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by lakeswim
Sat Nov 09, 2019 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 130993

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Any of the W&W-ers out there experience chronic radiation proctitis? Curious what it feels like at the start? My surgeon’s office tells me I was cleared in late September - and bc I am being examined and scanned so often, they would see any recurrence before I would feel it. AND they say it is e...
by lakeswim
Thu Nov 07, 2019 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 130993

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Peter! Love this news. Thanks for sharing with us. I have had odd rectal feelings lately (despite the all clear scans in late Sept) so actually just sent my Onc a note right before I saw the notification of your post. I’m hoping these feelings are nothing (radiated rectum can’t handle too much spicy...
by lakeswim
Sun Oct 06, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 130993

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene! Great news! Thrilled for you! I have been very hesitant to post, but I just had a check too and I’m in the clear (like right now- at this moment). I really appreciate these few days just post check/scans when you can breathe easy bc you know it’s okay - at least right at this very second....
by lakeswim
Mon May 06, 2019 7:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery update
Replies: 20
Views: 4063

Re: Post surgery update

Good news about liver! And the job! And doing your job with no issues! I’m impressed. The Xeloda during radiation really messed me up. Lost it on a walk once.

Sorry about hip. I’ve had weird tailbone stuff and I blame it on radiation. I hope you can resolve that soon or ease your pain.
by lakeswim
Thu May 02, 2019 12:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 130993

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Sorry! I meant major surgeries. I think the study was targeting breast cancer surgery but don’t recall. I need to research more. I am also interested (besides getting the port out) because I was about to schedule bunion surgery when I was diagnosed. My bunions have gotten really bad and limit my exe...
by lakeswim
Thu May 02, 2019 8:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 130993

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Watch and Waiters: when did you have your chest port removed (if you had one)? Besides being a little superstitious, I also read an article in a waiting room at MSK that said surgery itself (via the inflammation) can cause (trigger) metastases. (I was called back as I was reading it so I didn’t get ...
by lakeswim
Wed Apr 17, 2019 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 271
Views: 71682

Re: Surviving radiation for rectal cancer

Lake swim: You are commenting about newfound hip/pelvis pain following chemo radiation and wondering “What’s up?” I was a physical therapist before chronic ill-health found me and treated many individuals following radiation therapy. Radiation has known effects on the connective tissue that compris...
by lakeswim
Wed Apr 17, 2019 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 271
Views: 71682

Re: Surviving radiation for rectal cancer

Lake swim: You are commenting about newfound hip/pelvis pain following chemo radiation and wondering “What’s up?” I was a physical therapist before chronic ill-health found me and treated many individuals following radiation therapy. Radiation has known effects on the connective tissue that compris...
by lakeswim
Thu Apr 11, 2019 6:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery update
Replies: 20
Views: 4063

Re: Post surgery update

CF69 - same question here ... colon or rectal?

Jolene - are you in the States or in Europe?
by lakeswim
Sun Apr 07, 2019 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 219
Views: 72047

Re: Mop up chemo experiences

Hi Adele, I had my first colonoscopy and an ileioscopy, tube through stone to check out what can’t be seen from below. I have two things, how lucky for me. Diversion colistic and radiation always proctitis, both irritations due to the treatments. The diversion colititus will go away after reversal,...
by lakeswim
Tue Apr 02, 2019 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 130993

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Rikimaroo... I am so sorry to hear you had the local recurrence. I imagine that must have been devastating for you, but you sound like you have a positive attitude. I am missing where you are in the process? Did you have your surgery? And I’m curious why you want a permanent ileostomy (have to read ...
by lakeswim
Tue Apr 02, 2019 11:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Post surgery update
Replies: 20
Views: 4063

Re: What surgery should I have?

I'm so glad your surgery went well. One of the surgeons I consulted (@MSK) told me you can't predict the level of LARS someone will have (unless it's a low tumor). And, even then, (IMO) people have different lifestyles (gardening at home vs hiking in the mountains vs. a seafarer like you!), so one l...
by lakeswim
Tue Apr 02, 2019 11:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Influenza (Flu) after Oxalyplatin
Replies: 1
Views: 428

Influenza (Flu) after Oxalyplatin

(Note that I titled this "influenza" because when I went to search on FLU, it said that these 3 letters are too common to search.) I have the flu. My first fever/illness since chemo last summer. Yesterday was a little jarring. As soon as the fever came on, my feet/ankles and hands/lower ar...
by lakeswim
Tue Apr 02, 2019 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 130993

W&W-ers - "awareness" of rectum?

Hi Jolene. Good news that you have another option to consider! I am intrigued by your 2 & 4 month schedule as I am on a 4 mo (DRE/flex sig) and 8 mo (MRI) schedule. Based on what I've read here, it seems those doctors/institutions newer to W&W do it more often. (Wish I were on that schedule!...
by lakeswim
Sat Mar 30, 2019 8:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 414
Views: 130993

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I had a local excision in 2007 after a complete clinical response to chemoradiation. I'm not sure what 'side effects' your doctor is talking about. Yes, I had a slight amount of pain (mine was due to the fact that the instruments were pushed against my tailbone for the duration of the surgery and I...

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