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by boxhill
Sat Aug 18, 2018 8:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T2 diabetes and chemo: any advice?
Replies: 4
Views: 446

Re: T2 diabetes and chemo: any advice?

I briefly discussed the idea of doing without the dexamethasone pre-med with my oncologist earlier, since I have not had any nausea worth mentioning, but he said that the main reason for me to take it is to ward off any allergic reaction to Oxy. I agreed at the time that that was important enough to...
by boxhill
Fri Aug 17, 2018 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 24 concerning symptoms scared
Replies: 5
Views: 500

Re: 24 concerning symptoms scared

I'm sure we all totally understand your anxiety. The waiting is the worst. On the other hand, it is probably unlikely that these few weeks would make a difference in your condition. I don't know how it would work out with the prep, but could you get on the cancellation list? If it is possible, perha...
by boxhill
Fri Aug 17, 2018 9:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news!
Replies: 9
Views: 653

Re: Good news!

Great news! I can't recall: did your H have his primary tumor removed, so that it was just the liver mets that were considered inoperable?
by boxhill
Wed Aug 15, 2018 4:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T2 diabetes and chemo: any advice?
Replies: 4
Views: 446

T2 diabetes and chemo: any advice?

I have T2 diabetes (diagnosed 2010) which has been well controlled with a low carb diet and metformin. I'm finding that the steroid premed is sending my BG levels through the roof. On infusion day, at 7pm after eating a tuna sandwich at 2pm, and walking around most of the intervening time, my blood ...
by boxhill
Wed Aug 15, 2018 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low WBC after 2 treatments of FOLFIRINOX
Replies: 5
Views: 515

Re: Low WBC after 2 treatments of FOLFIRINOX

Like you, after my first two cycles of FOLFOX I had to take two weeks off waiting for first my platelets then my WBC/neutrophils to rebound to treatable levels. Since then I've been getting a shot of Neulasta when my pump is disconnected, and expect to do so from now on. It has worked beautifully in...
by boxhill
Mon Aug 13, 2018 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: L-Glutamine
Replies: 9
Views: 556

Re: L-Glutamine

On the advice of my Dr's NP I started taking L-glutamine pretty early on in FOLFOX to ward off neuropathy. Maybe after Cycle #1? She said to take 10 grams of powder per day in water. She also suggest a B-complex 100 cap per day. I admit that occasionally I forget to take the glutamine. :) I also upp...
by boxhill
Sat Aug 11, 2018 9:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Stage IV Diagnosis
Replies: 9
Views: 833

Re: New Stage IV Diagnosis

"I also asked about checking for certain genetic markers (KRAS) to ensure that the Chemo will work but was told they don't check that until after the chemo proves not to work."

Well,this is definitely BS.
by boxhill
Sat Aug 11, 2018 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help understanding CEA
Replies: 10
Views: 902

Re: I need help understanding CEA

I was told after surgery that my tumor didn't produce CEA or that CEA was for some reason not a useful marker for me. My CEA at that time was 3. Recently, I found out it was 6. No one seems concerned about it. Frankly, I don't know what to think.
by boxhill
Sat Aug 11, 2018 8:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 19 mm sessile polyp found in 88 year old
Replies: 7
Views: 470

Re: 19 mm sessile polyp found in 88 year old

My mother is 95 years old and in excellent health, mentally and physically. She lives by herself in her house, takes care of herself, drives (safely), takes no meds, reads the WSJ and The Economist, as well as novels. Even in her case I would really hesitate to consider surgery for something that wo...
by boxhill
Thu Aug 09, 2018 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Colon Cancer
Replies: 31
Views: 2081

Re: Stage 4 Colon Cancer

Jimt,

Where are you located? Can you get to MSK in NYC? Many people swear by Dr. Nancy Kemeny for treatment of liver mets, including situations where other doctors have given up.
by boxhill
Tue Aug 07, 2018 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Colon Cancer
Replies: 31
Views: 2081

Re: Stage 4 Colon Cancer

Stu, I was 64 when diagnosed, and all the doctors said my prospects for doing well with chemo, etc, were good because I was "young and healthy"! What a different from being considered barely treatable a mere 5 years later. Things are indeed changing fast. JimT, I think one thing you are go...
by boxhill
Mon Aug 06, 2018 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Colon Cancer
Replies: 31
Views: 2081

Re: Stage 4 Colon Cancer

Hi, JimT. I am sort of like you in that I was diagnosed as Stage 4 because I had one tiny liver met--not even visible on scan--that was removed during surgery. Unlike you, I had a number of cancerous lymph nodes. But apparently all of them were removed also. My most current scan shows no masses or s...
by boxhill
Mon Aug 06, 2018 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port removed
Replies: 7
Views: 232

Re: Port removed

Hi, Snoop. I am comparatively early in the process, but I find that people *seem* to think that it will be "over" when I finish chemo. I just reached the halfway point in my 12 cycles of FOLFOX, so I am a neophyte. :) Or maybe they just recognize that finishing chemo is a milestone, and th...
by boxhill
Mon Aug 06, 2018 10:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for a Folfox newbie – starting Tuesday
Replies: 31
Views: 1160

Re: Tips for a Folfox newbie – starting Tuesday

Jannine, are you sure you aren't getting a steroid as a pre-med before the infusion? That's when I get it (dexe-something). It is given for two reasons, mostly: to stave off any allergic reaction to oxaliplatin, and as an anti-nausea aid. I talked with my onc about possibly not taking it, since it w...
by boxhill
Mon Aug 06, 2018 10:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 8
Views: 507

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Cynthia, this is great.

Is this something your health insurance will agree to pay for?

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