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by Jannine
Sat Mar 28, 2020 10:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nuelasta Injector
Replies: 7
Views: 1054

Re: Nuelasta Injector

I gave myself a Neulasta shot 2 days after disconnect, with a pre-filled syringe. I usually was able to pick up a couple of them at a time from the hospital pharmacy. They did have to make sure that my insurance would cover my administering it myself, which wasn't a problem for me.
by Jannine
Tue Mar 24, 2020 3:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1726
Views: 430588

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

In Maryland we are not technically being told to shelter in place, but all nonessential businesses are now closed and we cannot gather in groups larger than 10. We have 349 cases in our state, mostly in the DC suburbs; 24 in my county and 41 in Baltimore City proper. Mike, I have a friend who just r...
by Jannine
Wed Jan 08, 2020 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Input Regarding Continuing Oxi with Neuropathy Present
Replies: 12
Views: 1660

Re: Input Regarding Continuing Oxi with Neuropathy Present

My neuropathy hit its peak a good 4-6 weeks after my last infusion containing Oxaliplatin. My oncologist had warned me that it would keep getting worse after stopping the Oxi. I think my last Oxi infusion was at 50%, and my last two treatments lacked the Oxi completely. I'm now 13 months out from my...
by Jannine
Fri Jan 03, 2020 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Zantac and Colon Cancer
Replies: 21
Views: 2270

Re: Zantac and Colon Cancer

Ugh. I have never taken this drug in any form. My parents have taken Zantac for decades, and they've never had any cancer anywhere in their digestive tract. It's no proof either way of course, but I thought I'd respond regardless. My only risk factor was a largely sedentary lifestyle. I was golden o...
by Jannine
Fri Nov 22, 2019 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 56
Views: 12035

Re: I'm getting worried

Sounds about right. I know they predicted I might be in the hospital another 3 or 4 days after surgery, but they sent me home a lot sooner than that.
by Jannine
Thu Nov 21, 2019 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 56
Views: 12035

Re: I'm getting worried

I can't speak to gallbladder removal; I had 10 inches of colon including the sigmoid removed a year and a half ago in laparoscopic surgery. Perhaps my experience will be helpful, though. I was up and walking around about 24 hours after surgery, which was much later than we all would have liked. Ther...
by Jannine
Tue Nov 19, 2019 9:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need to vent
Replies: 9
Views: 1564

Re: I need to vent

Back on antibiotics. This time I had a tooth that was going bad. It had a root canal 18 years ago but has looked suspect at the root for quite a while. Last month they x-rayed it and there was definitely infection going on at the root. So today I had it pulled, with the intent of adding an implant i...
by Jannine
Wed Nov 13, 2019 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1726
Views: 430588

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Thanks for the mention of Banatrol. At this point anything that claims to help with c diff gets my attention quick. The stuff I am taking now does seem to help, but it is expensive and it needs to be kept cool to retain its efficacy. Taking it with me on a trip would be a pain. (Still haven't had a ...
by Jannine
Sat Nov 09, 2019 1:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The 10 most obese states in the U.S.
Replies: 13
Views: 1106

Re: The 10 most obese states in the U.S.

Adding to Boxhill's comment, colorectal cancer rates within each state vary drastically from county to county. Economic disparities and access to health care are a big factor. As we all know, obesity is just one risk factor among many. Highlighting obesity isn't any more informative than highlightin...
by Jannine
Thu Oct 31, 2019 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need to vent
Replies: 9
Views: 1564

Re: I need to vent

I had no problems with the Bactrim, fortunately. I took Align for a week, until my shipment of Visbiome arrived yesterday. (This is the rebranded original formula of VSL#3, apparently.) It came in a big 12" square refrigerated box, along with a sensor that turns red if it got too warm at any po...
by Jannine
Thu Oct 31, 2019 7:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm getting worried
Replies: 56
Views: 12035

Re: I'm getting worried

Just want to chime in and say that I would not be happy about all those symptoms you're having either. Here's hoping you don't have cancer, and that you do get to the bottom of whatever's going on soon. Keep at your docs and get them to keep looking for an answer. It doesn't sound to me like a situa...
by Jannine
Sat Oct 26, 2019 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 610
Views: 191274

Re: NEW-Need some positivity here.

Congrats!! So happy for you! :D
by Jannine
Fri Oct 25, 2019 9:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need to vent
Replies: 9
Views: 1564

Re: I need to vent

Thanks, all; the words of encouragement and suggestions helped a lot. I was able to grab Align and am taking that. Nobody around here had VSL#3 or visbiome in stock (I called a LOT of pharmacies), and apparently if you buy it direct they only ship Monday-Wednesday. But I'll take the Align for now, a...
by Jannine
Wed Oct 23, 2019 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need to vent
Replies: 9
Views: 1564

I need to vent

I got a urinary tract infection (thanks, menopause :evil: ) yesterday and am on a 3 day course of Bactrim antibiotics. I just started my 2nd day of the pills and my gut is rebelling, I've been in the bathroom repeatedly with diarrhea. I know I didn't have any real alternatives to antibiotics for thi...
by Jannine
Wed Oct 09, 2019 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 79
Views: 30298

Re: Colon cancer: my treatment and side effects

It's been a while since I've posted to this thread, but: Had my bloodwork yesterday morning, CEA is holding steady at 1.8 and everything else looked fine. I'll have bloodwork and my 6-month CT scan in January. If that looks good she'll be pushing me back to an annual CT scan. Over the summer I contr...

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