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by crikklekay
Wed Jun 20, 2018 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Send Good Vibes for Friday
Replies: 3
Views: 99

Please Send Good Vibes for Friday

I've seen others post similar threads when they need a little support for testing anxiety, so here we go! My husband is finally getting a complete colonoscopy this Friday. When he was in the hospital they were only able to do a lower colonoscopy because the tumor was blocking the sigmoid section of ...
by crikklekay
Tue Jun 19, 2018 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 404

Re: Taste Change Advice

There's no way I could have eaten fruit, smoothies, yogurt or any of the things you've listed, I would have gagged. He just has to keep trying. Calories are more important than 'healthy' foods, so if it has calories and he'll eat it, that's more important. I completely agree! The weird thing is ini...
by crikklekay
Sun Jun 17, 2018 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 404

Re: Taste Change Advice

Guys, thank you so much for your responses! LPL , we tried the sugar thing and it actually made a difference, kinda. He added some syrup to his grits and it helped but he had to add so much syrup to make a difference that I think the grits were more syrup than grits. Stil, I might try banana pancake...
by crikklekay
Fri Jun 15, 2018 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 404

Taste Change Advice

My own words are coming back to haunt me, considering I put up a post a while ago asking if having no symptoms means the chemo isn't working and now within a span of 3 weeks it seems all the chemo symptoms finally caught up with him. The mouth sores and hand/foot syndrome issues are bad but manageab...
by crikklekay
Wed Jun 13, 2018 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new diagnosis
Replies: 5
Views: 416

Re: Another new diagnosis

Hello! Our experiences are so close we could sisters. My husband had the same issues, but our doctor insisted he was just constipated so we didn't wind up in the ER until he was vomiting and couldn't keep liquids down. We were seen immediately, but I'm told if you can't walk into the ER under your o...
by crikklekay
Wed Jun 13, 2018 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU pump
Replies: 9
Views: 258

Re: 5FU pump

I'm a caregiver so I don't have any first-hand experience to help, but here is what my husband does: -I know it seems silly, but I made him a custom bag to hold his pump. It looks like an angry squid and it helps him "own" it in a sense instead of some plain black medical bag. I also made ...
by crikklekay
Sun Jun 10, 2018 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin in UK's NHS vs. USA Healthcare
Replies: 34
Views: 869

Re: Avastin in UK's NHS vs. USA Healthcare

Again, has anyone have evidence of being denied a drug or treatment that is known to work for the patient due to costs, similar to the UK and Norwegian examples referenced above. Thank you. WS I don’t have any links to news stories but I have two anecdotes. When my husband had CDIFF due to the anti...
by crikklekay
Fri Jun 08, 2018 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal
Replies: 44
Views: 1117

Re: Reversal

Thanks for sharing your experience, my husband will hopefully be getting his reversal in a couple of months and we've both been a little nervous and not sure what to expect.
by crikklekay
Fri Jun 08, 2018 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signs of travelling to lungs?
Replies: 10
Views: 585

Re: Signs of travelling to lungs?

When my husband went to the ER they only did a CT scan of his abdomen which did not include the lungs, but he was complaining of gut problems so they didn't really need to do a chest scan. But once they did the colonoscopy in the hospital and realized he had cancer the Oncologist we were provided or...
by crikklekay
Thu Jun 07, 2018 12:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No, we don't have the best healthcare system
Replies: 24
Views: 1041

Re: No, we don't have the best healthcare system

Not saying that our health care system doesn't have issues. But the issue is what ins co pay, not the billed amt. My onc (no surprise) told me she has no clue where those billed amts come from. Maybe they are the most any ins co would pay under exceptional circumstances - maybe the "prices&quo...
by crikklekay
Thu Jun 07, 2018 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin in UK's NHS vs. USA Healthcare
Replies: 34
Views: 869

Re: Avastin in UK's NHS vs. USA Healthcare

WarriorSpouse, you should be thanking your lucky stars that you are amongst the lucky ones in the US who HAVE insurance, and that you CAN afford it. Medical bankruptcies affect many. For 12 years, we had a catastrophic policy that cost $400 per month with a $15K per year deductible PER PERSON. We c...
by crikklekay
Thu Jun 07, 2018 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice for caregivers
Replies: 8
Views: 361

Re: Advice for caregivers

I'm sorry to hear about your mother, and as a fellow caregiver I completely understand where you're coming from. You are an amazing person to relocate from another country to help take care of your Mom, she's very lucky to have you! I can be a bit of an overbearing caregiver, I'm constantly calling ...
by crikklekay
Wed May 30, 2018 9:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rebuilding neutrophils and platelets
Replies: 7
Views: 326

Re: Rebuilding neutrophils and platelets

My husband seems to have the opposite problem, while his neutrophil count and platelets are both low it's his platelets that are hovering just above the minimum number. When he had MSSA in the hospital they gave him the injection you mentioned and it helped a lot really fast, he went from neutropeni...
by crikklekay
Wed May 30, 2018 9:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried Daughter
Replies: 17
Views: 750

Re: Worried Daughter

Hello! I'm sorry you and your family are going through this, but the slight sliver of silver lining is that you caught it before it blocked her colon. Now you are able to formulate a plan, pick the best surgeon and hospital, and get that mess out! My husband had no symptoms other than some off and o...
by crikklekay
Wed May 23, 2018 11:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Question for Caregivers
Replies: 20
Views: 692

Re: A Question for Caregivers

Sorry WarriorSpouse, it's just that holding onto a few things have helped to keep me grounded. It's like a mantra or running verbal rosary beads through my fingers: The goal is to cure, they got it all with good margins, he's only stage 3, all scans are clear. Whenever something calls these into que...

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