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by lovemyameliasky
Wed May 16, 2018 5:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How can I help my family watch me die?
Replies: 20
Views: 3993

How can I help my family watch me die?

In case you missed my previous posts, I'm 36 years old, mother to a beautiful 5-month-old baby girl, loving wife of nearly 12 years to my amazing husband and soulmate, and I've just recently been diagnosed with colon cancer that has spread everywhere. And I do mean everywhere: my brain, spine, lungs...
by lovemyameliasky
Wed May 09, 2018 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long-term survival with spine mets??
Replies: 8
Views: 1189

Re: Long-term survival with spine mets??

So from the lack of responses I'm thinking...long-term survival with spine mets is just wishful thinking?
by lovemyameliasky
Wed May 09, 2018 11:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5242

Re: Just diagnosed and it's EVERYWHERE...what to do now??

Has anyone heard of any recent long-term successes in treating colon cancer metastasized to the spine? If so, what treatment course was pursued? I've spent most of the morning looking at recent studies and haven't yet seen any stories of survival beyond a few months. It seems that the spinal mets ar...
by lovemyameliasky
Wed May 09, 2018 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Long-term survival with spine mets??
Replies: 8
Views: 1189

Long-term survival with spine mets??

Does anyone have any knowledge at all of long-term survival with spinal metastases? I was just diagnosed yesterday and from what I've read so far, spine mets are pretty much an immediate death sentence. Mine are all throughout my spine (neck to tailbone). Has anyone heard of any long-term survivors ...
by lovemyameliasky
Tue May 08, 2018 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5242

Re: Just diagnosed and it's EVERYWHERE...what to do now??

Thanks so much, all. I'm still in shock and denial to be honest. How can this be real life??? I haven't yet received the final pathology report. How do I go about finding out if I'm MSI/MSS for immunotherapy purposes? Will that be included in the full report? Also, as far as clinical trials go, how ...
by lovemyameliasky
Tue May 08, 2018 9:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5242

Just diagnosed and it's EVERYWHERE...what to do now??

Hi everyone, I'm writing this from the hospital room after I've been informed I have colon cancer with extensive metastases to my spine (from my neck to my tailbone), brain, liver, lungs, ovaries, knees, shoulders, and pelvis. Obviously I am in shock and know this is very, very, very, extremely bad....

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