I have had a rocky week... Had my CT scan last Thursday at an outside radiology clinic and met with my oncologist on Tuesday. He told me my CT looked good but later called and said he was looking at a scan in the system from TWO years ago. He was an oncologist from Mayo filling in at my clinic and I...

I was very cold during chemo.. especially my extremities. Kept snuggled under an electric blanket a lot of the time. My feet are still cold all the time from the neuropathy, I am guessing.

I was on capeox for 4 months over 3 years ago. I have been exercising regularly all along and was in good shape before all this went down. Just in the past 3-4 months, I finally feel like I have more physical stamina. I don't find myself breathless with a little exertion, my pulse is lower. I still ...

I found the cold sensitivity unfun but bearable. The oxy portion was manageable but the thing that kicked my ass was nausea. Taking the capecetabine every day got more and more difficult as the two weeks went on. I felt worse on my week off. I think my case was extreme but I would do everything poss...

I, too, have insurance with healthcare.gov. While looking for some other info on my insurer's website, I found that if a certain critical treatment weren't offered in my network, I could go another clinic and still be covered. In my case, they would allow me to go to Mayo Clinic for specialized trea...

AmyG wrote:
We make terrible decisions.

This cracked me up. Congrats on pup #3!

Thinking of you... Hope everything gets figured out quickly with the best outcomes.
Margie

I did six rounds without a port. I did not have any issue at all. I did it in my arm at inside the elbow joint. Cynthia Same here. Found it very doable, switching arms/elbows each cycle. I believe the hot packs that the nurses diligently applied may have made the difference. Keeping the receiving a...

Fantastic news!

I wouldn't be concerned. Your ALT is well within the normal range. Sending all the good vibes, positive energy, and prayers for your good scan results on Tuesday.
Margie

I think the Affordable Care Act is a lifesaver and a godsend. It is especially critical for those of us with pre-existing conditions. Insurers wouldn't cover those of us with pre-existing conditions before the ACA. My husband and I are retired and purchase health insurance through healthcare.gov. We...

Yep...I had this symptom too. Relatively harmless little thing but was a little disconcerting! Seems like it took a while to go away, but it did finally.
Margie

Everyone's experience is different. For me, when the infusion got uncomfortable or painful, that's when they would slow it down and/or give me a heat pack. Maybe you could split the difference and go with three hours and adjust if necessary. The pain was generally less the higher in the arm in a big...

Best of luck tomorrow, catdylan1. Sending all the healing vibes.
Margie

Hi, Jolene - I also wanted to reiterate what someone else mentioned here... If your infusion is higher up in the arm, it's not nearly as uncomfortable as in the hand. And if the infusion is ever a little painful, the nurse can slow it down and it helps a lot. My infusions were generally 5-6 hours. I...