Search found 193 matches

Go to advanced search

by lakeswim
Fri Mar 22, 2019 3:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coordination between oncologists - how to proceed?
Replies: 8
Views: 340

Re: Coordination between oncologists - how to proceed?

I’m so sorry to hear this news.....

I have the same question as I have elected W&W but trying to determine the logistics as I am not close to the major cancer center. It is quite complicated in my mind and it concerns me.
by lakeswim
Wed Mar 13, 2019 4:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 27
Views: 1221

We need more female-focused clinical studies!

I just met with my surgeon yesterday (that's another story), but was reminded again how surgeons constantly point out how radiation affects tissues in the female pelvis - vaginal, urinary, rectal, etc. (short and long term) while rad oncs (the folks in charge of the radiation) will stand there and l...
by lakeswim
Sun Mar 10, 2019 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Vaginal stenosis - an issue for women with rectal cancer
Replies: 27
Views: 1221

Re: Vaginal stenosis - an issue for women with rectal cancer

Jolene: The silicon dilator sets by Vaginimus really are exceptional. I heard about them through a women’s support group for uvulitis and their upfront and personal reviews of different products. I agree with weissoccermom and the importance of Premarin in conjunction with the dilators. The vaginal...
by lakeswim
Sun Mar 10, 2019 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Here's why cancer spreads to the liver
Replies: 4
Views: 548

Re: Here's why cancer spreads to the liver

I've been on this board for a good part of a year and I am continuously impressed with how smart some of you are. I'm no dummy, but you guys seem to grasp these concepts much easier than I do. (Do you have science backgrounds?) Thanks for sharing and for dumbing it down for some of us. :-)
by lakeswim
Sun Mar 03, 2019 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 97497

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Weisssoccermom. Thanks for all that info and details. I had TNT (chemo upfront and then chemo/Rad). I don’t believe additional chemo is part of W&W protocol (but I agree that chemo should be part of equation before W&W!). I’ve aiways been a healthy eater (stopped eating red meat when I wa...
by lakeswim
Sun Mar 03, 2019 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 97497

BMs for W&W-ers

PRS, SKB, Weisssoccermom, and other W&W-ers: Food/nutrition: Did you change your nutrition when you decided to do W&W? Add supplements? Fitness: Did you do anything specific exercise-wise? BMs: How did radiation change your BMs (if they changed) or tolerance to foods (ie, spicy, etc.) in the...
by lakeswim
Sun Mar 03, 2019 3:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 97497

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Nifty624 - W&W is not an accepted protocol/treatment for Rectal Cancer so, as far as I know, only a few major cancer centers (esp those doing clinical trials) are "on board" with the strategy as it's so new. In fact, @MSK they still "prefer" you are on a trial to do W&W g...
by lakeswim
Sun Mar 03, 2019 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 97497

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Not sure how to post link to specific page but on page 13 of this thread, someone lists facilities who do W&W. There’s a center in Minnesota on the list?
by lakeswim
Wed Feb 27, 2019 5:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 429
Views: 73834

Re: Reversal Log: Experience,Problems, Q & A's

MissMolly. Informative post. Thank you.
by lakeswim
Mon Feb 25, 2019 11:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 97497

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

W&W folks: - Any idea how insurance deals with W&W? It's not "accepted" so curious if you had any resistance to it in terms of insurance paying for frequent procedures, scans, etc. - I'd prefer a Rectal MRI every 3 months (vs 6 months), but if 6 months is their protocol, think it's...
by lakeswim
Mon Feb 25, 2019 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ‘Watch” part of W&W, seeking experiences
Replies: 3
Views: 408

Re: ‘Watch” part of W&W, seeking experiences

NoCoRick.
You may want to pose your questions in the Habr-Gama W&W thread to get more visibility/response.
by lakeswim
Fri Feb 22, 2019 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years Today!
Replies: 22
Views: 1287

Re: 10 Years Today!

Good to hear messages of hope. Thanks for returning and sharing with us.
by lakeswim
Fri Feb 22, 2019 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ‘Watch” part of W&W, seeking experiences
Replies: 3
Views: 408

Re: ‘Watch” part of W&W, seeking experiences

Good for you for being an advocate for your wife. (My husband does no research for me, so it's all on me, which makes it particularly difficult on some days when I should research but I'm too emotional to do so. Hard to stay focused!) I did TNT and I am considering W&W. (See my post from 5 minut...
by lakeswim
Fri Feb 22, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 97497

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

I wrote a lengthy post about my appt @MSK this week but the draft I had saved disappeared. Here's an abbreviated replacement. (I have my first cold post-treatment and it's quite a doozy so I don't have much energy.) Interesting things to note about MSK: - My MRI @ MSK was a RECTAL MRI vs. the 3 PELV...
by lakeswim
Thu Feb 14, 2019 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 282
Views: 97497

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene You should check this out. He is head of MSK Colorectal surgery and running the watch and wait study. I'm surprised you have not been advised to do full chemotherapy. It's called "consolidation" chemo and increases the chance of a full response. My opinion is that I would do eve...

Go to advanced search