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by Capercrohnieileo
Wed Nov 28, 2018 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fistula Questions
Replies: 7
Views: 671

Re: Fistula Questions

I didn't have post surgical fistulas but I did have multiple rectovaginal fistulas caused by Crohn's which resulted in my permanent ostomy. She has my sympathy. Fistulas are horrible and I dread getting them again. My ileostomy is way better than fistulas any day.
by Capercrohnieileo
Sun Nov 25, 2018 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adenocarcinoma and crohn's after surgery
Replies: 3
Views: 556

Re: Adenocarcinoma and crohn's after surgery

I can answer about Crohn's. Yes she still has it. If it is cut out she is in remission but Crohn's can occur anywhere from gums to bum in the GI tract so it can return. Mine reappeared in my stomach after having my colon and rectum removed.
by Capercrohnieileo
Thu Nov 08, 2018 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation vs Bowel Blockage whats the difference?
Replies: 13
Views: 1038

Re: Constipation vs Bowel Blockage whats the difference?

cptmac wrote:Thank you Capercrohnieileo and erinnatacha . Did you try laxatives or anything to relieve it or did you call your doctor straight away?

This truly does help lesson my anxiety. I really appreciate you sharing.

I was in the hospital so I had a dreaded NG tube.
by Capercrohnieileo
Wed Nov 07, 2018 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation vs Bowel Blockage whats the difference?
Replies: 13
Views: 1038

Re: Constipation vs Bowel Blockage whats the difference?

I just had a partial obstruction (in small intestine as I don't have a colon anymore) after my J tube surgery a few weeks ago and I was vomiting massive amounts of bile, very nauseous and severe pain.
by Capercrohnieileo
Tue Nov 06, 2018 10:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Flexible Sigmoidoscopy Scheduled for end of month, and I fear I might have colon cancer
Replies: 18
Views: 2497

Re: Flexible Sigmoidoscopy Scheduled for end of month, and I fear I might have colon cancer

First relax. Like many others who come, scared!!! Avoid Dr. Google, you can diagnose your self with anything with Dr. Google. Many people come here convienced that they have cancer only to learn after the colonoscopy that they are fine. Also know that many different issues could be causing your sym...
by Capercrohnieileo
Fri Oct 26, 2018 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on here from Nova Scotia Canada?
Replies: 9
Views: 955

Re: Anyone on here from Nova Scotia Canada?

Fortunately I don't have cancer, I have Crohn's and gastroparesis. I go through CBRH
by Capercrohnieileo
Sun Oct 14, 2018 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy?
Replies: 11
Views: 1463

Re: Ileostomy?

@sethshae I had a total proctocolectomy with end ileostomy in May 2017 because of Crohn's. I am not drug resistant but I had nasty nasty fistulas that Remicade didn't heal (only drug that works for fistulas). If I could go back in time I would have had it done right at diagnosis. I was too scared. R...
by Capercrohnieileo
Sun Oct 07, 2018 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy World Ostomy Day!
Replies: 10
Views: 1006

Re: Happy World Ostomy Day!

I'm NPO this Thanksgiving (day 27 in the hospital on TPN because of gastroparesis) so est my share too!
by Capercrohnieileo
Sat Oct 06, 2018 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy World Ostomy Day!
Replies: 10
Views: 1006

Re: Happy World Ostomy Day!

Happy world ostomy day! I don't have cancer but I do have a permanent ileostomy. My ostomy is named Kanye or Donald, always spewing crap! Happy Thanksgiving!


I'm also getting a new stoma (maybe on Friday) though it's a J tube.
by Capercrohnieileo
Wed Sep 26, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Young mom, terrified I have cancer
Replies: 7
Views: 1427

Re: Young mom, terrified I have cancer

Yes, taking biopsies during scopes is very normal
by Capercrohnieileo
Fri Sep 21, 2018 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can tumors bleed big amounts at a time?
Replies: 11
Views: 1312

Re: Can tumors bleed big amounts at a time?

Crc and hemorrhoids are not the only causes of rectal bleed IBD (ulcerative colitis and Crohn's) can cause bleeding as well.
by Capercrohnieileo
Tue Sep 04, 2018 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 5909

Re: STAGE 3 rectal cancer treatment without surgery

I am thinking I would rather still have the surgery because my tumor literally was up against the anal sphincter and it didn’t shrink enough to warrant no surgery and I also therefore needed to have a permanent colostomy. I know, most people would try just about anything to not have an ostomy and I...
by Capercrohnieileo
Fri Aug 10, 2018 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CBD oil and IBS
Replies: 6
Views: 1288

Re: CBD oil and IBS

@zephyr that happens even with quality products. They are suspended in oil so that is a highly possible side effect at first. The mmj nurse warned about this in the education group at my pain clinic. I'm in Canada so prescription and purchase through a licensed producer is required at this moment so...
by Capercrohnieileo
Thu Jul 19, 2018 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 44
Views: 7034

Re: Just Diagnosed

No I don't have diabetes fortunately though many with gastroparesis do. They don't know the cause so I'm considered idiopathic. About the ostomy, I went into surgery well prepared (I have a friend who has one too) and that helped.

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