Congrats Stu, I’m so happy for you! Your posts have helped me a lot, so it gives me a lot of joy to know your mom has finally joined the 5 year club

I’ve always wondered this as well! I’ve been counting since his first CT scan after treatment, but knowing I get to count since his surgery means he’s technically now 3 years NED which makes me feel better about his current scan. Thanks for creating the post LivinginHope!

Congrats! John wasn't able to complete all 12 of OXY due to the neuropathy, which is a little better now but still there, and he had a reduced amount for the last couple infusions of 5-FU so we feel you. Still, that portion of your journey is behind you and you can keeping going forward! Congrats ag...

Hello everyone, I am finally eligible to receive the covid-19 vaccine. However, I was wondering if I should delay getting the vaccine until after my quarterly CT scan/CEA test at the end of March. I have read that some cancer patients who received the vaccine had increases in CEA and I also read th...

My goodness, your husband has had a lot to deal with for Stage 3: infected port, cdiff, and the lung issues! CEA can rise for any number of reasons, and a challenge to the immune system is likely one of them. I hope the scan puts your mind at rest. I hope so, my friends last night were trying to re...

Hello! My husband recently went in for his quarterly visit today and his CEA levels suddenly registered above normal levels (2.2 at last check now 5.3). He has a CT Scan scheduled next week to check for any anomalies, the only other abnormalities on his blood work was low albumin and calcium (though...

John just got back from his appointment, the paperwork says no evidence of metastatic disease! I'm so relieved! Though there was a line on the report that I'm confused about, I wasn't sure if anyone has come across this before? "A few tiny sub-5mm pulmonary nodules are likely unchanged, primari...

All of this is positive, but the anxiety is still there (that thought : what if something bad happened in the last 6 months) and hits and numbs me when i least expect. I understand you and wish I could give you a hug to let us both know we are not alone. My goodness yes, you are exactly right! Some...

Thanks everyone <3 John took the day off yesterday since he was unsure how long the scan would take. I’m glad he did, since I work from home that meant we could spend lunch together and having him close by helped. My brain is more likely to fully descend into the anxiety spiral when I’m alone. Now w...

I am not doing very well today. My husband's second year scan is tomorrow and it just hit me like a ton of bricks. My brain is having a hard time focusing and keeps throwing me flashbacks of being in the hospital. I normally have anxiety issues over tests and scans, but it feels so much worse this t...

I'm so happy for you! May your scans continue to be clear <3

That's wonderful! Congrats!!

My husband’s second scan is coming up next month, if it’s clear he will be at 2 years NED! I’m a nervous wreck over it, I know 2 years is an important milestone. I guess technically he has had no signs of disease since surgery early 2018 but he wasn’t given the title NED until after his clear scan t...

Congrats!! I hope one day I can also say my husband has been cancer free for 22 years. I'm so sorry about the horrible events happening in Australia, my heart goes out to everyone. I hope relief is just around the corner so the country can start to heal.

My husband's first surgery was an emergency so they had to use a very large abdominal cut, he has quite the gnarly scar! Unfortunately despite being careful during healing he has two incisional hernias and his surgeon told him not to worry about it unless it started causing a problem. He actually lo...