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by margiej
Mon Mar 18, 2019 10:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 746
Views: 255222

Re: For Stage III's: NED for how long now?

Three years, two months!
Margie
by margiej
Wed Mar 06, 2019 7:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 524
Views: 120037

Re: NEW-Need some positivity here.

Fantastic news! My heart soars with every clear scan I read on here.
Margie
by margiej
Fri Mar 01, 2019 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dumb neuropathy "improvement" question
Replies: 10
Views: 594

Re: Dumb neuropathy "improvement" question

Jannine, I think my neuropathy had some ebbs and flows the first few months following chemo. It seems like it became much less noticeable after 5-6 months. Hopefully your feet will feel better soon. Sometimes I feel even now it can flare up a bit if I am on my feet for a really long time or haven't ...
by margiej
Sun Feb 17, 2019 5:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ladies what did you do with your hair during chemo?
Replies: 18
Views: 2055

Re: Ladies what did you do with your hair during chemo?

Oddly, my hair seems to be getting darker and darker. I am ordering one of these hairpieces right now...it they had one with a few strands of gray, it would be more realistic!
Thanks for the great idea!
Margie
by margiej
Sun Feb 03, 2019 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you first discover or got diagnosed with colorectal cancer ?
Replies: 16
Views: 1721

Re: How did you first discover or got diagnosed with colorectal cancer ?

I had put off a colonoscopy for all the usual reasons. My husband and I were both 57 and he was planning to retire so we thought we should both get physicals, colonoscopy scheduled, dermatology checks, etc., while we still had decent health insurance. Right about that same time I noticed blood in my...
by margiej
Mon Jan 21, 2019 9:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another anniversary
Replies: 16
Views: 1087

Re: Another anniversary

This just fills my heart... Just what I needed to hear today
by margiej
Fri Jan 18, 2019 7:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This chemo is knocking me down
Replies: 13
Views: 770

Re: This chemo is knocking me down

Ditto on the hydration. My oncologist put in a standing order for fluids for me since I had such a difficult time eating and drinking. I could call the infusion center and they would set me up for a liter of fluids as soon as they could fit me in.. Usually later afternoon when the other infusions we...
by margiej
Mon Jan 07, 2019 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: clean scope
Replies: 7
Views: 1702

Re: clean scope

Wonderful news.. Thank you for encouraging update!
Margie
by margiej
Wed Dec 12, 2018 6:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigh! Nervous again
Replies: 13
Views: 1357

Re: Sigh! Nervous again

It's already a great feeling when the colonoscopy is over and everything looks good. So happy for you! I was told to come back after three years also. It will be two years for me in the spring...I will ask the doctor then if three years is too long. Although I think it takes a while for tumors to de...
by margiej
Tue Dec 11, 2018 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Heartbroken
Replies: 12
Views: 1489

Re: Heartbroken

So sorry to hear you have lost your dear mother. You were a wonderful help to her.
by margiej
Mon Dec 10, 2018 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ladies what did you do with your hair during chemo?
Replies: 18
Views: 2055

Re: Ladies what did you do with your hair during chemo?

My genetic thin hair got woefully thinner during and after chemo. I decided I would skip the chemical exposure although I am sure it had nothing to do with my colon cancer.....I had highlighted my hair for years and years and was pretty much a blonde. So I let the highlights grow out and kept my hai...
by margiej
Thu Dec 06, 2018 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 524
Views: 120037

Re: NEW-Need some positivity here.

So awesome! Yay!
Margie
by margiej
Tue Nov 20, 2018 10:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Strange new side effects with FOLFIRINOX
Replies: 6
Views: 555

Re: Strange new side effects with FOLFIRINOX

I think that's wise to cut the oxy back. I hope your electric shocks subside soon.
Margie
by margiej
Tue Nov 20, 2018 8:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Strange new side effects with FOLFIRINOX
Replies: 6
Views: 555

Re: Strange new side effects with FOLFIRINOX

I developed L'Hermitte's sign a few weeks after the end of chemo. When I would bend my head down, electric shocks went down from my neck to my feet--painless, but pretty uncomfortable. It was during the worst of my neuropathy. As my neuropathy improved, the electric shocks disappeared. I still have ...
by margiej
Mon Nov 19, 2018 10:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad news
Replies: 17
Views: 2232

Re: Sad news

Dear Missy - so sorry for your lost.
❤️ Margie

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