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by boxhill
Mon Oct 15, 2018 1:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about necessity of CEA labwork
Replies: 31
Views: 1269

Re: Question about necessity of CEA labwork

I think everyone should have genetic testing. It determines the best course of treatment, it gives potentially gives information to descendants. Why not have it? I gather that my CEA is tested along with everything else before I have my infusions, but they don't bother to tell me what it is because ...
by boxhill
Mon Sep 24, 2018 10:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pregnancy after colon cancer
Replies: 9
Views: 1239

Re: Pregnancy after colon cancer

Congratulations to both of you!
by boxhill
Thu Sep 20, 2018 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 27
Views: 7918

Re: what happens after chemo?

Last week I asked my oncologist what we'll do when I finish the 12 cycles of FOLFOX. Right now he's trying to get me through the last few cycles without any more delays. Neulasta has fixed my WBC /neutrophil problem nicely, but platelets continue to be a problem. They were 58 on the scheduled day fo...
by boxhill
Mon Sep 17, 2018 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Abscess
Replies: 9
Views: 720

Re: Abscess

I'm afraid I don't have any useful advice, but I'm sorry you are afflicted with this debilitating condition. I hope that they can take some more aggressive steps to heal it more quickly.
by boxhill
Fri Sep 07, 2018 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 45
Views: 8999

Re: Colon cancer: my treatment and side effects

My understanding has been that the constipation is from the anti-nausea meds given as pre-meds. It happened to me the first cycle, but not since then. I have virtually constant diarrhea/loose stools instead. :) That may be partially because of Metformin. Having had a right hemicolectomy does mean th...
by boxhill
Wed Sep 05, 2018 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 6913

Re: The things people say to cancer patients

I have to confess that I like it when people tell me I look great. It makes me feel good about myself. Which is something I need more of.
by boxhill
Wed Sep 05, 2018 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE 3 rectal cancer treatment without surgery
Replies: 25
Views: 4384

Re: STAGE 3 rectal cancer treatment without surgery

I wonder how much of the problem is caused by radiation, rather than the surgery? I know my husband has had ongoing urinary tract problems clearly caused by the radiation to the prostate bed a couple of years after surgery, rather than the surgery itself. (Not that I would advocate his forgoing it.)...
by boxhill
Wed Sep 05, 2018 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scared of Symptoms
Replies: 3
Views: 445

Re: Scared of Symptoms

Could the groin pain be a lymph node? I don't have any insight into the French medical system, but if you are having trouble communicating, can you either take a friend who is fluent and can translate for you, or write down a detailed description of your symptoms and get someone to translate it into...
by boxhill
Fri Aug 31, 2018 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fecal blood test Positive
Replies: 5
Views: 568

Re: Fecal blood test Positive

All I can tell you is that I got the 10-yr all clear in 2010 and 8 years later was diagnosed with Stage IV. I asked my oncologist if it would have been caught if I had moved to a 5-yr schedule when my sister had CRC in 2013. He said maybe, maybe not. He doesn't think that my tumor sprang from the ki...
by boxhill
Thu Aug 30, 2018 9:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 6913

Re: The things people say to cancer patients

Part of my experience so far is probably due to the fact that, other than the initial diagnosis, I've had only comparatively good news to report when asked.

I can see that it would be a different kettle of fish if/when that is not the case.
by boxhill
Wed Aug 29, 2018 9:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.
Replies: 18
Views: 5571

Re: MRI shows 6 new liver Mets 2 weeks after clean CT scan? CEA normal.

A liver MRI shows a lot more than a CAT scan. It's kind of the gold standard of liver scanning. I had a very small sub-capsular liver met that my surgeon found and removed that did not shoe up on my initial CAT scan. I've seen the scan, and my liver looks completely clear. My new scan, 3 months into...
by boxhill
Wed Aug 29, 2018 9:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 6913

Re: The things people say to cancer patients

I must say that I have been very lucky with the response of my family and friends. NONE of them have made that kind of remark to me. The only "my X had cancer" stories I was offered were right after surgery when the news broke, and they were few but very positive, have hope kinds of things...
by boxhill
Sun Aug 26, 2018 10:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 4605

Re: Genetic Testing?

MMR proficient means that staining found all of the proteins normally produced by the 4 genes that are involved with mis-match repair. If one or more of them was not present, your tumor would have been dMMR, ie deficient. dMMR is associated with micro-satellite instabililty (MSI). This is because th...
by boxhill
Sun Aug 26, 2018 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Diet, Exercie, and Recurrence/Prevention
Replies: 7
Views: 702

Re: Diet, Exercie, and Recurrence/Prevention

As a person with T2 diabetes who normally follows a low carb diet--which BTW has to contain a low consumption of fruit limited largely to specific low-glycemic options, few grains of any type, and almost no root vegetables--I would love to know whether they have determined that the real issue is blo...

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