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by crikklekay
Tue Aug 25, 2020 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 1917

Re: Scanxiety and 2020

John just got back from his appointment, the paperwork says no evidence of metastatic disease! I'm so relieved! Though there was a line on the report that I'm confused about, I wasn't sure if anyone has come across this before? "A few tiny sub-5mm pulmonary nodules are likely unchanged, primari...
by crikklekay
Wed Aug 19, 2020 8:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 1917

Re: Scanxiety and 2020

All of this is positive, but the anxiety is still there (that thought : what if something bad happened in the last 6 months) and hits and numbs me when i least expect. I understand you and wish I could give you a hug to let us both know we are not alone. My goodness yes, you are exactly right! Some...
by crikklekay
Wed Aug 19, 2020 6:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 1917

Re: Scanxiety and 2020

Thanks everyone <3 John took the day off yesterday since he was unsure how long the scan would take. I’m glad he did, since I work from home that meant we could spend lunch together and having him close by helped. My brain is more likely to fully descend into the anxiety spiral when I’m alone. Now w...
by crikklekay
Mon Aug 17, 2020 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scanxiety and 2020
Replies: 11
Views: 1917

Scanxiety and 2020

I am not doing very well today. My husband's second year scan is tomorrow and it just hit me like a ton of bricks. My brain is having a hard time focusing and keeps throwing me flashbacks of being in the hospital. I normally have anxiety issues over tests and scans, but it feels so much worse this t...
by crikklekay
Mon Aug 17, 2020 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Remission!?!
Replies: 11
Views: 2467

Re: Remission!?!

I'm so happy for you! May your scans continue to be clear <3
by crikklekay
Mon Aug 17, 2020 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm still here! (cancerversary)
Replies: 10
Views: 1965

Re: I'm still here! (cancerversary)

That's wonderful! Congrats!!
by crikklekay
Mon Jul 13, 2020 7:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 798
Views: 330519

Re: For Stage III's: NED for how long now?

My husband’s second scan is coming up next month, if it’s clear he will be at 2 years NED! I’m a nervous wreck over it, I know 2 years is an important milestone. I guess technically he has had no signs of disease since surgery early 2018 but he wasn’t given the title NED until after his clear scan t...
by crikklekay
Tue Jan 21, 2020 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another anniversary
Replies: 11
Views: 2326

Re: Another anniversary

Congrats!! I hope one day I can also say my husband has been cancer free for 22 years. I'm so sorry about the horrible events happening in Australia, my heart goes out to everyone. I hope relief is just around the corner so the country can start to heal.
by crikklekay
Tue Jan 21, 2020 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Parastomal hernia
Replies: 9
Views: 1068

Re: Parastomal hernia

My husband's first surgery was an emergency so they had to use a very large abdominal cut, he has quite the gnarly scar! Unfortunately despite being careful during healing he has two incisional hernias and his surgeon told him not to worry about it unless it started causing a problem. He actually lo...
by crikklekay
Tue Jan 21, 2020 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 32
Views: 6000

Re: Neuropathy improvement: individual experience

My husband's last treatment was August last year, and our doctor recommended adding B Complex to his daily meds regimen at home to help with the neuropathy. She warned us that it could take years to see improvement but not to lose hope. I know it seems trivial, but recently his feet have become tic...
by crikklekay
Wed Aug 21, 2019 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thin scope for colonoscopy?
Replies: 6
Views: 766

Re: Thin scope for colonoscopy?

My husband initially only had a partial colonoscopy in the hospital because the tumor was blocking his colon (and thusly why we ended up there), so he had to get a complete colonoscopy months later. Unfortunately his stoma had shrunk a ridiculous amount and there was no way a normal scope would fit,...
by crikklekay
Wed Aug 21, 2019 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 Year Scan
Replies: 7
Views: 1081

Re: 1 Year Scan

Thank you everyone, I appreciate it <3 mobrouser I know how you feel, the scan and blood work are this Saturday but we won't find out the results until next Thursday! I'm not sure how I'll keep from worrying myself into a coma for five days but my coworker helpfully said "Just don't think about...
by crikklekay
Mon Aug 19, 2019 1:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 Year Scan
Replies: 7
Views: 1081

1 Year Scan

Long time no see! We're coming up on our 1 year CT Scan this weekend and to say I'm anxious about it would be an understatement. I have a hard time talking to anyone about scanxiety as they don't quite understand, and it's tiring when the response is a patronizing pat on the back coupled with "...
by crikklekay
Mon May 06, 2019 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 32
Views: 6000

Re: Neuropathy improvement: individual experience

My husband's last treatment was August last year, and our doctor recommended adding B Complex to his daily meds regimen at home to help with the neuropathy. She warned us that it could take years to see improvement but not to lose hope. I know it seems trivial, but recently his feet have become tick...
by crikklekay
Tue Apr 09, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering Diarrhea?
Replies: 5
Views: 996

Re: Lingering Diarrhea?

NEMD is apparently a fancy way of saying NED: "No Evidence of Metastatic Disease" It's what they listed on his last CT Scan so I put it that way in my signature. John had a horrible ostomy experience, retracted AND it shrunk down to only 11 mm in diameter. He leaked constantly as no produc...

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