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by boxhill
Mon Jul 15, 2019 4:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Has anyone had a Paraneoplastic response post colon cancer?
Replies: 1
Views: 155

Re: Has anyone had a Paraneoplastic response post colon cancer?

I never even heard of this before, but it sounds dreadful. I'm so sorry you've been going through this. I hope they can help you.
by boxhill
Sun Jul 14, 2019 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo has caught up to me yall
Replies: 15
Views: 568

Re: Chemo has caught up to me yall

Yeah, I remember sometime around round 8 when people would ask how I was feeling, I'd say "You know, I have to admit that this is starting to wear on me." it's cumulative. At a certain point, you start to bounce back less--and less rapidly--than in earlier rounds, even if you have been luc...
by boxhill
Fri Jul 12, 2019 10:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please allow me to introduce myself
Replies: 8
Views: 563

Re: Please allow me to introduce myself

ME, nice to meet you. And thanks for the ear worm, albeit a good one. :twisted:

Sorry you've been through all this. If only the damned beast would give up and go away!
by boxhill
Fri Jul 12, 2019 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling nervous, that time again
Replies: 7
Views: 341

Re: Feeling nervous, that time again

Best of luck!

I hope that you can get your results today, rather than sweating it out over the weekend, and that the scan continues to be clear. :)
by boxhill
Thu Jul 11, 2019 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?
Replies: 7
Views: 611

Re: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?

Regional pathology labs ought to be able to do the basics: dMMR/MSS/MSI, BRAF, KRAS and I think it is standard for it to be done for everyone these days. I got the results of mine with the original pathology report when I was still in the hospital. Sending the tumor out for full genomic testing is i...
by boxhill
Mon Jul 08, 2019 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A thought on chemo side effects
Replies: 10
Views: 794

Re: A thought on chemo side effects

I had neutropenia requiring postponement of FOLFOX starting after cycle 3 or so, and FOLFOX didn't do a damned thing for me. Both my platelets and my ANC were a problem, the latter being treatable with neulasta. More relevant was that I am MSI-H with KRAS which makes me unlikely to respond to FOLFOX...
by boxhill
Mon Jul 08, 2019 7:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?
Replies: 7
Views: 611

Re: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?

I had a right-sided tumor at the hepatic flexure, resulting, like your dad, in a right hemicolectomy, in which they removed the appendix, cecum, and everything else up to some point in the transverse colon: about 30% of the colon overall. (This is standard, and has to do with the configuration of th...
by boxhill
Mon Jul 08, 2019 1:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 12
Views: 584

Re: Worried... no poop

The OP hasn't been diagnosed with anything, much less has surgery, so obviously she isn't using intermittent fasting to help with LARS. Moreover, her problem is apparently not diarrhea, but constipation.

So what is supposed to be the point of intermittent fasting in this case?
by boxhill
Mon Jul 08, 2019 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?
Replies: 7
Views: 611

Re: Scared Son, dad maybe has IIIC? Can anyone help me understand this pathology?

Since your dad's tumor was causing an obstruction and was resectable, the hemicolectomy was a good thing to do. It is good that he only had one positive node, and no apparent metastases. I am not a doctor, obviously, and I can't tell you what to think about the abdominal wall connection stuff. If yo...
by boxhill
Mon Jul 08, 2019 8:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried... no poop
Replies: 12
Views: 584

Re: Worried... no poop

It sounds to me like you have thrown your system into a tizzy. Why not return to eating small, balanced meals with protein and fiber on a regular basis, drink fluids, get exercise, and perhaps try taking a gentle stool softener/laxative overnight, such as Ducosate and Geri-kot. What are you hoping t...
by boxhill
Mon Jul 08, 2019 8:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 7
Views: 575

Re: Keytruda Side Effects: bad joint pain

So I had the 6-day prednisone pack starting 6/28, and it gave me a few days of glorious low pain and high energy...but the pain came roaring back as soon as I was done. It is probably at a level about 10% less than pre-prednisone, though. Ibuprofen helps a bit, but I'm still semi-crippled. I think I...
by boxhill
Fri Jul 05, 2019 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I think I broke my gallbladder...
Replies: 19
Views: 658

Re: I think I broke my gallbladder...

Well, I obviously stink at diagnosing gall bladder problems, because that's what I thought I might have when I went to the ER and turned out to have colon cancer! On the other hand, the doctors were betting on appendicitis, until they saw the CT results. Or maybe they were just being nice and were o...
by boxhill
Fri Jul 05, 2019 1:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver met near artery and bile duct
Replies: 5
Views: 482

Re: Liver met near artery and bile duct

Y90, possibly?

Definitely immunotherapy, if you aren't lumping that in with chemo.
by boxhill
Sun Jun 30, 2019 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal post-op nightmare :(
Replies: 14
Views: 855

Re: Reversal post-op nightmare :(

I have no useful information, but I'm sorry your mother and you are going through this.
by boxhill
Sat Jun 29, 2019 1:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sluggish bowel
Replies: 3
Views: 429

Re: Sluggish bowel

If by "very formed," you mean large, hard, and difficult to pass, I'd personally choose to take a stool softener.

Otherwise, if you are having what sounds like a normal bowel movement every day, what's the problem? :D

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