Search found 522 matches

Go to advanced search

by boxhill
Mon Jun 01, 2020 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colorectal cancer metastasis to liver and lung
Replies: 7
Views: 305

Re: Colorectal cancer metastasis to liver and lung

Alex, why didn't your mom have chemo after surgery with lymph node involvement? How often was she scanned? It sounds like things are back on track now, but I'm wondering if anyone has discussed maintenance chemo, assuming she responds to this? Has there been any discussion of any of the possible non...
by boxhill
Mon Jun 01, 2020 11:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got diagnosed - advice appreciated
Replies: 14
Views: 389

Re: Just got diagnosed - advice appreciated

When do you have an appointment with your surgeon or whomever is going to go over your pathology report with you? If you don't have an appointment booked already, CALL THEM and ask about your pathology results! And BTW, make sure you get a COPY of the pathology report. You will probably want to refe...
by boxhill
Sat May 30, 2020 4:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just got diagnosed - advice appreciated
Replies: 14
Views: 389

Re: Just got diagnosed - advice appreciated

It usually doesn't take more than about 3-5 days for pathology results. I don't think they should make you wait so long. How long were you in the hospital? " I know I have to give up or severely limit most things with processed sugars and processed meats, refined flours, lower red meats, "...
by boxhill
Fri May 29, 2020 2:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi again , hoping for opinions
Replies: 8
Views: 558

Re: Hi again , hoping for opinions

I really think you need to read up on the HAI pump and Dr. Kemeny at MSK. There are plenty of posts about it here. I am not particularly well informed about what constitutes eligibility, but I do recall that having a met outside of the liver is a problem, but I seem to recall that they sometimes do ...
by boxhill
Wed May 27, 2020 6:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hi again , hoping for opinions
Replies: 8
Views: 558

Re: Hi again , hoping for opinions

Here are my answers to your questions. Like Zephyr, I'm not a doctor. :) Q1: Yes. Although plenty of people, including me, coincidentally have had reduced dosage before quitting it completely, it is usually because of something like trying to bring up the platelets. When people quit because of neuro...
by boxhill
Tue May 26, 2020 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 341
Views: 67731

Re: My CRC with liver mets journey

Hey, Gina, I've been thinking about you and hope that all is well.

And that your family was able to have some semblance of a nice Memorial Day weekend in these weird times! :D
by boxhill
Fri May 22, 2020 10:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Chemo's have stopped working
Replies: 9
Views: 859

Re: All Chemo's have stopped working

I totally agree with Claudine! When I was diagnosed a couple weeks before my 65th birthday, my surgeon referred to me as "young and healthy." :D There is no way she is too old for surgery or targeted radiation, and I am also surprised that it has not been discussed, at least. Time for some...
by boxhill
Fri May 22, 2020 10:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: when CEA is not a good indicator.
Replies: 4
Views: 405

Re: when CEA is not a good indicator.

My CEA was almost 4 at diagnosis/surgery, and was declared to be not a marker for me. Since then it has moved up to 6 and 8, and currently is 5.3. No one really pays any attention to it.

It is not a marker for about 30% of us. I regard it as one less thing to obsess about! :D
by boxhill
Fri May 22, 2020 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time
Replies: 8
Views: 698

Re: Time

Wow, what has happened that makes you think that you are "going somewhere to die"? Stage 1 and removed completely sounds like a person who just has a comparatively accelerated colonoscopy surveillance schedule. It doesn't sound as if you need to be tethered to a particular location. Am I m...
by boxhill
Thu May 21, 2020 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Remission!?!
Replies: 5
Views: 492

Remission!?!

I had an MRI on Wednesday, and discussed the results with my oncologist today. The previously enlarged lymph nodes continue to be normal, and the tiny liver thing is exactly the same. At this point, he thinks it might just be some random scar. There has been no change at all since April 2019. My onc...
by boxhill
Wed May 20, 2020 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All Chemo's have stopped working
Replies: 9
Views: 859

Re: All Chemo's have stopped working

People here have had cyber knife (I think that's the term) for brain mets, and wedge resections and other treatments for lung mets.

Was your mother's colon tumor resected?
by boxhill
Wed May 20, 2020 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver lesions
Replies: 13
Views: 2100

Re: Liver lesions

Excellent news that they will treat all of them aggressively! I hope all goes smoothly and your recovery is rapid and uneventful.
by boxhill
Thu May 14, 2020 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, any other options?
Replies: 4
Views: 703

Re: Please help, any other options?

So the general surgeon didn't remove the peritoneal mets either? Presumably s/he wrote a post surgical report. Do you have a copy of it? If not, I suggest you get one. Many people don't have theirs, but in this case there seem to be a lot of big questions. Maybe she does have peri mets, maybe she do...
by boxhill
Wed May 13, 2020 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help, any other options?
Replies: 4
Views: 703

Re: Please help, any other options?

So am I correct in reading that your mom has never had the tumor removed because it wouldn't be "curative" because of the mets? You mention that her liver met is shrinking, but what about the peritoneal mets? Did you actually see the radiologist, and/or did the radiologist review your moth...

Go to advanced search