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by lakeswim
Fri Sep 07, 2018 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 53
Views: 11698

Re: Colon cancer: my treatment and side effects

I suffer with the constipation too (reminder - chemo is first for me) from the 5FU. This last round, they dropped the 65% Oxaly (due to my neuropathy) so I felt ok day 1 and early day 2 (until the pump 5FU kicked in) and I actually had an appetite and ate well. I learned a lesson - the more you eat,...
by lakeswim
Fri Sep 07, 2018 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 5103

Re: Genetic Testing?

I am so on the fence. If I went with a private company (which I'd have to find), I guess you wouldn't want insurance to know - and therefore they wouldn't pay for it. I also feel like the counselor told me that private companies don't offer as thorough testing. Another big thing to ponder/research.
by lakeswim
Mon Sep 03, 2018 6:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 53
Views: 11698

Re: Colon cancer: my treatment and side effects

Please explain the folic acid thing? This is new to me and I am on Round 8 (final round) next Monday.
by lakeswim
Mon Sep 03, 2018 6:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 5103

Re: Genetic Testing?

Thanks, Ryan. I directly asked my oncologist (because he had never discussed it with me) via email and he (actually) responded (instead of his PA) that he highly recommends it. The striking thing was that he said the "results could affect my treatment - particularly the type of surgery I have.&...
by lakeswim
Thu Aug 30, 2018 1:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 5103

Re: Genetic Testing?

The genetic counselor I spoke to is through my hospital/cancer center. And apparently my insurance will pay for it (very pricey, she said) as I'm considered young - so it would be through insurance. Lastly, she told me that going through private companies (though she didn't tell me which companies -...
by lakeswim
Thu Aug 30, 2018 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 37
Views: 11518

Re: Newly diagnosed rectum cancer

Thank you, O Stoma Mia, for that information.
by lakeswim
Tue Aug 28, 2018 1:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 5103

Re: Genetic Testing?

Tdubz. I assume, at this point, with a cancer diagnosis, I can't afford any life insurance for myself - if anyone will sell it to me. I am most worried about my kids and starting their lives and how what I do and what will limit their options.
by lakeswim
Tue Aug 28, 2018 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 10
Views: 1302

Re: Surgery Considerations

This is great information, O. Thank you, as always, for gathering it for me. I will read and digest and then figure out how I get my answers - esp with the surgeon 4 hours away. Thank you. I hope you don't mind if I return in the future to follow up on this..... Thanks again.
by lakeswim
Tue Aug 28, 2018 1:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 53
Views: 11698

Re: Colon cancer: my treatment and side effects

HI Janine. I had a mouth sore at one point and applied Manuka honey and it really helped it feel better and heal quickly. And I got the bleeding/sensitive gums thing last round (6) but it cleared after a few days. I did brush and rinse often but my Onc says it's the low WBC that causes that and when...
by lakeswim
Fri Aug 24, 2018 8:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 10
Views: 1302

Re: Surgery Considerations

NHMike. I am still a while away from surgery (have radiation and then surgery) but I'm just thinking about this in terms of questions for surgeons as I make the choice between two surgeons, which I will need to do (and may need to schedule appts between end of chemo and start of radiation to ask any...
by lakeswim
Fri Aug 24, 2018 8:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 10
Views: 1302

Re: Surgery Considerations

O Stoma Mia. Thank you very much for the links! I took a quick look at the links (have to get the kids places soon) and it seems, on first glance, like these are mostly questions for the first appointments. I am thinking of the more detailed/specific types of questions that folks in the LAR Syndrome...
by lakeswim
Fri Aug 24, 2018 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 53
Views: 11698

Re: Colon cancer: my treatment and side effects

Boxhill - I'm with you. I hesitate to even comb/brush my hair that much these days because it's so alarming to see all that hair. And, yes, in/after the shower is the worst. It just keeps coming - so many long strands. I wonder why this one side effect is so upsetting to me when I can choose so many...
by lakeswim
Fri Aug 24, 2018 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 5103

Re: Genetic Testing?

Pathology report was brief: Tumour was MMR proficient (pMMR) and "likely" microsatellite stable. What does this mean?
by lakeswim
Thu Aug 23, 2018 11:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Genetic Testing?
Replies: 20
Views: 5103

Genetic Testing?

During one of my early infusions (in June), a genetics counselor came and took me to a room and discussed genetic testing with me. I wasn't feeling great, so not a great time to take in information, but I do believe she told me to carefully consider getting genetic testing given I have minor childre...
by lakeswim
Thu Aug 23, 2018 10:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goodbye
Replies: 25
Views: 7020

Re: Goodbye

Risto and Grouseman - My condolences to both of you on losing your wives. They were lucky to have your love - to the end and beyond.

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