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by crikklekay
Thu Oct 18, 2018 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 11
Views: 539

Re: Quality of life on Folfox and others

My DH did all 12 rounds of Folfox, though near the end the Oxy was reduced due to neuropathy. The cold sensitivity didn't bother him much, we just kept a pair of knit gloves by the fridge, in his car, at his job etc to make sure he could snag them when needed. He works in the foodservice industry so...
by crikklekay
Thu Oct 11, 2018 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal
Replies: 5
Views: 331

Re: Stoma Reversal

Thanks for the tips guys! Surgery yesterday was long and complicated, 6 hours, but he did well and now we’re in the process of making him feel better. The surgeon mentioned he is at high risk for a hernia along his original site as she could see the wall was weakening there during surgery. So I get ...
by crikklekay
Tue Oct 09, 2018 9:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal
Replies: 5
Views: 331

Stoma Reversal

So we're finally here at this next major stage in my DH's recovery. He has been waiting for this moment, his time with an ostomy has been very hard and he can't wait to be reconnected. We're the first surgery slot of the day tomorrow and while our surgeon has told us of the dozens of possible outcom...
by crikklekay
Tue Oct 09, 2018 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here - My cautionary tale
Replies: 11
Views: 960

Re: New here - My cautionary tale

We never got the chance to pick any of our doctors, by the time we were told by our GP to go to the ER for his "constipation" he could barely make it to the door. Found out that day if you can't enter into the ER under your own power you get bumped to the top of the list! I was so surprise...
by crikklekay
Mon Oct 08, 2018 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 3204

Re: I am so worried.

When it came to my husband they didn't know if there was lymph node involvement until after the surgery, then they were able to test all the lymph nodes removed and see how many had been affected by cancer. I'm not sure if they show up on a CT scan unless they are swollen or otherwise have changed s...
by crikklekay
Fri Oct 05, 2018 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High alkaline phosphatase?
Replies: 5
Views: 362

Re: High alkaline phosphatase?

Oh good! We were told it was normal for it to go up during treatment but that it should "go down after chemo ends" but I was never given a time window to expect. So when I saw it went up my brain was going "Wait, isn't that supposed to be a smaller number??". The oncologist said ...
by crikklekay
Thu Oct 04, 2018 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 1935

Re: New diagnosis and scared

Oh geez, your experience sounds a lot like my husband's: In the ER for dehydration and severe constipation, baffled the doctors so they sent in a GI specialist who ordered a colonoscopy who then found the tumor blocking his intestines. He will hopefully have his stoma reversed next week, so you're s...
by crikklekay
Thu Oct 04, 2018 12:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High alkaline phosphatase?
Replies: 5
Views: 362

High alkaline phosphatase?

It is hard to believe that it has been a little over a month since my DH last Folfox infusion and he was given a thumbs up and clear CT Scan. The only thing the doctor was concerned about was his alkaline phosphatase levels which had risen during treatment, but it looked like they were coming down. ...
by crikklekay
Thu Sep 20, 2018 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why do I torture myself? Signet Ring Cell Sigmoid Colon
Replies: 5
Views: 869

Re: Why do I torture myself? Signet Ring Cell Sigmoid Colon

My husband has the same staging except he's N2a since it was just 6 out of 22 affected. I remember sitting in the hospital room the evening after he was diagnosed and thinking I would feel better with facts, I'm generally calmer if I know what's going on and feel in control. I'll never forget openin...
by crikklekay
Thu Sep 06, 2018 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 7006

Re: The things people say to cancer patients

How do caregivers respond when asked, "How are you?" My honest thought is "How the bleep do you think I am?" How do you respond to "How many more chemo treatments?" or "How much more chemo is required?" when the answer is forever? I once responded "Til i...
by crikklekay
Tue Sep 04, 2018 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3 After Treatment Plans?
Replies: 9
Views: 717

Stage 3 After Treatment Plans?

Hello! So we are finally in NEDville, insert happy dance here! We talked a little bit with our Oncologist on where we go from here, and she mentioned that no new CT scans would be needed until August of next year. I thought that was odd because most of the threads I've read here mentioned every 6 mo...
by crikklekay
Sun Sep 02, 2018 12:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling confused . What symptoms to watch for
Replies: 23
Views: 5424

Re: Feeling confused . What symptoms to watch for

OK so my DH just finished his last chemo treatment, CT scan was clear, CEA levels dropped back into normal range, only thing to watch right now are some elevated liver enzymes. Here is what our Oncologist has planned: No need to do another CT Scan until next year unless something weird pops up. We’r...
by crikklekay
Thu Aug 30, 2018 1:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 7006

Re: The things people say to cancer patients

My favorite thing (not) is when I get back to work from a doctor’s appointment and my coworkers ask “is everything okay?” No, everything has not been okay for some time now! Yes, thank you! Or the generic "Let me know if you need anything", what I need is for my husband to not have cancer...
by crikklekay
Wed Aug 29, 2018 3:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got to update my signature!
Replies: 16
Views: 4582

Re: I got to update my signature!

That's wonderful, congrats! I hope it's a beautiful wedding!!
by crikklekay
Wed Aug 29, 2018 3:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Encouragement
Replies: 15
Views: 4458

Re: Encouragement

That is such great news, congratulations!!

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