Search found 108 matches

Go to advanced search

by crikklekay
Mon Mar 08, 2021 8:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 28
Views: 6761

Re: Cured it is then !

Congrats Stu, I’m so happy for you! Your posts have helped me a lot, so it gives me a lot of joy to know your mom has finally joined the 5 year club :D
by crikklekay
Mon Mar 08, 2021 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: From what point are you 'NED'?
Replies: 6
Views: 1074

Re: From what point are you 'NED'?

I’ve always wondered this as well! I’ve been counting since his first CT scan after treatment, but knowing I get to count since his surgery means he’s technically now 3 years NED which makes me feel better about his current scan. Thanks for creating the post LivinginHope!
by crikklekay
Wed Mar 03, 2021 3:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3B - Chemo Ended Today
Replies: 3
Views: 950

Re: Stage 3B - Chemo Ended Today

Congrats! John wasn't able to complete all 12 of OXY due to the neuropathy, which is a little better now but still there, and he had a reduced amount for the last couple infusions of 5-FU so we feel you. Still, that portion of your journey is behind you and you can keeping going forward! Congrats ag...
by crikklekay
Wed Mar 03, 2021 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid-19 vaccine advice
Replies: 5
Views: 723

Re: Covid-19 vaccine advice

Hello everyone, I am finally eligible to receive the covid-19 vaccine. However, I was wondering if I should delay getting the vaccine until after my quarterly CT scan/CEA test at the end of March. I have read that some cancer patients who received the vaccine had increases in CEA and I also read th...
by crikklekay
Wed Feb 24, 2021 7:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID Vaccine and CEA Increase?
Replies: 3
Views: 693

Re: COVID Vaccine and CEA Increase?

My goodness, your husband has had a lot to deal with for Stage 3: infected port, cdiff, and the lung issues! CEA can rise for any number of reasons, and a challenge to the immune system is likely one of them. I hope the scan puts your mind at rest. I hope so, my friends last night were trying to re...
by crikklekay
Tue Feb 23, 2021 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID Vaccine and CEA Increase?
Replies: 3
Views: 693

COVID Vaccine and CEA Increase?

Hello! My husband recently went in for his quarterly visit today and his CEA levels suddenly registered above normal levels (2.2 at last check now 5.3). He has a CT Scan scheduled next week to check for any anomalies, the only other abnormalities on his blood work was low albumin and calcium (though...
by crikklekay
Tue Aug 25, 2020 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 2261

Re: Scanxiety and 2020

John just got back from his appointment, the paperwork says no evidence of metastatic disease! I'm so relieved! Though there was a line on the report that I'm confused about, I wasn't sure if anyone has come across this before? "A few tiny sub-5mm pulmonary nodules are likely unchanged, primari...
by crikklekay
Wed Aug 19, 2020 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 2261

Re: Scanxiety and 2020

All of this is positive, but the anxiety is still there (that thought : what if something bad happened in the last 6 months) and hits and numbs me when i least expect. I understand you and wish I could give you a hug to let us both know we are not alone. My goodness yes, you are exactly right! Some...
by crikklekay
Wed Aug 19, 2020 6:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 2261

Re: Scanxiety and 2020

Thanks everyone <3 John took the day off yesterday since he was unsure how long the scan would take. I’m glad he did, since I work from home that meant we could spend lunch together and having him close by helped. My brain is more likely to fully descend into the anxiety spiral when I’m alone. Now w...
by crikklekay
Mon Aug 17, 2020 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 2261

Scanxiety and 2020

I am not doing very well today. My husband's second year scan is tomorrow and it just hit me like a ton of bricks. My brain is having a hard time focusing and keeps throwing me flashbacks of being in the hospital. I normally have anxiety issues over tests and scans, but it feels so much worse this t...
by crikklekay
Mon Aug 17, 2020 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Remission!?!
Replies: 11
Views: 2731

Re: Remission!?!

I'm so happy for you! May your scans continue to be clear <3
by crikklekay
Mon Aug 17, 2020 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm still here! (cancerversary)
Replies: 10
Views: 2310

Re: I'm still here! (cancerversary)

That's wonderful! Congrats!!
by crikklekay
Mon Jul 13, 2020 7:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 808
Views: 346538

Re: For Stage III's: NED for how long now?

My husband’s second scan is coming up next month, if it’s clear he will be at 2 years NED! I’m a nervous wreck over it, I know 2 years is an important milestone. I guess technically he has had no signs of disease since surgery early 2018 but he wasn’t given the title NED until after his clear scan t...
by crikklekay
Tue Jan 21, 2020 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another anniversary
Replies: 11
Views: 2379

Re: Another anniversary

Congrats!! I hope one day I can also say my husband has been cancer free for 22 years. I'm so sorry about the horrible events happening in Australia, my heart goes out to everyone. I hope relief is just around the corner so the country can start to heal.
by crikklekay
Tue Jan 21, 2020 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Parastomal hernia
Replies: 9
Views: 1081

Re: Parastomal hernia

My husband's first surgery was an emergency so they had to use a very large abdominal cut, he has quite the gnarly scar! Unfortunately despite being careful during healing he has two incisional hernias and his surgeon told him not to worry about it unless it started causing a problem. He actually lo...

Go to advanced search