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by boxhill
Fri Oct 23, 2020 1:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 374
Views: 89313

Re: My CRC with liver mets journey

I agree with Claudine. GREAT NEWS!! :)
by boxhill
Sat Oct 17, 2020 9:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So the news was not good....
Replies: 7
Views: 874

Re: So the news was not good....

I'm sorry to hear about the bad news. I hope things go well with Dr. Kemeny.
by boxhill
Fri Oct 16, 2020 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Help With Weight Loss/Endless Painful Constipation
Replies: 24
Views: 1363

Re: Please Help With Weight Loss/Endless Painful Constipation

I find it frankly unbelievable that no one has addressed this with you if you have described the situation as you have here, especially given your weight loss. Have they by any chance made suggestions that you are unwilling to accept? Have you considered a daily morning enema? Some people have found...
by boxhill
Fri Oct 16, 2020 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 3 months left of life
Replies: 18
Views: 1913

Re: 3 months left of life

Dear Nicole, I'm so very sorry to hear this news. My first thought was the possibility of transplant, since I know it has worked for some, but I gather it is not to be. Is it too late to consider the HAI pump? Trials? I know there is a balance one has to achieve between those kind of measures and qu...
by boxhill
Tue Oct 13, 2020 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eight years and counting ...
Replies: 12
Views: 785

Re: Eight years and counting ...

So happy to hear that, and also so grateful for all of the excellent information you have dispensed over the years. :)
by boxhill
Tue Oct 13, 2020 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Appendicitis or Tumor?
Replies: 3
Views: 2152

Re: Appendicitis or Tumor?

Unlike Lee, I found that I had mysterious pains in several locations after surgery--and still do, actually--although no reason for them ever showed up on a scan. One thing I could be sure was that it wasn't appendicitis, since that was removed as part of the right hemicolectomy. :D Aren't you about ...
by boxhill
Tue Oct 13, 2020 10:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New stage 4 colon cancer diagnosis
Replies: 16
Views: 1269

Re: New stage 4 colon cancer diagnosis

I seem to recall my genetic testing taking at least 3 weeks in 2018, but there was some kind of delay involved that I don't recall. With the pandemic, a lot of lab work is taking longer all over the country. Nevertheless, if you can get your H's medical practice/genetic counselor to light a fire und...
by boxhill
Tue Oct 13, 2020 10:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Total Pelvic Exenteration
Replies: 11
Views: 1157

Re: Total Pelvic Exenteration

Shaina, I'm in awe. And so happy that you have won through to a good life. The same is true for you, Lee and Cynthia. I have had so much easier a time than so many, thanks to many pieces of luck, but foremost that of being MSI and responsive to Keytruda, my miracle drug. I feel guilty at times. Best...
by boxhill
Tue Oct 13, 2020 9:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wheels haven't stopped turning...
Replies: 10
Views: 1453

Re: My wheels haven't stopped turning...

Regarding health insurance, can he get an ACA policy that might be cheaper than COBRA? I know the latter are usually very expensive... I have also heard that those of us who are stage 4 may be eligible for SS disability and Medicare... I know that there is a group with a lot of expertise that addres...
by boxhill
Mon Oct 12, 2020 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wheels haven't stopped turning...
Replies: 10
Views: 1453

Re: My wheels haven't stopped turning...

Where is/was your husband's primary tumor and has it been resected? Does/did he have suspected or confirmed lymph node involvement? Has there been any discussion of a plan to get him to resection and hopefully NED? Have you considered the possibility of the HAI pump? From what you say in this post i...
by boxhill
Sat Oct 10, 2020 12:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good News!
Replies: 9
Views: 1755

Re: Good News!

I wouldn't believe the liver is clear without an MRI, although it's great that your H has responded so well to chemo. I personally had a small liver met that did not show on a CT scan.

Where was your husband's primary tumor? Am I correct in thinking that it was not removed surgically?
by boxhill
Mon Oct 05, 2020 1:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo fail?
Replies: 10
Views: 1638

Re: Chemo fail?

I just want to point out that unless you were actually at the appointments, you can't be sure what he actually said--or what she actually asked. It does sound like she was frustrated by his desire to postpone a scan. In any case, I understand your anxiety and agree that waiting too long for a CT sca...
by boxhill
Sat Oct 03, 2020 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blockage turned out to be Cancer
Replies: 12
Views: 1511

Re: Blockage turned out to be Cancer

I concur heartily with everyone who has suggested a second opinion at a good cancer center. Frankly, I find the language used by the original surgeon bizarre. I've never heard anything like that, and I was Stage IV from the get go!
by boxhill
Sat Oct 03, 2020 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got a call to go right to the ER
Replies: 12
Views: 2363

Re: I got a call to go right to the ER

Trying, big hugs and healing wishes for you. I wish we could all be there to give you in person hugs.
by boxhill
Fri Oct 02, 2020 10:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Am I panicking for no reason? Slight rise in CEA levels
Replies: 13
Views: 2113

Re: Am I panicking for no reason? Slight rise in CEA levels

I agree with Gravelyguy. CEA is a marker for some people and not for others. And for those for whom it is a marker, the degree varies. For about 30% of us--including me, thankfully, because it is one less thing to obsess about! :lol: -- it is not a marker. FWIW, my CEA has NEVER been as low as yours...

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