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by Jannine
Mon Mar 18, 2019 12:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, need some advice, very nervous!
Replies: 8
Views: 269

Re: Please help, need some advice, very nervous!

We are not doctors and can't say for sure what it might be. He should definitely get a colonoscopy ASAP to find out what it is, and move forward from there. It is the only way to find out what is going on in the colon. That will likely get you a lot more information, and from that, you will move on ...
by Jannine
Sun Mar 17, 2019 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member - 7cm Polyp???
Replies: 2
Views: 156

Re: New member - 7cm Polyp???

Welcome, and sorry for the reason you are here. That is certainly not the largest polyp that has been found in this group, but it is large. Definitely read through anything that looks relevant on this forum and learn; there is a lot to know, and waiting on tests to find out what is going on is rough...
by Jannine
Sun Mar 17, 2019 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 78
Views: 22808

Re: Colon cancer: my treatment and side effects

Yikes. Good luck! I can't imagine dealing with both of those on top of dealing with chemo.
by Jannine
Sat Mar 16, 2019 10:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 78
Views: 22808

Re: Colon cancer: my treatment and side effects

I managed to knock 2 minutes off my 5k time from last year (the numbers are not glorious; went from 43 minutes to 41 minutes of run/walking). I'm really happy to have done so well, given that I haven't been training steadily. I really thought I'd be lucky to match my time from last year. Eventually ...
by Jannine
Sat Mar 16, 2019 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gabapentin for butt burn, thinking its nerve pain
Replies: 13
Views: 2100

Re: Gabapentin for butt burn, thinking its nerve pain

Just wanted to chime in here that I developed what I can only describe as genital-area numbness while on Folfox that I assumed was because of continuing weight loss. It started well before the neuropathy in my feet, and didn't have the tingling weirdness of neuropathy. I only noticed it when I was c...
by Jannine
Sun Mar 03, 2019 9:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My father's ashamed of me
Replies: 17
Views: 873

Re: My father's ashamed of me

omg. How frustrating! Please forgive me for being a bit unsympathetic to your father here, but you need to do what's best for you, not what's best for his self-image, worldview or social comfort. If he would be uncomfortable with having to explain the situation he's just going to have to deal with t...
by Jannine
Sat Mar 02, 2019 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 78
Views: 22808

Re: Colon cancer: my treatment and side effects

Port was removed a week and a half ago. I had it removed in radiology, which wasn't an area I had been to before. It turned out that they had sutured it in place, so it was the devil for them to take back out again. I think I was in there for about 50 minutes. Just had local anaesthetic. The Dr. was...
by Jannine
Sat Mar 02, 2019 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dumb neuropathy "improvement" question
Replies: 10
Views: 560

Re: Dumb neuropathy "improvement" question

I'm so glad that I'm not going crazy. This neuropathy stuff is so weird and unpleasant! I had totally forgotten about the recommendation for a foot massager. Thanks for the reminder! I'll definitely look into that. I am wiggling my feet around a lot more now that I've got more sensation in them, and...
by Jannine
Thu Feb 28, 2019 4:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2019
Replies: 33
Views: 3903

Re: ***News Stories Thread*** ONGOING 2019

Not directly related to CRC, but definitely relevant for anyone who needs to research scholarly topics but has trouble getting access to scholarly journal articles: The University of California system has announced they are not renewing their subscription to Elsevier journals (a major publisher of h...
by Jannine
Thu Feb 28, 2019 8:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dumb neuropathy "improvement" question
Replies: 10
Views: 560

Dumb neuropathy "improvement" question

I hope somebody who's a bit further along than me might have experienced this before, because right now it's kinda freaking me out. My last Oxaliplatin dose was in November (dose 11, at 75% dosage across the board). That was my first dose at which I felt like I had developed neuropathy. At my next (...
by Jannine
Sun Feb 17, 2019 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox protocols
Replies: 9
Views: 735

Re: Folfox protocols

You probably already know this, but avoid foods enriched with folic acid while on FOLFOX. In the US this includes most flour, pasta, rice,cereal, and bread. However if you don't mind checking labels, most organic products are not enriched and will not contain extra folic acid. Some imported products...
by Jannine
Sat Feb 16, 2019 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 78
Views: 22808

Re: Colon cancer: my treatment and side effects

My neuropathy seemed like it had stopped advancing by late January. Changes are so slow that I can't tell a difference day to day and it's iffy whether I can even tell week-to-week. The major change I have noticed is that in early January I had to really focus in order to write anything, and I was n...
by Jannine
Sat Jan 19, 2019 8:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Colonoscopy in 2 Weeks
Replies: 13
Views: 1113

Re: First Colonoscopy in 2 Weeks

I had my colonoscopy after getting admitted to the ER. I had trouble drinking the stuff, it was really distasteful, but I told myself I would just get through it at my own pace, and if it took me 3 hours instead of whatever time period they wanted, so be it. I did get through it. It wasn't pleasant ...
by Jannine
Sat Jan 19, 2019 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: AST and ALT elevated?
Replies: 15
Views: 1653

Re: AST and ALT elevated?

I also had AST and ALT shoot up about midway through treatment, but they declined again soon after. I think my thread has details if you want to take a look!
by Jannine
Fri Jan 18, 2019 10:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First Colonoscopy in 2 Weeks
Replies: 13
Views: 1113

Re: First Colonoscopy in 2 Weeks

Welcome, and good luck on your colonoscopy. I hope you can sort out exactly what's going on very soon, and that it will be straightforward to treat. For what it is worth, the first thing my GP did for my symptoms was put me on Cipro, and I think I hated those 10 days of Cipro more than almost all of...

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