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by lakeswim
Fri Jan 18, 2019 9:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 28
Views: 3434

Re: Is LARS a foregone conclusion? Anyone doing W&W?

I read far too many LARS horror stories and that lead me to go with W&W when I had a CCR. This was against Johns Hopkins' advice... but they don't really do W&W since it hasn't been clinically proven... JHH plays it safe. I did visit MSK and talked to Dr. Garcia-Aguilar (he's heading a nati...
by lakeswim
Thu Jan 17, 2019 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is LARS a foregone conclusion? Anyone doing W&W?
Replies: 28
Views: 3434

Re: Is LARS a foregone conclusion? Anyone doing W&W?

I am Claudia, mentionwd by NHMike, I am Italian and live in Norway. I had reversal in June 2018 and don’t have problems except perhaps more frequency, but very manageable. My tumor was quite low (5 cm from anal verge) and it looked like it went through the colon, so surgery was necessary. I did not...
by lakeswim
Tue Jan 15, 2019 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 27
Views: 4627

Re: Surgery Considerations

... I meet my surgeon again next Tuesday to discuss board's recommendations... So, it looks to me like the tumor board has already met, and now it is almost Tuesday and time to meet with the surgeon. I'm sorry you are having to go through all of this, and I wish you the best of luck in your session...
by lakeswim
Mon Jan 14, 2019 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 27
Views: 4627

Re: Surgery Considerations

... I meet my surgeon again next Tuesday to discuss board's recommendations... So, it looks to me like the tumor board has already met, and now it is almost Tuesday and time to meet with the surgeon. I'm sorry you are having to go through all of this, and I wish you the best of luck in your session...
by lakeswim
Mon Jan 14, 2019 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sadness (sorry for the blues)
Replies: 8
Views: 941

Re: Sadness (sorry for the blues)

I am sad today too. Seriously sad. It happens. I don't have any advice except to take things one day at a time. I love this forum but can only be on here in small doses because it's overwhelming - the complicated medical info as well as the suffering we all endure. But the love and support here is a...
by lakeswim
Mon Jan 14, 2019 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checking in to say Hello. Stage IV still NED
Replies: 8
Views: 1690

Re: Checking in to say Hello. Stage IV still NED

Thank you for posting. Such good news. Much love and hope to you for many more.
by lakeswim
Mon Jan 14, 2019 11:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 27
Views: 4627

Re: Surgery Considerations

.....my husband is wondering whether a different scan (PET scan?) might show more?
by lakeswim
Mon Jan 14, 2019 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 27
Views: 4627

Indistinct fat plane

So, I was on a rollercoaster last week. Up and now down. (Note: I realize there's plenty of good news in here and I hate to sound greedy. I just made the mistake of picturing myself this next year doing Watch & Wait. And I feel so good right now! Having surgery and anticipating LARS for the rest...
by lakeswim
Mon Jan 14, 2019 11:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 412
Views: 66717

Re: Reversal Log: Experience,Problems, Q & A's

Commenting here to save this thread as, apparently, it's my future.
by lakeswim
Wed Jan 09, 2019 8:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Delaying treatment?
Replies: 21
Views: 3032

Re: Delaying treatment?

And, MARATHON, may I ask what that is about? (I've run one, so very curious! Good luck with that too.) You are one formidable woman, Amy. Hang in there.... Best, Lakeswim Oh, it's just a half!! 13.1 isn't that big of a deal. It's just one foot in front of the other until you're finished! I might ha...
by lakeswim
Wed Jan 09, 2019 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Percentage That Have A Complete Clinical Response To Chemo/Radiation
Replies: 12
Views: 2576

Re: Percentage That Have A Complete Clinical Response To Chemo/Radiation

The first surgeon measured my tumor at 3 cm in however, he was way off. My tumor was actually located between 7 - 8 cm up and initially it had grown downwards which is why the first surgeon thought it was at 3 cm. Transanal is possible with tumors higher up (but there is a limit) particularly when ...
by lakeswim
Wed Jan 09, 2019 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR Syndrome and laparoscopic surgery, new paper on origins
Replies: 16
Views: 2958

Re: LAR Syndrome and laparoscopic surgery, new paper on origins

I just had a visit with my GI doc. A new paper is out on LAR syndrome. While it doesn't provide any treatment breakthroughs, it gives encouraging news that researchers are homing in on the cause. It's at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4991969/. A major cause appears to be loss of ner...
by lakeswim
Wed Jan 09, 2019 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Considerations
Replies: 27
Views: 4627

Re: Surgery Considerations

.....one more thing, O Stoma Mia.... the most recent CT scan showed new small spots on my liver. (There was one spot they found during staging last May but after biopsy, it was found to be benign.) My surgeon insists that these new small spots are "Nothing!" She said this a few times. I do...
by lakeswim
Wed Jan 09, 2019 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Delaying treatment?
Replies: 21
Views: 3032

Re: Delaying treatment?

Hi AmyG. I am coming in late to your discussion (so haven't read all early posts yet) but I want to tell you how much I admire your courage and positive can-do attitude. I often get so caught up with anxiety about my situation that I can't think straight. You have so much on your plate and you seem ...

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