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by deebashari
Mon Mar 12, 2018 1:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Atezolizumab & Cobimetinib in microsatellite stable
Replies: 9
Views: 2393

Re: Atezolizumab & Cobimetinib in microsatellite stable

Albert, very glad to hear that you had such a good response! We are seeing more and more responses from MSS patients, with different mutations, from immunotherapy trials. So far, several have good responses and later there is progression, but that doesn't stop them from going for other immunotherap...
by deebashari
Mon Mar 12, 2018 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 160748

Re: TIL Immunotherapy at NCI

My Wife had lung wedge resection surgery this week 1/8/18 at NCI/NIH to harvest her TILs. Everything went well and today we will go home after she completes Aspheresis. Now we wait and see for 3 months if the harvested cells grow with the proper mutations. Incredible stuff going on down here in Bet...
by deebashari
Mon Mar 12, 2018 12:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment options
Replies: 16
Views: 4315

Re: Treatment options

I'm in agreement with Pita, if you aren't happy with your oncologist get a second opinion, preferably at a NCI cancer center. Don't give up hope keep fighting for your Mom. Prayers for both of you. HUGS, Teri Hi! Are you NED now? Have you considered immunotherapy? My mom has exact same KRAS G12V Mu...
by deebashari
Mon Mar 12, 2018 12:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment options
Replies: 16
Views: 4315

Re: Treatment options

If you put all the details in your signature (you can click the link in mine) about dx, tx, etc, it will help people be able to help more since there are different posts. We can then see it all on any post you make. Are you NED right now? My mom has exact same KRAS mutation G12V and MSS. If not, ar...
by deebashari
Mon Mar 12, 2018 12:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 160748

Re: TIL Immunotherapy at NCI

I'm on my way back from Bethesda after an NIH TIL trial follow up. The first scan wasn't very good, so I expected to be dropped from the trial today, but the second scan was mixed: some lesions slightly larger, some slightly smaller, so I may be getting some benefit after all. I'm scheduled to rins...
by deebashari
Tue Mar 06, 2018 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 160748

Re: TIL Immunotherapy at NCI

Hi sleen my mom is going for a consult for til trial. How long do you have to be in the hospital? Can she be at a hotel or does she have to be there for 4-weeks?
by deebashari
Tue Feb 20, 2018 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 5347

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

Hello! I am interested in a nivolumab trial for my mom. What is your MSI status? Are you non MSI-HIGH or MSI-High?



henry123 wrote:Hello
My latest cea value is 3.6
Almost normal.
Hopefully under 3 by next month .
Fingers crossed.
by deebashari
Fri Feb 09, 2018 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX REGIMEN SECOND TIME FOR PREVIOUSLY SUCCESSFUL TREATMENT????
Replies: 2
Views: 592

FOLFOX REGIMEN SECOND TIME FOR PREVIOUSLY SUCCESSFUL TREATMENT????

My mom is currently on Lonsurf and her cancer is slowly progressing. For example her last CEA climbed from 36 to her recent of 48. My mom was in remission when she first did FOLFOX regimen. Has anyone here did FOLFOX after cancer has metastasized? How was the response? How long were you able to tole...
by deebashari
Thu Feb 08, 2018 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 160748

Re: TIL Immunotherapy at NCI

Hi Celine, hope all is well. I am eagerly looking for a promising treatment for my mom. I’m a student and try actively looking for solution day and night researching. I actually cane across your story regarding your treatment at NIH. How was your experience? What was the response rate? Was it remiss...
by deebashari
Thu Feb 08, 2018 5:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV KRAS G12V NON MSI-HIGH
Replies: 3
Views: 619

Re: STAGE IV KRAS G12V NON MSI-HIGH

Thank you so much. I will look into it. Not easy to find information regarding colorectal. I am very happy that I able to learn and discuss on this platform. Wishing everyone happiness and good health. :)
by deebashari
Thu Feb 08, 2018 5:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GREAT news to share!
Replies: 11
Views: 1463

Re: GREAT news to share!

Amazing to hear. It goes to show that even in a dark tunnel you still can find light and find your way back. May he always be healthy. God is good. :)
by deebashari
Wed Feb 07, 2018 3:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV KRAS G12V NON MSI-HIGH
Replies: 3
Views: 619

STAGE IV KRAS G12V NON MSI-HIGH

Hello, this is my first post. I hope Im making this sound more like a discussion than a letter. I am student and trying to find a clinical trial for my mother. She was first diagnosed in 2015 with Stage 3 and her disease had metastasized in October 2016. She had done many chemotherapy regimens, radi...

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