Hi Kirsty, I can see how rotten it must be for you all. :( I am pretty young (well I think 57 is still young) and am not in such a situation. What I can share is that with my 'bag' (which is permanent) for quite a while, months, I needed help to change the bag. Primarily as I had extreme 'wobbles-sh...
For myself I just couldn't even go back to the job I had. Was a 'maintenance person' at McDonalds. I cannot bend or even stand/well especially for longish periods. Handling 'boiling hot oils', handling deliveries and balancing around cook areas is just too dangerous. And embarrassingly slow. I am su...
Hi folk I have not shared for ages. The whole thing gets pretty depressing at times... :( :( GREAT NEWS - Am home with no sign of any cancer and off to a job interview tomorrow. In August last year had an 'AP resection' and from there on it was hell.... (Sorry but it was.... still the drugs helped m...
Happy to hear that things turned for the better. That sounded like quite the ordeal. It was the pits. High all the time, and high Temps plus tubes up my nose. Sadly I could not handle the ng tube well gagging/choking continually. They numbed my throat a bit in the end. The good news is there is no ...
Sorry for not being around, I have been high on oxy contime and in awful, awful pain. UPDATE- Things were pretty awful for a while. My system refused to work and the scan showed a fluid build up so had a drain in my side. Everything had to be fed into me by IV. Finally most pain has gone and today s...
NEW SURGERY- Today 21st Intestines refuse to work. Pretty painful. Surgeon pretty sure scar tissue causing issues. Lapraotomy to check things out. Feeling a bit down
It was nice to hear from you. I'm sorry to hear that you are having such a tough recovery, however. In case you're interested, here are some nice photos of New Zealand North Island, and New Zealand South Island for your review. Do you recognize any of these places? http://praisephotography.com/phot...
Thank you for the update. I was in ICU for 3 days (they had a/c there) before they moved me to a regular unairconditioned room. Yes, walking was key and trying to sit on a chair in 1/2 hour increments. About 5 days later I had tons of fecal matter come out down my legs. What a mess. They told me th...
Thank you for your replies. UPDATE- At day 18 after op bowel was still not working. :( Very painful and I look like I am having twins. X-ray showed swoolen areas and blockages. Pretty sure it is the irradiated intestines playing up. Being fed by IV. Day 19 bowel finally started slowly and with much ...
Hello, this is Susie, Steve's wife. He wanted me to let you know how the surgery went and how he is feeling now. The surgery was 4 hours and he was in recovery over 3 hours. The doctor did a lot of work on him, he now has a stoma. Visually, the doctor does not think there is any more cancer in any c...
Although the radiation removed the tumour, due to other factors (swollen tissue, inflamed polyps forming around area and swollen lymph nodes) my surgeon recommended we do not 'wait and see'. In this case the risk is just too high that cancer cells are in surrounding tissue. I do trust they guy and t...
SteveNZ -- I think it would probably be a good idea to set up a meeting to discuss the exact nature of your operation with your assigned surgeon. No doubt you would want to make sure that the surgery will be the best type of surgery for your situation. ........................ Thank you for that. W...