Search found 32 matches

Go to advanced search

by JulesW
Wed Jun 21, 2023 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 151
Views: 85827

Re: Beginning TIL Therapy at NIH Next Week

No natural remedies. Just alternative laser metastectomy when I was told I was inoperable 5 years ago after they found seven spots in my lungs the largest of which was 1.7 cm
by JulesW
Mon Jun 19, 2023 3:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 151
Views: 85827

Re: Beginning TIL Therapy at NIH Next Week

Hi Praying for CCR, Thanks for the trial number. Hope you're doing all right. I had a major cyto reductive surgery at UCSD just before Christmas 2022 for peritoneal mats from recto-sigmoid cancer. Currently I'm technically NED but peritoneal mets have a high rate of recurrence. I haven't exhausted s...
by JulesW
Wed Jun 14, 2023 12:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beginning TIL Therapy at NIH Next Week
Replies: 151
Views: 85827

Re: Beginning TIL Therapy at NIH Next Week

Hi Praying for CCR,
I recently learned of someone else with lots of lung mats and running out of standard of care options. She's asking about trials what was the number of the trial? NCT if you don't mind
Best, JulesW
by JulesW
Wed May 24, 2023 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence
Replies: 14
Views: 2222

Re: Recurrence

I had peritoneal involvement and got Folfiri last fall which dropped my CEA levels significantly and then I interviewed a number of surgeons from around the country. I had a cyto reductive surgery in December of last year. I'm aware that there's a fairly high rate of recurrence but some people seem ...
by JulesW
Tue Jun 07, 2022 6:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice: Margins were not clear
Replies: 21
Views: 4429

Re: Need advice: Margins were not clear

In March of 2019 I had a partial cystectomy for rectal cancer involvement in the bladder. One of the margins came back positive but the surgeon insisted he got it all. 2 years later it was back with a spot in the peritoneum also. At Memorial Sloan Kettering they initially didn't even want to operate...
by JulesW
Mon May 02, 2022 11:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: rachelfromnyc
Replies: 11
Views: 3300

Re: rachelfromnyc

Very sorry to hear this but thank you for sharing
by JulesW
Wed Feb 02, 2022 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doctor recommendations at Memorial Sloan-Kettering?
Replies: 5
Views: 1316

Re: Doctor recommendations at Memorial Sloan-Kettering?

That's funny Vana, my partner was wondering if she was pregnant at our November appointment! She really did help advocate for a complicated but ultimately successful surgery for me at a tumor board.
by JulesW
Wed Feb 02, 2022 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doctor recommendations at Memorial Sloan-Kettering?
Replies: 5
Views: 1316

Re: Doctor recommendations at Memorial Sloan-Kettering?

Thank you for your recommendation DennyP I put in request to follow up with Dr Cercek!
by JulesW
Tue Feb 01, 2022 3:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for hope
Replies: 41
Views: 18747

Re: Looking for hope

Wishing you the best. I also have some lower back pain over the last 8 weeks that has me concerned
by JulesW
Tue Feb 01, 2022 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Doctor recommendations at Memorial Sloan-Kettering?
Replies: 5
Views: 1316

Doctor recommendations at Memorial Sloan-Kettering?

I have just been informed that my oncologist Dr Louise Connell is on maternity leave and I'll need to set up a follow-up with a new oncologist. Any recommendations? I've been very happy with MSK - looking for someone who will never give up and is willing to think outside the box for an other wise he...
by JulesW
Mon Jan 03, 2022 11:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 12 years Stage IV
Replies: 11
Views: 2405

Re: 12 years Stage IV

Just curious you mentioned that you had an abdominal mass removed a few weeks ago, was it on the peritoneum?
by JulesW
Sun Jan 02, 2022 8:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 12 years Stage IV
Replies: 11
Views: 2405

Re: 12 years Stage IV

Thanks for the post Mattie! Interesting!
by JulesW
Wed Dec 29, 2021 10:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Story 5 years with Stage 4 Rectal cancer (lung mets, local recurrence)
Replies: 4
Views: 2316

Re: My Story 5 years with Stage 4 Rectal cancer (lung mets, local recurrence)

Hi JLD13, Despite being told I was inoperable twice and some intense surgeries and treatment regimens these actually have been overall good years, five of them. I was mentally preparing myself for a cystectomy but to my surprise I think because of the location the urologist said he could do a partia...
by JulesW
Mon Dec 06, 2021 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Story 5 years with Stage 4 Rectal cancer (lung mets, local recurrence)
Replies: 4
Views: 2316

Re: My Story 5 years with Stage 4 Rectal cancer (lung mets, local recurrence)

Thanks guys. I prepare for the worst but am cautiously optimistic, there may be a high risk of recurrence but in over 2 1/2 years only 2 spots have popped up
by JulesW
Mon Dec 06, 2021 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thoughts on treatment approach - stage IV recurrent
Replies: 59
Views: 13102

Re: Thoughts on treatment approach - stage IV recurrent

I had to push for surgery at MSK recently but glad I did. 3 months of Folfox could shrink the liver thing and potentially make the surgery lower risk
Wishing you the best

Go to advanced search