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by Jannine
Thu Dec 06, 2018 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New symptom: swollen feet??
Replies: 4
Views: 180

New symptom: swollen feet??

I've noticed that my feet are swelling up by the end of the day, and when I go to bed my normally skin-and-bones feet look all puffy. By the time I wake up, my feet are mostly back to normal although my ankles are still a bit swollen. It's not nearly as bad as it was after I went home from a week in...
by Jannine
Wed Dec 05, 2018 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 59
Views: 12601

Re: Colon cancer: my treatment and side effects

Yesterday was the 2nd Couch to 5k running program date. Temperature was in the 40s. Much to my surprise, I was able to do the run 1 minute/walk 2 minutes scheme without feeling especially challenged. I did need to keep my hands in my pockets the whole time to keep my hands warm, and I was having som...
by Jannine
Wed Dec 05, 2018 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Supporting my husband with a new DX
Replies: 11
Views: 423

Re: Supporting my husband with a new DX

So sorry for how you got started on this journey, but I am glad you are here now. I have gotten a ton of useful information and perspective from this forum. It sounds like the 2nd surgeon probably knows what he's talking about, but don't be afraid to get a 3rd or even 4th opinion, as others have sug...
by Jannine
Tue Dec 04, 2018 7:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Metastatic Stage 4...Clear Scan
Replies: 42
Views: 7402

Re: Metastatic Stage 4...Clear Scan

Hooray!!! Thank you so much for the update. :)
by Jannine
Sun Dec 02, 2018 1:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 59
Views: 12601

Re: Colon cancer: my treatment and side effects

Ugh. Was going to go to the first Couch to 5k training run this morning, but I felt lousy after getting up and then I threw up 10 minutes before we were going to leave. I decided I'd better stay home even though I felt a bit better after getting the nothing out of my stomach that was there (hadn't e...
by Jannine
Fri Nov 30, 2018 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and scared...
Replies: 8
Views: 450

Re: New and scared...

I also was concerned about the risks, and put off having a colonoscopy longer than I should have. I'm 5'10" and normally weigh about 140, currently down to about 128 because of chemo. I had just participated in a 6k run (although I walked part of it) a week before my diagnosis. I had a near blo...
by Jannine
Thu Nov 29, 2018 8:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Flexible Sigmoidoscopy Scheduled for end of month, and I fear I might have colon cancer
Replies: 18
Views: 994

Re: Flexible Sigmoidoscopy Scheduled for end of month, and I fear I might have colon cancer

Deep, your progression of symptoms sounds a lot like mine. I was super regular for years, then things started going downhill and I put off having it checked out for a long time. And then I wasn't pushy enough when I did go in. Despite all that, my prognosis was good and I feel like I'm in a good pla...
by Jannine
Thu Nov 29, 2018 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tropical travel after FOLFOX?
Replies: 8
Views: 369

Re: Tropical travel after FOLFOX?

Wow, nice. I am not sure that it would be worth the investment for me at this point since I only have one more infusion to go, and HOPEFULLY this will hold me for a nice, long while. My platelets were at 104 last time, and are back up to 124 this week. I will make a note of your thoughts in case I e...
by Jannine
Wed Nov 28, 2018 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 59
Views: 12601

Re: Colon cancer: my treatment and side effects

Went in for infusion #11 yesterday. My platelets were up by 20k, much to my surprise. I had been worried that they might drop another 20k and be down to the point that I would have to delay chemo. My other numbers were mostly a shade low, but nothing that would prevent getting chemo. So I just need ...
by Jannine
Wed Nov 28, 2018 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tropical travel after FOLFOX?
Replies: 8
Views: 369

Re: Tropical travel after FOLFOX?

Whew. My oncologist said she had absolutely no concerns about a trip to Costa Rica a month after FOLFOX treatment ends. I've been lucky and have handled FOLFOX very well; I haven't had many side effects at all. My platelets are back up by 20k this week, which was a pleasant surprise. So I was able t...
by Jannine
Sun Nov 25, 2018 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tropical travel after FOLFOX?
Replies: 8
Views: 369

Tropical travel after FOLFOX?

Does anyone here have experience with tropical travel shortly after FOLFOX chemo? We're planning to go to Costa Rica about a month after my chemo ends. I'm going to take my vaccine booklet to my oncologist on Tuesday and see what she says, but I'm wondering if anyone here has experience with this. W...
by Jannine
Thu Nov 22, 2018 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sleeping with: bag, heart monitor and pump accached
Replies: 9
Views: 398

Re: Sleeping with: bag, heart monitor and pump accached

I'm able to sleep on either side while I have the pump attached to my port, with no discomfort. It was a little weird at first, when the port was new, but it doesn't seem at all weird once the port settles in.
by Jannine
Wed Nov 21, 2018 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member
Replies: 6
Views: 469

Re: New Member

I was warned that I might need a temporary ostomy before surgery, but it turned out I did not need one. They also thought it was possible I might need a hysterectomy because it looked like my uterus might be affected. Fortunately neither of those was needed and the surgery went very well. Also my su...
by Jannine
Mon Nov 19, 2018 8:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member
Replies: 6
Views: 469

Re: New Member

For surgery itself, I was only in the hospital 2 days, and one of those was me being stuck in the anaesthesia recovery area for 24 hours because they didn't have a room for me. I had no access to a bathroom or chair there, so they couldn't get me up and walking. (My surgery was emergency surgery rat...
by Jannine
Thu Nov 15, 2018 1:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Found mass at husbands first colonoscopy today
Replies: 19
Views: 950

Re: Found mass at husbands first colonoscopy today

I'm a little confused by your description; was the mass 3/4" wide? Or 3/4" distance from the anus, or 3/4" distance from the rectum, within the colon? If it is colon cancer and not rectal cancer, your husband may be able to work much of the time he is in chemo (if chemo is needed). I ...

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