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by margiej
Wed Aug 14, 2019 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Capox tomorrow
Replies: 6
Views: 157

Re: Starting Capox tomorrow

I found the cold sensitivity unfun but bearable. The oxy portion was manageable but the thing that kicked my ass was nausea. Taking the capecetabine every day got more and more difficult as the two weeks went on. I felt worse on my week off. I think my case was extreme but I would do everything poss...
by margiej
Tue Aug 13, 2019 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about Health Insurance
Replies: 1
Views: 115

Re: Questions about Health Insurance

I, too, have insurance with healthcare.gov. While looking for some other info on my insurer's website, I found that if a certain critical treatment weren't offered in my network, I could go another clinic and still be covered. In my case, they would allow me to go to Mayo Clinic for specialized trea...
by margiej
Mon Jul 22, 2019 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 29
Views: 2194

Re: Chemo has caught up to me yall

AmyG wrote:
We make terrible decisions. :lol:


This cracked me up. Congrats on pup #3!
by margiej
Fri Jun 21, 2019 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 3213

Re: Currently in the ER...woo.

Thinking of you... Hope everything gets figured out quickly with the best outcomes.
Margie
by margiej
Tue Jun 11, 2019 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 1648

Re: Mop up chemo - Port vs non-port for Oxi?

I did six rounds without a port. I did not have any issue at all. I did it in my arm at inside the elbow joint. Cynthia Same here. Found it very doable, switching arms/elbows each cycle. I believe the hot packs that the nurses diligently applied may have made the difference. Keeping the receiving a...
by margiej
Sun Jun 02, 2019 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 559
Views: 137617

Re: NEW-Need some positivity here.

I wouldn't be concerned. Your ALT is well within the normal range. Sending all the good vibes, positive energy, and prayers for your good scan results on Tuesday.
Margie
by margiej
Thu May 30, 2019 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1478

Re: Laid off before Dx

I think the Affordable Care Act is a lifesaver and a godsend. It is especially critical for those of us with pre-existing conditions. Insurers wouldn't cover those of us with pre-existing conditions before the ACA. My husband and I are retired and purchase health insurance through healthcare.gov. We...
by margiej
Mon May 27, 2019 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Numbness in Rectal Area
Replies: 2
Views: 435

Re: Numbness in Rectal Area

Yep...I had this symptom too. Relatively harmless little thing but was a little disconcerting! Seems like it took a while to go away, but it did finally.
Margie
by margiej
Wed May 22, 2019 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 9967

Re: Anyone doing xelox and xeloda. Please help

Everyone's experience is different. For me, when the infusion got uncomfortable or painful, that's when they would slow it down and/or give me a heat pack. Maybe you could split the difference and go with three hours and adjust if necessary. The pain was generally less the higher in the arm in a big...
by margiej
Wed May 15, 2019 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified new member from UK...joined today.
Replies: 12
Views: 1107

Re: Terrified new member from UK...joined today.

Best of luck tomorrow, catdylan1. Sending all the healing vibes.
Margie
by margiej
Wed Apr 24, 2019 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 9967

Re: Anyone doing xelox and xeloda. Please help

Hi, Jolene - I also wanted to reiterate what someone else mentioned here... If your infusion is higher up in the arm, it's not nearly as uncomfortable as in the hand. And if the infusion is ever a little painful, the nurse can slow it down and it helps a lot. My infusions were generally 5-6 hours. I...
by margiej
Mon Apr 22, 2019 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 9967

Re: Anyone doing xelox and xeloda. Please help

Hi, Jolene - it doesn't sound like you have much cold sensitivity.. That's great! Usually the cold sensitivity was wearing off a bit after a week or so following the oxy infusion. I definitely had stomach pains, gas, bloating, etc from the capecitabine. Intermittent diarrhea. My Dr prescribed Prilos...
by margiej
Sat Apr 20, 2019 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First CT results are in..
Replies: 13
Views: 1107

Re: First CT results are in..

Great news! I especially like "footloose and cancer free"... Nice turn of phrase!
Margie
by margiej
Fri Apr 19, 2019 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things look good at the moment
Replies: 4
Views: 743

Re: Things look good at the moment

Everything sounds great, Jannine!
Margie

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