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by margiej
Sun Aug 09, 2020 8:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not tolerating Xeloda. Are there any options?
Replies: 15
Views: 2396

Re: Not tolerating Xeloda. Are there any options?

If you buy organic bread, cereal and pasta, those aren't fortified with folic acid. I didn't know any of that when I was on Capox and I was so very, very sick like you. I am so sorry you are going through this. If you can get some cannabis in any form it might help. Ativan helps nausea and sleeping ...
by margiej
Wed Jul 29, 2020 5:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update - Stage 3b, mid-CAPOX
Replies: 2
Views: 647

Re: Update - Stage 3b, mid-CAPOX

I am a 3b too and did six rounds of capox. Your husband is halfway...he will be done before you know it and this will be in the review mirror. So glad he is doing well...yay for medical marijuana. I think I would have fared better if I had some edibles! Very best of luck with IVF in September.
Margie
by margiej
Fri Jul 17, 2020 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Personal question ... how do YOU do it?
Replies: 13
Views: 1728

Re: Personal question ... how do YOU do it?

Hi, Monimom...my husband and I are 62 and 61, respectively, and are retired. We purchase insurance through the ACA. I don't know what your annual income is but for the two of us, if we can maintain our annual income under something like 67,000 we get our insurance subsidized. Currently we pay $0 for...
by margiej
Thu Jun 18, 2020 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still here still clear
Replies: 15
Views: 2350

Re: Still here still clear

Fantastic news!
by margiej
Thu Jun 18, 2020 9:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, input needed
Replies: 82
Views: 23567

Re: Please help, input needed

I am so sorry you are on the middle of this, Ulendon.. it's really hard but you will get through it. After my doctor added Emend to my infusion I felt relatively good for about three days. I ate as much as I could on those days to get my strength up. Xeloda made me extremely ill though..unable to ea...
by margiej
Fri Jun 05, 2020 2:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage III's
Replies: 6
Views: 865

Re: Stage III's

I also did six rounds of capeox in 2016. My oncologist thought 8 was likely too much, 4 possibly too little, and that six was hopefully the sweet spot. I do have some permanent neuropathy in my feet and fingertips....maybe 5 rounds would have been perfect?
Margie
by margiej
Mon May 11, 2020 12:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin question
Replies: 6
Views: 1077

Re: Aspirin question

Timely thread! I have been taking a low dose aspirin for a couple years now as I read similar reports. I have an upcoming June appointment with my Onc at Mayo. It is my understanding that he has published some studies about the use of aspirin to prevent recurrence of CRC. I have met with his NP the...
by margiej
Sat May 09, 2020 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Aspirin question
Replies: 6
Views: 1077

Aspirin question

Hi...I was reading this recent study about aspirin and rates of colon cancer. My doctor has me taking 81 mg per day...the usual low-dose aspirin. This study suggests that a higher dose might provide more benefit. I will ask about this at my next appointment, but I was curious what your doctors recom...
by margiej
Wed Jan 22, 2020 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy
Replies: 5
Views: 1174

Re: Colonoscopy

Love the lyrics.. Thanks for the laugh! And nothing is more true than "what goes in, must come out."
Margie
by margiej
Mon Jan 20, 2020 9:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy
Replies: 5
Views: 1174

Colonoscopy

I had my 4 year colonoscopy on Friday (last colonoscopy was 3 years ago) and everything looked great. Mayo changed its instructions.. Low residue diet two days before and only clear liquids the day before. Previously a light breakfast and lunch were allowed the day before. So while I was really hung...
by margiej
Sun Jan 12, 2020 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancer and coffee????
Replies: 12
Views: 1760

Re: Cancer and coffe????

I don't know if there are any negative indications for drinking coffee during chemo. I never read that anywhere. All I know is that I didn't feel well enough for coffee on the vast majority of days during my 5 months of chemo. I would have a little coffee if my stomach was up to it..usually decaf. O...
by margiej
Fri Oct 11, 2019 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 798
Views: 329613

Re: For Stage III's: NED for how long now?

I have had a rocky week... Had my CT scan last Thursday at an outside radiology clinic and met with my oncologist on Tuesday. He told me my CT looked good but later called and said he was looking at a scan in the system from TWO years ago. He was an oncologist from Mayo filling in at my clinic and I...
by margiej
Sat Sep 07, 2019 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effect question.
Replies: 7
Views: 1061

Re: Side effect question.

I was very cold during chemo.. especially my extremities. Kept snuggled under an electric blanket a lot of the time. My feet are still cold all the time from the neuropathy, I am guessing.
by margiej
Sat Aug 24, 2019 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post cancer fatigue
Replies: 9
Views: 1038

Re: Post cancer fatigue

I was on capeox for 4 months over 3 years ago. I have been exercising regularly all along and was in good shape before all this went down. Just in the past 3-4 months, I finally feel like I have more physical stamina. I don't find myself breathless with a little exertion, my pulse is lower. I still ...
by margiej
Wed Aug 14, 2019 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Capox tomorrow
Replies: 8
Views: 1032

Re: Starting Capox tomorrow

I found the cold sensitivity unfun but bearable. The oxy portion was manageable but the thing that kicked my ass was nausea. Taking the capecetabine every day got more and more difficult as the two weeks went on. I felt worse on my week off. I think my case was extreme but I would do everything poss...

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