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by VeggieLvr
Fri Jun 29, 2018 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent surgery & update on MSK HAI pump (long)
Replies: 11
Views: 383

Re: My recent surgery & update on MSK HAI pump (long)

Foggyocean, Robino1, Rikimaroo - Thank you so much for your encouragement and well wished! It really means a lot :)
by VeggieLvr
Thu Jun 28, 2018 10:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member and HAI pump therapy questions
Replies: 5
Views: 436

Re: New member and HAI pump therapy questions

Hello Felix, chiming in to say I agree with everything Julie said! (She has been a big inspiration for me as well.) I am an MSK patient and recently had the pump implanted (you can see my post about it here: http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=60258). Dr. Kemeny is the on...
by VeggieLvr
Thu Jun 28, 2018 9:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent surgery & update on MSK HAI pump (long)
Replies: 11
Views: 383

Re: My recent surgery & update on MSK HAI pump (long)

Glad to hear you're home and on the road to recovery! :D My surgery was 7 hours and involved multiple wedge resections of my liver, implantation of an HAI pump, and removal of my primary rectal tumor. I lost a lot of weight so don't be surprised if the number on the scale drops radically after you ...
by VeggieLvr
Wed Jun 27, 2018 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent surgery & update on MSK HAI pump (long)
Replies: 11
Views: 383

Re: My recent surgery & update on MSK HAI pump (long)

Thank you zephyr! :) If I wasn't feeling so crappy I would have posted sooner (plus the pain meds make me a bit loopy). I hope all is well with you!
by VeggieLvr
Wed Jun 27, 2018 12:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent surgery & update on MSK HAI pump (long)
Replies: 11
Views: 383

My recent surgery & update on MSK HAI pump (long)

Hi everyone, I wanted to give an overview of my recent surgery at MSK, which included installation of the HAI pump. This will be a long post, but I want to give as much information as possible. I've broken it into sections to hopefully make it easier to read. My surgery was for both liver resection ...
by VeggieLvr
Sat Jun 23, 2018 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 1092

Re: Got both good news and scary news (HAI pump)

How did your surgery go? Foggyocean it went well, thank you for asking! Although I am still in quite a bit of pain at the moment. I was discharged tonight, so I spent a total of five days in the hospital. I thought I would be there longer, but they felt I was well enough to be released and will rec...
by VeggieLvr
Sat Jun 23, 2018 8:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 1092

Re: Got both good news and scary news (HAI pump)

I know I mentioned this in another response, but I really hope I can still eat avocados! I live on the west coast. Avocados are daily food here - avocado toast for breakfast, on a salad for lunch, guacamole and chips, avocado+kale+pineapple+coconut smoothies -- you get the idea!!! :D I have never h...
by VeggieLvr
Sun Jun 17, 2018 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 1092

Re: Got both good news and scary news (HAI pump)

Sorry for the late answer. I have been living with the pump for almost 3 years. Last 2 years were happy, healthy years. I was able to run with my kids and friends, I did yoga and pilates. With time I felt the pump less and less. I feel it during harder pilates exwrcises or yoga poses but it is pain...
by VeggieLvr
Fri Jun 15, 2018 5:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pizza
Replies: 21
Views: 860

Re: Pizza

I had a left hemicolectomy about three months ago now and I just ate so much pizza for lunch. :)
by VeggieLvr
Thu Jun 14, 2018 5:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 1092

Re: Got both good news and scary news (HAI pump)

Never had any issue with this, I eat the same as before. I never ate too fatty foods though. It could just be me. That's good to hear radnyc. I do eat fatty foods like avocado and peanut butter, but I try to avoid fried foods since my diagnosis. Although I still enjoy the occasional spring roll or ...
by VeggieLvr
Wed Jun 13, 2018 2:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 1092

Re: Got both good news and scary news (HAI pump)

Something minor to add here. The gall bladder is not an organ. It's just a storage sack for bile that is produced by the liver. Bile aids in digestion of lipids/fats as it helps dissolve lipids/fats into solution. People do have a pretty normal life after having their gall bladder removed. But you ...
by VeggieLvr
Wed Jun 13, 2018 2:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU pump
Replies: 9
Views: 366

Re: 5FU pump

Hi Wendy, I understand your frustration with the pump. I hate having the pump even though I know it's a necessary evil. What I do is try to sleep through it as much as I can, I take either xanax or ativan to help with that (these also help with the anxiety I feel while the pump is connected). Ativan...
by VeggieLvr
Tue Jun 12, 2018 9:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 18
Views: 1092

Re: Got both good news and scary news (HAI pump)



O Stoma Mia, thank you so much for this link! Much appreciated.
by VeggieLvr
Tue Jun 12, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling really sad and in need of support
Replies: 53
Views: 2553

Re: Feeling really sad and in need of support

"It's sucks. All of it." - for me it got progressively harder. Surgery was harder than chemo + radiation, and then neo-adjuvant was a lot tougher than surgery. That's why the doctors don't tell you how rough it will be as they may scare people off (I would guess that they actually do). NH...

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