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by Gravelyguy
Wed May 15, 2019 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 12
Views: 391

Re: APR surgery for low rectal tumor

I was told by the first 2 surgeons that APR was the only option. I was ok with that if that allowed me to spend more time with my family. It wasn't until I was referred to Mayo for my liver mets and was asked to see one of their colorectal surgeons that the possibility of ULAR was even brought up. T...
by Gravelyguy
Mon May 13, 2019 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here - rectal cancer, very nervous about radiation
Replies: 21
Views: 686

Re: New here - rectal cancer, very nervous about radiation

Hi, Sorry that you are here but this is a great place to get info. If you look at my signature you can see that I had short course radiation followed a few days later by surgery. We all react differently to LAR surgery and radiation. I am coming up on a year since reversal and am at a place that if ...
by Gravelyguy
Fri May 10, 2019 8:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High Monocytes, MCV, & MCHC
Replies: 11
Views: 1363

Re: High Monocytes, MCV, & MCHC

FWIW I just went back and checked my MCV values while on Folfox and it was always in the normal range and the Folfox seemed to do its job so I would not worry about it.

Dave
by Gravelyguy
Sat May 04, 2019 7:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: InterStim after 10 years of LARS
Replies: 4
Views: 408

Re: InterStim after 10 years of LARS

That is great news. I hope it continues to help. 10 years is a long time to deal with LARS.

Dave
by Gravelyguy
Thu May 02, 2019 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 32
Views: 3477

Re: Stage 4 - liver mets disappeared

I am curious how did they know where to do the surgery on the liver as you has a complete response. Did you have a marker placed before the chemo? In my case the the liver surgeon went in to do the surgery, but decided against it as he couldn't find anything on the liver. Thanks Rgp They used the p...
by Gravelyguy
Wed May 01, 2019 3:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clustering advice
Replies: 9
Views: 800

Re: Clustering advice

Mike, Glad to see that you are checking in on the board. Sorry you are still having so much trouble. Hope things get better. I have reached a pretty acceptable "normal". Most days are great with a little clustering in the evenings. Every once in a while I have a not so good day but not ver...
by Gravelyguy
Wed May 01, 2019 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 - liver mets disappeared
Replies: 32
Views: 3477

Re: Stage 4 - liver mets disappeared

Late to the thread. I had liver resection after 4 rounds of Folfox plus Vectibix and all that was found after the liver resection was a very small necrotic mass 4mm x 4mm. The surgical notes stated that they could not rule out a complete response to the chemo. This was at Mayo Rochester. They did wa...
by Gravelyguy
Wed May 01, 2019 2:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 20
Views: 1213

Re: Neuropathy improvement: individual experience

I had first bite and cold sensitivity which was a lot of fun in MN in the winter. I also had some balance issues but nothing severe. I never had any finger numbness but did get progressively worse foot numbness. It felt like the bottoms of my feet were falling asleep. I didn't notice it until round ...
by Gravelyguy
Thu Apr 25, 2019 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 1067

Re: Stage IV, what happens after surgery?

I was stage 4 at diagnosis, so that is a little different than you, but had 4 rounds of Folfox before surgery and 8 rounds after for my 2 liver mets. Mayo was quite adamant that I get adjuvant chemo.

Dave
by Gravelyguy
Wed Apr 24, 2019 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom has possible leak—anecdotes welcome
Replies: 11
Views: 426

Re: Mom has possible leak—anecdotes welcome

Glad for the cancer news but sorry for the surgical issue. I am sure once they place the drain they will know what they are dealing with.

Dave
by Gravelyguy
Wed Apr 24, 2019 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 31
Views: 1618

Re: Reversals Any positives?

I am 10 months out and can still remember how hard the early going was. I am soo much better than then. Reversal is so strange. I think almost everyone has issues early on. It is what happens as time goes on that is so variable. I am taking a very good probiotic at more than the minimum dosage and a...
by Gravelyguy
Sun Apr 21, 2019 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First CT results are in..
Replies: 13
Views: 861

Re: First CT results are in..

That is awesome news Amy. Being Wild type is a good thing. I had Vectibix with my initial chemo and it really did a number on my liver Mets as in one was completely dead and the other was a lates so could have been as well.

Dave
by Gravelyguy
Sat Apr 13, 2019 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally reached the 'forgot I had cancer' spot!
Replies: 16
Views: 1448

Re: Finally reached the 'forgot I had cancer' spot!

Thanks Diane,

I am about 1 1/2 years out from surgery and feeling pretty good but there isn’t a day that goes by that I don’t think about the cancer. It is encouraging that time helps!

Dave
by Gravelyguy
Fri Apr 12, 2019 4:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering Diarrhea?
Replies: 5
Views: 415

Re: Lingering Diarrhea?

I think any changes, like the flu, can set out new bowels off. I was doing pretty well but then had gallbladder surgery and it took a week to get things back on track. I have had a lot of success taking a good probiotic at higher than minimum doses. My theory is that our new smaller colons have had ...

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