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by Reviresco
Sat Dec 28, 2019 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 3030

Re: Adventures in Immunotherapy - Hopeful beginnings

henry123 wrote:Best of luck Trevor.
4 Infuisions may be too few to assess.

Be wary of pseudoprogression.

I am sure it will work out for you.


As always, thanks Henry! See my update below about CEA dropping. Gunning for NED in 2020!
by Reviresco
Sat Dec 28, 2019 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 3030

Re: Adventures in Immunotherapy - Hopeful beginnings

Hello from Maine! Just wanted to let you all know that I started Yervoy and Opdivo (Ipi – Nivo) combo immunotherapy for another recurrence in my liver. To recap, I’ve had a colon resection and two liver resections in the past 18 months, with the hopes of getting to NED. However, the cancer keeps po...
by Reviresco
Wed Oct 09, 2019 7:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 3030

Re: Adventures in Immunotherapy - Hopeful beginnings

Hey, Trevor, I also live in Maine, and was DXed (and had emergency right hemicolectomy) just 4 days before you. :) I've been on Keytruda since New Year's Eve. The first few months were fine, but now I'm suffering from joint inflammation that is quite painful. Hoping for a fix for that from the rheu...
by Reviresco
Fri Oct 04, 2019 1:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adventures in Immunotherapy - Hopeful beginnings
Replies: 10
Views: 3030

Adventures in Immunotherapy - Hopeful beginnings

Hello from Maine! Just wanted to let you all know that I started Yervoy and Opdivo (Ipi – Nivo) combo immunotherapy for another recurrence in my liver. To recap, I’ve had a colon resection and two liver resections in the past 18 months, with the hopes of getting to NED. However, the cancer keeps pop...
by Reviresco
Wed Jun 12, 2019 12:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 8093

Re: Starting immunotherapy next week

My oncologist presented my two immunotherapy options as keytruda alone, or Opdivo plus Yervoy. We went with keytruda because it is generally somewhat easier on the body. From what I've read recently, stats show Keytruda clearly beating Opdivo, but Opdivo plus Yervoy works better than Opdivo alone. ...
by Reviresco
Tue Mar 05, 2019 11:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 8093

Re: Starting immunotherapy next week

plastikos wrote:Trevor, best of luck on your immuno. Hope it works as well for you as it has for me.


Thanks Plastikos. I appreciate all the advice you've provided along the way. You and Henry123 are among the main reasons why I've pushed hard for immunotherapy. Keep on truckin'..
by Reviresco
Tue Mar 05, 2019 11:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 8093

Re: Starting immunotherapy next week

I had my first infusion of Keytruda yesterday, and so far, it’s WAY easier than chemo. My infusion lasted 1/2 an hour, and I felt the same walking out as I did walking in. I woke up this morning feeling achy and sore, but not bad. My tumor burden is fairly low, my CEA just creeped up to 10. I too a...
by Reviresco
Tue Mar 05, 2019 11:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 8093

Re: Starting immunotherapy next week

My hope came after beginning immunotherapy. I will never forget that feeling. A new day. A fresh start. Real anticipation for future events. Anyway, on to experience . I was in really bad shape when I started Keytruda. Lymph node tumours all throughout abdomen, chest and neck. I was on the fentanyl...
by Reviresco
Tue Mar 05, 2019 11:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 8093

Re: Starting immunotherapy next week

Hi , I certainly hope the treatment allows you to flourish . It has been wonderful reading the journey of Immuotherapy and how fantastic of you to take the time to thank the people here for documenting it . I have also used their experience to help a friend . I have a friend who is a “ Maxwell “ . ...
by Reviresco
Tue Mar 05, 2019 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 8093

Re: Starting immunotherapy next week

I rarely publish specific details online ... BUTT I am Scottish (West Lothian) and Icelandic (Rekyavik) AND was one of the lost generation who actually studied LATIN in high school :shock: :mrgreen: SO I will also give you : " Dum spiro spero " ... WHILE I BREATHE ... I Hope Then I will e...
by Reviresco
Mon Mar 04, 2019 9:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 34
Views: 8093

Starting immunotherapy next week

Hi friends, I’m going for my first immunotherapy infusion on Monday. It’s the next step in my battle with metastatic colon cancer. Three months ago, I had surgery for a single metastasis in the right lobe of my liver. Got scanned a few weeks ago and there is a new met in the left lobe. I could go fo...
by Reviresco
Fri Nov 23, 2018 12:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI-H with liver met, in search of help
Replies: 19
Views: 3834

Re: MSI-H with liver met, in search of help

Maybe not even mess with liver met. Hopefully immunotherapy would take care of that too. Hey Henry -- I'm going for liver surgery this coming Wednesday, Nov. 28 at Central Maine Medical Center. It's a team of two surgeons who come highly recommended by my Dana Farber onc. They are going to explore ...
by Reviresco
Fri Nov 23, 2018 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wedge resection vs. full lobe removal?
Replies: 8
Views: 1559

Re: Wedge resection vs. full lobe removal?

Congrats on being resectable! Both recommendations sound reasonable, with DF being more aggressive. I would also encourage you to seek another opinion at MSKCC, where they do the HAI pump. In your case, I would guess (and that's all it is, you do need to consult with them to find out for sure) that...
by Reviresco
Fri Nov 23, 2018 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wedge resection vs. full lobe removal?
Replies: 8
Views: 1559

Re: Wedge resection vs. full lobe removal?

The liver will regenerate, most likely even grow back to it's original size. Just to clarify, the liver will regrow with a resection, but not with a lobectomy. With the lobectomy, whatever remains will grow to about 2/3 of your full liver. Still plenty of liver to have normal function. Thank you Ph...
by Reviresco
Fri Nov 23, 2018 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Wedge resection vs. full lobe removal?
Replies: 8
Views: 1559

Re: Wedge resection vs. full lobe removal?

The liver will regenerate, most likely even grow back to it's original size. I had over half my liver removed along with my gallbladder in July. I recovered quickly with no problems other than an incisional site infection. Either way it will be an open surgery and sounds like good advice about not ...

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