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by Eleda
Mon Jul 15, 2019 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1205

Re: CLUSTERINGGGGGGGGG!!!!!!!

Clustering is miserable, painful and time consuming. My radiation onc told me to never wipe my bottom clean. He said always "pat, pat, pat" and get the same results without hurting yourself. He also gave me several peri-anal bottles (I think that is what they are called) to squirt myself ...
by Eleda
Sun Jul 14, 2019 12:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 12
Views: 353

Re: daily enema HELP

tater wrote:bump to see if I can get additional responses

Did the bicarbonate not work for u ??? :(
by Eleda
Sun Jul 14, 2019 12:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No more CC Yipee
Replies: 9
Views: 432

Re: No more CC Yipee

Mc pudd First of all !!!!!! Did u get the bell??? Ur wife will have plenty of time on her own when ur gone Spend every minute with her,,,,,,,,,, As u would do!!!!!!! Do something fun if ur up to it with ur kids......m and leave them with a fun memory Easy for me to say I'm not in ur position But I'm...
by Eleda
Sun Jul 14, 2019 12:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1205

Re: CLUSTERINGGGGGGGGG!!!!!!!

Hi Suzie, I totally would go for ur option but ATM my mornings with the kids don't allow, In saying that, I've just giving up work so might b an option after summer, My surgeons nurse mentioned enemas to me if Im desperate ,and she said shes experienced and would go throug it with me so, obviously m...
by Eleda
Sun Jul 14, 2019 3:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1205

Re: CLUSTERINGGGGGGGGG!!!!!!!

Hi Mike, Don't know about the prune juice , ( worth a try) The recipy the Continance nurse gave me was Cup pitted prunes Cup rasins Cup currens Cup dates Cop of prune juice all in the blender Take 1xTbs 2x day I did this for 3 days ( stopped my bicarbonate) Was demented from clustering 25times avera...
by Eleda
Sat Jul 13, 2019 4:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1205

Re: CLUSTERINGGGGGGGGG!!!!!!!

Yesterday was worse then normal. I clustered and I don't know what caused it maybe it was the Jambalaya I made, My wife was craving it. I use the Zatarain's® Jambalaya Rice Mix - 8oz. Either way I hate Clustering, its burns the butt and It's annoying. Your day is pretty much shot. I miss my Ileosto...
by Eleda
Fri Jul 12, 2019 2:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Bleeding Post Surgery
Replies: 1
Views: 156

Re: Rectal Bleeding Post Surgery

To set ur mind at ease I've had the same.... Its the stitches in he anastomosis ( I assume) I'm post reversal and have Evan more bleeding but agian assume it's the anastomosis ( mine is coloanal) My numbers are low and had a a rectal exam during reversal, so I'm not concerned If u are contact ur sur...
by Eleda
Fri Jul 12, 2019 12:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mayo clinic coming to the UK
Replies: 1
Views: 143

Re: Mayo clinic coming to the UK

This is great to hear
I'm in Ireland so ( apart from bretix lol ) it will be of great benefit to us across the pond
Its funny ( NOT) I WAS Dx also Dec 2017 4th in fact @46
Adele x
by Eleda
Fri Jul 12, 2019 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1205

Re: CLUSTERINGGGGGGGGG!!!!!!!

Clustering is miserable, painful and time consuming. My radiation onc told me to never wipe my bottom clean. He said always "pat, pat, pat" and get the same results without hurting yourself. He also gave me several peri-anal bottles (I think that is what they are called) to squirt myself ...
by Eleda
Fri Jul 12, 2019 12:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1205

Re: CLUSTERINGGGGGGGGG!!!!!!!

Mike if I'm stressed it won't work eg , yesterday had to catch a flight to Spain. Had to b at the airport at about 9 am .... Awake all night worried, Then got up at 7 am took my bicarbonate ( :twisted: :twisted: :twisted: :twisted: :twisted: still waiting at 8!45 !!!!!) It always happens when I have...
by Eleda
Thu Jul 11, 2019 12:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just had my latest colonoscopy
Replies: 14
Views: 948

Re: Just had my latest colonoscopy

I'm 1.5 years out Ron so hopefully will follow in ur footsteps
Congrats ,,, long may it last

ADELE X
by Eleda
Thu Jul 11, 2019 12:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just had my latest colonoscopy
Replies: 14
Views: 948

Re: Just had my latest colonoscopy

wwroam wrote:Good news Ron.
My last prep was Plenvu, one of the newer preps.

I'm due my first ( technically) colonoscopy on Aug 12th since my surgery 1.5 years ago and have asked my surgeons secretary to ask him to prescribe be plenu also instead of the usual moviprep :twisted:

ADELE X
by Eleda
Wed Jul 10, 2019 4:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 12
Views: 353

Re: daily enema HELP

10g is about a heaped teaspoon , and the warm water is up to urself, ( how much u can tolerate) I make it about Enough to just drink it in 1go
Miwadi is similar to Kool aid,
Just a non carbonated drink to kill the taste,,, ul b very thristy,, so drink plenty all day
Good luck ,

ADELE
by Eleda
Tue Jul 09, 2019 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: daily enema HELP
Replies: 12
Views: 353

Re: daily enema HELP

For what it's worth I'll give u my routine,,, I've 3 small kids so have no time for enemas in the morning, I'm only 3 months after reversal and also had a coloanal anastomosis,,,, After an overnight fast( 12/14 hours) I take 10g sodium bicarbonate in about 30 MLS warm water on empty stomach (less th...
by Eleda
Mon Jul 08, 2019 6:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CLUSTERINGGGGGGGGG!!!!!!!
Replies: 33
Views: 1205

Re: CLUSTERINGGGGGGGGG!!!!!!!

jep wrote:Thank you Eleda..... I am going to share this with my husband, as he has really been struggling with this post radiation....

Do not leave the house for at least an hour after
I REPETE
"DO NOT LEAVE THE HOUSE" LOL

ADELE X

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