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by dliu
Tue Mar 19, 2019 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goodbye
Replies: 10
Views: 1436

Re: Goodbye

Sorry to hear about the passing of your mom. Sounds like she passed with a great deal of loving grace. Trying to make people smile up to the end. Have to agree that it seems very strange that your bothers mother in law would make such a scene. WT? Try to focus on your moms film jokes, that obviousl...
by dliu
Tue Mar 19, 2019 3:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goodbye
Replies: 10
Views: 1436

Goodbye

Hello, My mum started home care on Feb 20th to ease her pain. She was sharp and brilliant, joking around until she started morphine. She died peacefully on March 4th, despite my brother's mother in law making a scene, trying to barge into the room several times while just the family was collected in...
by dliu
Thu Feb 28, 2019 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Stable ?
Replies: 9
Views: 2640

Re: Stage 4 Stable ?

Any insight would be greatly appreciative as his dr does not give us a response other than “it is in God’s hands not his” . I'm sorry I don't have an answer to your query but I can't stress enough how an answer like this from your doctor really unnerves me. I had a similar situation with our oncolo...
by dliu
Mon Feb 18, 2019 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 2668

Re: Bad News

MissMolly, thank you so much for your insight into the effects of these drugs. I just put on her first patch and was very worried, and this comforts me a lot. She has had a lot of trouble with codeine pouches (sorry not sure about the term to describe drugs you dilute in water) and we think it might...
by dliu
Mon Feb 18, 2019 1:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 2668

Re: Bad News

Thank you all for your replies. My mum has been feeling very poorly in the last few days so her oncologist advised against starting treatment again now. He put her on a regime of steroids and fentanyl to get her back into shape. He is currently focusing on her QOL and wants to know how things go in ...
by dliu
Wed Feb 13, 2019 2:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 2668

Re: Bad News

I think her KRAS mutation might rule out Keytruda for us, but I'll ask. Thank you.
by dliu
Tue Feb 12, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 2668

Re: Bad News

Thank you for your kind words. Really hope the damage in the liver is manageable, and the spread can be contained.
by dliu
Tue Feb 12, 2019 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 2668

Re: Bad News

stu wrote:Sorry just reread your first line . This is in preparation for her scan . Is this her first scan ?
Stu


Hey stu, this is her third scan post-diagnosis, but her first after a three month chemo break.
by dliu
Tue Feb 12, 2019 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bad News
Replies: 18
Views: 2668

Bad News

We got the blood tests back in preparation for the CT scan we have on Friday. CEA is not good at all. We started in the 6000s+, went down to 300 after chemo. Now it's over 12000. We spoke to our oncologist on the phone and he is not happy with these results either (well, I mean, I wouldn't want to m...
by dliu
Mon Jan 28, 2019 4:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Its me....Again
Replies: 12
Views: 1126

Re: Its me....Again

Nicole, you're not annoying, you're going through a tough time! It doesn't look like life gave you much of a break in recent times, BUT your body is fighting like a champion. Chemo is awful, but it's been working wonders on you, so as painful as it is, try to focus on the idea one day you may be log...
by dliu
Fri Jan 18, 2019 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This chemo is knocking me down
Replies: 13
Views: 1264

Re: This chemo is knocking me down

I'm very sorry you're going through this. My mum had the same three effects you are reporting, sometimes at the same time. The depression can be particularly confusing - she is not one to have a sunny disposition, but you could tell this was a completely different beast and something chemical. It di...
by dliu
Tue Jan 08, 2019 11:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly Diagnosed - Broken
Replies: 17
Views: 3431

Re: Newly Diagnosed - Broken

Hi Paola, Sorry for the reason you are here. As a caregiver, my whole world crashed on me and, although I didn't get the diagnosis myself, I do sympathise with the feeling of hopelessness - but it will get better! And this forum is the perfect place to start. My mum is currently on a chemo break, an...
by dliu
Mon Jan 07, 2019 4:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety - Good thoughts Please
Replies: 29
Views: 4136

Re: Scanxiety - Good thoughts Please

You are in my thoughts! Hoping for good results!
by dliu
Mon Dec 31, 2018 4:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member
Replies: 4
Views: 779

Re: New Member

Hoping the next two treatments go smoothly and with few side effects, and hoping for a great response and a peaceful start of 2019. Your family will be in my thoughts! Let us know how it goes.
by dliu
Tue Dec 25, 2018 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A distressing situation
Replies: 9
Views: 1556

Re: A distressing situation

They said they had a ‘benign aspect’ on the CT, and neither of these showed up as mets on the PET scan. My onc was happy to put these down to normal bone development, aging and injury (and I’m ‘only’ 36). It definitely happens. Best wishes to you all. Ah, thanks Rock_Robster! I've been pushing for ...

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