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by FightCRC
Wed Oct 09, 2019 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 1042

Re: How long does MSK take to get approval to install HAI pump?

Just FYI, the Codman pump is coming back. Bought by private group. Both UCSF and CIty of Hope are aware of this development, and ready to go once the pumps are back in production. I presume MSK knows of this, too.
by FightCRC
Mon Aug 12, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed
Replies: 15
Views: 1952

Re: Just diagnosed

To offer more perspective, we relocated from CA to NJ to get treated at MSKCC. We stayed there for a year, and are now flying in once a month. It's been worth it. For Stage IV treatment, I would recommend being seen at the main campuses in Manhattan, and not at a satellite. The satellites are great ...
by FightCRC
Fri Jul 26, 2019 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unrelenting fatigue...help!
Replies: 4
Views: 615

Unrelenting fatigue...help!

My wife has been battling Stage IV since May 2018. 22 rounds of chemo (FOLFOX, FOLFIRI), two major surgeries, and gearing up for a third. Since her PVE earlier this month, she has been hit with her strongest bout with fatigue yet, and it's just getting worse. She's spending most of her time in bed. ...
by FightCRC
Sat Jul 20, 2019 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3426

Re: ...progression...

I have seen many, many cases in the various CRC groups of patients who consult for the HAI pump, get approved for the procedure, and then back out for various reasons. Nerves and logistics being the most common. You can see them look for all the reasons not to do the treatment, than accept the reaso...
by FightCRC
Sun Jun 30, 2019 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 247
Views: 38724

Re: My CRC with liver mets journey

Wow, this partner was a friend? Some friend. To add this sort of stress to your husband's life while he's dealing with this? That's not a good person, and was likely never a true friend. Sorry your husband had to find this out. But at least now he knows. I wouldn't actively wish cancer on anyone, bu...
by FightCRC
Tue Jun 25, 2019 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 16
Views: 1821

Re: APR surgery for low rectal tumor

I’ve been reading many posts and threads on this topic, as my husband is scheduled for APR in August. He had an LAR in May of 2017, but now has 2 nodes that need to come out. His surgeon biopsied a questionable spot during the most recent scope and it is cancerous. His surgeon feels that the best c...
by FightCRC
Tue Jun 25, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3072

Re: Questions, questions, too many questions.

Mohrfamily, I'll add that the doctor/center that has given us hope is Dr. Kemeny/MSKCC. We got turned onto Dr. Kemeny and MSK from reading all the stories on the various message boards. Our eternal gratitude to posters like juliej, mariane, and so many others for helping to spread the word. We are f...
by FightCRC
Tue Jun 25, 2019 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3072

Re: Questions, questions, too many questions.

I really hate to say this but, maybe they are trying to tell you something without saying it. As upsetting as it would be to hear it, one might also consider it a favor. Because then you would know where you stood with the onc. You would know they were treating you with that particular outlook. A l...
by FightCRC
Mon Jun 24, 2019 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3072

Re: Questions, questions, too many questions.

Mohrfamily, forgive me if I'm not remembering your story correctly, but aren't you patients at MSK with Dr. Kemeny? Or you've consulted with them already, at least? Yes we did consult with them back in January. DH did more research on the pump and is just not comfortable with the actual pump part. ...
by FightCRC
Sat Jun 22, 2019 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3072

Re: Questions, questions, too many questions.

Mohrfamily, forgive me if I'm not remembering your story correctly, but aren't you patients at MSK with Dr. Kemeny? Or you've consulted with them already, at least?
by FightCRC
Sat May 25, 2019 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our Miss Molly/Karen going into hospice
Replies: 47
Views: 7714

Re: Our Miss Molly/Karen going into hospice

I am so saddened by this. Miss Molly has contributed so much to these boards. When I had questions for her via PM. she answered them in great detail. She just wanted to help. A rare human being. I hope she is at peace and in comfort. Thank you, Miss Molly.
by FightCRC
Thu May 16, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified new member from UK...joined today.
Replies: 12
Views: 1262

Re: Terrified new member from UK...joined today.

. It's sadly incumbent upon patients/caregivers to be aware of their situation, and all available [EVIDENCE BASED] treatment options. I wish you the best. There I fixed/clarified it (in bold). A good place to start with understanding treatment options are: NCCN guidelines, up-to-date, and onclive.c...
by FightCRC
Wed May 15, 2019 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified new member from UK...joined today.
Replies: 12
Views: 1262

Re: Terrified new member from UK...joined today.

Catdylan1 Sounds like you are stressed enough. Please don’t let RP1954 create more stress/anxiety. Your doctors know what they are doing, listen to them. RP isn’t a doctor and his medical advice is not accepted by any national cancer guidelines. Don’t believe everything you read on the internet. Th...
by FightCRC
Sun Mar 24, 2019 4:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump criteria
Replies: 21
Views: 2213

Re: HAI pump criteria

My local oncologist said drs are sometimes more willing to treat/do surgery if they meet you in person and see that you are in good health. I definitely believe this. The demand from patients to see Dr. Kemeny is intense. Perhaps the gatekeepers (if you will) are trying to winnow the cases down to ...
by FightCRC
Mon Mar 04, 2019 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 247
Views: 38724

Re: My CRC with liver mets journey

That makes sense while treatment is happening. I'm wondering what happens post treatment when the pump is still in the body but ONLY getting flushed. That's what I am not quite understanding. Ah, OK. I thought you were making a distinction between the two weeks with FUDR, vs. the two weeks without,...

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