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by dliu
Mon Feb 18, 2019 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 17
Views: 1107

Re: Bad News

MissMolly, thank you so much for your insight into the effects of these drugs. I just put on her first patch and was very worried, and this comforts me a lot. She has had a lot of trouble with codeine pouches (sorry not sure about the term to describe drugs you dilute in water) and we think it might...
by dliu
Mon Feb 18, 2019 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 17
Views: 1107

Re: Bad News

Thank you all for your replies. My mum has been feeling very poorly in the last few days so her oncologist advised against starting treatment again now. He put her on a regime of steroids and fentanyl to get her back into shape. He is currently focusing on her QOL and wants to know how things go in ...
by dliu
Wed Feb 13, 2019 2:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 17
Views: 1107

Re: Bad News

I think her KRAS mutation might rule out Keytruda for us, but I'll ask. Thank you.
by dliu
Tue Feb 12, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 17
Views: 1107

Re: Bad News

Thank you for your kind words. Really hope the damage in the liver is manageable, and the spread can be contained.
by dliu
Tue Feb 12, 2019 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 17
Views: 1107

Re: Bad News

stu wrote:Sorry just reread your first line . This is in preparation for her scan . Is this her first scan ?
Stu


Hey stu, this is her third scan post-diagnosis, but her first after a three month chemo break.
by dliu
Tue Feb 12, 2019 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 17
Views: 1107

Bad News

We got the blood tests back in preparation for the CT scan we have on Friday. CEA is not good at all. We started in the 6000s+, went down to 300 after chemo. Now it's over 12000. We spoke to our oncologist on the phone and he is not happy with these results either (well, I mean, I wouldn't want to m...
by dliu
Mon Jan 28, 2019 4:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Its me....Again
Replies: 12
Views: 627

Re: Its me....Again

Nicole, you're not annoying, you're going through a tough time! It doesn't look like life gave you much of a break in recent times, BUT your body is fighting like a champion. Chemo is awful, but it's been working wonders on you, so as painful as it is, try to focus on the idea one day you may be log...
by dliu
Fri Jan 18, 2019 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This chemo is knocking me down
Replies: 13
Views: 631

Re: This chemo is knocking me down

I'm very sorry you're going through this. My mum had the same three effects you are reporting, sometimes at the same time. The depression can be particularly confusing - she is not one to have a sunny disposition, but you could tell this was a completely different beast and something chemical. It di...
by dliu
Tue Jan 08, 2019 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly Diagnosed - Broken
Replies: 17
Views: 2711

Re: Newly Diagnosed - Broken

Hi Paola, Sorry for the reason you are here. As a caregiver, my whole world crashed on me and, although I didn't get the diagnosis myself, I do sympathise with the feeling of hopelessness - but it will get better! And this forum is the perfect place to start. My mum is currently on a chemo break, an...
by dliu
Mon Jan 07, 2019 4:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety - Good thoughts Please
Replies: 29
Views: 3171

Re: Scanxiety - Good thoughts Please

You are in my thoughts! Hoping for good results!
by dliu
Mon Dec 31, 2018 4:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member
Replies: 4
Views: 528

Re: New Member

Hoping the next two treatments go smoothly and with few side effects, and hoping for a great response and a peaceful start of 2019. Your family will be in my thoughts! Let us know how it goes.
by dliu
Tue Dec 25, 2018 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A distressing situation
Replies: 9
Views: 1103

Re: A distressing situation

They said they had a ‘benign aspect’ on the CT, and neither of these showed up as mets on the PET scan. My onc was happy to put these down to normal bone development, aging and injury (and I’m ‘only’ 36). It definitely happens. Best wishes to you all. Ah, thanks Rock_Robster! I've been pushing for ...
by dliu
Tue Dec 25, 2018 5:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A distressing situation
Replies: 9
Views: 1103

Re: A distressing situation

My father had bony lystic lesions on his lumbar vertebrae, L4 and L5. The lesions invaded the core body of the vertebrae and outbranching peduncles. My father knew “something was up” when he began to have intermittent bowel and bladder loss as well as balance issues when upright/walking. Specifical...
by dliu
Mon Dec 24, 2018 1:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A distressing situation
Replies: 9
Views: 1103

Re: A distressing situation

The issue is my mum gave her access to her scan, as she wanted some advice for her back pain. So no breach of privacy there. Totally agree with you about speaking behind her back though. And I agree it's disrespectful, as well as heartbreaking for us, receiving second hand information.
by dliu
Mon Dec 24, 2018 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A distressing situation
Replies: 9
Views: 1103

Re: A distressing situation

Thank you both for such encouraging information. It is a Christmas gift to counter the anti-Christmas snark that came from that side of the family!

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