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by crikklekay
Tue Jan 21, 2020 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another anniversary
Replies: 11
Views: 2135

Re: Another anniversary

Congrats!! I hope one day I can also say my husband has been cancer free for 22 years. I'm so sorry about the horrible events happening in Australia, my heart goes out to everyone. I hope relief is just around the corner so the country can start to heal.
by crikklekay
Tue Jan 21, 2020 4:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Parastomal hernia
Replies: 9
Views: 987

Re: Parastomal hernia

My husband's first surgery was an emergency so they had to use a very large abdominal cut, he has quite the gnarly scar! Unfortunately despite being careful during healing he has two incisional hernias and his surgeon told him not to worry about it unless it started causing a problem. He actually lo...
by crikklekay
Tue Jan 21, 2020 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 32
Views: 5648

Re: Neuropathy improvement: individual experience

My husband's last treatment was August last year, and our doctor recommended adding B Complex to his daily meds regimen at home to help with the neuropathy. She warned us that it could take years to see improvement but not to lose hope. I know it seems trivial, but recently his feet have become tic...
by crikklekay
Wed Aug 21, 2019 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thin scope for colonoscopy?
Replies: 6
Views: 718

Re: Thin scope for colonoscopy?

My husband initially only had a partial colonoscopy in the hospital because the tumor was blocking his colon (and thusly why we ended up there), so he had to get a complete colonoscopy months later. Unfortunately his stoma had shrunk a ridiculous amount and there was no way a normal scope would fit,...
by crikklekay
Wed Aug 21, 2019 10:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 Year Scan
Replies: 7
Views: 992

Re: 1 Year Scan

Thank you everyone, I appreciate it <3 mobrouser I know how you feel, the scan and blood work are this Saturday but we won't find out the results until next Thursday! I'm not sure how I'll keep from worrying myself into a coma for five days but my coworker helpfully said "Just don't think about...
by crikklekay
Mon Aug 19, 2019 1:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 Year Scan
Replies: 7
Views: 992

1 Year Scan

Long time no see! We're coming up on our 1 year CT Scan this weekend and to say I'm anxious about it would be an understatement. I have a hard time talking to anyone about scanxiety as they don't quite understand, and it's tiring when the response is a patronizing pat on the back coupled with "...
by crikklekay
Mon May 06, 2019 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neuropathy improvement: individual experience
Replies: 32
Views: 5648

Re: Neuropathy improvement: individual experience

My husband's last treatment was August last year, and our doctor recommended adding B Complex to his daily meds regimen at home to help with the neuropathy. She warned us that it could take years to see improvement but not to lose hope. I know it seems trivial, but recently his feet have become tick...
by crikklekay
Tue Apr 09, 2019 11:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering Diarrhea?
Replies: 5
Views: 901

Re: Lingering Diarrhea?

NEMD is apparently a fancy way of saying NED: "No Evidence of Metastatic Disease" It's what they listed on his last CT Scan so I put it that way in my signature. John had a horrible ostomy experience, retracted AND it shrunk down to only 11 mm in diameter. He leaked constantly as no produc...
by crikklekay
Mon Apr 08, 2019 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lingering Diarrhea?
Replies: 5
Views: 901

Lingering Diarrhea?

My husband had his ostomy take down back in October and other than watching a couple of numbers he’s been doing okay. A little over a week ago we both came down with some sort of intestinal bug and while we both got better his diarrhea is still lingering. No fever, bloating, pain etc just mild diarr...
by crikklekay
Fri Mar 15, 2019 5:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregivers and Post-NED Life
Replies: 3
Views: 922

Re: Caregivers and Post-NED Life

Well the results weren’t what I was hoping for, though the Oncologist seems unperturbed. Two of his bad levels improved, HGB and HCT have gone up so the iron pills are helping there, but his MCV and MCH have gone down for a second time. She explained this means that his red blood cells are small, bu...
by crikklekay
Thu Mar 14, 2019 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Im nervous
Replies: 8
Views: 1715

Re: Im nervous

I know nothing of liver mets, but I do know everything about scanxiety. It doesn't always help, but try to stay busy with tasks that don't let your mind wander. Spending time with family and friends, talking with coworkers, working with my foster cats, just generally doing anything that can get me o...
by crikklekay
Thu Mar 14, 2019 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Caregivers and Post-NED Life
Replies: 3
Views: 922

Caregivers and Post-NED Life

Whenever something seems to not be quite right or when we get close to a blood test/check-up I always get antsy and lurk on the board and online more in general. For the most part, I try to kick cancer out of my mind and just enjoy being with my husband and appreciating this time of NED peace. But a...
by crikklekay
Mon Mar 11, 2019 12:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice of colorectal cancer Survivors
Replies: 10
Views: 1567

Re: Seeking advice of colorectal cancer Survivors

All I remember is the Oncologist mentioning not to take any supplements that might cover up the effects of neuropathy. His general doctor said to take vitamin B to help the neuropathy but the Oncologist overruled, saying that it could mask the actual damage being done and she needed to know how bad ...
by crikklekay
Mon Mar 11, 2019 12:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Never mind
Replies: 18
Views: 2217

Re: Never mind

I'm not the one who has cancer, but it doesn't change the fact that this is the worst and harder thing I've ever had to face . And this is not necessarily "making it about me," it is just a fact. I also didn't see the original post, but I'm a caregiver to my husband and this statement rea...
by crikklekay
Mon Mar 11, 2019 11:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Marking time from first diagnosed or??
Replies: 10
Views: 1296

Re: Marking time from first diagnosed or??

We mark time from when the Oncologist declared John to have "no evidence of disease", though our Oncologist marks time from diagnosis which was confirmed right after surgery. Technically since they removed the tumor and there was no sign of metastatic disease he was "cancer free"...

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