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by lakeswim
Thu Jun 28, 2018 3:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

Good info. Thanks for explaining!
by lakeswim
Thu Jun 28, 2018 2:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

Hi - and thanks! Why shouldn't it make a difference after only 3? It's not even half of the 8 rounds. Thanks for the info.!
by lakeswim
Thu Jun 28, 2018 2:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

Thanks for your feedback, Mike. The PA thought it was electrolytes - but it's not. They check my blood right before each infusion (that morning) so my electrolytes have been perfect each time. It is clearly a response to the Ox, given it now happens within an hour of starting the infusion. I'm also ...
by lakeswim
Thu Jun 28, 2018 1:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

Hello, all. I need some support. I completed Round 3 (of 8 FOLFOX rounds) last Monday (last week) and am due for #4 next week. I had the toughest time this round and I am not sure I can do 1 more - let alone 5 more. (This is my first step - I'm doing FOLFOX chemo then chemo/radiation then surgery.) ...
by lakeswim
Thu Jun 28, 2018 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent surgery & update on MSK HAI pump (long)
Replies: 11
Views: 374

Re: My recent surgery & update on MSK HAI pump (long)

I haven't been on here in a while but I was happy to see you are doing well.
by lakeswim
Tue Jun 12, 2018 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 2537

Re: Feeling really sad and in need of support

Although anxious about upcoming surgery. I hope you are feeling better now as well and that the claw hands have subsided! VeggieLvr - Did you have 4 rounds total? I can't see having this claw hands/leg cramps/other misery for 6 more total rounds. Last week was just really the worst - but here's whe...
by lakeswim
Sat Jun 09, 2018 1:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 2537

Re: Feeling really sad and in need of support

I also get this weird effect that I call "claw hands" where it's like my fingers are being pulled together and it's like I am fighting against my hands to use them...my thumbs in particular seem to involuntarily pull towards my palms. It comes and goes, it's worse while I'm connected and ...
by lakeswim
Fri Jun 01, 2018 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP!!!!!!!!! PRE SURGERY QUESTIONS
Replies: 38
Views: 2908

Re: HELP!!!!!!!!! PRE SURGERY QUESTIONS

I don't have any advice but hoping you found relief somehow. Sending hugs and encouragement....
by lakeswim
Fri Jun 01, 2018 1:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 2537

Re: Feeling really sad and in need of support

NH Mike - I hear you about anticipating the treatment. I know that's a "thing" (they warned/told me about it). I'm almost more nervous about Round 2 because Round 1 went well and I don't want to assume it will be the same. Like someone here said, take it day by day and just get through it ...
by lakeswim
Fri Jun 01, 2018 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

How are you doing? Just checking in..... :D :D :D :D :D :D :D :D :D :D :D :D :D Hello! And thanks, all, for checking in! I didn't get any notifications at all so I'm sorry I'm replying late. After that bizarre reaction on Friday (which was the worst part of last week) and into Friday night/Sat am, ...
by lakeswim
Fri Jun 01, 2018 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Exercise with a port
Replies: 26
Views: 4629

Re: Exercise with a port

Hi! I just came from yoga with my port (installed mid April - so about 6 weeks out). My port annoys me daily but I've been told I just need to get used to it. I noticed at yoga that it bothered me when I did anything hanging (like rag doll) or arms up. Nobody gave me any restrictions with my port (e...
by lakeswim
Sat May 26, 2018 8:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 2537

Re: Feeling really sad and in need of support

the whole self identity is diminished into a statistics I don't want to hijack VeggieLvr's stream but I wanted to tell you that the sentence above really resonates with me. It's all about the damn statistics. But I guess those stats have gotten us some of the treatment we have. I try to remember th...
by lakeswim
Sat May 26, 2018 7:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 2537

Re: Feeling really sad and in need of support

I also get this weird effect that I call "claw hands" where it's like my fingers are being pulled together and it's like I am fighting against my hands to use them...my thumbs in particular seem to involuntarily pull towards my palms. It comes and goes, it's worse while I'm connected and ...
by lakeswim
Sat May 26, 2018 7:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

SteveNZ wrote:
lakeswim wrote:Today is Day 5............... It’s just a little scary because I don’t know what caused it - pollen or food - so I don’t know how
You are in my prayers.


Thanks, SteveNZ, for your support.
by lakeswim
Sat May 26, 2018 7:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 43
Views: 2054

Re: Start tomorrow. So scared.

Given the timing and nature of your reaction, it sounds like pineapple is the most likely culprit. https://www.healthline.com/health/pineapple-allergy Regarding the ativan, sleep is important. Very important. I don't think taking one before bed a couple nights a month is going to harm you. But of c...

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