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by crikklekay
Tue Nov 13, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Severe pain while walking after LAR
Replies: 6
Views: 247

Re: Severe pain while walking after LAR

My husband too had terrible pain after his LAR surgery to reverse his colostomy. It also took 24 hours longer for his gut to wake up than normal because his surgery was over 6 hours long, the poor guy threw up every bit of the liquid diet he had eaten that day. His pain was located mainly in his rig...
by crikklekay
Tue Nov 13, 2018 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Found mass at husbands first colonoscopy today
Replies: 9
Views: 268

Re: Found mass at husbands first colonoscopy today

Does your husband work for a company of at least 70 employees? If so he will qualify for FMLA, which is unpaid but it will protect him from being laid off due to the time he'll need away from work and continue your health benefits if it's through his company. Our story is similar to yours, though we...
by crikklekay
Wed Nov 07, 2018 1:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 25
Views: 785

Re: Almost 6 years

That is so amazing, I'm so happy for you!!
by crikklekay
Wed Nov 07, 2018 1:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Constipation vs Bowel Blockage whats the difference?
Replies: 13
Views: 399

Re: Constipation vs Bowel Blockage whats the difference?

During treatment we were always told that after 24 hours without a bowel movement try Colace, then is the next day still no movement go with Miralax. If still no movement after that then call the doctor. As for the difference, while I have not suffered it myself my husband was diagnosed because of a...
by crikklekay
Fri Nov 02, 2018 11:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A touch of neuropathy
Replies: 11
Views: 476

Re: A touch of neuropathy

As everyone else said, definitely tell your Oncologist. My DH started feeling the numbness and tingles in his fingers and soles of his feet so she delayed his treatment by one week to give his body more time to recover. When he came back with no improvement she removed it altogether. I know taking B...
by crikklekay
Fri Nov 02, 2018 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HOPE officially three years clean
Replies: 11
Views: 732

Re: HOPE officially three years clean

That's wonderful! May she be NED for many years to come!
by crikklekay
Fri Nov 02, 2018 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Foods to avoid during chemotherapy
Replies: 13
Views: 789

Re: Foods to avoid during chemotherapy

We weren't told to avoid anything specific except for cold foods due to the Oxaliplatin, though I do second the try not to eat your favorite foods. It was my instinct to get his favorites to help him feel better during chemo, but that just made the taste change effect feel worse when that favorite t...
by crikklekay
Fri Nov 02, 2018 11:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news
Replies: 8
Views: 584

Re: Good news

That's wonderful to hear, congrats!!
by crikklekay
Thu Oct 18, 2018 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quality of life on Folfox and others
Replies: 18
Views: 1824

Re: Quality of life on Folfox and others

My DH did all 12 rounds of Folfox, though near the end the Oxy was reduced due to neuropathy. The cold sensitivity didn't bother him much, we just kept a pair of knit gloves by the fridge, in his car, at his job etc to make sure he could snag them when needed. He works in the foodservice industry so...
by crikklekay
Thu Oct 11, 2018 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal
Replies: 5
Views: 519

Re: Stoma Reversal

Thanks for the tips guys! Surgery yesterday was long and complicated, 6 hours, but he did well and now we’re in the process of making him feel better. The surgeon mentioned he is at high risk for a hernia along his original site as she could see the wall was weakening there during surgery. So I get ...
by crikklekay
Tue Oct 09, 2018 9:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stoma Reversal
Replies: 5
Views: 519

Stoma Reversal

So we're finally here at this next major stage in my DH's recovery. He has been waiting for this moment, his time with an ostomy has been very hard and he can't wait to be reconnected. We're the first surgery slot of the day tomorrow and while our surgeon has told us of the dozens of possible outcom...
by crikklekay
Tue Oct 09, 2018 9:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here - My cautionary tale
Replies: 11
Views: 1269

Re: New here - My cautionary tale

We never got the chance to pick any of our doctors, by the time we were told by our GP to go to the ER for his "constipation" he could barely make it to the door. Found out that day if you can't enter into the ER under your own power you get bumped to the top of the list! I was so surprise...
by crikklekay
Mon Oct 08, 2018 11:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I am so worried.
Replies: 39
Views: 4014

Re: I am so worried.

When it came to my husband they didn't know if there was lymph node involvement until after the surgery, then they were able to test all the lymph nodes removed and see how many had been affected by cancer. I'm not sure if they show up on a CT scan unless they are swollen or otherwise have changed s...
by crikklekay
Fri Oct 05, 2018 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: High alkaline phosphatase?
Replies: 5
Views: 533

Re: High alkaline phosphatase?

Oh good! We were told it was normal for it to go up during treatment but that it should "go down after chemo ends" but I was never given a time window to expect. So when I saw it went up my brain was going "Wait, isn't that supposed to be a smaller number??". The oncologist said ...
by crikklekay
Thu Oct 04, 2018 12:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 2559

Re: New diagnosis and scared

Oh geez, your experience sounds a lot like my husband's: In the ER for dehydration and severe constipation, baffled the doctors so they sent in a GI specialist who ordered a colonoscopy who then found the tumor blocking his intestines. He will hopefully have his stoma reversed next week, so you're s...

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