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by margiej
Fri Oct 11, 2019 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 774
Views: 284688

Re: For Stage III's: NED for how long now?

I have had a rocky week... Had my CT scan last Thursday at an outside radiology clinic and met with my oncologist on Tuesday. He told me my CT looked good but later called and said he was looking at a scan in the system from TWO years ago. He was an oncologist from Mayo filling in at my clinic and I...
by margiej
Sat Sep 07, 2019 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effect question.
Replies: 7
Views: 755

Re: Side effect question.

I was very cold during chemo.. especially my extremities. Kept snuggled under an electric blanket a lot of the time. My feet are still cold all the time from the neuropathy, I am guessing.
by margiej
Sat Aug 24, 2019 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post cancer fatigue
Replies: 9
Views: 656

Re: Post cancer fatigue

I was on capeox for 4 months over 3 years ago. I have been exercising regularly all along and was in good shape before all this went down. Just in the past 3-4 months, I finally feel like I have more physical stamina. I don't find myself breathless with a little exertion, my pulse is lower. I still ...
by margiej
Wed Aug 14, 2019 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting Capox tomorrow
Replies: 8
Views: 774

Re: Starting Capox tomorrow

I found the cold sensitivity unfun but bearable. The oxy portion was manageable but the thing that kicked my ass was nausea. Taking the capecetabine every day got more and more difficult as the two weeks went on. I felt worse on my week off. I think my case was extreme but I would do everything poss...
by margiej
Tue Aug 13, 2019 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about Health Insurance
Replies: 2
Views: 498

Re: Questions about Health Insurance

I, too, have insurance with healthcare.gov. While looking for some other info on my insurer's website, I found that if a certain critical treatment weren't offered in my network, I could go another clinic and still be covered. In my case, they would allow me to go to Mayo Clinic for specialized trea...
by margiej
Mon Jul 22, 2019 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 29
Views: 2925

Re: Chemo has caught up to me yall

AmyG wrote:
We make terrible decisions. :lol:


This cracked me up. Congrats on pup #3!
by margiej
Fri Jun 21, 2019 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 4227

Re: Currently in the ER...woo.

Thinking of you... Hope everything gets figured out quickly with the best outcomes.
Margie
by margiej
Tue Jun 11, 2019 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 2143

Re: Mop up chemo - Port vs non-port for Oxi?

I did six rounds without a port. I did not have any issue at all. I did it in my arm at inside the elbow joint. Cynthia Same here. Found it very doable, switching arms/elbows each cycle. I believe the hot packs that the nurses diligently applied may have made the difference. Keeping the receiving a...
by margiej
Sun Jun 02, 2019 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 581
Views: 149361

Re: NEW-Need some positivity here.

I wouldn't be concerned. Your ALT is well within the normal range. Sending all the good vibes, positive energy, and prayers for your good scan results on Tuesday.
Margie
by margiej
Thu May 30, 2019 9:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1905

Re: Laid off before Dx

I think the Affordable Care Act is a lifesaver and a godsend. It is especially critical for those of us with pre-existing conditions. Insurers wouldn't cover those of us with pre-existing conditions before the ACA. My husband and I are retired and purchase health insurance through healthcare.gov. We...
by margiej
Mon May 27, 2019 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Numbness in Rectal Area
Replies: 2
Views: 516

Re: Numbness in Rectal Area

Yep...I had this symptom too. Relatively harmless little thing but was a little disconcerting! Seems like it took a while to go away, but it did finally.
Margie
by margiej
Wed May 22, 2019 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 10961

Re: Anyone doing xelox and xeloda. Please help

Everyone's experience is different. For me, when the infusion got uncomfortable or painful, that's when they would slow it down and/or give me a heat pack. Maybe you could split the difference and go with three hours and adjust if necessary. The pain was generally less the higher in the arm in a big...
by margiej
Wed May 15, 2019 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified new member from UK...joined today.
Replies: 12
Views: 1312

Re: Terrified new member from UK...joined today.

Best of luck tomorrow, catdylan1. Sending all the healing vibes.
Margie
by margiej
Wed Apr 24, 2019 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 59
Views: 10961

Re: Anyone doing xelox and xeloda. Please help

Hi, Jolene - I also wanted to reiterate what someone else mentioned here... If your infusion is higher up in the arm, it's not nearly as uncomfortable as in the hand. And if the infusion is ever a little painful, the nurse can slow it down and it helps a lot. My infusions were generally 5-6 hours. I...

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