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by crikklekay
Mon May 06, 2019 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 23
Views: 1709

Re: Neuropathy improvement: individual experience

My husband's last treatment was August last year, and our doctor recommended adding B Complex to his daily meds regimen at home to help with the neuropathy. She warned us that it could take years to see improvement but not to lose hope. I know it seems trivial, but recently his feet have become tick...
by crikklekay
Tue Apr 09, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering Diarrhea?
Replies: 5
Views: 490

Re: Lingering Diarrhea?

NEMD is apparently a fancy way of saying NED: "No Evidence of Metastatic Disease" It's what they listed on his last CT Scan so I put it that way in my signature. John had a horrible ostomy experience, retracted AND it shrunk down to only 11 mm in diameter. He leaked constantly as no produc...
by crikklekay
Mon Apr 08, 2019 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering Diarrhea?
Replies: 5
Views: 490

Lingering Diarrhea?

My husband had his ostomy take down back in October and other than watching a couple of numbers he’s been doing okay. A little over a week ago we both came down with some sort of intestinal bug and while we both got better his diarrhea is still lingering. No fever, bloating, pain etc just mild diarr...
by crikklekay
Fri Mar 15, 2019 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregivers and Post-NED Life
Replies: 3
Views: 526

Re: Caregivers and Post-NED Life

Well the results weren’t what I was hoping for, though the Oncologist seems unperturbed. Two of his bad levels improved, HGB and HCT have gone up so the iron pills are helping there, but his MCV and MCH have gone down for a second time. She explained this means that his red blood cells are small, bu...
by crikklekay
Thu Mar 14, 2019 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Im nervous
Replies: 8
Views: 1117

Re: Im nervous

I know nothing of liver mets, but I do know everything about scanxiety. It doesn't always help, but try to stay busy with tasks that don't let your mind wander. Spending time with family and friends, talking with coworkers, working with my foster cats, just generally doing anything that can get me o...
by crikklekay
Thu Mar 14, 2019 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregivers and Post-NED Life
Replies: 3
Views: 526

Caregivers and Post-NED Life

Whenever something seems to not be quite right or when we get close to a blood test/check-up I always get antsy and lurk on the board and online more in general. For the most part, I try to kick cancer out of my mind and just enjoy being with my husband and appreciating this time of NED peace. But a...
by crikklekay
Mon Mar 11, 2019 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice of colorectal cancer Survivors
Replies: 10
Views: 1035

Re: Seeking advice of colorectal cancer Survivors

All I remember is the Oncologist mentioning not to take any supplements that might cover up the effects of neuropathy. His general doctor said to take vitamin B to help the neuropathy but the Oncologist overruled, saying that it could mask the actual damage being done and she needed to know how bad ...
by crikklekay
Mon Mar 11, 2019 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Never mind
Replies: 18
Views: 1301

Re: Never mind

I'm not the one who has cancer, but it doesn't change the fact that this is the worst and harder thing I've ever had to face . And this is not necessarily "making it about me," it is just a fact. I also didn't see the original post, but I'm a caregiver to my husband and this statement rea...
by crikklekay
Mon Mar 11, 2019 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Marking time from first diagnosed or??
Replies: 10
Views: 694

Re: Marking time from first diagnosed or??

We mark time from when the Oncologist declared John to have "no evidence of disease", though our Oncologist marks time from diagnosis which was confirmed right after surgery. Technically since they removed the tumor and there was no sign of metastatic disease he was "cancer free"...
by crikklekay
Fri Feb 22, 2019 10:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Crazy cancer anxiety vs. legitimate concerns -- how do you differentiate?
Replies: 21
Views: 2905

Re: Crazy cancer anxiety vs. legitimate concerns -- how do you differentiate?

You know I didn’t realize how old this post was until I saw the most recent entry. I’m a caregiver so it isn’t my own body that I don’t trust, it’s his and the universe in general. I’ve posted in moments of panic here before on things that I’m sure most normal people would think is bonkers haha. Som...
by crikklekay
Wed Feb 13, 2019 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions about surgery..
Replies: 3
Views: 688

Re: Questions about surgery..

Before his surgery to remove the part of his colon with the tumor we were told by his surgeon that she would try to reconnect him without an ostomy but she couldn't guarantee it, it would all depend on what she found once she got in. Unfortunately, he was so bad off an ostomy was needed which he had...
by crikklekay
Thu Jan 31, 2019 2:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I’m Freaking Out
Replies: 14
Views: 1499

Re: I’m Freaking Out

Are you feeling any better about it now? A little! It's nice to have others confirm that CRC survivors have bloating problems, and he's feeling a lot better now. He's still taking a colace once a day, so if over the weekend when he stops taking it if he still doesn't get bloated I'll feel a lot bet...
by crikklekay
Wed Jan 30, 2019 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I’m Freaking Out
Replies: 14
Views: 1499

Re: I’m Freaking Out

John talked with his surgeon who told him to treat it as regular constipation, the Oncologist nurse just mentioned to call back if it persists. He's feeling a lot better this morning so hopefully it was just normal indigestion. Bowel surgery can really mess up your digestive system. I think bloating...
by crikklekay
Mon Jan 28, 2019 1:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did you first discover or got diagnosed with colorectal cancer ?
Replies: 16
Views: 2070

Re: How did you first discover or got diagnosed with colorectal cancer ?

My husband (41 at the time) had some mild cramping in the abdominal area but since he was healthy and that mild nonspecific pain could be "related to thousands of things" his doctor advised just waiting to see if it improved. It went away and we didn't think anything of it. Then right afte...
by crikklekay
Mon Jan 28, 2019 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I’m Freaking Out
Replies: 14
Views: 1499

Re: I’m Freaking Out

I was talking to a coworker this morning and while part of this is definitely cancer-anxiety the other part is that anxious feeling of waiting for the shoe to drop. If I listened to my rabbit-brain we'd be hunkered down and not doing any life-changing things just in case something happens. But after...

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