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by deebashari
Wed May 01, 2019 10:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 128
Views: 27253

Re: Keytruda....Working for MSS....Mutation Burden is the Key

chadwick1 My oncology team prepared an appeal to my insurance company and to Keytruda's manufacturer explaining the new evidence that there may be benefit to MSS colon cancer patients that have a high mutation burden. They worked with Foundation One (who had amassed a lot of data based on their tes...
by deebashari
Mon Oct 29, 2018 9:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Major cancer centers/insurance
Replies: 26
Views: 2726

Re: Major cancer centers/insurance

Hi hope you’re doing well. You hold a very dimilar profile to my mom, are you NED? I looked into this earlier this year and I think that there's only one provider in my state and I couldn't determine whether or not they covered MGH or Dana Farber. I looked into the MA (neighboring state) options and...
by deebashari
Mon Oct 29, 2018 9:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH Tumor Inflitrating Lymphocytes Clinicial Trial
Replies: 1
Views: 286

NIH Tumor Inflitrating Lymphocytes Clinicial Trial

Hello,

Hope all is well. My mom is currently undergoing this NIH trial and may have to undergo pembrolizumb if there’s disease progression. Has anyone done pembrolizumumab in this trial? What was your result? Any updates on anyone NED from this?
by deebashari
Mon Oct 29, 2018 9:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 54
Views: 8191

Re: Stage 4 to NED- Please tell us

Hello there! So good to hear your doing well. Just curious were you MSS? I thought Keytruda isn’t provided for anyone non MSI high? Also, I’m dealing with my moms case. My mom has intermidiate tumor burden is that the he same as moderate? I’d love your input. Sending you warm wishes. I have been at ...
by deebashari
Mon Mar 12, 2018 1:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Atezolizumab & Cobimetinib in microsatellite stable
Replies: 9
Views: 2609

Re: Atezolizumab & Cobimetinib in microsatellite stable

Albert, very glad to hear that you had such a good response! We are seeing more and more responses from MSS patients, with different mutations, from immunotherapy trials. So far, several have good responses and later there is progression, but that doesn't stop them from going for other immunotherap...
by deebashari
Mon Mar 12, 2018 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 178248

Re: TIL Immunotherapy at NCI

My Wife had lung wedge resection surgery this week 1/8/18 at NCI/NIH to harvest her TILs. Everything went well and today we will go home after she completes Aspheresis. Now we wait and see for 3 months if the harvested cells grow with the proper mutations. Incredible stuff going on down here in Bet...
by deebashari
Mon Mar 12, 2018 12:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment options
Replies: 16
Views: 4832

Re: Treatment options

I'm in agreement with Pita, if you aren't happy with your oncologist get a second opinion, preferably at a NCI cancer center. Don't give up hope keep fighting for your Mom. Prayers for both of you. HUGS, Teri Hi! Are you NED now? Have you considered immunotherapy? My mom has exact same KRAS G12V Mu...
by deebashari
Mon Mar 12, 2018 12:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treatment options
Replies: 16
Views: 4832

Re: Treatment options

If you put all the details in your signature (you can click the link in mine) about dx, tx, etc, it will help people be able to help more since there are different posts. We can then see it all on any post you make. Are you NED right now? My mom has exact same KRAS mutation G12V and MSS. If not, ar...
by deebashari
Mon Mar 12, 2018 12:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 178248

Re: TIL Immunotherapy at NCI

I'm on my way back from Bethesda after an NIH TIL trial follow up. The first scan wasn't very good, so I expected to be dropped from the trial today, but the second scan was mixed: some lesions slightly larger, some slightly smaller, so I may be getting some benefit after all. I'm scheduled to rins...
by deebashari
Tue Mar 06, 2018 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 178248

Re: TIL Immunotherapy at NCI

Hi sleen my mom is going for a consult for til trial. How long do you have to be in the hospital? Can she be at a hotel or does she have to be there for 4-weeks?
by deebashari
Tue Feb 20, 2018 8:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC
Replies: 21
Views: 6016

Re: BREAKING: Nivolumab (Opdivo) APPROVED for MSI-High CRC

Hello! I am interested in a nivolumab trial for my mom. What is your MSI status? Are you non MSI-HIGH or MSI-High?



henry123 wrote:Hello
My latest cea value is 3.6
Almost normal.
Hopefully under 3 by next month .
Fingers crossed.
by deebashari
Fri Feb 09, 2018 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX REGIMEN SECOND TIME FOR PREVIOUSLY SUCCESSFUL TREATMENT????
Replies: 2
Views: 749

FOLFOX REGIMEN SECOND TIME FOR PREVIOUSLY SUCCESSFUL TREATMENT????

My mom is currently on Lonsurf and her cancer is slowly progressing. For example her last CEA climbed from 36 to her recent of 48. My mom was in remission when she first did FOLFOX regimen. Has anyone here did FOLFOX after cancer has metastasized? How was the response? How long were you able to tole...
by deebashari
Thu Feb 08, 2018 5:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 608
Views: 178248

Re: TIL Immunotherapy at NCI

Hi Celine, hope all is well. I am eagerly looking for a promising treatment for my mom. I’m a student and try actively looking for solution day and night researching. I actually cane across your story regarding your treatment at NIH. How was your experience? What was the response rate? Was it remiss...
by deebashari
Thu Feb 08, 2018 5:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STAGE IV KRAS G12V NON MSI-HIGH
Replies: 3
Views: 789

Re: STAGE IV KRAS G12V NON MSI-HIGH

Thank you so much. I will look into it. Not easy to find information regarding colorectal. I am very happy that I able to learn and discuss on this platform. Wishing everyone happiness and good health. :)
by deebashari
Thu Feb 08, 2018 5:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GREAT news to share!
Replies: 11
Views: 1853

Re: GREAT news to share!

Amazing to hear. It goes to show that even in a dark tunnel you still can find light and find your way back. May he always be healthy. God is good. :)

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