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by boxhill
Sun Sep 22, 2019 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 15
Views: 486

Re: Surgery Pathology Report

Wow, I didn't realize that hand/foot could be permanent.

Sounds like its a really good thing that you have the MSK consult scheduled. More clarity would help.
by boxhill
Tue Sep 17, 2019 2:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Pathology Report
Replies: 15
Views: 486

Re: Surgery Pathology Report

MLH1, MSH2, MSH6, PMS2 – Intact nuclear expression That these 4 genes have "intact expression" means that you are what is known as p[roficient]MMR, as the DNA repair function is working properly. You don't have to worry about possible Lynch Syndrome, and are probably MSS, which means &quo...
by boxhill
Mon Sep 16, 2019 11:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Spread into Peritoneal
Replies: 15
Views: 1068

Re: Spread into Peritoneal

nzjez, what is your MSS/MSI, KRAS, BRAF, etc status?
by boxhill
Mon Sep 16, 2019 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What Helped You Make It Through Folfox Cycles 6-8
Replies: 11
Views: 415

Re: What Helped You Make It Through Folfox Cycles 6-8

I had a pretty easy time with FOLFOX, compared to some. Days of crushing fatigue, but no outright nausea. I do remember telling people when I reached cycle 8 that it was wearing on me at that point. As soon as you start feeling residual tingling in your fingers that lasts beyond the initial cold-sen...
by boxhill
Mon Sep 16, 2019 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 19
Views: 1027

Re: Screw Cancer, Hospice is Here

Peace and love and all the best to you, Pyro.
by boxhill
Sat Sep 14, 2019 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 11
Views: 1363

Re: Keytruda Side Effects: bad joint pain

My doctor described the CT report to me as "basically stable," but Neither of us had actually seen it before my appointment. I read it online yesterday and noted that the radiologist actually said that the tiny liver thing appears reduced in size. Hmmm. Maybe evidence that it is/was a met ...
by boxhill
Sat Sep 14, 2019 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4, over 4 years since diagnosis, still NED
Replies: 24
Views: 1991

Re: Stage 4, over 4 years since diagnosis, still NED

Congratultions, Mariane, and thanks for posting. It is so encouraging to the rest of us.
by boxhill
Sat Sep 14, 2019 11:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It was 15 years ago today
Replies: 13
Views: 1403

Re: It was 15 years ago today

cptmac, thank you so much for posting your amazing story! This is the first time I've seen it. I must have missed it last year, which was my first year here as a Stage IV person. I remember vividly the doctor in the hospital who had to answer my questions when I found out that the pathology report w...
by boxhill
Wed Sep 11, 2019 6:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda Side Effects: bad joint pain
Replies: 11
Views: 1363

Re: Keytruda Side Effects: bad joint pain

CT scan yesterday: stable. Lymph nodes still normal, no signs of any new cancer anywhere, tiny little liver thing still there and unchanged. At this point the chances are that either it is dead or it wasn't a met in the first place. All, including my original surgeon, agree that it doesn't warrant s...
by boxhill
Wed Sep 11, 2019 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Multiple tiny mets on lungs—-need knowledge.
Replies: 19
Views: 1718

Re: Multiple tiny mets on lungs—-need knowledge.

This is pretty much my only option as I have a KRAS mutation and therefore won’t be on immunotherapy. A KRAS mutation does not have anything to do with suitability for immunotherapy. I have a KRAS mutation and I am on immunotherapy. A KRAS mutation precludes EGFR pathway drugs like Erbitux and Vect...
by boxhill
Tue Sep 10, 2019 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 14
Views: 817

Re: Rogaine! seems to be working for me

My hair thinned a lot on FOLFOX. I think I probably lost about half of it. Luckily for me, it was evenly all over, so I didn't have to contend with bald spots. I just kept brushing it back. (My normal hair was a bob an inch or so below shoulder length.) What has happened since is that it has grown b...
by boxhill
Fri Sep 06, 2019 10:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Side effect question.
Replies: 7
Views: 564

Re: Side effect question.

When I was on oxi I felt the cold in my feet and hands, but I didn't feel cold in general. I'm one of those people who is always hot. I find most spaces grossly overheated. There hasn't been any change in that. :)

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