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by crikklekay
Sat Jun 12, 2021 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recent HAI Pump?
Replies: 8
Views: 630

Re: Recent HAI Pump?

Oh I had no idea they stopped production! That’s distressing, I’ve read of so many people here benefiting from it. Hopefully someone will come up with a similar technology, it seems like directing chemo straight at the problem would be better than running it through the whole body and hoping it stic...
by crikklekay
Fri Jun 11, 2021 11:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signatera Test Came out positive
Replies: 15
Views: 1450

Re: Signatera Test Came out positive

Oh, this is wildly different from my country. I guess having to compete with a free social security drives the costs down in Spain. I just got the bill for the MRI, it was $8,146.68 without insurance and $100 with my insurance. I also got the bill for his PET scan, which was denied and over $10,000...
by crikklekay
Thu Jun 10, 2021 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here
Replies: 7
Views: 791

Re: New here

Hello, fellow Virginian! I'm unfortunately in the Richmond area so I can't share any recommendations, but I completely understand struggling with anxiety. It looks likely that my DH has a liver reoccurrence, though we don't have a biopsy to confirm yet. I've had bad test/scanxiety ever since he went...
by crikklekay
Thu Jun 10, 2021 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recent HAI Pump?
Replies: 8
Views: 630

Re: Recent HAI Pump?

I will admit his reaction did surprise me, considering how many people talk about it here. I haven't mentioned it to John's oncologist yet, I wonder if she would have a more positive opinion since wouldn't be looking at it from a surgical viewpoint? From what I've read, our local cancer center would...
by crikklekay
Wed Jun 09, 2021 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recent HAI Pump?
Replies: 8
Views: 630

Recent HAI Pump?

We just came back from John's surgeon consult about his liver met (assumed, they can't biopsy it so they're treating it as cancerous considering the CEA/history), and when he asked if we had any questions I inquired about the HAI pump. He looked absolutely dumbfounded and told me that "took him...
by crikklekay
Thu Jun 03, 2021 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Signatera Test Came out positive
Replies: 15
Views: 1450

Re: Signatera Test Came out positive

Your 2021 path mirrors my husband's a lot. His oncologist went from a CT scan to a PET scan because even though the CT was clear his CEA jumped up again. We haven't done a signatera test, I only heard about it recently when it was mentioned to me that he should ask for one. The PET scan did find a s...
by crikklekay
Wed Jun 02, 2021 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible Liver Met, So Many Questions
Replies: 3
Views: 723

Re: Possible Liver Met, So Many Questions

John's CEA was 12 on diagnosis, and until recently it was around the 1.5-2.2 range when it suddenly shot up to 5.1 in February. From there it has just continued to go up, his most recent reading was 10.5, which is why his oncologist seems to be sure this is most likely a met. I'm not sure what quali...
by crikklekay
Tue Jun 01, 2021 7:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible Liver Met, So Many Questions
Replies: 3
Views: 723

Possible Liver Met, So Many Questions

Man this has been a long tiring road of tests. Long story short, my DH John’s CEA suddenly started going up in February and after a litany of tests we just got the results from his MRI. Good news is they only found one spot, but bad news is his oncologist is pretty sure this is the reason for the CE...
by crikklekay
Mon May 24, 2021 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still Hunting
Replies: 21
Views: 1493

Re: Still Hunting

My husband has been dealing with a slowly increasing CEA since February, and his Onc started with a colonoscopy (clear) then a CTscan (also clear) but when his CEA kept going up she ordered a PET scan which had a spot lit up on his liver. Now we have an MRI this Friday to get more details on what's ...
by crikklekay
Fri May 21, 2021 8:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan Questions
Replies: 7
Views: 952

Re: PET scan Questions

We got our results back and unfortunately it wasn't the free and clear I was hoping for as a "hypermetabolic lesion" was found on his liver where it is covered by the diaphragm with a SUV value of 15.3. I'm guessing that's why it didn't show on the CTscan? The Onc let us know it is possibl...
by crikklekay
Thu May 20, 2021 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA is a yo-yo
Replies: 11
Views: 1127

Re: CEA is a yo-yo

Unfortunately not, though the Onc must of thought of that because we did have to use a new lab because of COVID so they tested it again in-house and it only came back .2 lower. He did forget to fast before his most recent appointment where it went up again, but she said that shouldn't have affected ...
by crikklekay
Wed May 19, 2021 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA is a yo-yo
Replies: 11
Views: 1127

Re: CEA is a yo-yo

Uuuggghhh I haaaate CEA. When John was in the hospital his CEA was 12 and the Onc told him that it was possible his blockage wasn't cancer as inflammation can cause high CEA and that wasn't a drastically high number. We weren't that lucky of course, and he has stayed in normal ranges until recently ...
by crikklekay
Mon May 17, 2021 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COVID Vaccine and CEA Increase?
Replies: 13
Views: 2575

Re: COVID Vaccine and CEA Increase?

CEA LEVELS ARE MY NEMESIS! Sorry you are having this stress, and worry. I may have missed it- but did you find any more out? I’m at a lab getting my CEA checked this very minute. Sending love Ksue Not yet, he just had the PET scan on Friday and we see the Onc on Thursday for the results. I'm so hap...
by crikklekay
Mon May 17, 2021 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan Questions
Replies: 7
Views: 952

Re: PET scan Questions

Thanks for your replies! Catstaff, you summed that up a lot better than what I have read so far so I appreciate it haha. And it's good to know that inflammation can cause the scan to light up too. Considering the whole reason we're doing this is a rise in CEA, maybe it will show where that inflammat...
by crikklekay
Fri May 14, 2021 6:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PET scan Questions
Replies: 7
Views: 952

PET scan Questions

John just left for his first PET scan, we should have the results on Thursday. I’m hoping and praying for a clear scan (man scanxiety is so much worse when his blood work isn’t in normal ranges), but I feel like I need to arm myself with some information just in case. His Onc is horrible about commu...

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