I was told by the first 2 surgeons that APR was the only option. I was ok with that if that allowed me to spend more time with my family. It wasn't until I was referred to Mayo for my liver mets and was asked to see one of their colorectal surgeons that the possibility of ULAR was even brought up. T...

Hi, Sorry that you are here but this is a great place to get info. If you look at my signature you can see that I had short course radiation followed a few days later by surgery. We all react differently to LAR surgery and radiation. I am coming up on a year since reversal and am at a place that if ...

FWIW I just went back and checked my MCV values while on Folfox and it was always in the normal range and the Folfox seemed to do its job so I would not worry about it.

Dave

That is great news. I hope it continues to help. 10 years is a long time to deal with LARS.

Dave

I am curious how did they know where to do the surgery on the liver as you has a complete response. Did you have a marker placed before the chemo? In my case the the liver surgeon went in to do the surgery, but decided against it as he couldn't find anything on the liver. Thanks Rgp They used the p...

Mike, Glad to see that you are checking in on the board. Sorry you are still having so much trouble. Hope things get better. I have reached a pretty acceptable "normal". Most days are great with a little clustering in the evenings. Every once in a while I have a not so good day but not ver...

Late to the thread. I had liver resection after 4 rounds of Folfox plus Vectibix and all that was found after the liver resection was a very small necrotic mass 4mm x 4mm. The surgical notes stated that they could not rule out a complete response to the chemo. This was at Mayo Rochester. They did wa...

I had first bite and cold sensitivity which was a lot of fun in MN in the winter. I also had some balance issues but nothing severe. I never had any finger numbness but did get progressively worse foot numbness. It felt like the bottoms of my feet were falling asleep. I didn't notice it until round ...

Great news!

I was stage 4 at diagnosis, so that is a little different than you, but had 4 rounds of Folfox before surgery and 8 rounds after for my 2 liver mets. Mayo was quite adamant that I get adjuvant chemo.

Dave

Glad for the cancer news but sorry for the surgical issue. I am sure once they place the drain they will know what they are dealing with.

Dave

I am 10 months out and can still remember how hard the early going was. I am soo much better than then. Reversal is so strange. I think almost everyone has issues early on. It is what happens as time goes on that is so variable. I am taking a very good probiotic at more than the minimum dosage and a...

That is awesome news Amy. Being Wild type is a good thing. I had Vectibix with my initial chemo and it really did a number on my liver Mets as in one was completely dead and the other was a lates so could have been as well.

Dave

Thanks Diane,

I am about 1 1/2 years out from surgery and feeling pretty good but there isn’t a day that goes by that I don’t think about the cancer. It is encouraging that time helps!

Dave

I think any changes, like the flu, can set out new bowels off. I was doing pretty well but then had gallbladder surgery and it took a week to get things back on track. I have had a lot of success taking a good probiotic at higher than minimum doses. My theory is that our new smaller colons have had ...