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by Eleda
Sat Apr 20, 2019 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 14
Views: 297

Re: Reversals Any positives?

That's brilliant,,, No wound packing?? Ur doing amazing already Susan Long may it last... I'm doing good today :D So hoping tomorrow will b same, Still no complete control, but getting there,,, Going out tonight to a party (100 yards from my house incase I've to come home ) So fingers crossed it wil...
by Eleda
Sat Apr 20, 2019 11:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 76394

Re: Reversal Log: Experience,Problems, Q & A's

Sorry for all the question tminor5, I'm just very curious to everyone's journey!! I'm still confused as to having 2 ostomys as it's standard procedure after most bowel surgery u have one ostomy (choice of surgon as to Which) and then leek test If all is good then reversal is performed, because now h...
by Eleda
Sat Apr 20, 2019 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 14
Views: 297

Re: Reversals Any positives?

Hi Susan
How is the plumbing comming along????

ADELE X
by Eleda
Fri Apr 19, 2019 11:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 76394

Re: Reversal Log: Experience,Problems, Q & A's

Thanks Juliej ,,, I'd try anything at this point!!!!! Tminor5 I'm confused as to getting a temp colostomy then illeostomy before reversing????? I had an illeostomy and after reversal and a fisture should up next day( I noticed) and he was then going to give me a closteomy until the fisture healed bu...
by Eleda
Fri Apr 19, 2019 1:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 211
Views: 60774

Re: Mop up chemo experiences

Hi Susan Glad to hear it's all over, It was the day after I ate the food Susan that I went poo My surgeon starts you on lactulose immediately, accept for me because of fisture, but my god didn't need it. It's crazy because Ur hyper aware of the slightest sensation,,, Enjoy the all inclusive while yo...
by Eleda
Thu Apr 18, 2019 10:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversals Any positives?
Replies: 14
Views: 297

Re: Reversals Any positives?

I have to concur with the physillum husk I began only 2tbsp in the morning with a banana, but I'm a month out and I know some Surgeon won't allow this but I didn't Evan ask, my ass is on fire so I don't care what he thinks at this point Past 2 days fade been great, still going a fair bit but not bur...
by Eleda
Wed Apr 17, 2019 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 211
Views: 60774

Re: Mop up chemo experiences

Have a nice diner and I hope if a glass of wine last night :D :D :D Just think of the summer hopefully we will b fighting fit by then. I'm going to London June weekend And Spain n July So if I'm not optimistic :D :D :D So we will keep one another going What time is Ur op??? I'll b thinking of you an...
by Eleda
Wed Apr 17, 2019 5:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 239
Views: 54782

Re: Surviving radiation for rectal cancer

HI SUSAN I'm not Gona lie ,, ITS ROUGH!!!!! I may have turned a corner today??? Lol Slept for 5hours last night and only 5 times to the toilet this morning ( from 7/11am) clean up is less today which makes all the difference ( skin is in bits) It's like radiation all over again :( :( :( Accept for m...
by Eleda
Tue Apr 16, 2019 4:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 76394

Re: Reversal Log: Experience,Problems, Q & A's

I'm actually using them ATM miss Molly because of my incontinence :| STILL I'm absolutely in a heap ATM I'm 4 weeks out and (sorry for the graphic contents) My ass is bleeding from wiping ( water wipes or shower head only)........ Along with the cheeks of my bum ( using truckload of zinc cream and a...
by Eleda
Tue Apr 09, 2019 3:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 fu and oxaliplatin
Replies: 16
Views: 893

Re: 5 fu and oxaliplatin

I did 3 months 6 cycles apparently it's the new protocol, Its front loaded, so the latter mainly causes nothing but long term side effects, obviously it depends on the type of mutation cancer you have,
I'm n Ireland and we look to Slone Kettering and the UK For latest in treatment,,,

ADELE X
by Eleda
Thu Apr 04, 2019 3:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 fu
Replies: 9
Views: 493

Re: 5 fu

Because Ur father is stage 3 the protocol is chemotherapy after surgery because it has traveled into his bloodstream and could possibly be waiting there to grow again,,,,, of course it's always a personal choice and only you or he can make that, If it's any consolation I had to stop the folfox for 2...
by Eleda
Tue Apr 02, 2019 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Total or partial
Replies: 2
Views: 246

Re: Total or partial

Wow seems dramatic!!!!!
I've had all of my rectum ( pretty much) removed, and have just had my reversal ( writing from hospital bed)
It can b done and reconnected, but it's only then you will know if u will have any problems with it!!

ADELE X
by Eleda
Mon Apr 01, 2019 9:27 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 76394

Re: Reversal Log: Experience,Problems, Q & A's

At the moment miss Molly, I've now a fistula going from rectum to vaginal canal about 3cm from anal verge which I'm hoping will heal before we'd or I'm back to theatre to reverse my reversal to allow to heal,,, It's literally a pain in the ass, to see what problems a tiny leak in that area can cause...
by Eleda
Sun Mar 31, 2019 2:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 239
Views: 54782

Re: Surviving radiation for rectal cancer

I have them in the hospital Susan, they help but nothing prepares u for the amount of pooping u do initially afterwards and it's the cleaning is the problem,,, I'm n hospital 11days later sharing a bathroom with no flexible shower in the room so it's harder, If I were at home I'd go straight from to...
by Eleda
Sun Mar 31, 2019 12:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surviving radiation for rectal cancer
Replies: 239
Views: 54782

Re: Surviving radiation for rectal cancer

The gift that keeps on giving Susan !!!!!RADIATION!!!! And he streached my rectum during surgery so this may have caused it,,, It's not causing me extra pain Just extra problems And just a note for u, as I know u had it bad at radiation,,, my ass is burned to bits from shitting lol so BE PREPARED!!!...

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