. I have been up and down, most days are not great. Yes I can go places and do...
by Gravelyguy
Sat Jan 04, 2020 12:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on recovery from ULAR ileo reversal
Replies: 14
Views: 541

Re: Question on recovery from ULAR ileo reversal

Hi Rob, I just use the cheapest size 1 (smallest) underwear liners I can find. I use the slim ones not the thick kind. I also needed to switch from loose boxer type underwear to more compression short type after the surgery. The extra support helped and also helped keep liners where they needed to b...
by Gravelyguy
Thu Jan 02, 2020 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on recovery from ULAR ileo reversal
Replies: 14
Views: 541

Re: Question on recovery from ULAR ileo reversal

I would also add that for me, sitting triggered having to go to the bathroom. Even1 1 1/2 years out sitting on hard surfaces will often give me the urge to go. So if you have a desk job I would make sure you have a very cushioned chair and move around as much as possible.

Dave
by Gravelyguy
Wed Jan 01, 2020 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question on recovery from ULAR ileo reversal
Replies: 14
Views: 541

Re: Question on recovery from ULAR ileo reversal

Hi Rob, A great topic. Our reactions to take down surgery are so variable ranging from people who are basically home bound to pretty much back to normal. Several of us have tried different things with differing results so it is hard to answer what to expect. I am a teacher and had reversal surgery a...
by Gravelyguy
Mon Dec 23, 2019 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I rang the bell today.
Replies: 15
Views: 1230

Re: I rang the bell today.

That is awesome news Amy. May it be a start to many years of NEDdom!

Dave
by Gravelyguy
Mon Dec 23, 2019 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice - new ileostomy reversal
Replies: 11
Views: 667

Re: Advice - new ileostomy reversal

Sorry for the rough start. It does get better. I found using depends and having a sense of humor helped for the first couple of weeks. If your bum gets sore, I found a shallow bath with Dreft soap really helped. How long did you have an ileostomy? A lot of the issue is getting your colon to wake up....
by Gravelyguy
Fri Dec 20, 2019 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED and other news from Mayo
Replies: 9
Views: 747

Still NED and other news from Mayo

Got a great early Christmas present yesterday. All scans and CEA look great! It was a good visit for sure. A couple of interesting things, I asked about milestones that I can be looking for as far as recurrence. She said they go off of end of chemo. The first year is a biggie as they see most recurr...
by Gravelyguy
Fri Dec 20, 2019 6:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member question: Puffy Stomach after surgery??
Replies: 5
Views: 320

Re: New member question: Puffy Stomach after surgery??

Hi, I had open surgery and can say for my case it took a very long time for my abdominal muscles to settle down. I am over 2 years out and for the past 6 months have been really working on core strength. My abs are much better but I still have a spot that is a little swollen. I think it is just how ...
by Gravelyguy
Mon Dec 16, 2019 2:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clustering & marshmallows
Replies: 4
Views: 735

Re: Clustering & marshmallows

I just wanted to add an update. I have been trying to take a full size marshmallow, because that is what we had on hand, with each meal. I had not had terrible clustering before this, but this seems to have helped with the little that I have had. There have still been a few days that I will have to ...
by Gravelyguy
Fri Dec 13, 2019 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stomach pain
Replies: 3
Views: 700

Re: Stomach pain

Totally normal to be nervous but I am guessing they know what they are talking about.

Hope you get to the bottom of it soon.

Dave
by Gravelyguy
Thu Dec 12, 2019 2:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stomach pain
Replies: 3
Views: 700

Re: Stomach pain

Sorry you guys have to go through all of this. I am sure your oncologist will get to the bottom of it.

Let us know what you find out.

Dave
by Gravelyguy
Mon Dec 09, 2019 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clear CT results!
Replies: 19
Views: 2064

Re: Clear CT results!

Super, keep on living life!

Dave
by Gravelyguy
Wed Dec 04, 2019 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Very scared - would love feedback re mucus
Replies: 4
Views: 548

Re: Very scared - would love feedback re mucus

I would see your Dr. It sounds more like gall bladder issues than colon cancer to to me but I am not a Dr. so take that for what it is worth.

Dave
by Gravelyguy
Tue Dec 03, 2019 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brother In Law's Total Colectomy - 40X a Day on Toilet
Replies: 4
Views: 546

Re: Brother In Law's Total Colectomy - 40X a Day on Toilet

Hi Hyesko and welcome, I don't have any real words of wisdom but think it is great that your brother in law has people in his life trying to help! I can not imagine going that many times a day, the poor guy. I am wondering what his surgeon thinks? I did not enjoy my ileostomy but would greatly prefe...
by Gravelyguy
Mon Dec 02, 2019 7:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 year cancerversary
Replies: 20
Views: 1873

Re: 8 year cancerversary

That is so awesome! Enjoy your growing family every day!

Dave

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