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by Eleda
Wed Aug 15, 2018 10:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RANDOM QUESTIONS
Replies: 3
Views: 68

Re: RANDOM QUESTIONS

My oncologist didn't want to try oxaliplatin again for obvious reasons, but I begged him to try again Susan so we will again on next infusion,, Extra steroid before during and after infusion and at a lowered amount (80%) He says not to worry if I can't tolerate it because the 5fu is the most importa...
by Eleda
Wed Aug 15, 2018 6:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RANDOM QUESTIONS
Replies: 3
Views: 68

RANDOM QUESTIONS

HI GUYS ¡!!!!!!!!!!!! I've lots of random stuff I need help with but don't want too keep jumping on people's threads or starting a new one for each question, so I thought I'd do this instead Can someone tell me the actual % of effectiveness of oxi???? ( Too may conflicting reports) I had a major lee...
by Eleda
Wed Aug 15, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Nausea/Vomiting BEFORE Chemo?
Replies: 4
Views: 80

Re: Nausea/Vomiting BEFORE Chemo?

I had a similar response prior to my results after my radiation, to see if it worked enough for me to avoid a permanent colostomy,,, and again the day before results,,, It's a horrible feeling when u can't control Ur body Mind over body as I'm a pretty strong person and I was not happy with my body ...
by Eleda
Tue Aug 07, 2018 7:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1158
Views: 98465

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Susan is that from the radiation Ur skin is still that bad??????
by Eleda
Tue Aug 07, 2018 4:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1158
Views: 98465

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Yes the husk is a good idea,, Showering with the open wound???? Sweet baby Jesus!!!!!! I dunno ???? Sounds excruciating :? And the sitz bath should be great n this case too,, I've a press full of imodium and miralax,,, depending on what I needed, but fortunately ATM neither,, as in doing mop up,,,,,...
by Eleda
Tue Aug 07, 2018 4:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1158
Views: 98465

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Can u not take immodium Mike to thicken Ur output therefore reducing frequency and liquidity??? And someone also recommend in a previous post a keto diet helped hugely!!!!
I'm beginning to dread the reversal period now!!!!!
Looks like a tough ride :| :| :|
by Eleda
Wed Aug 01, 2018 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Female Pains AFTER radiation, No Doc will Listen...
Replies: 43
Views: 4165

Re: Female Pains AFTER radiation, No Doc will Listen...

Hi there I was Dx a month after u Dec 4th 2017 Another date I'll never forget :( It's a tough road, but the be just had a reaction to oxaliplatin so it's been stopped before now so on 5fu only without any side effects,, my oncologist said that oxaliplatin only ups Ur chance by about 5% to which I do...
by Eleda
Wed Aug 01, 2018 9:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation induced menopause
Replies: 30
Views: 5090

Re: Radiation induced menopause

Wow, I can't believe Ur radiation oncologist didn't go through all this with u,, esp at a young age,,, Lee ita only now I realized Ur female lol My oncologist offered to pin my overies out of the way but it would delay treatment,,, Anyway I was done having babies and figured I was heading for menopa...
by Eleda
Wed Aug 01, 2018 1:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1158
Views: 98465

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Well done Mike,,,
On the final phase
I'll watch and read in anticipation of things to come,,,
Thanks for always posting, even just out of surgery,,, it's great for us behind to watch Ur journey

Adele X
by Eleda
Sun Jul 29, 2018 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blocked throat
Replies: 6
Views: 354

Re: Blocked throat

It happened to me on my first cycle nearly straight away after infusion and got progressively worse the next few days, apparently it is not a side effect ( which I assumed) but is an allergic reaction as previously said, so my oncologist refused to infuse oxi on round 2 and just gave lucovourin and ...
by Eleda
Tue Jul 24, 2018 6:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 78
Views: 7806

Re: Surviving radiation for rectal cancer

I don't know what I would have done myself Anne without this forum this past few months. Such educated people with balanced and reseherched information and impartial advice that's priceless only willing to help in any way.... All our experience are valuable to others behind,,, All hopefully of a goo...
by Eleda
Tue Jul 24, 2018 4:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 78
Views: 7806

Re: Surviving radiation for rectal cancer

Good luck Anne,,,,
U'll be fine,,,,,
For me that was not too bad so hopefully will be the same for u..........
Fingers crossed for u
ADELE X
by Eleda
Tue Jul 24, 2018 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP.....Oxaliplatin allergy
Replies: 6
Views: 212

Re: HELP.....Oxaliplatin allergy

I've just read a protocol for desensitizing to oxliplatin so I'm hoping he'll go for it, and add in the antihistamines prior,,, I really want to do this so I'll try anything and deffinatly suggest the benadryl thanks I was planning on taking my CBD and sleeping through this round because I knew what...
by Eleda
Tue Jul 24, 2018 11:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HELP.....Oxaliplatin allergy
Replies: 6
Views: 212

Re: HELP.....Oxaliplatin allergy

Thanks guys I'm still on FLUOROURACIL pump and leucovorin) But I feel like my holy grail of drug has been pull from under me, I I'm just will to put up with anything for the best chance of a good outcome, Which I know dying of anaphylaxis is obviously stupid but I think it's a reaction to the drug (...

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