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by boxhill
Thu Jan 14, 2021 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How easy is it to differentiate between benign liver spots and small mets on a CT scan?
Replies: 4
Views: 513

Re: How easy is it to differentiate between benign liver spots and small mets on a CT scan?

In my experience, a regular CT can't even pick up a 5 mm or so liver thing. It's too small. A multiphase CT may be able to. An MRI definitely can. But none of them, not even the MRI, can definitively say what they are and whether they are malignant. Only a biopsy can do that. And for a spot that sma...
by boxhill
Mon Dec 28, 2020 9:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family history of colon cancer and a polyp in mid 20s...follow up?
Replies: 3
Views: 591

Re: Family history of colon cancer and a polyp in mid 20s...follow up?

There are several screening alternatives to colonoscopy. One type tests for blood in a fecal sample, the other tests for circulating cancer cells in the blood. In both cases colonoscopy is required as a followup **if** abnormalities are detected. You could discuss these with your doctor as a means o...
by boxhill
Mon Dec 21, 2020 8:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's come back - :(
Replies: 21
Views: 2675

Re: It's come back - :(

Well, that stinks. Of course, there have been a lot of advances since your first bout. Genetics, for one. Has your tumor been biopsied yet?

It sounds like you may be in for chemo this time, but can you have TEMS again?
by boxhill
Mon Dec 21, 2020 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thyroid troubles
Replies: 7
Views: 850

Re: Thyroid troubles

In addition to having thyroid-specific tests, has anyone suggested consulting an endocrinologist or other thyroid specialist? My sister had thyroid cancer about 40 years ago. In her case, a grapefruit-sized tumor that barely showed on the surface, and had pushed her esophagus to one side. When it wa...
by boxhill
Fri Dec 18, 2020 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the Stage IV club
Replies: 9
Views: 1184

Re: New to the Stage IV club

I just looked at my last post, and I realized I made an error. I meant to say just MSI, not MSI-I. Just to be confusing, there are in fact several gradations of MSI, including MSI-I[ntermediate] and MSI-H[igh]. Both are degrees of M[icro] S[atellite] I[nstability]. As far as responding to immunother...
by boxhill
Thu Dec 17, 2020 8:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the Stage IV club
Replies: 9
Views: 1184

Re: New to the Stage IV club

I assume that you are not MSI, despite having a right-sided tumor, or you would be on immunotherapy. If my some chance you haven't been tested, you should be, ASAP. Also try to find out if you have a high tumor mutation burden anyway. Pople are trying to extend the therapy to people who are not MSI-...
by boxhill
Wed Dec 16, 2020 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 going to yearly surveillance!
Replies: 17
Views: 1558

Re: Stage 4 going to yearly surveillance!

Great news! Doing the happy dance. :)
by boxhill
Sat Dec 12, 2020 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 year clear from stage IV
Replies: 22
Views: 3652

Re: 1 year clear from stage IV

Hurray for Nedville!

Glad to hear your news too, Amy.
by boxhill
Mon Dec 07, 2020 7:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 9 year stage IV cancerversary
Replies: 10
Views: 2387

Re: 9 year stage IV cancerversary

As a fellow Stage IV diagnosee, I'm so happy to see you post here!

I'm currently NED due to Keytruda, but I assume that your survival is not due to immunotherapy? I know I'm among a lucky minority these days, and hope to see it extended to those who are not MSI-H.
by boxhill
Mon Dec 07, 2020 7:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colostomy and Gas Pains
Replies: 22
Views: 2854

Re: Colostomy and Gas Pains

Lee, you have definitely been a pioneer when it comes to treatment, including ports, FOLFOX, and who knows what else!

I am grateful that not only have you survived so long in such excellent health, but that you continue to share your experience here.
by boxhill
Fri Dec 04, 2020 9:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colostomy and Gas Pains
Replies: 22
Views: 2854

Re: Colostomy and Gas Pains

prayingforccr, at this point I think that everyone knows how you feel, and it is less than helpful to tell someone bravely soldiering on that you would RATHER BE DEAD than be them! Could I kindly request that you put a sock in it? Rickimaroo, I'm sorry that I have no experience to share with you. Wo...
by boxhill
Fri Dec 04, 2020 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 in Australia.
Replies: 23
Views: 3603

Re: Stage 4 in Australia.

Plenty of people here in the US have to be personally aggressive in order to find a doctor who will support treatment aimed at getting the patient to NED. And everywhere there are doctors who appreciate a well-informed, participatory patient and those who don't. In addition, many of us face the poss...
by boxhill
Fri Dec 04, 2020 8:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 vaccine thoughts/concerns
Replies: 24
Views: 4080

Re: COVID-19 vaccine thoughts/concerns

My oncologist told me that people in care facilities are in the same tier as medical staff, although immediately below/after them. I don't know exactly where us patients fall, or what the criteria are. I am now 67, so maybe that's a factor. For those who want the vaccine, note that he said that I wo...
by boxhill
Thu Dec 03, 2020 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID-19 vaccine thoughts/concerns
Replies: 24
Views: 4080

Re: COVID-19 vaccine thoughts/concerns

I started the other thread on the subject without having seen this one. =>>>>> [[ your original post has been merged into this topic - ccmc ]] As I said there, my onc told me today that I should probably get it through them within the next 6 weeks or so. Apparently he thinks it will be safe for me, ...

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