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by boxhill
Sun Apr 11, 2021 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update Well its time for a CT Scan
Replies: 11
Views: 762

Re: Update Well its time for a CT Scan

My CEA had risen to just above 8 and now is around 7. My oncologist told me on Thursday that CEA may well be linked to inflammation in general, so my acquisition of RA at some point during the last two years could have driven it up, and the RA treatments could be bringing it down. Through all of thi...
by boxhill
Sat Apr 10, 2021 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does "We" Drive Anyone Else Crazy?
Replies: 3
Views: 302

Does "We" Drive Anyone Else Crazy?

Look, I don't intend to offend anyone, supporters. But when non-patients refer to the disease and its treatment as if it were theirs, it grates on me. Especially when the non-patient refers to "we" when making decisions about care. I know you are devoted to your loved one. I know you are h...
by boxhill
Sat Apr 10, 2021 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Applying for New Jobs Advice
Replies: 5
Views: 542

Re: Applying for New Jobs Advice

I agree with jumpman. I wasn't employed when I had surgery/chemo, and I treasured the ability to just lie on the sofa when I needed to. I did have an active volunteer life, and people would always marvel at how well I was doing. I'd smile and say "I'm fine *today*." They didn't see me on b...
by boxhill
Sat Apr 10, 2021 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24966

Re: Covid 19 vaccine

Both my husband and I have had both shots of Pfizer with nothing more troubling that a day's worth of sore upper arm. Same thing for my mother, who is 98. As of yesterday it has been two weeks since my second shot, so I'm good to go, so to speak. :D Feels liberating.
by boxhill
Mon Apr 05, 2021 10:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 12
Views: 1459

Re: Rising CEA After 2 1/2 Years on Keytruda

I keep thinking about your and your scan results. I hope we hear good news from you soon. I have a routine MRI in a couple hours, first since December, and my scanxiety is riding high. This time I probably won't get the results until my Onc appt on Thursday. Sending good energy your way, no matter w...
by boxhill
Mon Apr 05, 2021 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemotherapy for Stage 2A
Replies: 7
Views: 589

Re: Chemotherapy for Stage 2A

I think my question here is why Capox, not Folfox. Capox includes Xeloda, which is more likely to cause hand/foot symptoms than 5FU, and, if I am not mistaken, more rapid and intense infusions of oxaliplatin that may be more likely to cause a reaction than the 2-hour infusions of Folfox. Yes, Capox ...
by boxhill
Wed Mar 31, 2021 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 12
Views: 1459

Re: Rising CEA After 2 1/2 Years on Keytruda

Keytruda can cause inflammation, and inflammation can cause CEA to rise. My personal CEA has never been as low as it was at diagnosis/surgery--same day for me!--when it was 3.4, IIRC. It's been between 6 and 8 most of the time since then. I'm keeping my fingers crossed for you. I hope you come back ...
by boxhill
Sun Mar 21, 2021 4:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's back
Replies: 13
Views: 2330

Re: It's back

I'm keeping all appendages crossed for you.
by boxhill
Sat Mar 13, 2021 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence in retroperitoneal nodes, spine
Replies: 18
Views: 3230

Re: Recurrence in retroperitoneal nodes, spine

TestTheyDontStop, unfortunately vectibix doesn't work for those of us with KRAS mutations.
by boxhill
Thu Mar 11, 2021 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday to Me!
Replies: 5
Views: 818

Re: Happy Birthday to Me!

Happy Birthday indeed! And many happy returns. :D
by boxhill
Thu Mar 11, 2021 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 14
Views: 1973

Re: My mum needs prayers

I'm so sorry.
by boxhill
Mon Mar 08, 2021 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 24966

Re: Covid 19 vaccine

Last week they opened up vaccination to the 60+ age group in Maine. I was lucky enough to get an appointment on Friday the 5th for the first vaccination. The second one will be on March 26th.
by boxhill
Sun Feb 28, 2021 2:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Chemo Break??
Replies: 5
Views: 1793

Re: Stage 4 Chemo Break??

Claudine, have you and your husband considered using one of the blood tests that detect cancer cells? I suppose you could say that I'm Stage 4 on a chemo break, or at least a treatment break. After failing FOLFOX I started Keytruda, which brought me to semi-NED within 5-6 months. At that time I stil...

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