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by crikklekay
Fri Dec 28, 2018 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My teenager is mad
Replies: 6
Views: 1175

Re: My teenager is mad

I don’t have a teenager, but I can empathize with what he’s feeling. It seems like everyone has an opinion, and while most are well-meaning they come from a place of ignorance. People have told me how thin my husband is now and isn’t that great something “good” can come from cancer? Whenever I hear ...
by crikklekay
Fri Dec 28, 2018 8:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversed!
Replies: 4
Views: 819

Re: Reversed!

That is fantastic! My husband was in the hospital for five days for his reversal, so seeing you were initially released after one day boggles my mind! I’m sorry you had an issue but glad it turned out OK. Ever since reversal he’s been doing well like you, I was so afraid he would have a lot of issue...
by crikklekay
Fri Dec 14, 2018 10:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancerversary
Replies: 8
Views: 676

Re: Cancerversary

My husband has been NED for 8 years now and I still suffer, when he seems completely fine. He has a routine colonoscopy coming up in a couple of weeks and I'm already starting to freak out. He tells me not to worry about it, no big deal for him. I think in some ways, it's harder on the caregiver. Y...
by crikklekay
Fri Dec 14, 2018 10:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancerversary
Replies: 8
Views: 676

Re: Cancerversary

Punky44 , I am wishing you so much good luck and strength to get through this! I know how hard it is and hope your mother does well. By next Christmas, this will just be one big awful memory. I'm thinking of you both. CrossfitChick1980 , I am so sorry your husband is having trouble. I hope your fri...
by crikklekay
Thu Dec 13, 2018 4:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cancerversary
Replies: 8
Views: 676

Cancerversary

My husband's diagnosis anniversary is coming up and the roller coaster of emotions is unreal. On the one hand, I'm flinging so much of my energy into Christmas in an effort for this Christmas to be so wonderful it blots out last Christmas that it can't be totally healthy (it certainly hasn't been he...
by crikklekay
Thu Dec 13, 2018 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Incomplete colonoscopy - worried about surgery
Replies: 7
Views: 884

Re: Incomplete colonoscopy - worried about surgery

My husband had the same issue except the mass was blocking his colon completely so we didn't really worry about anything other than getting him into surgery ASAP. After we were told he needed to finish his colonoscopy to make sure nothing else was going on but we'd have to wait for his colostomy to ...
by crikklekay
Thu Dec 13, 2018 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED!! Bit curious about surveillance scans
Replies: 8
Views: 935

Re: Still NED!! Bit curious about surveillance scans

Congrats on the NED! It makes me nervous but our Oncologist said that for John's staging once a year CT chest/abdomen/pelvis scans is recommended, with additional scans ordered if needed. We still have quarterly bloodwork and Oncologist visits, but I would feel better if we did scans twice a year in...
by crikklekay
Tue Nov 20, 2018 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Job Hunting After Treatment?
Replies: 3
Views: 348

Job Hunting After Treatment?

So one thing my DH's cancer diagnosis made us realize is that life is too short to be miserable. John has wanted to switch careers for a while now but the time never seemed right or we weren't in a good place financially for him to start somewhere new. Now that he's almost fully healed from reversal...
by crikklekay
Tue Nov 13, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe pain while walking after LAR
Replies: 7
Views: 487

Re: Severe pain while walking after LAR

My husband too had terrible pain after his LAR surgery to reverse his colostomy. It also took 24 hours longer for his gut to wake up than normal because his surgery was over 6 hours long, the poor guy threw up every bit of the liquid diet he had eaten that day. His pain was located mainly in his rig...
by crikklekay
Tue Nov 13, 2018 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Found mass at husbands first colonoscopy today
Replies: 19
Views: 1276

Re: Found mass at husbands first colonoscopy today

Does your husband work for a company of at least 70 employees? If so he will qualify for FMLA, which is unpaid but it will protect him from being laid off due to the time he'll need away from work and continue your health benefits if it's through his company. Our story is similar to yours, though we...
by crikklekay
Wed Nov 07, 2018 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 1651

Re: Almost 6 years

That is so amazing, I'm so happy for you!!
by crikklekay
Wed Nov 07, 2018 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation vs Bowel Blockage whats the difference?
Replies: 13
Views: 732

Re: Constipation vs Bowel Blockage whats the difference?

During treatment we were always told that after 24 hours without a bowel movement try Colace, then is the next day still no movement go with Miralax. If still no movement after that then call the doctor. As for the difference, while I have not suffered it myself my husband was diagnosed because of a...
by crikklekay
Fri Nov 02, 2018 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A touch of neuropathy
Replies: 11
Views: 725

Re: A touch of neuropathy

As everyone else said, definitely tell your Oncologist. My DH started feeling the numbness and tingles in his fingers and soles of his feet so she delayed his treatment by one week to give his body more time to recover. When he came back with no improvement she removed it altogether. I know taking B...
by crikklekay
Fri Nov 02, 2018 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HOPE officially three years clean
Replies: 11
Views: 940

Re: HOPE officially three years clean

That's wonderful! May she be NED for many years to come!
by crikklekay
Fri Nov 02, 2018 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 16
Views: 1457

Re: Foods to avoid during chemotherapy

We weren't told to avoid anything specific except for cold foods due to the Oxaliplatin, though I do second the try not to eat your favorite foods. It was my instinct to get his favorites to help him feel better during chemo, but that just made the taste change effect feel worse when that favorite t...

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