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by boxhill
Sun Jun 23, 2019 9:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 2013

Re: Currently in the ER...woo.

AmyG, I'm totally with you: we can either try to have a great attitude--most of the time, anyway--or we can live in misery. As the neurosurgeon said when I told him that it looked like things were lining up to see which one can kill me first, "Well, at least you've still got your sense of humor...
by boxhill
Sun Jun 23, 2019 9:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair removal - help?
Replies: 13
Views: 384

Re: Hair removal - help?

Ginabeewell, that just sucks, I must say. Sometimes the indignities just pile up, don't they?
by boxhill
Fri Jun 21, 2019 1:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 56
Views: 2013

Re: Currently in the ER...woo.

I've been following your travails, Amy. What a course of events. Enjoy that chicken fried steak...and the cookie!
by boxhill
Fri Jun 21, 2019 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low platelets before chemo
Replies: 9
Views: 261

Re: Low platelets before chemo

I found Neulasta to be effective and no problem as long as I took my daily Claritin. (They told me to just take the regular kind, not decongestant, FWIW.) My last scan showed that me spleen was back to normal, after having been enlarged--I'm told an oxaliplatin thing, like so much else--which I'm su...
by boxhill
Fri Jun 21, 2019 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 13
Views: 491

Re: Questions, questions, too many questions.

I think you've gotten excellent advice. There does seem to be somewhat of a divide amongst oncologists on this issue. Personally, I'd be looking for someone who was willing to work towards becoming operative.
by boxhill
Thu Jun 20, 2019 10:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low platelets before chemo
Replies: 9
Views: 261

Re: Low platelets before chemo

My platelets were barely scraping the low end of the normal range when I started Folfox, maybe around 140, and went steadily down from there. I had to postpone chemo a week for the count to come back up a few times. My count was below 80 many times, and no one ever mentioned getting a transfusion. I...
by boxhill
Wed Jun 12, 2019 10:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation - Drinking Water (>120 ounces)
Replies: 7
Views: 465

Re: Constipation - Drinking Water (>120 ounces)

Do you drink coffee? I think it helps.

This may seem ludicrous, but based on my personal experience, a combination of metformin and lots of coffee --doesn't have to be caffeinated--in the morning is sure to guarantee loose stools. And plenty of them.
by boxhill
Wed Jun 12, 2019 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Support - Told today I'm on Palliative Care
Replies: 34
Views: 7703

Re: Need Support - Told today I'm on Palliative Care

Really glad to read that you are responding to chemo now. I think that there is no doubt that you need to get involved with a real cancer center. It's great that you are consulting with someone at Mass General. I would suggest that if you are going to travel to Boston you might try to get a referral...
by boxhill
Tue Jun 11, 2019 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 18
Views: 842

Re: Mop up chemo - Port vs non-port for Oxi?

I have lousy veins, and every IV is a torture. I can't imagine having gotten through 12 rounds of FOLFOX and now Keytruda every three weeks, not to mention countless blood draws, without my port. I love my port. :D I get my scans done at a place where they can't access my port, and thus have to have...
by boxhill
Sun Jun 09, 2019 9:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Triphasic CT results/Keytruda
Replies: 6
Views: 358

Re: Triphasic CT results/Keytruda

Some of those descriptions are cryptic or confusing, to say the least. But I can report that when you are having the scan it proceeds pretty much exactly like any other CT with contrast. You drink the barium yucky stuff in the waiting room, go in and have the IV placed for the contrast--and OMG do I...
by boxhill
Sun Jun 09, 2019 9:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance Cos increasingly resistant to scans
Replies: 6
Views: 481

Re: Insurance Cos increasingly resistant to scans

BTW, **after** the triphasic CT was performed, I received a letter from Anthem informing me that AIM Specialty Health has approved a procedure for me which is described as "CT ABD & PELVIS W/O CONTRAST." I don't know about you, but to me this looks like they approved a CT without contr...
by boxhill
Sat Jun 08, 2019 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tooth pain-need to see dentist. Will this impact Immunotherapy (Keytruda)?
Replies: 7
Views: 261

Re: Tooth pain-need to see dentist. Will this impact Immunotherapy (Keytruda)?

I had a cerebral angiogram while on Keytruda, which involved inserting a probe through the femoral artery and threading it up to my brain. It was actually supposed to be an angioplasty, but the degree of stenosis turned out to be less than anticipated, but in any case the change of course had nothin...
by boxhill
Fri Jun 07, 2019 10:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Triphasic CT results/Keytruda
Replies: 6
Views: 358

Triphasic CT results/Keytruda

Well, as I noted in the thread about insurance companies and scans, they wouldn't let me have an MRI, so I had a "triphasic" CT scan instead. This is supposed to do a better job of imaging the liver. Apparently the dye is taken up in the arterial system and portal veins at different times,...
by boxhill
Thu Jun 06, 2019 10:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 31771

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Pyro, thinking about you. Hoping for that magic bullet.
by boxhill
Thu Jun 06, 2019 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: positive FIT test and rectal bleeding
Replies: 5
Views: 317

Re: positive FIT test and rectal bleeding

Good that you are having it checked out, but here is my advice, which I adopted as I woke up from surgery knowing that I had colon cancer but not what stage: Don't freak out about anything until you KNOW you have reason to freak out. And then only allow yourself to freak out for as little time as yo...

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