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by Jannine
Mon Aug 20, 2018 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 13
Views: 1023

Re: Colon cancer: my treatment and side effects

I was disconnected yesterday from FOLFOX infusion #4. 1/3 of the way done, yeah! Side effects haven't been very different this round. I started taking about 5mg of CBD oil a day this round, and my appetite seems better and I'm not having as much belching/bloated feeling in my stomach. I really don't...
by Jannine
Sat Aug 18, 2018 4:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low WBC after 2 treatments of FOLFIRINOX
Replies: 5
Views: 515

Re: Low WBC after 2 treatments of FOLFIRINOX

I had WBC count of .9 after my first round of FOLFOX; that delayed my 2nd treatment by another week (added up to a month between doses 1 and 2 because of a previously-planned vacation). I'm on an "every other week" schedule. WBC count was back in the good range the following week. After 2n...
by Jannine
Sun Aug 12, 2018 10:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Head colds and chemo?
Replies: 3
Views: 418

Head colds and chemo?

It seems like my husband may be coming down with a head cold. Normally he gets them a lot more often than I do; I hardly ever catch one. Maybe once every couple of years, if that. I'm concerned about it with me being on chemo, though. How vulnerable to head colds have others been while on chemo vs. ...
by Jannine
Fri Aug 10, 2018 6:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Colon Cancer
Replies: 31
Views: 2078

Re: Stage 4 Colon Cancer

Jimt, I haven't been in your position but I would suggest contacting MSK and your local hospital and talking to them about arranging transfer of your records. It sounds like often a hospital like MSK will work out what treatment the patient should have, relay that to your local hospital so they'll k...
by Jannine
Thu Aug 09, 2018 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 13
Views: 1023

Re: Colon cancer: my treatment and side effects

Oh ugh. Sounds like you've had a lot more trouble with your port than I have with mine. I mostly can sleep on that side without trouble. I don't know if it would help you any, but I bought a small buckwheat pillow that I use to prop up my shoulder on that side so that I can sleep kind of curled up. ...
by Jannine
Wed Aug 08, 2018 5:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1180
Views: 101684

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm so relieved that you had a good day. I have been reading your journey avidly, and I hope things keep improving at a steady pace. It sounds like you're doing what you need to do. I'm rooting for you!
by Jannine
Wed Aug 08, 2018 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 13
Views: 1023

Re: Colon cancer: my treatment and side effects

I gave myself my 2nd Neulasta shot yesterday morning, with my husband supervising. I had no bone pain after getting my first shot two weeks ago at the hospital. Last night before bed my lower back hurt, which was odd but I didn't really think anything of it. Then when I got up in the middle of the n...
by Jannine
Mon Aug 06, 2018 8:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CBD OIL
Replies: 9
Views: 629

Re: CBD OIL

I just want to say thanks to those who have replied to this thread. So far my side effects aren't terrible, but on disconnect day and the day after I always feel pretty awful. Especially on disconnect day, I just want for the end of the day to get here so I can go to bed and maybe sleep through how ...
by Jannine
Sun Aug 05, 2018 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for a Folfox newbie – starting Tuesday
Replies: 31
Views: 1160

Re: Tips for a Folfox newbie – starting Tuesday

Aside from the doses they have given me before Oxaliplatin starts, I've only taken anti-nausea meds after getting home (at first I took Zofran, but I backed off that and went to Compazine instead). After that I've only taken them for occasional morning and evening ickiness. I really haven't felt tru...
by Jannine
Sat Aug 04, 2018 7:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 13
Views: 1023

Re: Colon cancer: my treatment and side effects

Boxhill, I realized later that I only got the first 3 pages of the 63-page surgeon's report. Looks like there was at least one brief op note from the assistant surgeon but the body of that was on page 4. I'm curious to see that part, because the assistant surgeon is a diverticulitis specialist, and ...
by Jannine
Fri Aug 03, 2018 8:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 13
Views: 1023

Re: Colon cancer: treatment and side effects

I had FOLFOX infusion #3 today. My bloodwork was apparently amazing; the nurses said they wanted to frame it and hang it on the wall. Everything was within normal ranges, and I wasn't anemic this time, for maybe the first time. My white blood cell count was great, as my sister (who is a medical lab ...
by Jannine
Thu Aug 02, 2018 2:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ER Visit
Replies: 19
Views: 974

Re: ER Visit

DarknessEmbraced, if your tickets are with Southwest you can cancel the flight and keep the funds available for a future ticket purchase; you just have to use them within the next year. I had to do this for a visit we had planned that would have been only 2 weeks after my resection surgery. I did th...
by Jannine
Thu Aug 02, 2018 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for a Folfox newbie – starting Tuesday
Replies: 31
Views: 1160

Re: Tips for a Folfox newbie – starting Tuesday

I've got that same kind of infusion pump! Mine looks a little different, but it's totally silent. I call it my chemical piglet, lol. I got the warnings to be careful not to get too warm or exercise while I'm hooked up to it, for the reasons described. The warning I got from the nurse on my second in...
by Jannine
Wed Aug 01, 2018 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: stubborn like a mule
Replies: 6
Views: 433

Re: stubborn like a mule

Just adding to what others have said, I had steadily worsening symptoms for a couple of years before finally getting a colonoscopy, and found out I had a near-obstruction that turned out to be a 7.5cm tumor. My problem was the flip of your dad's; near the end I was spending a good hour and a half ea...
by Jannine
Tue Jul 31, 2018 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 13
Views: 1023

Re: Colon cancer: treatment and side effects

I didn't have any bone pain from Neulasta, fortunately. My dad has problems with an irregular heartbeat (he's taken meds for it at least since I was a teenager; not dangerous but it keeps him awake at night if he doesn't take something). Antihistamines aggravate his heart problems. I have no such sy...

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