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by lakeswim
Sun Apr 05, 2020 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone Density / Females
Replies: 7
Views: 365

Re: Bone Density / Females

HI - and thanks for commenting. Can you tell me about the meds. Any side effects? Heartburn? How long (years) will they have you on before your "holiday"? Thanks, lakeswim Yes. Followup scans indicated sacral fractures - subsequent bone scans revealed full blown osteoporosis. PCP believes ...
by lakeswim
Fri Apr 03, 2020 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cycling seats post radiation treatment
Replies: 7
Views: 249

Re: Cycling seats post radiation treatment

Thanks CRGuy for the other links and Dave (both!) for the pep talk. What I found last fall when I rode is that my bottom area (rectal area) felt "blown up" and the more often I rode, the more blown up it felt. As someone who has spent time on bikes, I know the sit bones take time to get us...
by lakeswim
Fri Apr 03, 2020 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

HI RDUJay. I am just catching up on posts in this thread and saw yours quoted later on and wanted to comment. First, let me say how much I admire your commitment to advocating for yourself. When I was first diagnosed, I saw my local team and then traveled for a second opinion at Cleveland Clinic. My...
by lakeswim
Fri Apr 03, 2020 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Update: I had my CT here on Tuesday and it remains unchanged. So, good news! My local Onc and I discussed strategy for if/when my flex sig/MR (currently scheduled for May in NYC @MSK) is postponed. He said we could do it here - even knowing it would be ideal to do it with same provider @MSK. Or, I c...
by lakeswim
Wed Apr 01, 2020 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ultra low anterior resection and cycling!
Replies: 7
Views: 782

Re: Ultra low anterior resection and cycling!

Hi Jane. It's been many years so not sure you are still on here, but wondering if you ever found a solution. I too experience this tailbone issue and general rectal discomfort "fullness" after cycling and I'm looking for answers. Padded shorts don't seem to cut it for me. I wonder if it's ...
by lakeswim
Wed Apr 01, 2020 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cycling seats post radiation treatment
Replies: 7
Views: 249

Re: Cycling seats post radiation treatment

Thanks for these links. (My search wasn't as productive as yours.) I was an avid cyclist so padded shorts are standard for me and they didn't help at all last fall. I look forward to seat suggestions in these threads! Thanks again, CRGuy!

lakeswim
by lakeswim
Wed Apr 01, 2020 3:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cycling seats post radiation treatment
Replies: 7
Views: 249

Cycling seats post radiation treatment

Hello. Anyone who went through radiation have any success with cycling seats? Between my irradiated pelvis and my osteoporosis from treatment, I haven't been able to get on a bike comfortably. I could get past the osteoporosis and just find a smooth surface to cycle on (no more mt biking, I guess), ...
by lakeswim
Sat Mar 28, 2020 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi PRS - Thanks for your feedback! - Lakeswim Hi lakeswim,glad to hear you are doing well. All my blood counts are at, or slightly below the low end of the normal range. They stabilized at those levels a little over a year after my radiation treatment, and have remained like that ever since (4 more ...
by lakeswim
Sat Mar 28, 2020 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bone Density / Females
Replies: 7
Views: 365

Bone Density / Females

Hello, Ladies. Someone here (maybe weisssoccermom) mentioned a while back that females should get a baseline bone density scan after radiation treatment. I forget her exact words (and can't find them) but she said many women suffer with hip fractures years after pelvic radiation treatment. I took th...
by lakeswim
Sat Mar 28, 2020 3:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

roadrunner - thank you for all that information! i forgot how everyone on this forum is so darn smart. (i considered myself smart at one time but can no longer digest and understand this complex stuff - since chemo.) yes, my numbers have moved around a lot but have stayed just lower than "norma...
by lakeswim
Sat Mar 28, 2020 3:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

hello SKB - thank you for updating us. like you said, it's so important to see that not all W&Ws continue to see clear results so i appreciate you checking in and letting us know and i am truly so sorry to hear this. i will have to research what VATS is as i am not familiar. i think about the ch...
by lakeswim
Sat Mar 28, 2020 12:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hello, everyone! I hope all my W&W-ers are staying healthy all around. I haven't been on the board for a while and I need to scroll and update myself after I write this. Every time I get a good scan, I say I should check in here, but then I tell myself I'll wait until the next one (to be sure! d...
by lakeswim
Sat Nov 09, 2019 12:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Any of the W&W-ers out there experience chronic radiation proctitis? Curious what it feels like at the start? My surgeon’s office tells me I was cleared in late September - and bc I am being examined and scanned so often, they would see any recurrence before I would feel it. AND they say it is e...
by lakeswim
Thu Nov 07, 2019 2:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Peter! Love this news. Thanks for sharing with us. I have had odd rectal feelings lately (despite the all clear scans in late Sept) so actually just sent my Onc a note right before I saw the notification of your post. I’m hoping these feelings are nothing (radiated rectum can’t handle too much spicy...
by lakeswim
Sun Oct 06, 2019 12:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery
Replies: 448
Views: 151059

Re: Rectal Cancer: Habr-Gama Watch and Wait Strategy to Avoid Surgery

Hi Jolene! Great news! Thrilled for you! I have been very hesitant to post, but I just had a check too and I’m in the clear (like right now- at this moment). I really appreciate these few days just post check/scans when you can breathe easy bc you know it’s okay - at least right at this very second....

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