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by Jannine
Tue Oct 16, 2018 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 4
Views: 212

Re: Quality of life on Folfox and others

I've had 8 of my 12 doses of FOLFOX and have no neuropathy yet. The cold sensitivity is pretty awful the first several days for me, but within 4-5 days I can drink chilled water (not ice water), and almost a week after treatment I can handle things out of the fridge reasonably well (although glass i...
by Jannine
Tue Oct 16, 2018 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Post Your Pics Here
Replies: 141
Views: 26503

Re: O/T...Post Your Pics Here

ZX, that's my city! We used to live about a mile from where your photos were taken, and had a view of the water. :) The inner harbor makes for a nice walk on a pretty day. Mob, sorry to hear about your FIL. I hope your MIL is able to join you for your next get-together there, even if your FIL doesn'...
by Jannine
Fri Oct 12, 2018 2:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 45
Views: 9016

Re: Colon cancer: my treatment and side effects

Just got home from the hospital after getting infusion #8. Not so great news. My platelets are down to 96. So they gave me the regular Oxali/Leucovorin dose and also the 5FU take-home bottle, but I didn't get the 5FU bolus/push, and next infusion they're going to cut both drugs down by 25% to try to...
by Jannine
Tue Oct 09, 2018 8:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 45
Views: 9016

Re: Colon cancer: my treatment and side effects

Thanks, Mike. I hope your situation is continuing to improve. It sounds like you've been seeing more steps forward than back, lately, which is great to hear. I've been concerned for you.
by Jannine
Tue Oct 09, 2018 7:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 45
Views: 9016

Re: Colon cancer: my treatment and side effects

I've now gotten through dose #7, so more than halfway done! My side effects haven't changed much EXCEPT that I finally did start getting fatigue after this round. My disconnect day is Sunday and I felt super tired starting in the afternoons Monday and Tuesday (last week). I took 1.5 to 2-hour naps i...
by Jannine
Sat Oct 06, 2018 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA correlation with metastasis and survival??
Replies: 12
Views: 756

Re: Baseline CEA correlation with metastasis and survival??

My CEA was 11.2 and I was diagnosed stage III with no detected lymph node involvement and no mets. As others have said, you don't have enough information yet; see what specifics you learn and go from there. CEA is just one indicator and isn't ever used to make decisions on its own, because it is so ...
by Jannine
Sat Oct 06, 2018 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here - My cautionary tale
Replies: 11
Views: 919

Re: New here - My cautionary tale

Yikes, I am so glad that you advocated for yourself and got better care, despite how things started out. Thanks for sharing your experience, and I hope things go very well from here on out for you. I also had 2 CT scans before my colonoscopy and they both came back as diverticulitis with some bad in...
by Jannine
Fri Oct 05, 2018 4:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: colon cancer - 19 F (help?)
Replies: 6
Views: 508

Re: colon cancer - 19 F (help?)

One thing that will really help is to make sure you have a list of what you want to tell and ask your doctor, and have it with you when you're talking so you can double check and make sure you're not forgetting anything. Make sure you mention your cousin to your doctor. That's really important. The ...
by Jannine
Mon Sep 17, 2018 12:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My furbaby passed away last week
Replies: 12
Views: 621

Re: My furbaby passed away last week

I am so sorry for your loss of your dear Jerry. We had a redbone coonhound for 17 years; normal life expectancy for them is more like 14 years. We did not get a lot of sleep the last year he was alive, he just needed to go out more often, and as a 60-pound dog in a one-bedroom condo he was too big f...
by Jannine
Sat Sep 08, 2018 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: endoscopic full thickness resection
Replies: 4
Views: 543

Re: endoscopic full thickness resection

I also can't answer the question about this type of resection, but I did find info about Johns Hopkins short term housing for cancer patients on the web: https://www.hopkinsmedicine.org/the_johns_hopkins_hospital/planning_visit/hotels_housing/short_term_housing.html Hopkins is definitely a good plac...
by Jannine
Thu Sep 06, 2018 8:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 45
Views: 9016

Re: Colon cancer: my treatment and side effects

Wanted to add one more thing. I think the thing that has been most frustrating to me aside from the whole "I have cancer?" thing is that the mother of one of my direct reports passed away while I was recovering from surgery and still had an open wound, so I really didn't feel like I could ...
by Jannine
Thu Sep 06, 2018 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 45
Views: 9016

Re: Colon cancer: my treatment and side effects

Just shy of a week after Infusion #5, now. Symptoms were about like usual; cold sensitivity, lack of appetite, first bite; none of it worse than usual (except maybe the lack of appetite, but not by much). I can drink fridge-cold things now, but handling them is still painful and I still need another...
by Jannine
Wed Sep 05, 2018 7:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Post Your Pics Here
Replies: 141
Views: 26503

Re: O/T...Post Your Pics Here

I had a feeling that pic was taken with a DSLR. The camera I used to lug around with me and some times do is a Panasonic GF-1 with all the various lenses. I then got a compact more point and shoot camera: Panasonic LX-5. The LX-5 also has a Leica lens and takes very good pictures even in the auto m...
by Jannine
Wed Sep 05, 2018 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello from a new member
Replies: 18
Views: 4802

Re: Hello from a new member

Others may be able to explain this better than me, but I will take a shot. :) The main reason they recommended chemo for me is that in addition to my main tumor they found a "noncontiguous tumor deposit" nearby during surgery. This means that the cancer had spread locally and started a 2nd...
by Jannine
Tue Sep 04, 2018 9:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Post Your Pics Here
Replies: 141
Views: 26503

Re: O/T...Post Your Pics Here

It's a Samsung S8. I also have a Samsung S9 for my work phone. I've taken some pictures with the S9. Being it's my work phone, I tend not to take many personal pictures with it for obvious reasons. Based on what I can tell between the phones, there's really no difference in performance. The S9 is s...

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