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by crikklekay
Mon Aug 13, 2018 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with a Similar Experience?
Replies: 6
Views: 632

Re: Anyone with a Similar Experience?

It's not the Oxy I'm worried about, I see a lot of people mentioning getting Oxy reduced or removed. It's the 5FU that has been reduced recently since it was causing the hand and foot, and then everything was reduced in the beginning thanks to MSSA/CDIFF. I just haven't heard of a lot of people gett...
by crikklekay
Mon Aug 13, 2018 1:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone with a Similar Experience?
Replies: 6
Views: 632

Anyone with a Similar Experience?

We have had such a rollercoaster of a time with treatment and we're so close to the end, so I was wondering if anyone else has had a similar experience? Because I did the math and John has only received 5 full doses of Folfox6 out of the 12, is that abnormal? His first dose was a little light to tes...
by crikklekay
Thu Aug 02, 2018 12:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ER Visit
Replies: 19
Views: 969

Re: ER Visit

Ugh, that's awful! Did they test you for CDIFF? My husband had similar symptoms and he wound up in the ER like you, but his CT scan showed some colitis and because he was a colon cancer patient they had him admitted. The hospital doctor then ordered a CDIFF test to be safe and it came back positive....
by crikklekay
Sun Jul 22, 2018 10:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking Out a Little
Replies: 11
Views: 522

Re: Freaking Out a Little

I’m sorry, I must sound awful freaking out over a tiny thing when things seem to be going okay. I didn’t really think before posting, I was just scared and needed to reach out. The Oncology nurse wasn’t returning my calls about his CEA number and when it finally popped up online and I saw that it we...
by crikklekay
Fri Jul 20, 2018 8:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking Out a Little
Replies: 11
Views: 522

Re: Freaking Out a Little

It’s not that I think our life might have to be on hold should something be wrong, it just felt like as soon as I start to look forward to life without cancer we get what I assume is a bad test result. Like...the universe is telling me not to get cocky. I hope it is something else and not something ...
by crikklekay
Thu Jul 19, 2018 11:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Freaking Out a Little
Replies: 11
Views: 522

Freaking Out a Little

Okay so we’ve been planning, we’re so close to the end of his 12 rounds of chemo that we have been planning the future. Just two more treatments is our current mantra. Plans to go on a short trip, plans to find him a better job, looking forward to a life without chemo and being NED. Tomorrow he’s go...
by crikklekay
Thu Jul 19, 2018 10:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good Scan Results at 4 months!
Replies: 8
Views: 483

Re: Good Scan Results at 4 months!

That’s wonderful news! It’s always good to read of stories like this one especially after reading scary updates from others. I hope your recovery continues to go well!
by crikklekay
Sat Jun 23, 2018 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Send Good Vibes for Friday
Replies: 9
Views: 581

Re: Please Send Good Vibes for Friday

I’m happy to say we have a clear, normal colon! When I heard the news I wasn’t sure if I wanted to jump for joy or melt in relief. Thank you everyone for your encouragement! <3
by crikklekay
Wed Jun 20, 2018 10:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Send Good Vibes for Friday
Replies: 9
Views: 581

Please Send Good Vibes for Friday

I've seen others post similar threads when they need a little support for testing anxiety, so here we go! My husband is finally getting a complete colonoscopy this Friday. When he was in the hospital they were only able to do a lower colonoscopy because the tumor was blocking the sigmoid section of ...
by crikklekay
Tue Jun 19, 2018 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 749

Re: Taste Change Advice

There's no way I could have eaten fruit, smoothies, yogurt or any of the things you've listed, I would have gagged. He just has to keep trying. Calories are more important than 'healthy' foods, so if it has calories and he'll eat it, that's more important. I completely agree! The weird thing is ini...
by crikklekay
Sun Jun 17, 2018 3:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 749

Re: Taste Change Advice

Guys, thank you so much for your responses! LPL , we tried the sugar thing and it actually made a difference, kinda. He added some syrup to his grits and it helped but he had to add so much syrup to make a difference that I think the grits were more syrup than grits. Stil, I might try banana pancake...
by crikklekay
Fri Jun 15, 2018 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Taste Change Advice
Replies: 18
Views: 749

Taste Change Advice

My own words are coming back to haunt me, considering I put up a post a while ago asking if having no symptoms means the chemo isn't working and now within a span of 3 weeks it seems all the chemo symptoms finally caught up with him. The mouth sores and hand/foot syndrome issues are bad but manageab...
by crikklekay
Wed Jun 13, 2018 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another new diagnosis
Replies: 5
Views: 645

Re: Another new diagnosis

Hello! Our experiences are so close we could sisters. My husband had the same issues, but our doctor insisted he was just constipated so we didn't wind up in the ER until he was vomiting and couldn't keep liquids down. We were seen immediately, but I'm told if you can't walk into the ER under your o...
by crikklekay
Wed Jun 13, 2018 3:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU pump
Replies: 9
Views: 448

Re: 5FU pump

I'm a caregiver so I don't have any first-hand experience to help, but here is what my husband does: -I know it seems silly, but I made him a custom bag to hold his pump. It looks like an angry squid and it helps him "own" it in a sense instead of some plain black medical bag. I also made ...
by crikklekay
Sun Jun 10, 2018 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin in UK's NHS vs. USA Healthcare
Replies: 34
Views: 1281

Re: Avastin in UK's NHS vs. USA Healthcare

Again, has anyone have evidence of being denied a drug or treatment that is known to work for the patient due to costs, similar to the UK and Norwegian examples referenced above. Thank you. WS I don’t have any links to news stories but I have two anecdotes. When my husband had CDIFF due to the anti...

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