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by FightCRC
Fri Jan 10, 2020 5:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Suggestions for treatment facility for liver and lung mets
Replies: 22
Views: 3764

Re: Suggestions for treatment facility for liver and lung mets

Please consider a consult with Dr. Yuman Fong at City of Hope. I've written a lot about him before, you can do a keyword search. Suffice it to say, his bona fides for liver surgery are unmatched. I've seen patients at MSK get liver resection even in the setting of multiple lung mets. But I feel a li...
by FightCRC
Fri Jan 10, 2020 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Toast to 2020!
Replies: 10
Views: 1154

Re: A Toast to 2020!

Juliej, I personally feel my family owes so much to you, for sharing your story, and providing a road map for treatment. And most of all, for providing hope. When I realized HAI gave us our best shot, I devoured all the patient stories on the various message boards. Yours was my favorite. I searched...
by FightCRC
Thu Dec 19, 2019 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV With Liver Mets
Replies: 9
Views: 1201

Re: Stage IV With Liver Mets

Sorry you have to be here. But it's good that you are. Because you may not have heard of HAI otherwise. On the West Coast, you have basically two options: City of Hope in LA and OHSU in Portland. OHSU's HAI program is headed by Dr. Skye Mayo, who trained at MSKCC (THE center for HAI). City of Hope, ...
by FightCRC
Tue Nov 19, 2019 1:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 4332

Re: 1st bad scanning... advice please!!

I don't disagree about the bedside manner. But, speaking for myself, I consider bedside manner to be overrated, at least relative to skill/results. I don't need a buddy; I have plenty of friends already. For this, I need a bulldog. Our first oncologist had a wonderful bedside manner. She also basica...
by FightCRC
Tue Nov 12, 2019 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 4332

Re: 1st bad scanning... advice please!!

Our plan is to get to MSK ASAP now. I finally sent all the documents a few days ago and I'm waiting to hear back from them. I'll give them a call today. I want to leave within a week if possible. My hope is that they will operate his liver, since his mets are small now. In his Danish files it said ...
by FightCRC
Wed Oct 09, 2019 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long does MSK take to get approval to install HAI pump?
Replies: 10
Views: 1634

Re: How long does MSK take to get approval to install HAI pump?

Just FYI, the Codman pump is coming back. Bought by private group. Both UCSF and CIty of Hope are aware of this development, and ready to go once the pumps are back in production. I presume MSK knows of this, too.
by FightCRC
Mon Aug 12, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed
Replies: 15
Views: 2588

Re: Just diagnosed

To offer more perspective, we relocated from CA to NJ to get treated at MSKCC. We stayed there for a year, and are now flying in once a month. It's been worth it. For Stage IV treatment, I would recommend being seen at the main campuses in Manhattan, and not at a satellite. The satellites are great ...
by FightCRC
Fri Jul 26, 2019 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Unrelenting fatigue...help!
Replies: 4
Views: 811

Unrelenting fatigue...help!

My wife has been battling Stage IV since May 2018. 22 rounds of chemo (FOLFOX, FOLFIRI), two major surgeries, and gearing up for a third. Since her PVE earlier this month, she has been hit with her strongest bout with fatigue yet, and it's just getting worse. She's spending most of her time in bed. ...
by FightCRC
Sat Jul 20, 2019 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 4436

Re: ...progression...

I have seen many, many cases in the various CRC groups of patients who consult for the HAI pump, get approved for the procedure, and then back out for various reasons. Nerves and logistics being the most common. You can see them look for all the reasons not to do the treatment, than accept the reaso...
by FightCRC
Sun Jun 30, 2019 9:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 344
Views: 73282

Re: My CRC with liver mets journey

Wow, this partner was a friend? Some friend. To add this sort of stress to your husband's life while he's dealing with this? That's not a good person, and was likely never a true friend. Sorry your husband had to find this out. But at least now he knows. I wouldn't actively wish cancer on anyone, bu...
by FightCRC
Tue Jun 25, 2019 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: APR surgery for low rectal tumor
Replies: 16
Views: 2507

Re: APR surgery for low rectal tumor

I’ve been reading many posts and threads on this topic, as my husband is scheduled for APR in August. He had an LAR in May of 2017, but now has 2 nodes that need to come out. His surgeon biopsied a questionable spot during the most recent scope and it is cancerous. His surgeon feels that the best c...
by FightCRC
Tue Jun 25, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3924

Re: Questions, questions, too many questions.

Mohrfamily, I'll add that the doctor/center that has given us hope is Dr. Kemeny/MSKCC. We got turned onto Dr. Kemeny and MSK from reading all the stories on the various message boards. Our eternal gratitude to posters like juliej, mariane, and so many others for helping to spread the word. We are f...
by FightCRC
Tue Jun 25, 2019 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3924

Re: Questions, questions, too many questions.

I really hate to say this but, maybe they are trying to tell you something without saying it. As upsetting as it would be to hear it, one might also consider it a favor. Because then you would know where you stood with the onc. You would know they were treating you with that particular outlook. A l...
by FightCRC
Mon Jun 24, 2019 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3924

Re: Questions, questions, too many questions.

Mohrfamily, forgive me if I'm not remembering your story correctly, but aren't you patients at MSK with Dr. Kemeny? Or you've consulted with them already, at least? Yes we did consult with them back in January. DH did more research on the pump and is just not comfortable with the actual pump part. ...
by FightCRC
Sat Jun 22, 2019 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 27
Views: 3924

Re: Questions, questions, too many questions.

Mohrfamily, forgive me if I'm not remembering your story correctly, but aren't you patients at MSK with Dr. Kemeny? Or you've consulted with them already, at least?

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