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by Koreysue
Fri Jun 19, 2020 12:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Day
Replies: 6
Views: 1178

Re: Scan Day

HEY keep that permanent reservation in NEDSville !!!!! Congrats !!!!! YES the dexamethasone is a bit of a beatch. In fact I wrote a whole blog/topic while on/off it during my treatments. Hi I'm FOLFOX...how do you like me so far ? I ended up decreasing the dose a lot because I had the Doc's OK and ...
by Koreysue
Thu Jun 18, 2020 2:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still here still clear
Replies: 13
Views: 1552

Re: Still here still clear

Yay! Awesome news
Ksue
by Koreysue
Wed Jun 17, 2020 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: An aspirin a day helps keep bowel cancer away
Replies: 10
Views: 1330

Re: An aspirin a day helps keep bowel cancer away

That’s really promising. Thanks for sharing :D
Ksue
by Koreysue
Wed Jun 17, 2020 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Day
Replies: 6
Views: 1178

Scan Day

Hi guys, just coming on to share that I got a scan and results are in- NED...all smiles from me right now. I had a reaction to the IV contrast last time (that had never happened before), so they have me all hopped up on steroids as a prevention. I’m gonna try to get extra chores done while I ride hi...
by Koreysue
Wed Jun 17, 2020 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 21
Views: 2858

Re: Celebrating 10 years since my Stage IV DX!!!!!

What a happy post, full of hope. So happy for you!
by Koreysue
Wed Jun 17, 2020 12:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 month scans clear
Replies: 17
Views: 1733

Re: 6 month scans clear

Awesome news !
by Koreysue
Thu May 28, 2020 2:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 21
Views: 2858

Re: Celebrating 10 years since my Stage IV DX!!!!!

Congrats to you! And thank you for this post of hope.
Ksue
by Koreysue
Tue May 19, 2020 10:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reducing Oxaliplatin
Replies: 8
Views: 1369

Re: Reducing Oxaliplatin

Hello, I made it to 6 cycles full dose, then reduced for 4 more, then dropped completely at 10.
I really think that L- glutamine helped me. I would take it the day before each cycle, and each day during, along with the day after.
I dissolved it in water.
Hope that helps,
Koreysue
by Koreysue
Fri Mar 13, 2020 1:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 7
Views: 735

Re: New here

Welcome!
But sorry you are in the club.
It is very common to struggle after treatment. I found thE “after” to be worse than the “during”.
Just try to take one day at a time
Ksue
by Koreysue
Thu Mar 12, 2020 2:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 2030

Re: Me again, my fave topic: CEA

But monotonic increases for 3 months isn’t a spike, it’s a trend. Nothing to do but wait for the next scan. We're definitely in the same boat. DH's CEA reached a low of 3.2 in July then slowly but steadily increased... Yet the scans showed stability/slight decrease in his tumors (at least up to the...
by Koreysue
Thu Mar 12, 2020 2:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 2030

Re: Me again, my fave topic: CEA

I sometimes wish I could just tell my doc I want to do every 6 mos for cea instead of 3 months, but I’d probably worry about that choice, too Ugh! You are right, it is a measly rise. Thanks for the input, Ksue I stress about mine too. I went from 0.8 to 1.4 and freaked out for weeks stressing about...
by Koreysue
Tue Mar 10, 2020 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 2030

Re: Me again, my fave topic: CEA

I have been watching my mum’s CEA for ten years and they always jump around . I notice some people always have the same reading . Not so with my mum . Goes up and down a point or two . Strangely enough her CEA was low at diagnosis but sits on the high side of normal without disease . If I am readin...
by Koreysue
Tue Mar 10, 2020 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 2030

Re: Me again, my fave topic: CEA

beach sunrise wrote:I obsess too until I find logic/answers to the why.


Maybe someday we can learn to put it out of our minds.
Thanks for letting me know I’m not alone in obsessing.
Ksue
by Koreysue
Tue Mar 10, 2020 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Me again, my fave topic: CEA
Replies: 19
Views: 2030

Re: Me again, my fave topic: CEA

If it's in the normal range, I wouldn't worry at ALL. Unless it was SUPER stable in a lower range and then suddenly shot up. Just like any other blood test, there is a normal RANGE, which means that anywhere within those limits is normal and not a cause for concern. Unless there was an obvious tren...

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